Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Check to see where the nearest power TRANSFORMER is in relation to your house / bedroom. If it happens to be right outside your bedroom, that could be a connection. usually, they are a big boxes with metal covers attached to power poles or to building with the power line running to it.
SMART power meters, too, could be a concern and there is little we can do against them but find out where your power METER is also located on the outside of your house. This is what READS the usage and sends it electronically to the company.
Heavy metals testing might be good to check first, too. Your regular doctor / insurance might cover this.
posted
I'm thinking its probably not anything in my house that's causing these problems (except maybe my cell phone).
I think this because i had the same symptoms back at my old house, and here at my new house at college.
I didn't have any gluten today and I think there are less periods of brain fog and more periods of clarity. Could be a placebo effect though since its only been one day.
I've also noticed a slight correlation between my worrying and my brain fog. It seems the more I worry, the more brain fog I have. It also seems to get worse after I've been looking at a screen for an extended period of time (longer than like 45 minutes)
Twitching is also down even more since I've increased my magnesium
Posts: 117 | From Pennsylvania | Registered: Oct 2015
| IP: Logged |
posted
Just wanted to pause for a moment and thank all of you for trying to help me so much.
I'm just a stranger and you've all been more than willing to put up with my obsessive nature and annoying anxiety behaviors.
Thank you all so much. Hopefully I can find peace soon, because this whole situation is just wrecking me. I know I'll get through it though.
Posts: 117 | From Pennsylvania | Registered: Oct 2015
| IP: Logged |
I'm up to 10 drops 3x per day of the Houttuynia and I haven't noticed any change good or bad.
I know I can't count on this as a "test" but I figured I'd be worth mentioning.
Posts: 117 | From Pennsylvania | Registered: Oct 2015
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
James, It's been about two weeks since you last posted. Have your symptoms improved or changed?
What supplements are you presently taking? How much magnesium? Have you been able to increase it, and have you been eating foods high in mag?
Vitamin D and boron will help your body absorb and retain magnesium. As the level of magnesium is replenished in the cells, a number of symptoms should improve, including anxiety.
quote:Originally posted by TNT: So, obviously, she is not willing to follow the Burrascano approach to diagnosing lyme disease. That is safer for her, but leaves many folks with lyme disease out in the cold. This is a concern!
It sounds like Dr. G is not diagnosing and treating true to ILADS standards.
I might be a little late to the game here, but as someone who may have experience with this doctor, I take issue with some of this. I see an integrative specialist in NJ, initials Dr. G. I travel almost 6 hours to see her, and she is by far the best Lyme doc I have had.
She does all the confection tests and tests extensively for Lyme, utilizing Stonybrook AND Igenx. She also does testing from Fry laboratories.
If Dr G found little evidence for Lyme, I would tend to support that diagnosis. She treated me for Lyme even though my test results were a bit ambiguous because I also showed pretty strong clinical evidence, in fact my diagnosis was clinical, and therefore unable to be covered by insurance.
If the original poster would like to message me on my experience, I am more than happy to chat. Yes, you could go find a doctor with a more liberal diagnosing strategy and get treated 'just in case.' But you do run the risk of causing more harm than good.
It is my personal opinion that we will start moving away from outdated treatment guidelines, and the burasscsno guidelines may fall into that category. In my opinion, anyone that advocates extensive multi year antibiotic therapy in mere suspicion that you may have Lyme, is not serving your best interest.
Research is moving into combination therapy and pulsed therapy. In my 10 year battle with Lyme, I honestly don't know many people who were cured by years of doxycycline or Zithromax.
I spoke with a woman who spent over 5 years seeing Dr H on countless regimes of antibiotics, and she only improved after seeing Dr G. If you believe you will only get better strictly following the burasscsno guidelines, by all means shop for a doctor that will give you what you want.
The best thing about Dr G is she gives you her honest educated opinion. And she is committed to getting you well, using a true integrative approach. If what you really want is a doctor to just tell you you have Lyme and start treating you to make you "feel" better, she is not for you.
That being said, as of now there is no way to definitely say you don't have Lyme disease. Dr G uses a lot of ways to determine your risk. She's given me western blots, CD-57 tests, the whole 9 yards. She diagnosed my babesia and Bartonella. Dr G is a wonderful doctor, but no doctor is infallible.
