TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
One of my 5 cured friends was likely born with lyme (mother had fibro and she and all of her sisters had it also).
She got diagnosed at age 50 and still got well by going to a doc I recommended.
Another woman had gotten Social Security Disability benefits for her fibro. She had had "fibro" for at least 20 years and an unexplained heart attack to boot. She became "stupid" from her lyme. It was so sad.
But, she is normal today thanks to a Burrascano type doctor.
And, I could go on and on. This is what I have SEEN with my very eyes. These are not people I only know through LymeNet or the internet.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
TF-- I am very happy for you--- you (and your friends) are very lucky to have found an LLMD who cured you. Yours is a good medical anecdote, but not a double blind study (as if those are really valuable anyway...LOL).
If the Burrascano protocol works so well, and has worked so well since 2005, I don't understand why so many people are still so sick--.i.e. why the LLMD community does not strictly use this protocol (AND SCREAM IT FROM THE ROOFTOPS) if it works so well--- I know my LLMD did not use it and he was president of ILADS for a time-- this is why I gave up in frustration and this is why I do not trust the medical community now.
You can't blame those of us who have tried so hard and spent so much money--- WITH LLMDS. We are frustrated.
I have already expressed my misgivings about the mainstream and LLMD medical community -- but I'm willing to give it one LAST try for 18 months under a strict Burrascano protocol if I can find a doctor who will use this protocol exactly as it is described by Burrascano-- all based on anectodes..
If anyone here could PM me with the name of a STRICT Burrascano doctor in the mid to North Westchester county NY area or in the Hudson Valley--- I would be grateful..
I also have a friend who is a young woman who is very sick and has been on intravenous for severals months, and also gave up -- her mother is getting older and is worried that when she dies, no one will take care of her daughter. This young woman does not have a job due to chronic Lyme, nor is she married and she has recently begun to have seizures. (It would help if she stopped going outside and getting bitten..also the dog brings ticks in-- even in the winter... LOL)
I have lived most of my life--- but she has the rest of hers to live--- if I could help her to get well by any means, I would feel as though my suffering was worthwhile.
I am not dogmatic at all on treatments--- I just have a healthy skepticism of LLMDs based on my experience.
Posts: 696 | From New York | Registered: Aug 2006
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posted
This is the nicest thing to come out of this thread. Wakeup, I hope that TF can give you this information soon. Are you not able to travel in the event you need to? I wish your friend and you healing Godspeed and that your wish for your friend is granted as I feel this is what this journey is truly all about- helping each other. May you be blessed in your pursuit for the both of you and you will certainly be in my thoughts and prayers. TF- thank you for coming forward as to always remind us that there is hope.
SixGoofy I believe is healed and countless others leave Lymenet and go on with their lives. There are so many pieces to each person's case- one must remember that as well. Godspeed WAKEUP!
Posts: 859 | From Southeast | Registered: Mar 2011
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As for double blinded studies etc, the NIH isn't doling out any funds for treatment studies that I am aware of, and private studies just can't cut it alone - especially when one factors in the inevitable need for replication.
ILADS and LLMDs are at least trying.
But the one size cannot fit all argument can be a costly one.
This gets complicated so fast.
Is it a case of persistent and intractable infections? Or at least infections that seem to resist any boxed approach, and we are literally winging it on a case by case basis? We get the peculiarity of the diseases involved, and each has a signature specific both to the patient and his circumstances...
..and the individual nature treatments by extention might result in, but...this is a frustrating and scary predicament.
Is it a case of a corrupted immune system and falls under a resultant systemic auto-immune or global immune dysfunction umbrella?
Are we talking permanent damage and individual sequelae reflect those issues?
Is it a combination, and we need better means of sifting who fits into which category?
We do not know.
So, it is incumbent on us as buyers to do our due diligence as best as we can. For those of us that have been around long enough, it is not really hyperbole to say it may be no more than a crap shoot.
But, as I said, at least LLMDs acknowledge our plight and are trying.
Posts: 228 | From Unitied States | Registered: Jul 2015
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey Wakeup...
