Silverwolf
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Member # 9196
posted
Hello <<<<< Lymetoo, ukcarry, gz, and any other Lyme Family reading >>>>>,
Lymetoo, was trying a sample of Zantac, when this round of chemical flu hit, had a strange rash on my chest show up. So I've been getting things under control as best I can,and will try again in a day or so. i hope it will help.
Thanks for the new links, I'm collecting and reading the different links, to try to understand what's up and how to treat this mess.
Ukcarry, About added ingredients and fillers, I want to know too,why do they put lactose, sorbitol, and other stuff. There are odd things in skin care/hair care products too.
That sorbitol is even in a cream that TxC' and I use to fight heat rash,and athletes foot. Why does it need to be in that product. LOL, we're certainly not going to need it to taste good. It's not for ingesting!
Gz, how are you doing? Are you feeling any better? I know the Lyme and Co-infections is difficult to fight, and sometimes what helps one or two folk wont help the next one.
The foods lists are, a handful and a half to deal with, what is safe, will something else affect us suddenly that was okay before?? At least they are a starting point.
I am also going hunting for links on safe hygiene products, skin and hair care and so on. Way to many of the products I've been using have ingredients that just are not good for us. We've tried to use caution,but they keep adding in junk.
Lymetoo, aging and reduced finances is scary, I fall in between ,on many things. To young to get this benefit,to old to qualify for that one. TxC' is 4 years, 11 months and one day older than I am.
We've been looking into options since we moved, and there aren't many available. I will be on a list for hearing aids soon, but it can take up to 18 months. And it will depend on if available vendors can meet the need.
Tinnitus/Hyperacusis and Musical Ear Syndrome w/ worsening Nerve deafness issues can be hard to work around. I've heard that the specialty aids to cancel-out/equalize some of the tones that ring in the ears are very expensive.
Figured it is worth taking a chance ,if they can find something that helps any. We cannot afford it on our own at this time.
Gotta go, TxC' is back from clinic and working on a late lunch for us. BBL...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
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Just Silverwolfi here,
Wow, that link- slide share on Working with Histamine overload has lots of info', even chemicals to avoid in hygiene skin care products and such.
The other one on mast cells, from Natural Nutmeg link is also very interesting!!! Thanks again for finding these <<<<< Lymetoo >>>>> !!!
Jus' me
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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You are welcome .. Have you been able to figure out if you are reacting to the salicylates?
I know I am for sure and found out that what I put on my skin is way worse than what I eat.
In other words, making sure there are no salicylates in my shampoo or skincare makes me way more functioning than just avoiding them in foods. Hope that makes sense.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo, and Others Fighting the Histamine Intolerance and Allergies Issues >>>>>,
Happy Easter and Passover to All !!!
Lymetoo, I'm still not sure what all is causing this, but am suspicious it is a combination of things. And I agree,it is wise to use caution w/ skin and hair products, cleaning products as well.
I am highly suspicious, that certain combo's of chemical may set off the problems. I am eating carefully,and trying to note any problems and symptoms that show up.
Really suspicious of a texturizing spray I used, it has salicylates in it, as well as oils of several herbal plants. I had some rashes show up, still some on my arm. Behind my ears and on my sternum-chest area is better, it was broken out a bit.
I'm gonna have to print up the foods, safe and not safe, and chemicals lists, so we can check when we purchase items. Then we can find safe foods and hygiene products.
I've even had problems w/ women's sanitary napkins/incontinence liners. So had to go to using cloth products [a friend made them].
I think it is the bleaches and chemicals they use to make the products. The symptoms can be exceedingly uncomfortable to say the least.
Have to get control over all these issues tho', else I'm stuck in the house most days W/ 'IBS'/IC and food poisoning like symptoms.
So I will continue to search and see what I can find that I can tolerate, and is economical.I am going to try Zantac again this evening, and hope for a good response, if it helps that'll be fantastic!
Here's hoping that all Lyme folk who are suffering with the HI/ and Allergy attacks can get some relief.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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WPinVA
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For skin products, you may want to check out the Free & Clear line. It's worked for me.
Posts: 1737 | From Virginia | Registered: Aug 2011
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WP ... I have the Free and Clear shampoo but I am reacting to it. I think it has coconut in it, which is high in salicylates. (sigh) I have yet to find a shampoo I can safely use.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< WPinVA, and Lymetoo >>>>>,
The next time I am able to get out, I'll see what I can find that is, hopefully, safe, and economical.
I had heard of Free and Clear shampoo, but have not used it. Have to check more on what is safe, and hope I don't react to anything else.
