posted
How do you test for protomyxzoa, what are the symptoms, and what's the treatment? I want to ask my doctor to test for me.
Posts: 723 | From boston,ma | Registered: Jan 2011
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posted
You have your dr. order the test/s from Fry Labs in AZ. Symptoms vary from person to person. Please do a search in here under FL1958 or Protomyxzoa, you will find lots.
NO one person has identical symptoms. But think more malaria, Fibro, MS, Parkinsons, lupus, and lots more, with what kind of symptoms we can have.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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nefferdun
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Member # 20157
posted
I believe this information is as close as it gets to correct.
Contact F labs in Scottsdale AZ for a test kit. It can be sent to your doctor or to you but you will have to have a doctor draw your blood and accept the results. They won't give the results directly to you.
My symptoms are/were profound fatigue, brain fog, anxiety, depression, muscle pain/cramping/twitching, joint pain, stabbing nerve pain, insomnia, nasal congestion, loss of voice, dry cough, cold extremities (hands, feet, nose), air hunger, headaches, bladder irritation and inability to concentrate and remember.
I also have antibodies against my thyroid. PR causes auto immune diseases such as Hashimoto's, Lupus and MS. 6 patients with ALS tested positive fore PR. 5 of them also had ralstonia.
If you were positive on IGENEX bands 23 and 41, that indicates you have PR.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
well whats the treatment?
Posts: 723 | From boston,ma | Registered: Jan 2011
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nefferdun
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posted
That link discusses treatment. I have heard there are several variants and your treatment depends on which one you have. I do well with Stromectol. Some people take anti-malarial drugs like malarone or Plaquinil or other anti-parasitic drugs like Alinia.
The whole foods low fat (less than 15 grams) vegan diet is critical. Some people can stay in remission with just the diet. I was, but then got re-infected with something else.
You want to address the biofilm with some of the things listed on that link, such as lactoferrin/boluoke and wobenzyme. You take these on an empty stomach and you should do it 2-3 times a day.
The biofilm is composed of magnesium and iron so you want to limit those in your diet and certainly not supplement them. Meat and egg yolk is very high in iron, which is another good reason not to eat it.
Lactoferrin binds with iron. Xylitol, a sweetener made from birch trees, kills the bacteria causing plaque and these two things have been shown to destroy biofilm on diabetic wounds as well as ear infections. This might be worth a try. I am trying it, again on an empty stomach.
I just bought a fat binder made from prickly pear cactus. It is supposed to bind with 27% of the fat you ate, or 240 calories, when you take it with a meal. If the 240 calories is correct that would be the equivalent of two TB of oil or 30 grams of fat. I hope this helps starve the biofilm and allows me to eat a little more fat.
Then I ordered a little machine (for $32) that makes liposomal oil that you can mix with glutathione, vitamin C etc. I will use phosphotydlcholine, the most essential oil requires by the body and mix in EDTA and a killer of some kind like maybe Artemix.
The idea, which is already being produced and sold for big bucks, is that the oil acts like a "trojan horse" to get into the biofilm (it needs fat) where the killer is released to do it's job.
EDTA breaks down biofilm by binding with the iron and magnesium. It also bind with heavy metals. I am currently doing IV chelation with EDTA and glutathione. It is slowly helping.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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MichaelTampa
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posted
I'm not so sure I'd say egg yolks are very high in iron. Looking around, looks like they have about 1.0mg per egg (almost all in the yolk). With a USRDA for iron at 12mg-18mg, that doesn't feel too high.
Here is link to a table of iron content in certain foods.
For those not aware, the iron in plants is "non-heme" kind, which is much less absorbed, unless vitamin C is eaten at the same time.
Posts: 1927 | From se usa | Registered: Mar 2010
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nefferdun
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posted
That's good about the eggs because I still eat them. I have even began very recently having an egg yolk once and a while - which is so good!
I ordered a fat binder. It is taking forever to get here. It will allow me to eat more fat and I can hardly wait.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Phoiph
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posted
"...If you were positive on IGENEX bands 23 and 41, that indicates you have PR..."
Nefferdun...could you provide a resource/reference for this?
posted
As to the Band 23 & 41 inference for PR, my situation may prove to be a relevant data point. Band 23 was the only band I showed as 'Present' on my standard LapCorp Western Blot taken back in August when I first felt sick. All other bands were 'Absent'. LapCorp WB Summary IgM P23 Ab = Present Lyme Ab IgM Interp. = Equivocal Lyme Ab Interp. = Equivocal Lyme Disease Ab/Total Immunoglobulins = 1.09 (ref range of 0-.9) Lyme Disease Ab, Quant IgM = 1.03 (ref range 0-.9) Lyme IgG WB Interp. = Negative Lyme IgM WB Interp. = Negative
Subsequent IGenex test about 1 month later showed me as positive for both anecdotal PR hallmark bands, 23++ and 41++ amongst others. Last week I did the Fry's PR specific test. I should have those results the 3rd week of January. My initial Fry blood smear in September was suggestive of PR and Bart. I would be surprised at this point if the Fry PR specific test came back anything other than positive.
