I feel stuck because although I have gone through six herxes now on my pulse treatments since March, the herxes have almost disappeared and my symptoms persist. I do think that I am on the right medications (bicilin, zithromax, tindamax, semanto, and banderol) in addition to taking serrapeptase for biofilms. Before taking the semanto, banderol, and serrapeptase I didn't have herxes, but then I started having them.
Now, the herxes are almost nonexistent but I still feel the lyme and have had zero improvement in cognitive symptoms. I tested negative for coinfections and I don't feel I have a coinfection because my symptoms match mostly just lyme.
My lyme seems to be entirely in one area where I can feel "activity" and nerve pain - and I think that it is protected there by a thick biofilm.
I can't seem to find a way to simply eradicate the entire biofilm. There must be something out there that will simply break down the entire biofilm (not prevent growth... or take away one part of the film... but destroy the entire thing). I'm about to try Miracle Mineral Supplement, possibly Royal Jelly, and maybe a rife machine. I'm at the point where I'm starting to read through the detailed science behind breaking biofilms to try and find something that will work. It seems like Curza and other companies have medicine that will apparently work to kill biofilms, but its years away from being purchasable.
For detoxing - I've tried everything from activated charcoal to chlorella to niacin and I have yet to find something that will actual get the toxins out of my brain. I know its a slow process but it seems like every detox method out there only works in the gut and I feel zero difference. I'm also now wondering why, when I have a herx, there is an increase in toxins / cognitive issues that then successfully clears in several days, but the ongoing shutdown of the front part of my brain (and toxins there) has not gone away at all.
Just going on the assumption that the toxins aren't permanently trapped and the brain will clear them out naturally, this implies that the lyme is still very much alive and well and producing toxins underneath the biofilm - the film that I can't seem to fully eradicate, even with serrapeptase, etc.
Any advice? Anyone try Royal Jelly or any other crazy compounds? Is there really nothing out there that will just destroy a biofilm?
posted
I initially went after biofilms by treating for parasites. That gave me a measurable improvement in cognitive and psych sx, but I still felt my brain very much missing. I think addressing biofilms is important, and I use multiple enzyme types throughout the day along with herbs, meds, and occasional parasite tx.
Sometimes it can take a while to see improvements. I had damaging musculoskeletal sx for 3 years before dx, that was the first stuff to start clearing. My neuro sx I had for much longer. I've been treating Lyme and co's for a year and think I am finally realizing small but solid gains in cognitive ability; that progress is still very slow.
Many of the tests for confections are just as inaccurate or even more so than the ones for Lyme. There area lot of conditions that can mimic Lyme like mycoplasmas, mold toxicity, histamine intolerance, HPA imbalances, etc.
Once you get on top of a set of symptoms, it is very common for something else to crop up, be it a coinfection or bodily condition. This often dictates the course of treatment.
The connection between gut and brain is very significant, gut health will affect brain function. I find that employing multiple detox methods works best for me. Finding the right detox methods can be trial and error. Constant liver support is vital.
Posts: 474 | From US | Registered: May 2014
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Biofilms are dispersed by oxygen.
Consider biofilms in nature...for example, "pond scum"; which forms in stagnant pools. You don't see pond scum forming in a moving stream, where the water is oxygenated.
Many chronic illnesses thrive in low oxygenated environments. For example, diabetic wounds that won't heal have low oxygen/circulation in the tissues, anaerobic bacteria, and biofilm. Hyperbaric oxygen is very effective in healing these wounds.
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Maybe you shouldn't be pulsing your antibiotics. Cyst busters, yes.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
When you plateau, that can mean it's time to try different abx.
[ 08-19-2015, 12:32 PM: Message edited by: WPinVA ]
Posts: 1737 | From Virginia | Registered: Aug 2011
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Yet another option is Plaquex. It does come with cost, administered by IV. Can cause quite an effect.
Posts: 1927 | From se usa | Registered: Mar 2010
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
It's not only biofilms.
I tried royal jelly quite a few times, it works for some problems, for sure.
when meds do not work, in my experience, it is SOMETHING else completely different that is hampering healing: acupuncture, osteopathic adjustment, cranio sacral, heavy metal detox, electrotherapy, photon therapy, psychosomatic treatment, electrosmog treatment/ avoidance... all can be alternatives to help healing.
When an infected area does not heal, no matter what you take, it's time to change strategies.
You guys just think PATHOGEN, BIOFILMS, CYSTS.
what if it is NOT a pathogen problem??
What if a sick part cannot receive any treatment because that sick area is blocked?
Posts: 6199 | From Brussels | Registered: Oct 2007
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