posted
Does anyone have these symptoms? Extreme fatigue/Body weakness/Heart Racing
I'm new to lymes, was diagnosed close to 2 months ago. 5 ER visits, 2 hospital admits. Saw multiple specialists. 30 days of doxy, and got worse. Now on IV rocephin 30 days. I'm 4 days in. I know this can take time, but this is scary. Cannot function
Posts: 3 | From PA | Registered: Dec 2015
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
How long do you think you have had it? Im in similar boat havent taken the doxy yet ..doing h202 but veins are rolling..do you have picc or port? How bad is rocephin? Whats your liver condition detox pathways like mthfr etc? What was symptoms before abx?after?
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
I was diagnosed Oct 25 2015. Not sure how long I had it. Symptoms for 1 year so far, slowly and progressively got worse. Chest pain a year ago. 9 months ago the fatigue started but wasn't terrible. 6 months ago the fatigue increased. 3 months ago, and I have been disabled since. Oct 25th started 30 days doxy immediately, and got worse. I'm on day 4 of IV rocephin. Picc line IV. All bloodwork was normal except for western blot test with lymes
Posts: 3 | From PA | Registered: Dec 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Most with lyme have "Extreme fatigue/Body weakness/Heart Racing" - it just goes with it.
However, there are things that can help.
Adrenal support, Magnesium (should calm heart racing) & Liver support should all be on board. It will take time, but these support will help make the time more tolerable and help protect your body.
Be sure to avoid stimulants. Avoid anything that promises a "boost" of energy or alertness. They can boomerang big time.
Of course tell your doctor. Most good LL doctors would have had your liver support going before the antibiotics. Magnesium is required - at least 3 x day (never all at once - and away from Rx by a couple hours both clock directions). Good luck.
Oh, it's "lyme" there is no "s" -- if you are picking up that "s" from your doctor, that could be a red flag that the doctor is not educated in lyme disease. Just be sure they are ILADS educated and that your protocol will mirror, so to speak, Dr. Burrascano's guidelines. Next post.
Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Dr. Burrascano's Treatment Guidelines (2008) - 37 pages
Page 27 - SUPPORTIVE THERAPY & CERTAIN ABSOLUTE RULES for self-care
[if you are too weak for gentle weights - Qi Gong or individualized Pilates may be good.]
Page 32 - Physical Therapy section -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you have a racing heart, be sure that your foods are real foods, from the earth and not from factories. Most processed foods contain things that can cause heart racing, especially for those with the neuro-excito-toxicity as lyme causes. More detail:
See post: Caution: Aspartate; Glutamine; and Phenylalanine (3 excitatory amino acids that can be wrong for us when added as supplements, beyond a normal dietary level)
Seaweed has its own natural MSG and can be very excitatory -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This is a lot of information. So, just take it slowly. I'd start with these three while you sort out the rest.
Magnesium GLYCINATE
Milk Thistle
Cordyceps
and, oh,
PROBIOTICS (away from Rx) - Probiotics are vital to help avoid candida overgrowth. I strongly suggest Olive Leaf Extract, too, in that regard. Avoiding candida overgrowth is of MAJOR importance.
Be sure to avoid all simple sugars. Get good complex carbs from the plant kingdom and eat "clean" proteins and good fats. Culinary herbs & spices will help with enjoyment of any food.
Going gluten free is often very helpful for many as it helps decrease inflammation, helps the lining of the gut, etc.
OLE Links -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I see that you just posted in "seeking a doctor" and wanted others who read this thread to know that in case they have some suggestions for you.
Good luck. Take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Is Nystatin good to take to take to prevent yeast as well?
Posts: 85 | From United States | Registered: Jun 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- nyclymedout,
Nystatin never worked for me and made me feel awful.
Seagate brand OLE was so much better than nystatin, ketoconazole or diflucan. I had been on all three, separately, many times over many years. While diflucan was the fastest relief from candida - it never lasted unless staying on it, it can really damage the liver with prolonged use as would be required with extended antibiotic treatment - and the cost has always been high.
PROBIOTICS are always important but were never enough for me, alone.
I'd never been on a true lyme protocol. Never had access to that. Did have a few goes at it, though with antibiotics. Of course, for two decades prior, I had been on some kind of antibiotic or other for various respiratory infections.
OLE worked exceedingly well to prevent candida from even becoming a problem when I started it BEFORE the last two rounds of antibiotics I took. And I stayed on it, working up slowly to the top optimum dose and stay there. Zero trouble with candida. Zero.
That was such a miracle as, from the time of antibiotics, decades prior due to so many lung infections - candida was major trouble to me. But no doctor ever told me what was going on much less offered any help. Candida caused me so much pain and suffering.
Diflucan was what finally stopped that. Nystatin and Nizoral both failed. But when I was to start on antibiotics, again, my liver just could not take the diflucan, insurance would not cover and I could not afford it, anyway. So I found another way.
OLE is much safer for my liver and had many anti-microbial and supportive added benefits as well. So many excellent properties to it.
Seagate OLE also has a new liquid non-alcohol tincture that can be held in the mouth. But I suggest the OLE caplets as well. There are a few other brands that have the same good growing / harvesting practices as Seagate but most do not. It matters.
Of course, a good food plan is also important. Still, I did fine with dark berries and dark cherries (and once a week Tinkyada gluten free penne pasta) and non-gluten whole "grains" such as Wild Rice, Quinoa in moderation as part of a low glycemic index food plan.
The key, I think is to get OLE on board a few days or even a couple weeks prior to taking the antibiotic. That would be best. Still, at any time, it's a very good support.
There are other herbs with good antifungal properties as well. It's just that it was Seagate OLE that solved the puzzle for me.
Others to consider: Berberine; Allicin . . . .
A LL ND (naturopathic doctor) would know best, what would be best matched to each person. There are many herbs that offer excellent properties beyond just basic support. -
[ 12-16-2015, 03:41 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Hoping4thebest, Have you been checked for POTS? A lot of lyme patients carry this condition and upping salt intake and some medications can help. One symptom is feeling "fainty" upon standing...
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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