Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
nope...not a chance of that. the machine said I used the mask for an hour and a half... but didn't sleep. then I got a migraine... so that was my night.
Posts: 1728 | From USA | Registered: May 2011
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96220 | From Texas | Registered: Feb 2001
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I have not tried the CALM Tutu. but taking the re-mag. my muscles feel great! I was feeling really great all over-- until they started to mess with me!!!!
I did take a half of ambien -- but as a test used the one's left over from the good brand... of course it didn't work cause it is milder and I am now hooked on the evil brand.
I may just go cold turkey-- and when I can't function anymore go on disability...
for anyone looking for info on Gaba and L-Theanine... found this article...
posted
I'm so glad the ReMag is working for your muscles! Have you tried taking some at bedtime? I always do.
Have you called your doctor to ask for the other Ambien? You can even get them to over-ride the generic. They can put in a request to your insurance company.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96220 | From Texas | Registered: Feb 2001
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Yes I do take the remag at night. It does help... I believe it's why I was able to go down in dose.
I feel like right now, I have to lay off asking for anything ambien related for a while... Be a good, compliant patient and give everything a chance... So I can say I really tried.
Posts: 1728 | From USA | Registered: May 2011
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Ok... Now I think their plan is to make me so miserable that not sleeping very well seems like a treat.
Last night no pills. No machine. I spent a lot of time lying there with my eyes shut... But I must of slept cause I woke up pretty peppy.
Posts: 1728 | From USA | Registered: May 2011
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi all-
I went to a sleep doctor and was given Ambien- made me feel Horrible and I did not sleep-
Ambien scared the hell out of me and stopped taking it after 3 nights-
I had also talked sleep doctor into giving me Valium -
Valium helped me get a good nights sleep- it has been the only thing that has worked -
Sleep doctor decided that I was not abusing Valium and now prescribes it to me --
Another thing that really helps me sleep is having back ground noise -TV -
I made a Youtube channel that is full of interesting science shows - shows play contentiously and it really helps me sleep threw the night-
Boring or news shows dont work- for me it need to be something interesting- I have no Idea why but it works for me-
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I finally had my first good night's sleep in ages.
My doc recommended phosphatidylserine before bed. I'm taking it along with glycine and l-theanine.
I use to depend on Ambien, but then insurance stopped paying so I had to find and alternative. It's taken years.
Good luck. I forgot what it was like to sleep.
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
Groovy.. glad the Valium is working. Pretty addictive stuff though.
I hate taking things that are hard to get off of .. like my Nexium!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96220 | From Texas | Registered: Feb 2001
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
groovy, glad valium is working for you. It makes me drowsy but keeps me in this spin of falling off with a thought and then waking abruptly with the unfinished thought-- even if it isn't a pressing or stressful thought...
Judie, I will be looking up phosphatidylserine. I never heard of it. is it reccommended that it be taken with glycine and l-theanine?
after a month of trying to get down on ambien, with my evil "made in the usa" generic. or even worse afraid to take anything... and a full week and a half of no sleep, migraines and sinus and tooth aches from trying to use the CPAP. My pcp seems more interested in helping me, at least communicate with the sleep dr about ambien. She is all for me getting the brand I was used to and cutting them in half (duh, kind of like I was doing!) but needs the scripts to come from sleep dr. but seemed to be more open to it if I could stay at of below 5mg.
she also, gave me a method of cutting down. 1 week 5 mg. 2 weeks alternating 5mg and 2.5mg. 2 weeks 2.5 mg, 2 weeks or more alternating 2.5 mg and none. until I can do none.
she also suggested I try melatonin-- not sure if that is while cutting down of after-- anyone know?
[ 10-10-2014, 05:45 PM: Message edited by: Kudzuslipper ]
Posts: 1728 | From USA | Registered: May 2011
| IP: Logged |
posted
Background noise (like a fan) helps tremendously but I also take Ambien CR which means it lasts 8 hours. Most nights I get a good night's sleep. The secret is, BE IN BED WHEN YOU TAKE IT!
One night I was fooling around cutting mats for my art work after taking the Ambien. Earlier that week I had bought some hair extensions and had each one rolled up on a roller to make them look more real (about 10 of them) and had them in a plastic shopping bag.
That night I stayed up late after taking the Ambien, worked on some artwork and cut some mats. For some reason, I walked into my daughter's room and told her I had some treats for her dogs.
She said, "Mom, it's 2:00 a.m. in the morning!" I told her to look and see what I had for her pups and then proceeded to pull out the rollers each one with a hair extension on it, one by one and showed her the "treats" for her dogs (she has two dogs sleeping with her).
She asked me the next morning if I remembered doing all that and I told her no. I vaguely remember going in her room but that was it.
