i start year 5 of treatment in September....that said i have been at this very same point....in fact i'm still there ...slighlty....keep looking...could by KPU, metals, co-infection...can you imagine treating for over 4 years and just now finding out you have Babs? this despite never having air hunger or a night sweat...i swear the more you read the more i realzie that very little is the same from one case to the next....my point don't dismiss anything until you have tried to treat it....that's what i have learned..
i would have laughed at anyone 2 years ago if they said to treat KPU or have amalgams removed...get real!!...but i'm there...wishing i had pulled out all the stops before...i am now making progress again..
and just think i have had two very good, conmpassionate, knowlegable doctors... this crap is very hard to figure out.
Giving up is not an option.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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Maya12
Frequent Contributor (1K+ posts)
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posted
Well guys I think you are right on a bunch of things. I do need to be taking more binders. My doc gave me binders but I stopped taking them cause they made me feel worse.
Also was doing coffee enemas before till my puppy ate my enema ball.
I have been taking paracide as an anti bacterial, anti parasite treatment so I have been killing
But have a feeling I am just WAY to toxic and I am in fight or flight and will start the binders tonight.
Am also going to talk to my doc next week about stronger stuff.
I think the horrible mood stuff and constant negative anxious depressing thoughts come from the toxicity and the dan bugs fighting back.
Anyone else get constant negative anxious thoughts?
Also going to do the genetic testing
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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Thank you all for your support and suggestions. How much and often do most detox?
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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And can detox make you feel worse for the first few days?
Posts: 1632 | From Canada | Registered: Feb 2012
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I was concerned about the place your at now so have been doing some research. I found this and remembered that other people had discussed it before. I would absolutely talk to your Dr. about it but Niacin is cheap and may really help. This is from a long article by Dr. K
For the psychiatric presentations of Lyme disease Dr.K uses large doses of Niacin (not niacinamide and no-flush niacin). 3-6 grams in 3-4 divided doses shows results. It appears that Niacin has tremendous antibiotic potential against all types of Borrelia.
Hope this helps Truesun
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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Maya12
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posted
Wow thanks trusun, would you mind sending me the link to the dr k article, I will def talk to my dr about this
And sorry for the full mailbox cat girl , will erase some messages
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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posted
My dr is actually friends with dr k and German trained. They also speak at confrences together so I would love to see that article.
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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posted
And I want to try this,, thanks for doing the research
Posts: 1632 | From Canada | Registered: Feb 2012
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posted
I try to take a magnesium bath every day. Take charcoal once a day as well.
My daughter tells me that getting rid of heavy metals can mess with your emotions. You might find a restorative endocrinologist helpful to guide your metal detox.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Maya12...
I was like you...NOTHING EVER worked for me until I found hyperbaric. I am well now, no medications...no restrictions...I have my life back...
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Maya,
Adding salt/c to the antiparasitic herbs is what made a huge diff for me. I also agree that you need stronger antiparasitics and enemas. Killing the parasites is essential. Salt/c may just be the kick you need to get rid of some of these infections.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I'm thinking that maybe you should be on antibiotics? I know you did them for a while bug I don't think you gave a fair enough chance. Right when you COULD have been turning the corner you stopped seeing that llmd . I think it's time you gave it a fair chance
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Can you take something to relax you? All of this worrying can only make you feel worse.
If you don't want to take an Rx, what about something like Xymogen's Relaxmax? I have some and am going to take a scoop tonight.
I am focusing on calming down my autonomic nervous system (since it controls everything in the body), lowering inflammation and detoxing with a portable FIR sauna 1x/week. Plus taking a little bit of the one antibiotic that I know helps me, Minocycline.
I have been doing the Headspace 10 minute guided meditation each day (It's free for 10 days), and I actually feel better afterward.
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