posted
I have been given some money to use to get better from my late stage lyme that has left me more miserable as each year goes by. It is like I have MS, Fibromyalgia and Chronic Fatigue....what do you think that best option to try to get well. I have been on and off of doxy, flagyll and biaxin for the past 3 1/2 years and have not improved.
Thank you in adavance. Also...is there a way that this can come to my emails or do I have to log in to find your responses. I am not computer saavy so that is why I ask. HAHA
Posts: 53 | From USA | Registered: Jan 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You can read posts here without having to log on. You do need to log on / log in to see an PMs to you, but there is a way, once logged in to set your PMs to come to your email. I don't know how to do that.
I don't usually "do" PMs so just putting out the tops options that come to mind here:
Think not just of now but 5 and 10 years from now. A RIFE MACHINE seems the best investment, IMO. UNLESS you have a pacemaker (rife can't be used for someone with a pacemaker).
You posted about at least one other family member having symptoms that could be tick borne disease. So, something that could treat anyone in the home for years to come seems a good idea (though not sure how young an age is okay for a child or adolescent).
Some options:
1. Align with a Different LLMD from previous one if the money would cover this for a couple years
- the one TF went to really helped her after so many others did not. I hope she sees this. And see the two books below.
2. Rife machine - and a top surge protector, unplug when not in use
3. BioPhoton treatment / Germany
4. mHBOT
5. Herbal approaches - with guidance from a LL ND
I'm thinking if neither of you have a pacemaker you could get a good rife machine and then have it for the family. Also for times to come if repeat infections come around for anyone in your home.
If possible, guidance with a LL ND for what support methods / liver support to go with that might be good. Any method chosen also needs support methods and also maybe some help for domestic / shopping / chores to ease you up for treatment rigors / healing.
Massage, Tai Chi, Pilates, Qigong also in the support category. -
[ 06-11-2016, 08:37 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
How to find an ILADS educated LL professional in complementary fields (naturopathic, acupuncture, etc.)
Also includes article and book links by all kinds of LL authors - and information about herbal and nutritional supplements.
LOW HEAT INFRARED SAUNA also in this collection. Not for direct treatment yet for good support in detoxification of heavy metals, etc. / circulation. See links there for safety of construction materials.
---
GUT REBUILDING with probiotics and probiotic rich foods.
GLUTEN FREE DIET for the gut and the brain (and to ease pain)
- is also something that could be very helpful, although I suggest a genetic blood test to assess CELIAC in case that's in your DNA, best to know. Still, when ill a GF diet can be enormous help.
The stomach biopsy tests are not reliable and can often miss gluten / celiac problems when present (especially if someone does not consume lots of gluten for a couple weeks prior to this kind of test). And it's invasive and expensive. No sense in going that route. It sure failed in my case where the genetic blood tests found celiac. -
[ 06-11-2016, 08:39 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
. . . Cognitive impairment is one of the most disabling symptoms seen in patients with Lyme disease. . . .
. . . Clearly if we are dealing with germs in the brain we need to use antimicrobial agents which are powerful, able to penetrate into the brain and able to target the specific organisms of concern.
Typically, the focus is on spirochetes, pleomorphic variants, blood parasites, bacteria in blood vessels, biofilms and perhaps other organisms, like worms.
What else? How do we make the brain work better? . . .
. . . Hyperbaric oxygen therapy. For practical reasons most patients only have access to home units with offer a low pressure.
A new unit can be purchased for as little as 5500 dollars. Patients who do the best spend 2 hours or more per day in the chamber.
The treatment reduces oxidative stress, promotes glutathione and has been specifically shown to improve neuroplasticity with reversal of abnormal SPECT scan patterns. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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Another excellent and well respected LLMD, book, website, etc. A new edition due out very soon. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Is MCS an issue? Multiple Chemical Sensitivities / Mold issues / Changes to your environment needed?
(She is NOT A LLMD, however, she understands the kind of toxicity issues faced by many with lyme. She did not have lyme but overcame very serious MCS. She spoke at the 2011 & 2012 annual ILADS conferences.)
If you have gas furnace / stove / water heater and they "leak" at all and bother you, get the seals improved or move to solar / electric.
Some with multiple chemical sensitivities do best avoiding gas, although the new fittings are sure less escape prone than some of the past.
If you use non-stick cookware, use some of the money to replace that.
If you have carpeting, maybe also use some money to replace that with flooring that is non-toxic, does not collect dust / harbor bad microbes and does not create floating fibers each time it's walked on.
IMO, if we all got rid of carpeting - and vinyl flooring - we be so much healthier.
If you happen to have a vinyl shower curtain, replacing that would be the first investment (and likely the least expensive). Vinyl off-gases forever and especially when it gets warm. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I sure hope
Others surely will share what has helped them the most or their wish lists.