Lymetoo, that Healthy Pixels link is really info' packed, all tho' some of it seemed almost contradictory. it truly is a complex problem.
The various links are really full of information tho'. So that is why we want to print some of the lists of safe/unsafe foods and chemicals.
That will give us a guide to refer to,and maybe help identify some of the problems.
I'll be glad to get this puzzle figured out, hopefully fairly soon. Between Lyme and Co's, Histamine Intolerance, Allergies, Diabetes, and general stresses. I feel like a prisoner in my own home.
I appreciate the information links greatly!!! Here's hoping that each of us, suffering w/ these problems can find an answer to help us toward healing and betterment of our health.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Lymetoo, are there conditioners you tolerate well? Many hair types do well being washed with conditioner instead of shampoo. I use a cheap silicone-free conditioner for scalp washing, I had to give up sha mpoo a long time ago.
Sensitivity to topical salicylates easily explains the raging dermatitis I'd get from exposure to certain lotions! Now I mostly use pure oils or make my own skin care products because of the reactions and sensitivities.
Posts: 474 | From US | Registered: May 2014
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Silver.. I found it a bit confusing too. I need to read it again.
gz .. I never use conditioners. I doubt I would have any better luck finding a clean one. Last year I sent back the shampoo from Cleure, but I may need to order it again!!
I didn't like it because it didn't lather at all. Just really wasn't happy with it, but I didn't realize how sensitive I was... or at least how sensitive I would become.
I use safflower oil on my skin. That is all I use.
gz .. What is the conditioner you use?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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It's a cheap one from the Dollar Tree. Spa Haus I think, comes in a green bottle. Sometimes I get scared it's discontinued because it disappears for long stretches. Tried lots of conditioners, it's the only one my scalp agrees with.
Conditioner doesn't lather like shampoo, but it is very cleansing. Another alternative for hair might be washing with Indian herb powders like shikakai and aritha, can add others like brahmi, tulsi, etc. Aritha is soapberry, or soapnut, which is what I use for laundry. Soapnuts are very gentle, can use them for washing body, hair, or even general cleaning in the home. They are also extremely cost efficient.
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Silverwolf
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Hi there <<<<< Lymetoo, gz, and any others on the quest to stop the Histamine Intolerance problem >>>>>,
Gz, the Spa Haus conditioner,at least may give an option, I've heard of soap nuts before,but don't know much about them. Have to investigate and see what we can find here.
I hope you're feeling better, and getting some helpful options for treatment! I'm hangin' in here, trying to figure out for sure the causes for me.
Hey, Lymetoo, I am starting the search for skin and hair products that wont break me out, or make dandruff- eczema flare. So I've been watching for ideas here.
Are you feeling better? Sorry to hear that you were having issues over Easter. I don't get out in the mornings, so TxCoord let me know about services. Lately I haven't been out in the afternoons either, since this HI/allergy mess has gotten bad.
We are looking in to recorded messages from our church services. They had some sort of problem awhile back but I think it's up and running again. Until I can get out a bit more often, that will have to do.
I am hopeful that changing what I eat and the products I use will calm all this down. It is taking some time for us to find out what is setting it all off.
This is a great thing about LymeNet, we can come and ask questions and share information. it's a huge huge help!!!
Jus' Silverwolf here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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quote:Originally posted by gz: Aritha is soapberry, or soapnut, which is what I use for laundry. Soapnuts are very gentle, can use them for washing body, hair, or even general cleaning in the home. They are also extremely cost efficient.
- Oh, thank you!!! I have soap nuts! I love them. Not sure they are salicylate free though. Hmmm.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silver, yes I'm feeling better. I was not happy about having to miss Easter Sunday! GRRRRR
Sorry you haven't been able to go to services. I absolutely HATE missing. I did find some good services on TV that morning.
Here is the link to the soap nuts. I bought a 2 lb bag more than 2 yrs ago and it is still half full!!! Now that is cheap!!
Be sure to order extra bags (the small ones) since the soap nuts last so long and you don't want to pay shipping to order new bags. They don't wear out very quickly, but I like to share with friends sometimes to introduce them to the nuts. I ordered 5 or 6 bags.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
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Member # 9196
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Hi <<<<< Lymetoo, gz, WPinVA, and Any Other Readers too >>>>>,
Thanks for the Soap-Nuts Link, Lymetoo!! I'm glad your feeling better!!
I am hopeful, that finding out what foods/chemicals are causing me/us issues will ease the IBS/IC issues,enough that I can go to services,I miss it a lot.
I don't go, because I wouldn't be able to stay in service I'd be in the restroom. Same thing with movie going. We just wait till the movie comes out on DVD now. When we can find a decent movie that is.