You said... "Most Lyme victims who worship at the altar of the "medical" priesthood --- have NOT BEEN CURED of chronic Lyme--"
You've been here long enough and done enough in depth research of your own (I hope) to know that there is no cure for chronic Lyme disease.
Can the symptoms be lessened? Often they can and are.
Can your life improve with the "right" treatment designed specifically for you? We hope and pray it can and often it does.
Do all LLMD's have all of the answers? Not by a long shot.
In fact, there has never been any study anywhere that proves early or chronic Lyme can be cured with ANY treatment what-so-ever.
The authors of the IDSA "guidelines" simply decided one day years ago during their rush to get a profitable vaccine on the market that Doxy and Amoxicillin were available, cheaper at the time than most other drugs, and they recommended an "arbitrary" (Raymond Dattwyler) duration for treatment time for anyone with Lyme.
So what do we have left once we are bitten and get sick from known and unknown pathogens that have no science showing a cure?
If you had a choice of going to a duck who says it is all in your head, belittles you and kicks you out the door so fast your head spins as your body rots away and your brains turn to grits....
Or going to someone who is educating themselves as hard and fast as possible to keep up with a nightmare of an exploding epidemic, and who is using any and all tools they have at their disposal to try to help you while risking it all to do so...
Which would it be?
The LLMD's can't change the wind, but they can adjust the sails.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Wakeup said... "If anyone here could PM me with the name of a STRICT Burrascano doctor in the mid to North Westchester county NY area or in the Hudson Valley--- I would be grateful."
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I have all the respect in the world for Dr. B and have fought as hard as anyone has to assist him and keep him going while he was needing help and he was helping others.
He is absolutely amazing.
That said...
Dr. B's "diagnostic hints" document is out of date. It is the best we have right now to use as "GUIDELINES", but there is a lot of newer science and clinical experiences that are not incorporated into them.
PLUS, one-size NEVER fits all here. NEVER. To say if you follow those protocols to a "t" you'll be cured is just plain old wrong.
I'd be dead right now if I had followed them to the letter, and many others would be too. And many others have been helped greatly by them. Great for some, not for others.
Just like one pair of pants won't fit everyone in the world, neither will one treatment protocol. We are all different and everyone's protocols must be tailored to fit them as an individual, to the best of our knowledge.
posted
Which is why I wrote about the "one-size-cannot-fit- all-argument". (Just in case you were referring to me, Tincup.)
This disease does not lend itself to a cookie-cutter model. None of the permutations I alluded to do.
btw, I am a big fan of yours. Regardless, some people, including people here, do claim they have been cured. Maybe we are cutting hairs, and dabbling in semantics, but I don't thinks so. To have Lyme and Company fall into abeyance, or to go dark and asymptomatic, is different than to be cured.
But as you know, most of us would gladly settle for that. Most of us would settle for far less - just to corral or mitigate our symptoms, for months or weeks or even days.
Posts: 228 | From Unitied States | Registered: Jul 2015
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quote:Originally posted by Tincup: Wakeup said... "If anyone here could PM me with the name of a STRICT Burrascano doctor in the mid to North Westchester county NY area or in the Hudson Valley--- I would be grateful."
Little boxes made of ticky tacky? What does this have to do with me or anything about Lyme disease or Burrascano?
You have a strange sense of humor--- I guess you like to mock people who don't kow tow--- for some unknown reason ? Why do you do this? I never did anything mean to you, Tincup.
I simply asked if you were cured.
Well are you cured?
Posts: 696 | From New York | Registered: Aug 2006
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quote:Originally posted by Tincup: I have all the respect in the world for Dr. B and have fought as hard as anyone has to assist him and keep him going while he was needing help and he was helping others.
He is absolutely amazing.
That said...
Dr. B's "diagnostic hints" document is out of date. It is the best we have right now to use as "GUIDELINES", but there is a lot of newer science and clinical experiences that are not incorporated into them.
PLUS, one-size NEVER fits all here. NEVER. To say if you follow those protocols to a "t" you'll be cured is just plain old wrong.
I'd be dead right now if I had followed them to the letter, and many others would be too. And many others have been helped greatly by them. Great for some, not for others.