I've not meant to monopolize or inundate you with the lists above it's just that I've studied them to some degree over the years and had that in a file so I hope it is handy & saves some time for an overview of choices. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Sometimes it doesn't even take that much money to do some treating, like for instance,
1) turmeric capsules take down my inflammatory joint/muscle pain (fibro sx) - I get it in bulk at the health food store and dip 00-size capsules into it and take a couple a day
2) I lived on Cernitin flower pollen (to stop fatigue) when I first started having Lyme symptoms and recently found out other companies are carrying it.
Not sure whether you're going to need antibiotics only for the MS part, if others with the MS symptoms could add to the discussion.
If I were to invest in something, it would probably be a magnetic treatment, to boost the body's magnetic energy and make all cells work better again. Maybe like the SOTA machine.
Posts: 13116 | From San Francisco | Registered: May 2006
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Catgirl
Frequent Contributor (5K+ posts)
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posted
There is so much to choose from. I guess it depends on how much money you have and what you're open to trying.
You might consider going to an ART practitioner, or buying a rife machine, or sauna, or trying something as simple as the violet ray (Brussel's posts).
The sauna has helped me a lot. I think there are some toxins that leave the body only by sweating them out. Lyme patients have to get the toxins out or they will not get better. Plus, a bonus is that lyme hates heat.
Also parasites. They are a HUGE part of lyme but I"m not sure everyone can wrap their heads around that. I would at least try treating them if I were you. Lots of herbs to choose from. Jordana just found one that works for her. You can also visit THE PARASITE WARRIOR'S thread. So much info there.
Parasites hold the toxins and metals too, so you will still need to detox those out. Parasite treatment and sauna is what I would do.
You could also try mild HBOT but I'm not sure if it gets rid of toxins (Phoiph would know).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
What Rife do you recommend?
Posts: 53 | From USA | Registered: Jan 2013
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Rife is going to be another killing device, like abx. If you didn't improve on abx, I wonder if what you got is not like many of us, a problem to DETOX.
If you kill, your body gets more and more toxic, unless you take binders and do therapies to detox (unless your body can detox well, which is probably not the case). The majority of people with chronic infections cannot detox well.
Toxins stay, infections stay because the immune system cannot work to kill more and then charge the body with more toxins.
Rife will usually kill more, so you need extra cleaning.
I feel wonderful on stuff like chlorella, which is both a binder and an extreme rich nutritive algae.
If I only kill, I feel miserable. As soon as I add other things to support my body to detox, I feel better. During lyme, I even didn't care anymore to have got lyme, if I felt good during treatment.
What sucked, was to have lyme and feel ill the whole time. If I had lyme, and treated it with whatever methods, but still felt normal some hours a day, it was fine for me. The worst was to treat and feel worse. Then I went backwards, instead of forwards.
I've been using a violet ray (high magnetic device, very cheap) for about 1.5 years. It does help me detox. I do not have lyme anymore, but I still need support, so that lyme doesn't come back again (and to fight chronic candida).
Now both are totally dormant, but I do see a DIRECT relation between toxicity (fatigue, brain fog, pains in organs such as kidneys or liver) and chronic infections.
When I start getting tired, I know my immune system crashes, then infections rise.
I hope you find your way out of this! I would just say, follow your gut. There are so many causes for chronic infections, so many different bodies, pathogens, problems, that I would just go on following my gut first.
Wishing you good luck!
Posts: 6199 | From Brussels | Registered: Oct 2007
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Catgirl
Frequent Contributor (5K+ posts)
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posted
You are welcome!
I am not a rife user yet, but have heard the GMB4000 or ENEM5a or Spooky2 are good. Hopefully more rife people will post here for you.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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bluelyme
Frequent Contributor (1K+ posts)
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posted
There are some rife frequencys for detox ..but i feel that it has to be a plasma machine ..the spooky2 is a compertor controlled chinese made via new zealand ...the gb 4000 with the mopa attachment is tried and true and has its own little frequency box ...
there are others like bcx ultra and the f117 trurife ...but if you are not saavy the gb4000 with plasma has support and and cafl books ...the spooky has a little more features like ultratra sound ,pemf and contact mode
the violet ray is a 25$ 1 frequency little tube for acne ...where as rife is versatile againsr chlamydia pnumonia ,mycoplasm and virus that may be part of the ms stuff.
look into anthony holland ted talks , and cpnhelp.org some have used the hansa center , there is another duc here that does iv stuff...and there is germany ..but i have heard it all...a good rife can be 2500 to 5000,mhbot is like 4 and you know how much these docs charge ...
Regular hbot is like 100 a dive here , bvt is cheep but seems to have driven spirochetes intercellular with abx .do it all if you can ...this othwr doc has some crazy african herbs he is trying to sell me on...i would by snake venom (oil) if it worked ...lol
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