I am excited to have the food and chemicals lists listed in this thread, gives us a starting point. Awhile back I was at a church supper, and the cleaning chemicals for the restrooms got to me. Just Pine-sol type stuff, but it was hard to breathe.
Well, I'm off to check other links and info' for now...BBL
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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The SpaHaus does contain preservatives, the evil "MI," I think, but I do okay with it. Any conditioner can be used, they can work quite well diluted 50/50 or more. Not sure about the salicylates, that's more for me to learn.
Silver, so far I seem to be doing okay with lyme tx. Many symptoms much better, traded for new stuff like histamine issues! A little nervous, going to start treating bart in the near future.
Posts: 474 | From US | Registered: May 2014
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gz .. I would not be able to use something like that. Isn't it made in China? If it has ANY fragrance then it's OUT for me.
I went ahead and ordered the Cleure shampoo today.
Good luck with the bart treatment.. yuck.
Silver.. I would do an elimination diet and go from there. I eliminated sals and histamine (nothing left, trust me). Then added foods that I might be able to eat. You have to get things calmed down first.
I just found out that nearly all water filters have coconut instead of charcoal. Since drinking only bottled water the past few days, I'm feeling better and my eczema is better too.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Lymetoo, it's made in Canada but it does have fragrance :/. I feel like I'm walking on thin ice with many of the products I use, since I seem to keep developing worse sensitivities out of nowhere.
I often wonder if a modified fast would help my gut heal enough to blunt any more reactions, except I'm pretty active and restricting my diet to liquids would be too much torture right now.
Thanks for good luck, I just need to get it started and get it over with!
Agree with Lymetoo on the elimination diet. That was/is how I'm able to figure the foods I'm sensitive to. If I slip or have a histamine reaction I go back to my protein powder and veggies and start all over again.
Little slips are causing me smaller reactions, so I know eating clean is helping me clear histamine. But even little slips still tickle the immune system, even if there is no immediate reaction, so best to abstain from offending foods so gut can rejuvenate with rest.
Posts: 474 | From US | Registered: May 2014
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Silverwolf
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Hi there <<<<< gz, Lymetoo, and anyone else researching this *HI/and-allergy issue >>>>>,
TxC' and I are gearing up for me to do an elimination diet. We are waiting on our payday,and will see what we can do.
I'm doing a shorter version elimination diet right now, green beans,and skinless chicken breast. I'm temporarily weaning off supplements,and hoping I wont have problems with any of them when I go back on.
I have tried Zantac twice a couple days at a time. I keep getting the diarrhea, trying to figure it out . Some years ago I had the same thing happen w/ Prilosec. I'm gonna wait awhile and then try the Zantac one more time.
I am somewhat at a standstill regarding treatment of Lyme and Co's, and not a whole lot better. So if I can figure this HI/allergy mess out, maybe the supplements I will use will work better in my system.
Oh, Lymetoo, you mentioned drinking bottled water. We by bottled water here,as the tap water isn't safe to drink [unless you are in the resorts]. That actually brings our water bill, from $13 up to $23 dollars a month. Still that's not terrible.
I just wish they'd get the water issues fixed, water was off again recently. That's 30 times now between Nov.2012 and the last part of March 2015.
[Just seeing water in the gutter on our side of the street is stressful.We start checking faucets and filling containers.]
I found it interesting that coconut is used in most filters now. I had thought most were doing charcoal. That's scary, how many folk w/ allergy or HI problems may be getting ill from it.
Thinking here, I still need to check on the pea proteins,hemp and such after payday. Somehow,I've got to get this under control.
Aaaarghh....OwoooWoooooo , it's frustrating but, I'm not gonna give up.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I often wonder if a modified fast would help my gut heal enough to blunt any more reactions, except I'm pretty active and restricting my diet to liquids would be too much torture right now.
- Yes, a modified diet will help. No need for a liquid diet .. no need for hemp. I would be leery of that one, Silver. If you will back off the chemicals, salicylates and high histamine for about 6 wks you will see a huge difference provided that is the problem for you.
You will then know. Then start adding back foods one by one to see how you react.
Silver, saccromyces boulardii will stop me up in no time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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How green smoothies can devastate your health:
Indeed true for me .. and add in the issue of their being high in salicylates.
-
Green smoothies are all the rage these days with many people consuming them every day or at least several times a week in an attempt to get healthy and “alkalize” the body.
Whenever I visit the cafe of my local healthfood store, there are usually several people in gym clothes lined up to order a green smoothie to sip after their workout.