Just like one pair of pants won't fit everyone in the world, neither will one treatment protocol. We are all different and everyone's protocols must be tailored to fit them as an individual, to the best of our knowledge.
Are you a doctor? Or do you just play one anonymously on internet forums?
Do you have a science credential? Research credentials? A PhD? an MD?
What makes you so much more qualified than anyone else here?
Attendance?
Posts: 696 | From New York | Registered: Aug 2006
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quote:Originally posted by willbeatthis: This is the nicest thing to come out of this thread. Wakeup, I hope that TF can give you this information soon. Are you not able to travel in the event you need to? I wish your friend and you healing Godspeed and that your wish for your friend is granted as I feel this is what this journey is truly all about- helping each other. May you be blessed in your pursuit for the both of you and you will certainly be in my thoughts and prayers. TF- thank you for coming forward as to always remind us that there is hope.
SixGoofy I believe is healed and countless others leave Lymenet and go on with their lives. There are so many pieces to each person's case- one must remember that as well. Godspeed WAKEUP!
Thank you-- you are so sweet. God bless you
Posts: 696 | From New York | Registered: Aug 2006
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I had been battling for about 10 years, the battle against candida, severely limiting fruits, and most of the time avoiding them entirely, along with all other sugars.
I do believe that over the last few weeks I finally got over/through/around that hurdle, thanks to finally eating fruits again.
I do know this sounds crazy to many of you, and I am sure that it would have sounded crazy to me most of the time during the last 10 years, but reality is reality, results are results, it is hard to argue against scoreboard. I would strongly suggest those battling the candida to open their mind to possibilities.
To be clear, I do not mean I went on an all-fruit diet. Not even close to that. I had spent years as vegan, so lots of grains and beans, and plentiful candida. I added in eggs and then animals, more for general nutrition, not specifically to help win the candida battle. But I noted that this opened up possibilities to use less grains and beans, the use of which I thought could have been making it impossible to win the candida battle. As I increased the amount of animals, and really decreased the grains/beans, my candida most definitely got worse. No doubt about it.
As I reduced back the animals, added a small amount of fruits with most meals, added a fruit-only snack late morning, added a snack late afternoon that was fruit with sometimes a small amount of greens ... the candida seems to have vanished, gone ... yes, by adding fruits.
By the way, my goal in adding fruit had nothing to do with the battle of the candida. I did this believing that some specific fruits would help with some digestive system issues, and that providing fruit-sugars would help me have better energy. I had read that giving the body fruit-sugar periodically means that I don't have to run on adrenaline, something that will not work well for someone whose adrenals are subpar and need to heal.
I was reluctant and fearing it would not work out, as a result of the candida. The books I read, recommended by someone I trusted, said otherwise. The books said that eating too much meat is a good way to grow candida, as it will rot in the stomach. This was exactly my experience when I increased the animals I ate. I imagine we all have different ability to digest animals, but I would suggest to those fighting candida to be aware of your body's response to eating different amounts of animals. At some point it may be too much, and despite the lack of sugars, it may be growing candida.
I read in these books that fruits do not cause candida, and some actually help fight it. This has been my experience. I should add that I did not just randomly eat all sorts of fruit, here and there. The fruits were chosen carefully, by reading these books, by using my pendulum testing. The amounts, the timing, what I ate these fruits with, all chosen very carefully.
Just as an example, the fruit I ate today were:
breakfast: 2 tsp "Deep Purple" (a Biopure product that is dried plum/pomegranate/acai)
mid-morning: 3/8 cup blueberries and 3/8 cup raspberries
lunch: one rehydrated dried apricot
late-afternoon: rehydrated 1/8 cup goji berries
dinner: one soaked date and one kiwi
I think this may be just a touch less than average for me these days, but about typical.
I think for me, some of the reality is, I need so many calories ... trying to get them from just grains/beans (and miniscule calories that come in most veggies) ... this may really feed candida, the slow to digest carbs. So if I replace this with animals, fine, but, that will really rot if too much, just takes more work and time to digest. Nuts/seeds are nice to a point, but also more difficult to digest. Fruits are a bit easier, and do provide energy, replacing some of the other choices with their problems. If some particular fruits also support improved digestion, and fight candida, that is a bonus.
