posted
I'm just sharing some good news -- I'm finally seeing a LLND.
I had to re-schedule the previous appointment I had with her because I was too sick to travel (she's a couple of hours away), but I finally got a new appointment with her. Yay!
Maybe now the doubters will finally back off -- not the ones who don't believe in Lyme, but those who don't believe me because I haven't been tested or seen a doc yet.
I have no doubt whatsoever that I have it, but I haven't been able to afford a LLND/MD before now.
How do you all respond to the doubters? Especially the ones who say things like "Oh, I have X (fill in a symptom), too. You probably just have Y (fill in a benign condition)."
I just blow it off if it's someone I don't have much interaction with, but when it comes to people I'm closer to, that's a different thing, both emotionally and sometimes logistically.
But aside from all that, I'm happy to finally be seeing the LLND. I feel like now I can finally get some forward movement with this, and that feels really good.
Posts: 112 | From USA | Registered: May 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Yay on being able to see a LLND!!!!
Many of us know how having doubters feels like. I had plenty of posts asking for help with how to handle this bc it is quite hurtful.
You can't make them believe you if they don't want to believe you. But you can try and educate them. Will they watch under our skin with you? I hope so. If you have the energy, maybe you could print out some materials about why people test negative even when they're positive.
I hope the doubters will come around.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Im glad you are seeing a doc ...use everything you can ..Watch under our skin with family ,justinandchristie.ca and under the 8 ball....
.ok everyone hurts but i thought i just had genitic arthritis fatigue and a little vertigo until a 10 day abx boiled my blood
ask stephen hawking if lyme is benign ...ask anyone with misdiagnosed ms ..explain to them in multisyllabic words the hell that you endure ..step over those that dont want to hear truth to tell those that do...
i have seen spirochetes in many peoples blood .and still they deny and do not treat ....my friend says she sees 9 of 10 ...2 docs i seen says everyone has it ...just what stage are you..how many etcetc
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Although you are focused on bee venom therapy as your method, be absolutely certain the LL ND you will see is very much lyme literate,
ILADS educated (having completed the ILADS physician training program) and keeps up with all the ILADS conference presentations and books & articles by LLMDs and LL NDs.
So they have full knowledge of the science of lyme & other tick borne infections. They should know ALL ways to approach and the reasoning and considerations behind each method. This way when one method is used in replacement, all the bases can be covered, hopefully.
You might also consider rife therapy.
Even if you are focused on doing just BVT as this time, a good LL ND will most likely incorporate various modalities that are of direct, assertive nature and also support methods.
With BVT, Be sure to figure in the cost for enough EpiPen or equivalent along the way, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
The LLND I'll be seeing works with BVT, and she has also put me in touch with a practitioner who is more experienced with it than she is. I really respected her willingness to do that.
She works with the Sophia Health Institute in WA (founded by Dr. K, though you probably already know that), so I'm taking that as a good sign. ;-)
I was wondering about rife therapy, because someone said the other day that the machines aren't too expensive. Since it would be a one-time expense and not ongoing, that might be doable. Time to do some research.
**edited city and name of LLMD per LN rules**
[ 09-17-2016, 07:54 PM: Message edited by: Lymetoo ]
Posts: 112 | From USA | Registered: May 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sounds like you will be starting out in good hands. It's a good sign that any doctor has a good professional relationship network, too, and Sophia certainly has a good reputation for good reason.
Here's some detail about rife for your study file:
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The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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