Green smoothies are made by blending large amounts of raw leafy green vegetables with fruit to soften and sweeten the taste. Typical vegetables included in green smoothies are kale, spinach, swiss chard, collard greens, celery, broccoli, and parsley.
Is the green smoothie fad a truly healthy habit over the long term or can consumption of these seemingly healthy drinks in fact contribute to serious health problems? Raw Leafy Greens Contain High Oxalate Levels
Frequent consumption of large quantities of raw, leafy green vegetables as occurs when a person drinks green smoothies can be deceiving at first as a person will probably initially feel great after adopting this habit particularly if he or she is coming off a highly processed, nutrient poor diet.
The vegetables used in green smoothies are almost without exception high oxalate foods. Over time, a high oxalate diet can contribute to some very serious health problems particularly if you are one of the 20% of people (1 in 5) that have a genetic tendency to produce oxalates or if you suffer from candida or other fungal challenge. In those cases, a high oxalate diet can deal a devastating blow to health. Oxalate Toxicity Not a New Problem
Humans have suffered the effects of oxalate toxicity since ancient times. A 2000 year old mummy from Chile was discovered through x-ray analysis to have an oxalate kidney stone about the size of a golf ball!
Oxalates can be deposited almost anywhere in the body and wherever they land, pain or worse is the result.
75-90% of kidney stones are oxalate related with 10-15% of Americans afflicted at some point during their lives. As the star shaped crystalline stones pass from the kidney, they cause pressure and pain in the bladder and urethra and can actually tear up the walls of the urinary tract. Oxalate Stones Can Form in Any Tissue
Oxalate stones can show up in any body tissue including the brain and even the heart.
Oxalate crystals resembling shards of glass which become lodged in the heart cause tiny tears and damage to this vital muscle with every single contraction pumping life giving blood to the rest of the body.
Oxalate crystals which end up in the thyroid can cause thyroid disease by damaging thyroid tissue.
A frequent location for oxalates to end up is skeletal muscle which will cause pain with even normal movement and make exercise nearly impossible. Dr. William Shaw, Director of The Great Plains Laboratory for Health, Nutrition and Metabolism who has studied oxalates extensively, is convinced that oxalate toxicity is a factor in fibromyalgia the pain of which can absolutely devastate a person’s life. Vulvodynia – Painful Sex
Cases of women experiencing painful sex are on the rise with oxalates a possible culprit.
Vulvodynia, a condition causing pain in and around the vagina, is linked to oxalates deposited in this delicate reproductive tissue. Oxalate crystals are very acidic and they cause irritation, burning, and stinging sensations for affected women with an accompanying feeling of rawness whenever they engage in sexual relations. Oxalates Are Fungal in Origin
A surprising finding is that oxalates are produced in large amounts by fungus. Large stones have been found in the sinuses and lungs of people suffering from systemic fungal infections such as candida or Aspergillus.
Therefore, anyone who suffers from any sort of candida or other fungal challenge like fungus nails or dandruff would be wise to be very concerned about oxalate intake via the diet.
Consumption of green smoothies would not in any way contribute to improvement of health in these situations. Given that the majority of people today suffer from gut imbalance/fungal issues caused by antibiotic and prescription drug use along with consumption of processed foods, a high oxalate diet which includes green smoothies is an unwise practice for virtually everyone. Does Cooking Destroy Oxalates?
Would it be safe to prepare green smoothies with leafy greens that have been lightly steamed first?
Not really, because oxalates are extremely stable and while cooking high oxalate foods like leafy greens (and discarding the cooking water) does reduce the oxalate level, it remains quite high.
Since green smoothies are consumed so frequently by those who swear by them, a light steaming of the veggies first would not make a significant difference over the long term. Healthier Alternatives to Green Smoothies
The best course of action for health, then, is to opt out of the green smoothie fad.
If you enjoy green leafy vegetables, enjoy them in moderation in salads or cook them and carefully drain and discard all the cooking water – never use it in soups and sauces! Be sure to serve cooked leafy greens with a healthy, traditional fat like butter (not margarine or any factory fats synthesized with rancid and/or GMO vegetable oils) for maximum absorption of minerals.
Another option is to drink raw cultured vegetable juice or eat raw cultured vegetables. Not only will you get enhanced nutrition from the culturing process which adds enzymes and nutrients, but you will also get a beneficial and therapeutic dose of probiotics to help balance gut function and improve digestion.
Another option is to do shots of fresh, green wheatgrass juice. Wheatgrass juice is very low in oxalic acid. Click here for my favorite green juice recipe using wheatgrass juice.