The bigger problem I had with adding fruit was symptoms that were a lot more like C.Diff than candida came up. This has been something lurking in the background for years, popping up here and there. I was dx with C.Diff by stool test maybe 6 years ago. It was treated with alinia for a couple weeks, with at least some success, but my digestive system has not been the same since. We test from time to time, suspecting it is still there, and always negative, but we are not confident on the results. This time I responded with some C.Diff fighting foods according to these books--rosemary, aloe vera, papaya--and it has moved back into the background (at least, we can dream maybe a better result than this over time).
I also want to point out, there are at least a couple well respected cancer docs who don't at all buy the no-sugar approach for those with cancer. They believe that in the end it just breeds much stronger and hardier fungal infections (and worse cancer too). These docs do not dispute that there are short-term gains from this approach ... it is just that long-term, it looks to them a losing strategy.
For those interested, the books are titled "Life Changing Foods" and "Medical Medium", by Anthony William.
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
A Start-Remove the five top acid forming foods from your diet.
Dairy, grains, most proteins, complex carbs, and most fats. Substitute fruits, some raw vegetables, a little cooked vegetables. Just a start to become less acidic.
Remember-an acidic body cannot heal and Lyme is only one symptom of this problem.
Posts: 254 | From Westchester, NY | Registered: Jun 2009
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I Can't believe what I m reading
Patches, how hurtful for posting LLMD s are all wrong on a Lyme website.
Your simple statement dismisses all of our struggles and pains. It also dismisses our battles won and gains.
Did you think this would be helpful ? Or did you post for optimal shock value to get our attention so you could promote your agenda ?
Oh yes, patches, The solicitation of Mr. Fruits,berries and melon guy website, is your agenda. Which, I might add, you have cleverly, not once, but twice, included the link to in this thread alone !
Ah yes, dear patches, you ve been a busy advocate, because you also have solicited on:
01/01/2017 Breat cancer possible cure by marnie 01/03/2017 Antibiotics are out of control by medical establishment by patches10025 11/25/2016 Vital Reds-Has anyone used this? by MannaMe 10/08/2016 Has anyone tried the RNA? by ihslyme 02/22/2015 Are herxs slow to come on by sick Sam
Plus numerous other posts that you have deleted afterwards.
While I might not agree with what you post, I respect your right to post it. So why then, when I told you, in a public forum, that I was not interested, that you still continued to private message me until I had to block you?
Where was my respect?
Who died and left you boss as to the right way to treat ?
Then you have the superior inclination to ask "all Lyme patients who are cured to please stand up."
Well I would like to ask how many people here at lymenet have been solicited and harassed by private messages from patches10025 directing them to Mr fruits,berries, and melons website ?
And in closing, how could you state that Tincup is close-minded ? Are you serious ? She has been one of the most compassionate and knowledgable angels I have had the pleasure of meeting on my Lyme journey, amoung so many others here at lymenet.
We take care of each other and don't call each other names.
That, my dear is called respect.
You owe her an apology BIG TIME !
P.S. Almost forgot about you, Wakeup.
Who cares if Tincup is a doctor ? You clearly stated your misgivings about mainstream and LLMDs. Tincup does the WORK, tirelessly. She walks the walk.
Posts: 3217 | From Florida | Registered: Nov 2016
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posted
Hi Patches, I think this doc is onto something, but like others, I am afraid of lots of fruit with my candida, which I can hold at bay with like zero sugar. Including fructose. : (
Plus, I feel better with protein. But I do notice my system does not digest vegetables well, which is counter to everything I have ever been taught. I definitely digest fruit the best!
And as far as abx go, yeah, they messed my stomach up bad. I always wonder if my Lyme would have healed without anyway, as I am a good healer.
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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I know this method is somewhat extreme for some, but look at all the persons who have healed and are so grateful for the protocol. They do not categorize their malady, whether Lyme or anything else. Their concern is system that is broken and cannot detox and move into alkalinity.
