LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Started cholyestremine

 - UBBFriend: Email this page to someone!    
Author Topic: Started cholyestremine
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Herx put it mildly. A packet. Called doc, said to take pinella, burbur 10 drops in little water and cut down, start at an eighth of apacket. The depersonalization was insane, my vision screwed up, lyme symptoms out joint pain..anyone else do this? Anyone know timing of Meds, supps and food with this? Thanks.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Regarding your timing question. From Burrascano, page 13:

"Two prescription medications that can bind these toxins include cholestyramine resin and Welchol pills. When take orally in generous amounts, the neurotoxin present in the intestinal tract binds to the resin, is trapped, and then excreted. Thus, over several weeks, the level of neurotoxin is depleted and clinical improvement can be seen. Current experience is that improvement is first seen in three weeks, and treatment can continue for a month or more. Retreatment is always possible.

These medications may bind not only toxins but also many drugs and vitamin supplements. Therefore no other oral medications or supplements should be taken from a half hour before, to two hours after a dose of one of these fiber agents.

Cholestyramine should be taken two to four times daily, and Welchol is prescribed at three pills twice daily.

While the latter is obviously much simpler to use, it is less effective than cholestyramine. The main side effects are bloating and constipation, best handled with increased fluid intake and gentle laxatives."


Take the warning about constipation seriously!!!

Take laxatives as long as you are on this binder, or you could end up in big trouble. Others have. One posted about it within the last couple of months.

My husband took Welchol to try to lower cholesterol. After about 3 pills he was so furious over the constipation that he refused to take any more of it. I gave it away to a poor lyme patient!

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147

Icon 1 posted      Profile for ukcarry     Send New Private Message       Edit/Delete Post   Reply With Quote 
That is why people with Bile Acid Diarrhoea often take Cholestyramine or Welchol to help soak up the excess bile and thereby stem the diarrhoea.
Posts: 1647 | From UK | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Anxiety soldier
Member
Member # 43885

Icon 1 posted      Profile for Anxiety soldier     Send New Private Message       Edit/Delete Post   Reply With Quote 
The only thing that helped me out with constipation is....

Natural calm magnesium citrate powder, that you mid in a little warm water is the only thing that helped me on cholestyramine.

Life saver [Smile]

--------------------
Bartonella (Rifampin 300 mg 2x day, A-Bart, A-Iflam)
Toxic mold exposure (Cholestyramine 4x day)
Heavy metals
Marcon staph infection (Beg spray)

Posts: 53 | From Maine | Registered: Jun 2014  |  IP: Logged | Report this post to a Moderator
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077

Icon 1 posted      Profile for CherylSue     Send New Private Message       Edit/Delete Post   Reply With Quote 
I started with 1/2 packet of CSM and it put me in a tailspin. I was sick a day and a half. Felt loopy and strange.

It works for some and not others.

[ 06-28-2014, 05:09 PM: Message edited by: CherylSue ]

Posts: 1954 | From Illinois | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Did it help anyone with depersonalization.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Back to a packet today

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Be careful, putnam.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tkx tutu. Called dr h. Had diarrhea so bad day before said take packet to bind. Did yesterday. Dp bad but it is everyday. At quest for bloodwork now. Also cdiff test. Even though I'm numb god has to be with me.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Praise the Lord for his mercy.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Liver numbers really went up? On a lot of supps. Anyone have snyone ideas since I started this?

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Doesn't process in the liver. Pulling out supps?

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
"These medications may bind not only toxins but also many drugs and vitamin supplements. Therefore no other oral medications or supplements should be taken from a half hour before, to two hours after a dose of one of these fiber agents."
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ive been doing that. Liver numbers elevated much. Thanks much.10 minutes of clarity yesterday. What a blessing to see clouds and just not to be in the in between worlds. God make it last. What am I doing wrong???????

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
springshowers
Frequent Contributor (1K+ posts)
Member # 19863

Icon 1 posted      Profile for springshowers     Send New Private Message       Edit/Delete Post   Reply With Quote 
Are you supporting your liver with herbals or supplements ?

If your not doing coffee enemas I highly recommend them and I used them while on Cholestymine and it worked out really well !
As well as while on any treatment and a way to manage toxin release. Amount all the other detox methods. But for liver directly Coffee enemas are great

Posts: 2747 | From Unites States Of America | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
My pharmacist said give it more time in between to pull out toxins. Doing one hour before two hours after,

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.