If you already are suffering from some of the ailments described in this article and suspect a high oxalate diet which includes green smoothies or a daily spinach salad may be the cause, stop this practice immediately and consult with a holistic physician who can guide you on the road to recovery and how to best rid your body of the oxalate crystals that are potentially irritating one or more of your body tissues.
Sarah, The Healthy Home Economist
Author, Get Your Fats Straight
Sources:
The Role of Oxalates in Autism and Chronic Disorders, William Shaw PhD
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Lymetoo,and any Readers learning like we are! >>>>>,
Thanks for the 'green smoothy' dangers link, I could only read a page of it, have to try again later.
I have always been leery about any drink that looks like it came from scraped lawnmower blades. Not a fan of the green stuff in smoothy form.
I was checking for something to use, on occasion, milk shake like,low cost w/o milk and a bunch of chemicals and No Soy,
The info' on Pea protein that I found,said there is not enough DAO in most of them,or no way to measure amounts to keep it consistent.
Still learning here, but the nutritionist dieticians that are working w/ TxC' and others in the low carb program,said please don't juice everything. We need the chewing action, and for our bodies to break down the fibers.[TxC' could explain it better, don't think I explained it well].
Not saying never to juice anything,but try to use a balanced approach. Right now,I am not adding anything new. Just finishing a mini- elimination diet,and trying to be gentle w/ my tummy and intestines.
Have a bit longer to wait for our payday, then TxC' can check on more safe foods. I'll wait a couple weeks and then try again, on elimination diet. But for my next meal,I get to try one thing I haven't been eating for a bit, probably some beef.
I am trying to be careful to stay away from chemicals, anything I don' have to use, I don't. I may end up getting gloves for dish washing at the very least.because anymore I never know what will set things off.
Pine cleaners,and *lemony perfumes, are a no go,no do, for me...had to many reactions to them. I don't know if it is *lemonine, salicylates or??? I am hoping that it isn't a salicylate problem, but on my next elimination diet...I hope to find out.
My other issue, the diarrhea, I will try that s. boulardii , part of the issue, is if it stops, then it backs up to severe constipation, which sets the IC going crazy. And cramps my intestines fiercely. So I am looking forward to identifying the causes.
We continue to pray for a decent answer from the VA, so many Vets and their families are fighting to get their proper disability benefits. It would make life a lot easier for us, if we had a better financial situation.
I'm going to try that don't drink the 'green smoothies' link again. if it wont work right I'll let TxC' see if it's our laptop,or the site. I saw something recently but don't usually drink green smoothies so hadn't checked it closely.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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True about the DAO and the powdered protein. I'm still trying to sprout my own peas. I keep ruining the batches, one way or another.
I use Dr Bronner's UNSCENTED for cleaning. I add baking soda if I need to scrub something.
I have the same issue with diarrhea and constipation. It's a balancing act.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< Lymetoo, and any Folk following this Thread as well >>>>>,
Sorry to here you have this 'IBS' symptomology too. Hard to balance it all sometimes.
I'll be looking up the info' on the Dr. Bronner's in a bit, and we'll see what's affordable for us come payday.i want to check out those soap nuts and bags too.
I tried a bit of a favorite beverage, after my mini-elim' diet, it didn't go well. So TxC' and I will plan some more elim' diet for me soon.
Have to figure out a safe way to take my herbal sugar control meds, for awhile until I know if that will behave. I can get away w/ a couple days off the meds, but I don't like to mess w/success.
Need to check on a couple more things before TxC' heads back here from church.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Thank you for posting the link on green smoothies. that was fascinating.
I don't have most of the ailments mentioned, but I was drinking a lot of green smoothies when all these new allergies/sensitivities popped up. Do you think it might be related?
Posts: 1737 | From Virginia | Registered: Aug 2011
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Silverwolf
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Hi there <<<<< WPinVA, and other Reader/Repliers >>>>>,
I'm not in the medical field, but it wouldn't surprise me, if the green smoothies might trigger a Histamine Intolerance/or-allergy attack type problem.
I finally got to read it on Facebook, Thanks <<<<< Lymetoo >>>>>, it wouldn't move past the first page on the link here,for us.
The whole problem can be disconcerting with HI issues, and what to eat/avoid. It can be difficult, especially, to figure out specifically what one can eat and how to vary the diet somewhat, without triggering a problem.
I hope each one wading thru the puzzle of these issues, is able to find help and relief soon!
BBL jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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quote:Originally posted by WPinVA: Thank you for posting the link on green smoothies. that was fascinating.
I don't have most of the ailments mentioned, but I was drinking a lot of green smoothies when all these new allergies/sensitivities popped up. Do you think it might be related?