It does not have to be as extreme; there are variations. But it is truly a healing that most are not aware.
Why not give it a try. Within a few weeks, you will know.
Posts: 254 | From Westchester, NY | Registered: Jun 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Patches, do you sell this system? It seems like you're advertising it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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I have spent most of my life-over 50 years-trying to get to the root cause of my chronic fatigue and brain fog, including a blood test that said I was Lyme positive.
This is the only thing that has worked. Why wouldn't it? Detoxing and clearing your lymphatic system and eating non-acidic food is the most effective way to health. Fasting is even more effective. All the great masters say that.
I am only sharing my happiness from this wonderful protocol. I am not selling anything.
Posts: 254 | From Westchester, NY | Registered: Jun 2009
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posted
Patches, is there a text version of the protocol? I am way too Type A to watch a video of that length.
It is eating Alkaline, and what else? Herbal tinctures can't be tolerated by me at this time, after abx and large doses of herbal tinctures, so I hope that is not required...
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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posted
Here is the long version. You can start as slowly as you like...with a fruit and vegetable diet, then gradually add the herbs, psyllium pudding and the fasting and the grape juice.
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
thanks Michael Tampa, for the detailed report about what helped you.
I react very similar as you, in fact, I don't believe that candida is fed mainly by fruits.
In my case, the worst are carbs, even gluten free, totally organic type, even in smaller amounts.
I also need energy from food (too thin to live on protein or fats...), that is why I can't live off both fruits and carbs.
So I eat both, having taken off both from my diet, in the end, I do think I need both. For the moment.
During lyme treatment, I never dropped fruits and veggies. Never. Or I felt even MORE miserable.
when I flare with candida, IF I avoid carbs 100%, I suspect I still can eat some fruits without flaring more.
I think the combination carbs + fruits is the killing thing, for me.
So Patches is not totally wrong, in my opinion.
But going cold turkey fruit-only dietis hard, as we have so many food intolerances and allergies and other digestive problems....
I notice CLEARLY that candida increases and flares after milk products, in my case.
I only TOOK sheep or goat yogurt, fresh cream, some cheese and butter. I eliminated long ago all cow milk products, except for butter.
Recently I dropped all casein containing products, meaning basically all milk products, except for butter.
I diminished butter a lot too, while increasing oils (like olive).
But like you, I crave for more energy, beans were NOT ideal, as I also flared clearly with beans. They feel very much like sugar or carbs.
And my gut health prevented me to eat a lot of nuts, because of multiple allergies before.
So the puzzle took time to be solved... it's still not totally solved...
After treating the gut better with live probiotics (kimchi, miso, basically, daily), doing the violet ray for 2 whole years, after taking off all milk products, all gluten, well, finally, my nut allergies faded.
Years, and years of trial and error!!
Fruit allergies FINALLY diminished drastically!
I'm still knocking on wood, as it is unbelievable!
Patches forgets about that: most of us are FULL of fruit and nut allergies!
We can't go cold-turkey because we will cause awful inflammatory responses. And I MEAN AWFUL!
So now, I could SUBSTITUTE a lot of carbs by eating a variety of nuts daily.
I do eat nuts in amounts that are amazing, these last months or weeks!
Just 6 months ago, I would never believe it possible!
My whole mouth, throat, stomach would simply burn with most nuts!!
So now, instead of a piece of bread, I will take 2 HANDFUL nuts, Brazil nuts, almonds, hazel nuts, walnuts, cashew, pistachio, any nut really, as my allergies are going down.
And that nut combo feels nourishing, I swear! I chew them slowly, and no burning, no flares after.
If I take enough good oils in the form of nuts, I need less PROTEIN and less CARBS, as I get less hungry.
People here believe that animal protein-rich diets will keep you off candida.
In my experience, that's not the case. Flares take longer to come, but they do come.
And animal protein-rich diets are excellent for growing bacteria (that is what they eat, while candida eats mainly sugars).
As we guys with lyme (bacteria) USUALLY have candida (fungi-like species), well, it is EXTREMELY hard to do any type of diet.
the problem mainly is the gut, a sick gut, full of inflammation and other diseases.