Because my diagnosis was clinical, they started me on antibiotics, and when I had my first herxheimer reaction, we knew we were one the right tract. I have nothing but good things to say about this doctor, if it is indeed the same one the poster is speaking of.
Posts: 133 | From North Shore | Registered: Sep 2015
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- james,
A recent PBS program about the Pilgrims (by Ric Burns) mentioned that scurvy (from lack of vitamin C) could cause a tremendous sense of doom and mood issues.
We think of scurvy as something long gone but anyone, any time on this planet who does not get adequate vitamin C can develop scurvy and it has some serious psychological and physiological ramifications.
This might be something to really look into considering the symptoms you describe. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Yes, I have been taking my magnesium and have noticed a decrease in the frequency of muscle twitching and "doom and gloom" feeling, but they have not been eliminated.
Keebler,
That's interesting, I should look into this.
Posts: 117 | From Pennsylvania | Registered: Oct 2015
| IP: Logged |
quote: I'm not sure what other spirochetes I could have been exposed to, unless some of them come from common bacterial infections. This is why this worries me (coupled with my anxiety already).
The test could be picking up any number of dental spirochetes, so a positive band on the flagellum protein by itself does not indicate Lyme. Oral spirochetes are implicated in periodontal disease, and probably are fairly common as everyone gets dental plaques.
Reading over this post I am not sure I see much evidence for Lyme. Of course it's possible, but I would not recommend self prescribing oral antibiotics because you know someone who has Lyme and have anxiety. The main reason being, you likely are not going to have the correct antibiotic, combination, or length and dose to do much good.
Antibiotics like doxycycline might even drive Lyme into a cystic state, so indiscriminately using them to me, is not something I would recommend. I had bad acne and was put on doxy, I went off it after three months and I got sicker because of it.
True, maybe you could test out your response to treatment and see if you have a classic response, however, I don't think most people understand what a herx really is and just call anything that flares their symptoms or when they have a bad day a ' Herx.' To me it seems mostly self fulfilling, you WANT to think what you are experiencing is a herx to validate your belief that you have Lyme. i don't know if it's that simple.
If you got a work up from a well known LLMD and want a second opinion, then anyone could understand. But if you just want a doctor to validate your anxiety, you could do a lot of harm pursuing that. Because you WILL be able to find someone out there who can make a good buck off you convincing you without a doubt you have it. And they might even also believe you have it.
But I'm not seeing clear evidence yet. I went 10 years without treatment, and I'd say it took me about 3 years to bounce through doctors before I got an answer. You are lucky that right off the bat you got someone experienced.
But you might do better pursuing treatment for what is bothering you now (like anxiety)... And going over your testing before committing to the idea that you have Lyme.
A lot of Lyme patients have neurological issues, muscle and joint pain, arthritis. Have you done the burasscsno checklist for Lyme yet? ( it was it Dr H who made them?)
People think antibiotics are like candy, but they really disrupt your micro biome. I'm still dealing with guy issues a year after my treatment, so it's not something you want to do on a whim.
If you are dead set on some sort of antibiotic challenge, then in a month or two retest for Lyme and see if anything changes,
Also, it appears there are two DR G's in New Jersey, both ILADS trained. Small world.
Posts: 133 | From North Shore | Registered: Sep 2015
| IP: Logged |
I just had my first appointment with Dr A to address my concerns. He said he wouldn't be surprised if if was Lyme, but it could be all sorts of things causing my distress.
He's scheduling all sorts of tests for me within the next few weeks. He pointed out that on my CDC Lyme test band 66 and 41 came back reactive, as well as band 41 on my MDL Test. So he wants to retest for Lyme as well as several other disorders with my blood.
In the mean time, he put me on a 2 week course of 200 mg doxycycline 2x per day to see how I react. So far, it could just all be in my head but it seems my anxiety is a bit lower. Depression is consistent though and so are the other symptoms.
He already found something wrong with my nervous system just by looking at my eyes. I have high hopes for him, he seems very caring and thorough.
Posts: 117 | From Pennsylvania | Registered: Oct 2015
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Hang in there!
Printer-friendly view of this topic