- I think it was one of my triggers. Now perhaps I've had this for many years and the smoothies, etc pushed me over the edge.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
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posted
Hi there <<<<< Lymetoo >>>>>,
I am glad you found the info' link,on the green smoothies. And sorry to hear that probably was a big contributor to the Histamine Intolerance, for you.
Hopes and prayers that you,and all battling this, can get the Histamine overload, reduced enough to be able to eat safely again.
I think there is so much chemical junk in food now days that it is making the problems hugely worse.
My Dads cousin used to raise beef,and he wouldn't use any ABX,or any additives other than what was specifically required by law. His beef was delightfully tasty!
Just checking back in BBL...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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posted
Hi there <<<<< Histamine Intolerance/Allergy Fighters >>>>>,
Hope each of y'all are finding answers and improving!! I think I got a clue as to part of my issues, after my first initial mini-elimination diet challenge.
I don't do very much dairy, I never cared for just plain milk. Once in awhile, I use a small bit of heavy cream, as allowed in our Low Carb diet. I am modifying some more.
It seems the cream is to much for my system. And the Histamine bucket loads up a bit too quick, with cream. Who knows what histamines may be the problem. But likely Casein, like gluten, in the dairy product is an issue.
Sometimes it takes a bit for things to dawn on my brain, Hopefully staying away from even a little cream will help, ease the situation.
Will be doing some more elimination challenges in the near future, as finances permit, and see what else may be part of this puzzle. I feel sorta stupid, for not connecting this earlier.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Silver wolf - It is my belief that histamine reactions may be a symptom of gut/probiotic imbalance as well a stomach and liver enzyme imbalance.
There are probiotics that may help your histamine reaction as well as probiotics you should avoid in order to rebalance.
These are some of the probiotics that may be helpful because they degrade histamine Bifidobacterium infantis and then Lactobacillus rhamnosus and salivarius and sporogenes and Lactobacillus gasser.
These are some they say you should avoid, Lactobacillus casei, Lactobacillus reuteri, Lactobacillus plantarum, Lactococcus lactis, Enterococcus faecalis, and various types of E. coli.
In addition, there are certain enzymes that you may be lacking in your digestion process that help to prevent histamine from reaching the blood stream. One such enzyme is Diamine oxidase (DAO) which I think can now be found in supplement form.
Anyway, those are just some ideas that may help.
There is also a lot of research and information out there on the above if you google, histamine probiotics or histamine enzyme etc.
-------------------- Lyme, Bart, Babs D, FL1953 I am just sharing my thoughts and experiences - I'm not a medical professional. Posts: 69 | From Midwest | Registered: Mar 2010
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posted
delljen.. I thought plantarum was a beneficial strain?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
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posted
Hello there <<<<< delljen, and Lymetoo >>>>>,
Thanks for the links, so very much, been looking at them.
I don't think my Adrenals are in very good shape, among other problems. Last test was a few years ago,and not real great.I seem to remember the number being 33?? It was in summer of '06.
Took DHEA for a time, probably need it again. Will be studying the various links more,and try to get back in on the weekend.
High winds,and gut issues, have made things tough here... but I'm hangin' in here.
Thanks again for the links, hope all are finding help. BBL...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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posted
Jus' Silverwolfi,
Hello <<<<< Histamine Intolerance and Allergy Fighters of LymeNet Family >>>>>,
I'm still fighting some gut/IBS issues, but doing okay. The weather is hopefully calming down a bit.
Can't stay on long, unexpected company coming, w/ a little bookshelf/cupboard when TxC' gets in from church in a bit. Course the House is a disaster right now, but our shelves runneth over,so we need this.
I hope all are finding answers and feeling better. I think most dairy foods are out for me, it seems to cause, stomach and intestinal problems.So no more of that.
Hopefully after a time, I can at least have a bit of butter, right now, I'm not gonna brave that tho'. Will see how things go.
Jus' me, myself and my Silverwolf-I-ness
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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posted
Jus' me, Hi <<<<< LymeNet Histamine Intolerance and allergy fighters >>>>>,
So far I am staying away from most dairy products, still some minor nausea, and IBS-'the running hare' issues, but it is lessening so far.
I'm wondering about what is best for probiotics, digestive enzymes and so on. We are on very, very limited funding,so it has to be super inexpensive. I know there is some good product out there, but cost is an issue.
Will continue hunting up info' and reading links, hopefully I wont be so house/bathroom bound soon. Just for general info' I'm not a medical professional, and just trying to learn as I go along.
Jus' Silverwolfi checking in...
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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It's 90 capsules of 50 billion CFU's each, so it's very cost effective.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
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posted
Hello <<<<< Lymetoo, and any Readers learning like we are >>>>>,
Thanks for the link, that looks like an excellent product!!!