The gut puzzle is taking my WHOLE LIFE to be solved (I'm 50 now, and suffer from different digestive problems since I remember existing....).
The good news is that my allergies are finally receding. So now, I can eat more fruits and nuts.
Posts: 6200 | From Brussels | Registered: Oct 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I'm trying again to increase fruits since yesterday, just to see: one avocado with one whole lemon on empty stomach - no flare at all, I felt good with it.
Today, one orange, on empty stomach, morning - no flare at all.
Then 2 handful of nuts: no flare at all, it felt good.
Then I ate a small piece of rice bread: immediately, I could no longer walk, and had to stay sit in the car, waiting for the cytokines to stop, anxiety to calm down.
More than an hour lost, low energy....
When I'm in that flare-mode, I can take coffee without sugar, without anything. Black. Fine.
The moment I add one small teaspoon of cream, I flare!!
The story about sugar and candida flares is not right, in my opinion. It is not the ONLY truth, for sure, as, like Michael, high animal proteins and milk products make me flare too!
And look, my orange today, if I take it alone, didn't make me flare.
If I can substitute all carbs (rice, gluten free bread) by nuts, I think it will do good.
High intake of fruits never caused me to have candida, when candida is already dormant.
Now I just ate half a mango.
OMG, just waiting to see, but so far, so good.
No carbs at all the whole day, except for that piece of bread...
I guess for me, carb substitution can happen if I eat big bowls of greens, with a lot of olive oil, many raw veggies, and NUTS.
Without nuts, I would feel still hungry for carbs, and that is where my health can collapse again (in case candida is active, of course...).
Posts: 6200 | From Brussels | Registered: Oct 2007
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quote:Originally posted by patches10025: All Lyme patients who are "cured" please stand up...
This is a ridiculous statement as those who are "cured" will most likely no longer be on this board .....
Posts: 145 | From Midwest | Registered: Sep 2015
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posted
I have a small bit to add. I have followed this FLA doc for about 3 years. I have watched several videos and use 3 of his products. I have a mixed opinion of the "fruit diet" over the long-term for me. I am using some of his tinctures to help with my lymph and liver. I also use one of his teas while at work. Seems the many years of ABX really messed up my liver.
Last year I was tested and found to be Pre-diabetic, I thought the foot pain was all Bartonella. Diabetes is not part of our family history and I was about 25lbs over weight so did some research and am blaming the ABX and damage to the liver, casing a fatty liver.
So I have been on a Keto diet since last August, down about 25lbs and most blood results are good. However my body is not very insulin sensitive yet so until I get that corrected I am staying away from just about all sugars.
Using Rife, C Silver, Cats Claw and Ozone Saunas right now. About to add oregano oil back in the mix and change out my Cats Claw for a different brand. Started back up on the heavy metals treatment (took two years off) and felt better after the infusion this week.
I think the Keto diet has caused some of the mercury to move so I am using DMPS, zeolites and charcoal. There is a theory (I have no proof) that a longer term fast (I think 3 days or more) resets the body to help fight the invaders. I have only done one 24 hour fast but I do usually fast for 16 hours every weekday. with my last meal by 8pm and first meal at noon. That seems to have helped with the pre-diabetes.
I did one UVLRX a couple of months ago but did not experience much in the way of herx or benefits. It seems to be helping my son though. He gets one treatment a week.
All the Best,
MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
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Your mailbox is full.
Posts: 254 | From Westchester, NY | Registered: Jun 2009
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Patches
your mail box is full
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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posted
Fixed it now.
Posts: 254 | From Westchester, NY | Registered: Jun 2009
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Brussels.. can you tell me about the nuts?
I get the burning mouth, ripped skin from nuts . what is this from? did you say? I can't find that in your post, but may have missed it. I know the "space between lines" is best for most here, but for me it makes reading and retaining extremely difficult.
