LymeNet Flash: Lyme remission! POTS and Mast Cell disorder

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Lyme remission! POTS and Mast Cell disorder

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Topic: Lyme remission! POTS and Mast Cell disorder

Aimee
LymeNet Contributor
Member # 20946

posted

I used to frequent this board when I was acutely ill with Lyme disease. I currently have put Lyme into remission and have been symptom free from Lyme and confections for over a year. I treated with oral antibiotics for three years and then IV antibiotics for seven months.

During the course of my Lyme treatment I was also diagnosed with POTS and something called Mast Cell Activation Syndrome (MCAS). My physicians and I believe the POTS and MCAS were triggered by the Lyme infection. Since treating the MCAS I have seen a stabilization and improvement in my POTS symptoms.

For those of you suffering from POTS or sensitivities/allergies to the antibiotics used to treat your Lyme disease or chronic Lyme that is refractory to antibiotics I encourage you to investigate MCAS to see if it may be a possible issue for you. Many of the symptoms of Lyme and MCAS are the same so it can be tricky to discern the difference.

There were times when I didn't think I would ever put Lyme into remission. I hope it is an encouragement to someone who has struggled for years that it is possible. While I do have collateral damage from Lyme in the form of POTS and MCAS I am thankful to no longer need antibiotics and to have identified these remaining conditions and to have treatment in place for those.

If you have any questions please pm me as I don't frequent this board any longer. Praying for you all, keep fighting and researching and pushing for the treatment you need to get well!

Posts: 239 | From Virginia | Registered: Jun 2009 | IP: Logged |

Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915

posted

Congrats Aimee!

Posts: 1728 | From USA | Registered: May 2011 | IP: Logged |

lax mom
Frequent Contributor (1K+ posts)
Member # 38743

posted

What did you take for MCAS? Zyrtec and Zantac? or something else?

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♥ ♥ ♥ ♥ ♥
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

Posts: 2519 | From USA | Registered: Aug 2012 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Also wondering what the treatment is for MCAS.

So glad you are doing so much better! [Smile]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915

posted

Me too!

Posts: 1728 | From USA | Registered: May 2011 | IP: Logged |

ukcarry
Frequent Contributor (1K+ posts)
Member # 18147

posted

Great news, Aimee. Good luck to you!

Yes, it would be interesting to know more about the diagnosis and treatment of MCAS.

Posts: 1647 | From UK | Registered: Nov 2008 | IP: Logged |

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