Will have to do some figuring in the budget, but it gives us a place to start. Thank you for the info'.
I know I've said it before, but the access to knowledge, and info' links we can find thru Lymenet is hugely helpful.
On the *Histamine Intolerance front, one site was calling it *HIT, I pretty certain, I cannot do most dairy products anymore.
I have tolerated a -small- pat of butter w/o any bad issues. Most everything else doesn't work with my system anymore.
TxC' and I are gearing up for me to do another elimination diet in a few days, it will be of interest to see what I can actually tolerate.
I'll check in again later,as we want to copy some of the foods lists. Trying to get things calmed down,w/ my system.
If I can get IBS symptoms calmer, I may be going to a wedding very soon. Young relative will be in area,and proposing to their intended soon. They want us to come,if all goes as hoped.
Gotta dash, TxC' should be back from his appt. soon,and off loading a bit of groceries.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
That would be great if you would be able to attend the wedding!
Once you get better you should be able to make some ghee.. which is butter without the casein. It's the casein that is troublesome for so many people. There would also be no lactose in it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
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posted
Hi <<<<< Lymetoo, and other HIT/Allergy fighters >>>>>,
I'll have to check on ghee, butter w/o casein or lactose sounds interesting.
Things are still iffy if I get to go to the wedding, but I am hoping to go! Young relative's intended said yes to the proposal !!!
I'll check back later on...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Hi, Silver wolf, it sounds like you are on the right track
Lymetoo, I absolutely think Lactobacillus plantarum is a beneficial probiotic. I actually think they all play a role in our digestive health.
My thought is (but I am no expert) that it is all about gut balance and probiotic symbiosis. If your gut gets out of balance and/or you have a genetic issue with DAO production than you may have problems breaking down histamine.
So in order to rebalance I think you can try and add certain probiotics and try to stay away from others to see if you can rebalance your gut.
You could also try a DAO enzyme supplement to see if DAO deficiency is your problem but again these just my thoughts.
Also, I have to second Lymetoo on Custom Probiotics they are my absolute favorite Probiotic Brand of all brands I have tried.
The enzymes that work the best for me are Source Naturals Daily Essential Enzymes.
Silverwolf- I hope you can make it too the wedding! : )
-------------------- Lyme, Bart, Babs D, FL1953 I am just sharing my thoughts and experiences - I'm not a medical professional. Posts: 69 | From Midwest | Registered: Mar 2010
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Silverwolf
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posted
Hi there <<<<< Lymetoo and delljen >>>>>,
We got to go to the wedding, our new niece-in-law is just a sweet heart of a lady!!! nephew is blessed to have found her!!!
Didn't get to stay long afterward, but the wedding was worth it. It was held at the historic 'Little White Wedding Chapel' in Las Vegas NV.The one with the Pink Elvis-mobile caddy.
I wish we could have visited longer, but both TxC' and I were pretty worn out. If we ever get to go back down Southern US way,we'll stop and visit them. This was the Nephew that sent us tickets to Trans-Siberian Orchestra for our 35th Anniv. in 2013.
It was a small wedding, informal, but just beautiful.When we got home, Neice-in-laws son had posted some pic's and filmed the proposal.it was really sweet, and so cute. I'm not sure I've seen someone as surprised as the new Neice!!
I am still fighting some 'IBS'/IC type issues, so not getting out much yet, other than the wedding.
Starting the next elimination diet,in a couple days. And I found out,that I cannot eat more than a couple of almonds w/o problems.
For now, Almonds, Egg whites, celery, and most dairy is on my do not eat list.
It'd be so great not to feel like I am chained to the toilet!
Still,I am elated that we got to go to the wedding. And now we have a new niece[in-law], grand nephew and his wife, and great grand niece.They are just wonderful!
Well I'm still on the hunt to find out the causes of these HIT/allergy attacks. Will check back in when I'm able.
Gonna look up that ghee info'!
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
So glad you got to go to the wedding, Silver! Progress!!
Almonds are high in salicylates, so that may be your issue there.
delljen.. I use the same essential enzymes!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
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posted
Hello <<<<< Lymetoo, delljen, And Any Others following this Thread >>>>>,
Well after my most recent mini-elimination diet, I tried Raw California Almonds, to check if it may have been the oils the other type was roasted in.
Uh... wont be making that mistake again, I tried them yesterday evening, and still feel like I got run over by a truck.
Sinus/Allergy issues, sore red,patchy throat, and 'IBS'-food poisoning like symptoms. Happened about ten minutes after I ate them, ten little nuggets of misery.
