posted
throughout my years as a lymie, ive seen people go to treatment centers for intensive care and treatment plans, basically to try and find everything wrong and find the right medicine, therapies etc to help.
Although i appreciate my current LLMD, i feel like things are moving much slower than they could if i was at a treatment center. It is a pain to get a hold of him because he is one of the only trusted LLMD's in the Northwest.
If you have gone to a treatment center or know of one that is effective, please direct message me or respond to this post. I am open to traveling anywhere in the US. I'm tired of waiting for my doctor. The longer i wait the more i suffer.
...............................................
Breaking up your post for easier reading for many here -
-------------------- Lyme, Bart, Babs D, FL1953 I am just sharing my thoughts and experiences - I'm not a medical professional. Posts: 69 | From Midwest | Registered: Mar 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry, but there really are no treatment centers that are appropriate. I used to really wish for one and had the same questions, urgency and astonishment as I see in above posts.
There is one out patient place in Nevada, I think. Sierra (or used to be called that) but after much study years ago, I determined that it was not as comprehensive as I would need - nor most.
There is one in Mexico that has some good elements but, again, not really comprehensive more of a rejuvenative (sp?) approach.
Lyme treatment at the stages those here find themselves cannot be treated in a matter of a few intense weeks. It can take many months or years - sometimes several years when diagnosed late and untreated for a long time.
It may be best to cobble together any kinds of nutritive, on-hands and adjunct aspects by professionals close to home.
If a treatment plan with a LLMD seems to stall, talk to them about it so that you can get realistic expectations.
Connect with ALL the area / state lyme support groups as well.
A LL ND might be consulted to explore various other direct and adjunct approaches.
However, it does take time. And money (sigh) so remember it pays to prioritize. Direct attention first with support. Never just support measures. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods, because lyme is so very complex & unique, as are possible coinfections:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
so they really know all they can about the science of lyme . . . how lyme (& other TBD) act and what we can do about that in various ways.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Herbal Safety considerations & reference books; etc.
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches with links to articles, books, methods . . .
BODY WORK methods / links (and why anyone who works on your spine MUST be LL to the degree they at least know to never suddenly twist neck or spine. Never. Ever. And that we should never be advised to do neck / head / shoulder stands.) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Dream on. And wouldn't it be great and appropriate if such a thing existed?
Posts: 2888 | From USA | Registered: Mar 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You might check out TF's posts as she floundered for a time and then got in with a particular LLMD and was well into remission / then beyond in a little over a year, I think.
Of course, each person's overall diagnoses "menu" is different as can be the terrain of each body, too. Still, sometimes a different mind / set of eyes / approach might be in order.
No matter who's guiding the treatment, though, there is so much that falls into our laps to do that it can be just so crushing. Where possible, I hope you have friends, family, other ways to help with practical matters so that you can put more attention to what your body needs.
Another approach: you might consider a RIFE machine. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
With a disease like lyme, they say it is a marathon and not a sprint. That means you have to be in it for the long haul.
So, there is no treatment center that is appropriate for this disease. The friends I have who had lyme and went to treatment centers described in detail what went on. Basically, they detoxify you. So, if you have trouble detoxifying, you will feel better in a week or 2 from this treatment.
However, they generally also really try to persuade you to not take anymore antibiotics. I guess they see antibiotics as the enemy that made you get sick in the first place.
Obviously, none of this is correct. So, I know of no lyme specialist that has a center that cures folks in a month or so. You are looking for something that doesn't exist.
For those with lots of money, you will get lots of attention and detox at a treatment center. And, it will cost you an awful lot of money to get this.
Why not learn all about detoxifying and do it at home yourself and do it THROUGHOUT your lyme treatment marathon.
The best advice I can give a lyme patient is to get the very best lyme doctor they can afford. The doctor is the key to getting rid of this horrendous disease.
Get a doc with the most expertise and be totally obedient during treatment. I only recommend doctors who follow the Burrascano protocol. This protocol got me well and at least 5 of my friends.
The protocol is here and at the top of Medical Questions:
Read and study this document. This is the very best thing you can do for yourself after finding a top notch lyme doctor.
The more educated you are about these complex diseases, the more you can assist in your treatment to ensure success. Lots of things for the patient to do and to NOT do.
And, the document will also teach you what good treatment looks like. If your doc has you on only one antibiotic, even if it is IV, that is NOT going to get you well. Lyme is so smart it can outmaneuver any one antibiotic by changing forms.
So, don't waste time on a doc who puts you on monotherapy. Read about "Combination Therapy" in Burrascano and find out why it is required.
You got to know when to hold 'em and know when to fold 'em. If your doc is really frustrating you, you have to figure out if it is you not having enough patience or if it is time to find a better doctor.
Posts: 9931 | From Maryland | Registered: Dec 2007
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
You know how they used to have sanitariums for TB -- sometimes I have wished for something similar for Lyme.
I mean, I know those places had their drawbacks (I had a relative in one). But a place where you could stay for a while, and get treatment and get taken care of and sit in the sun... ahhh...
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
I'm in no way wishing for a "cure"but I've heard that treatment centers can get you a secure FULL diagnosis. I'm purely just looking at options. Believe me when I say I know it is a LONG painful marathon. If this was a sprint I wouldn't be sick for so long
-------------------- lymie of three years, diagnosed summer of 2014
PICC Line, placed November 2014
Neg. Western Blot Positive Igenex Posts: 4 | From Bay Area, CA | Registered: Jul 2015
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posted
Full diagnosis? I don't know what clinic you've heard of that has helped anyone. Yolanda Foster has been to about 5 clinics (or more?) and is still sick.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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