posted
Any insight would be helpful on my test results. I'm on my third doctor, my last one telling me I didn't have lyme. (Negative ELISA test.) Went to an LLMD. Still waiting on lots more test results, but I got my Igenex back and am looking for any help on interpretation?
My positive marked items: IGM: **31 kDa. ++ **34 kDa. + **39 kDa. IND **41 kDa. + 58 kDa. ++
Is this a positive, negative, or undecided test result? What to the *** and ++ mean?
Any of your thoughts or opinions are appreciated. I understand my LLMD will go over things with me at my next appointment and address my results with my other tests, but I'd like to go in informed and ready with further questions.
THANK YOU FOR YOUR HELP AND SUPPORT!
Posts: 9 | From Marietta | Registered: Jan 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Welcome, magswag. Sorry, of course for why you are here and what I'm about to say: yes, it sure looks very positive to me with
#31 even just for starters, as that's a specific marker. More detail below.
Keep in mind that the CDC criteria for an official positive test is very different from what the reality is, though. The CDC criteria is ridiculous and uninformed and dismisses essential considerations. There are a lot of tests that are considered negative but are false negative.
you don't say if this me CDC criteria or not but the detail below will help shine some light. Physical symptoms, history, etc. also key, of course.
Your posting history, though shows that you actually did test positive last December and received just two weeks of one Rx. Sorry, so very sorry, but that was severe under treatment. Lyme was not addressed adequately but that is what most IDSA ID doctors do, and it's just such a bad outcome for so many.
You asked if anyone else ever had such experiences? Thousands have. That's why LymeNet is here. That's why ILADS exists, too, to try to correct such wrongs.
It sounds like you have found a real doctor, now, just be sure they are a true lyme literate doctor, ILADS "educated"
. . . The numbers on a Western blot such as 23, 31, 34 or 39 refer to how much that particular part of the bacteria weighs in kilodaltons.
The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 59, 66 and 83-93. . . .
[Explains that there are various strains of borellia, so testing often misses the mark. Even if you have not traveled to various states, birds that fly - and can carry ticks and drop them off - have and they often land in NYC, too.]
. . . The same is true for co-infections. The babesia in Missouri is called MO-1. It is a different babesia. There are different ehrlichia. It would appear there is a different bartonella. When you have different strains of germs, the test results may be falsely negative. . . .
[lots more detail here] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In another thread you ask for someone to talk to about all this. I hope you can connect with someone close to you through:
Lyme Disease.org - a top notch education / awareness organization. Many links to detail here, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The good news is that since your test lights up like a Christmas tree - it confirms that test from last December and helps you know where to begin.
There is hope once you can start to see a path in the road and explanation for the potholes along the way. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Hi, I don't mean to hijack someone else's post, but I have questions about the Western Blot test and I can't figure out how to post a new question.
Is it possible to have a false positive? Can someone tell me is my test indeed positive? My Dr said it is, but I don't have nearly as many positive numbers as what I see some people do. My numbers are as follows:
Lyme Ab IgG - 58 & 41 abnormal Lyme Ab IgM - 41 & 23 abnormal
I was diagnosed with an autoimmune disease earlier this year and have dealt with different health issues over that past 5-7 years. Just seeking answers and thankful to have found a group who understands Lyme! Thank you in advance for your answers.
Posts: 7 | From Mississippi | Registered: Sep 2016
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posted
I think it would be best if you start your own post - I'm sending you a private message -
Posts: 13171 | From San Francisco | Registered: May 2006
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