So, the main thing to remember is: Be in bed when you take your Ambien and you will have a good night's sleep. At least I do.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sandy,
Even taking ambien in bed . . . Some people later get up out of bed, even grab the car keys and drive, unaware. If you had that experience, I'd be extra cautious as to if you might ever get up out of bed and do various things, unaware.
It's not that rare, actually. There have been several traffic accidents due to this.
NYT - Ambien Drivers -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
"Judie, I will be looking up phosphatidylserine. I never heard of it. is it reccommended that it be taken with glycine and l-theanine? "
Gosh, I don't know. The glycine and L-theanine were an ND's recommendation when I got off ambien. This was before Lyme.
Lyme made my sleep go cuckoo. My Lyme doc went over my supplements (suggested glycine, I'm already on it) and suggested adding the phosphatidylserine.
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sadly, the article is about developing drugs to "turn on" or "turn off" - they say they are about understanding better, and that's a good thing but make no mistake, it's all about developing uppers and downers.
Now, this may (more may not) be good for the military but for the general public
- and especially for those ill with things that cause insomnia but go untreated or undertreated (such as stealth infections connected with alzheimer's, since they are targeting that population for this drug developement, too)
or those with dysfunctional body organs/ systems that go unsupported or are stimulated by day with so many food additives, etc. the wrong kinds of lighting, TV techniques that would overstimulate a rock - harsh beeps / buzzes on every appliance and gadget we own even our toothbrushes can wake up our brains, really (and all those beeps are far worse in medical centers) -
- I think it can be very dangerous to keep looking to drug developments to boost us by day and knock us out by night.
This is not just to offer drugs that people want but also drugs that nursing homes can use to control residents, when it come to alzheimer's patients being one of their target groups, you can bet on that.
It's easier and more profitable than treating the cause or support the body with nutrients or by behavior that work with the body's natural rhythm.
There is hope, though in one sentence:
"This study will help determine if these drugs can replace sleep,
“or if there is something so important about sleep that no pharmacological intervention can replace.
What are the links between sleep disruption and cognitive decline?”
I just hope she / they have zero influence from the pharmaceutical industry. Though, that's not likely.
We already understand so much but ignore it. Take out the fluorescent lights in nursing homes and colleges, get people unhooked form TV (especially commercials and especially for action movies) that sends the brain to the moon a million times a day, etc.
We have a lot of the knowledge but other industry is so tied into boosting us every waking moment that we are just sitting ducks when it comes time for sleep. So we settle for a mallet to the head to knock us out, for it's the only way we'll be able to settle down.
I do think it's human nature, though, that when awake to want to be engaged and our TV, our internet is the campfire / storyteller of our time. What would good is to figure out a particular kind of screen or light -- or action "blocker" of sorts to engage at 5 p.m.
Massage teams for every neighborhood? Nighty-night storytellers? Kumbaya clubs? -
[ 11-01-2014, 06:00 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Tonight: Daylight Saving Time Begins for most of us. Maybe I will reset my clock now and see if that helps prevent that first week zombie sensation that seems more prevalent in the fall than winter.
Those with light boxes: time to dust them off and rev them up at first light, eh?
I hope those researchers really look to light & sound for a lot of their answers about sleep. The wrong kinds of light, the wrong times . . . and too much or irritation noises, even if low key, do derail sleep for everyone.
The liver, too, is a major player that I'd bet all the money I have that they don't even consider. A stressed liver simply will not allow good sleep. And so many drugs really stress the liver so that's why the boomerang effect so often, I think.
I wish some of the top naturopathic researchers would get grant money like this. I'd like to see some on this team, too.
What if that grant money was invested to kill the beeps on medical machines and replace those "alarm" tones with a system that was not alarming to the brains of patients - and care givers alike . . . and a lighting system for care centers that is not going to offset anyone's sleep cycle.
Is it any wonder why care givers might need drugs to calm down? And then to boost up the next day from all this assault?
Helping the most critical care patients and those who work with them with this seems the best investment first. I think we have lost sight of some of the most obvious causes.
The military, too, has some similarities in shift workers, and light, noise and all kind of adrenal overload -- or even fatigue to overcome in the twilight hours while being alert on duty can matter so very much.
Professional drivers and pilots (well, really anyone who drives, too) would also make be excellent group to keep in mind with any of this research. And this is where drugs to turn on and off can be a slippery slope.
We tend to forget the actual real time our brains take to adapt from being engaged to getting to an actual slumber zone.
I wish this kind of research would be about finding answers more so than developing a product, though. My guess is that this grant money is tied to development of marketable end product. It just sounds like that so my radar got tweaked.
Still, of course, we can still learn from what they learn and apply in our way as well. -
[ 11-01-2014, 06:50 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/