Drat, it wasn't the oils... hard lesson learned...off to get the food lists so TxC' and I can figure out safer foods for me.
Aaaarrghhh!!!
Jus' Silverwolfi guts-still-a-grumblin'
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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posted
Jus' me here <<<<<< Lmyetoo,and other HIT/allergy warriors of Lymenet >>>>>,
Still fighting diarrhea issues, and Zantac gives me the diarrhea too... Aargh.
We are awaiting our next payday,and I'll try to find a different, low cost H2 product to help.
I've had this happen before, my guts are just super sensitive. But I now know, most dairy is out with a capital O-U-T.And almond.almond products are on my do not eat list now.
Wish I had better news, but at least I know a few more things that don't work for me now.
How are all w/ this issue doing? Any one finding more answers? Here's hoping each one can find the right things to help!!!
Editing in... checking out info' on CBS mutation as well, it seems many factors can be involved w/ the Lyme and Co-infections.[ This is in response to seeing a question that SusanH, had put up about Epsom Salts and CBS mutation].
I have read a little about MTHRFR , didn't know about the CBS mutation... lots of things to check on...but I will find answers!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Having good luck with having eliminated most everything. I seem to be doing okay mixing half pea protein and whey together. The pea protein is a little gross to me, but there's worse things.
I pushed the envelope and had kombucha yesterday, yogurt the day before that. No flushing, but I felt loopy. I think it was consuming large amounts of kefir that made my HI so prominen to begin with, so hopefully avoidance will enable healing. Must practice strict avoidance to let that happen though.
Last bloodwork showed some allergy markers slightly elevated or high end of normal. I wonder if from the HI, parasites, seasonal allergies, or something else.
Silver, glad you are getting some stuff figured out with elimination. I love almonds myself, but they are the absolute worst for me. All nuts really mess up my gut, they were bothering me before I recognized the HI. I hope you are able to continue seeing results with continued elimination.
Lymetoo, thank you for the link to the probx. I've been needing to switch and that one looks great, going to try it.
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Silverwolf
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Hi <<<<< gz, Lymetoo, and any other HIT/Allergy warriors here >>>>>.
Gz, be watchful about the fermented products, I've been hearing they can make HI' issues worse in some cases.
It seems to be a matter of testing each food, and is a long process, I was bummed about the almonds, but the diarrhea,is slowly calming down,and now the IBS wants to go the opposite way.
I'm still mostly housebound, as when the IBS acts up either direction, I have to stay near the restroom. I am missing my church, way cool people,but I'm in and out of the restroom enough to feel like it'd be a bit disruptive.
I am encouraged that it is slowly calming down tho', Finally!!! If I am not having to much issues, I may get to see a friend this weekend, that we haven't seen in a few years. It'll be where if I have to head to the restroom, I wont be bothering anyone!!
And perhaps next week I can make a Church service, that would be refreshing!
Gotta head off for now BBL ...
Jus' the Silverwolfi here.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
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Member # 9196
posted
Hi <<<<< Lymetoo, and other HIT/Allergy Warriors of Lymenet too >>>>>,
The broccoli eaten w/o incident sounds great!!
Even if our progress is little steps at a time,it's still progress!!! .
Got to go see our young friends, its been probably five years since we saw Zeke, and we go to meet his travel buddy, Mic' nice young fella.
They had a late supper,and we met them at a local restaurant, we got a bit of coffee, and water as I was leery of eating. It was really good to see our friend, he's grown so much.
They are in area for a two day concert, so we may get to see them later again, depending on schedules.
Sinus issues seem to be hanging on a lot this year. The southern Nevada weather is weird, and it is getting a lot of folks sinuses right now,including me. I sure hope your sinus issue goes away completely and quickly, Lymetoo.
Thanks for the new HIT link, I'll check it out. I've been learning about some mutation issues too,and wonder if all of these things don't tangle into a complicated mess for folk w/ LD and Co's.
A scarey note here, there was a recent report about asbestos, that occurs naturally here, the dangerous type w/ the fibers. The scientists/geologists that discovered it have been trying to warn folks for a couple years ,and keep getting shut down[ which is odd ].
The news casts that got out do say,to be more watchful of windy weather. Most folk don't stay out any longer than necessary in the winds. They get pretty fierce, and no one likes sandy grit and dust in eyes and mouth, or on clothing.
Hopefully, they'll be allowed to explain more soon, and can give folk ideas for safety.
I am doing some better, and slowly ramping back up on various supplements, making sure nothing there is triggering the problems.
Gonna check that link, and BBL...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Hopefully staying away from even a little cream will help, ease the situation. ![[Smile]](smile.gif)
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