I will post my Fry PR results back here after I get them.
Phoiph
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posted
j77...
Thanks for your post...it is good information, and will be very interesting to hear your other results...
Unfortunately, though, even if someone were to test positive for both 23 and 41 bands only, and also tested positive on another PR specific test, it doesn't prove a cause and effect relationship...only suggests a possible relationship.
I was just wondering if anyone has a reference to any research/reference on the specificity of these bands to PR...as is being frequently discussed on the forum...
Posts: 1883 | From Earth | Registered: Jul 2013
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posted
Sorry I'm confused this is my western blot CDC positive lyme results:
LYME DISEASE AB (IGG) WB POSITIVE 18 KD (IGG) BAND REACTIVE 30 KD (IGG) BAND REACTIVE 39 KD (IGG) BAND REACTIVE 41 KD (IGG) BAND REACTIVE 45 KD (IGG) BAND REACTIVE 58 KD (IGG) BAND REACTIVE 66 KD (IGG) BAND REACTIVE LYME DISEASE AB (IGM) WB POSITIVE 23 KD (IGM) BAND REACTIVE 39 KD (IGM) BAND REACTIVE 41 KD (IGM) BAND REACTIVE From Quest Diagnostics
Does this mean I have proto?
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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surprise
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posted
Labcorp WB are 'famous' for only coming back with band 23 present in a Lyme disease positive person.
I don't have a reference to post for that, just my experience from reading children boards, and my daughters experience.
Years ago on a 'whim' I bought a labcorp WB test online, no Dr. signature required, took her to a lab, turned it in.
Only band 23 came back present, I inquired on childrens' boards, researched, took to LLMD, then Igenex, rest is history.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Phoiph
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posted
Band 41 is reactive to the flagella (tail) of bacteria, and is non specific (meaning many bacteria and other organisms have flagella, and this band doesn't identify any one specifically)...
The article states:
"...Protomyxzoa does have a flagella and thus may be one explanation for a positive 41 kDa band on Western Blots for Borrelia...'
I'm still wondering if there is anything more solid in the research that ties bands 23 and 41 to FL1953/PR...other than it has a flagella, which, like other organisms, may be picked up by band 41...
Posts: 1883 | From Earth | Registered: Jul 2013
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posted
My LLMD never mentioned once about Proto after seeing my results. Which 41 band igg/igm
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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posted
Tbrown2- Did your LLMD run a Fry Labs blood smear? It's less expensive than some of the more specific tests they do, but it will pick up likely Bart and Proto infections. Officially, Fry Labs will recommend follow-up PCR testing when they find probable bugs... but many folks just treat based upon the initial test.
Posts: 58 | From Virginia | Registered: Nov 2013
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posted
If Proto is truly able to be transmitted by mosquitoes and other bugs as Dr. Fry suggests, I imagine that most of the US population has it to some degree or another. Whether or not it becomes an issue is likely due to what else is going on inside your body at any given point.
Posts: 58 | From Virginia | Registered: Nov 2013
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posted
I was never tested for nor was it ever mentioned. The only reason why I am even inquiring is because I happened to be looking at my western blot results which are CDC Lyme positive and I looked at what you happened to say about the 41 band. So does mean I defiantly have Proto? Or is it just a coincidence with the test results
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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Phoiph
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posted
Hi Tbrown2...
If you go back and read more of the thread, the question was whether or not there was any research/references to support that bands 23 and 41 are indicative of PR, as some member's posts have stated.
To quote Dr. F, "...Protomyxzoa does have a flagella and thus may be one explanation for a positive 41 kDa band on Western Blots for Borrelia..."
Note that band 41 detects a flagella (tail) of an organism, but doesn't tell you which organism.
In other words, based on Dr. F's quote, you can't say you do or don't have PR based on a positive 41 band only.
Posts: 1883 | From Earth | Registered: Jul 2013
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posted
Is it an igg band or igm band? Because if it's igm I have 23 and 41 positive but if it's igg then only 41
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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Phoiph
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Member # 41238
posted
Tbrown2...
Here's the only other reference/quote I could find related to PR and bands 41 and 23:
"...Bb Western Blot may show positive bands 41 and 23...DEFINITIVE DIAGNOSIS BY: specific staining technique with confirmation..."
In other words, according to Dr. F, having bands 23 and 41 (IgG/IgM not specified), may be suggestive of PR, but is not diagnostic; further tests are required...
Posts: 1883 | From Earth | Registered: Jul 2013
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posted
Tbrown, Get one of the Fry tests done for diagnostic quality information, there are several to choose from. Like any of these tests though, symptom analysis is important too. Western Blot banding is anecdotal or suggestive at best.
Posts: 58 | From Virginia | Registered: Nov 2013
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