posted
rzh1 - I absolutely never thought Steve had babesia microti - that is one of the major issues with the case. The docs initially only tested for that species when previously hubby had only ever had antibodies to babesia duncani.
And it doesn't really matter what the Virginia Dept of Health thinks - what matters is the patient's medical records which were ignored.
The case will not say that it is a missed diagnosis of babesia microti - what it will say is that it is a missed diagnosis of a babesia like blood borne protozoan. I am not naming the species because that is not really known at this time. If the hospital had reported the case to the CDC as they should have then we might actually know what species was involved.
One of the reasons a blood smear is the gold standard test for babesia is that it can detect other species besides babesia microti and babesia duncani. There have so far been at least 10 species worldwide which have been found in humans.
I personally think one of the reasons many people in the U.S. have to treat clinically is because so few labs offer tests for any of the other species besides b. microti and b. duncani.
That is one of the things I plan to do when I win my case - I want to fund research into the other species that I think are being missed in humans. Fry Lab verbally told me about a year ago that they are researching at least half a dozen different protozoa besides FL1953. So there is evidence that people are infected with other species - it has just not made it into the medical literature yet.
posted
rzh1 - My final word on the subject. Steve and I learned early on that you can't be diagnosed with something you are never tested for if the doc does not believe in clinical diagnosis and diagnoses only based on test results.
If you don't do the test it is easy to say someone does not have an illness. But there is no validity in that claim unless the illness is tested for and comes back negative. And even then the question is how valid is the test.
Not knowing how to test for an illness is inexcusable in my book. There are many resources a doctor and hospital have to find out the correct tests for any illness.
And when you have a month to look something up and do not do so that is even worse.
And yes, the docs knew what they should be testing for - there were 4 letters added to the file including the CDC guidelines on how to test for babesia among other things.
A quote I read somewhere seems to fit here - In the information age, ignorance is a choice.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
" The hospital docs not only did not look at the flash drive I gave them, but they lost it."
Good lord! That hospital sounds so incompetent. I'm so sorry it's such a string of BS that you've had to deal with Bea.
I really want you to win!!!
"And then to top it off they said, and even if he had babesia, we treated him for that. "
Wow, that sounds like negligence to me.
Don't listen to the doubters Bea. I have faith there's a lot of evidence that you have and it would take too much time to post it all here on Lymenet.
Keep going!!! Do what you need to these next couple weeks and don't give up. It's not over yet!
Posts: 2839 | From California | Registered: Jul 2012
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
GOd bless!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Believing that God is with you, and leading you, Bea.
Praying for all that you need.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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