I need like a group of three lines on top of each other to be able to read it well.. anyway, that is not my concern so much, but I need to know more abouthe nuts thing please!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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posted
I can tell you that nuts are very high histamine, Lisa.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
hmmm that is interesting. I do have an issue with histamine
______
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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Matt
Posts: 607 | From Houston Texas | Registered: Mar 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Wakeup,
Now that you’ve taken a break for a few days and hopefully have calmed down, I will respond to your posts directed at me.
```````````````````````````` You said… "Little boxes made of ticky tacky? What does this have to do with me or anything about Lyme disease or Burrascano?
You have a strange sense of humor--- I guess you like to mock people who don't kow tow--- for some unknown reason ? Why do you do this? I never did anything mean to you, Tincup.”
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First, it has nothing to do with a sense of humor.
The famous song (sung by Pete Seeger who also had Lyme) was just another way (a nice way I had assumed) to try to get you to look at the bigger picture being carried out throughout this thread by others.
And to try to get you to see you’ve severely limited what you are willing to do to treat Lyme by stating you only want a doc in NY, and a doc in your specific area too, and a doc who only treats “exactly” one way with no deviations.
And you are only intending on treating for a specified time period of 18 months. Those are your "rules" or conditions for treating Lyme.
My guess is you already know that no one fits inside that limited criteria (into that box).
To be treated with any hope of getting better you’ll need to get out of that “little box” before you have a chance to succeed.
The song says little boxes “all look the same”- and all the people in the (same looking) little houses all went to the same Universities.. etc.
The point there was that people aren’t all the same, and one specific protocol may work for some, but won’t work for everyone.
That’s all.
Sorry I made the assumption you’d get it. Next time if I am not clear, please just ask for an explanation.
As for this line of questions... you said...
`````````````````````````````````````` "Off hand--- just asking for curiosity's sake--- are you cured, Tincup? I simply asked if you were cured. Well are you cured? Are you a doctor? Or do you just play one anonymously on internet forums? Do you have a science credential? Research credentials? A PhD? an MD? What makes you so much more qualified than anyone else here? Attendance?"
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To be clear, I never said I was more qualified than anyone else. Period.
I simply, like everyone else, expressed an opinion (with facts to support some of my opinions).
And I find it extraordinarily strange that for the several decades I worked as a volunteer helping people caught up in disasters, or who were in ambulances on the way to the ER’s, and while searching the woods for lost children, or bringing bodies off rough mountain terrains after plane wrecks, or when I was putting out a fire at someones home…
Not one person ever stopped me to ask if I was a doctor, or a PhD, or ask about my credentials, or ask about my own health circumstances. Especially with that “tone” you’ve expressed.
It's real simple. I offer help when I can. I offer facts when I can. I offer an opinion backed by facts, when I can.
That’s all.
If you can't or don't want to accept my help and still feel it is necessary for me to first share my personal life story and/or medical history online for the world to see before I can share my opinions here too, please do us both a favor.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Duncan...
Yes, you had stated exactly what I was trying to say. Unfortunately, I was typing while, and shortly after, you had posted your reply and I didn't see it right away.
And I liked your explanation very much so. You hit the nail on the head.
All of us are different and some things work for some, but not others. Perfect!
Thanks!
PS- You obviously did a much better job with your explanation than I did.
And for Petes sake, please don't anyone misconstrue this or make it something it's not. It is only with great honor I present this special award to Bb.
I should have said most...most...doctors have it wrong, including some Lyme drs.
But my point was lost by my headline and your jumping on me.
I still stand on my point. Most approaches to Lyme are just wrong.
Posts: 254 | From Westchester, NY | Registered: Jun 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Actually your point you just shared above and the title here don't match. You said in the title "Lyme Drs. Are All Wrong" and not "most approaches to Lyme are just wrong."
Ok. You asked.
The title could have been...
Protocol to help Lyme patients. Or...
Fruits can help with acid systems. Or..
This doctor has some interesting ideas. Or
Whatever.
The point is you don't need to cut down others just to share some educational material you think can help people.
That 'kick others down to make your point' tactic doesn't get you very far in any circumstances.
And yes, when you upset people by saying something so outrageous that few here agree with (Lyme drs. are all wrong), you can expect blow back about it rather than people being receptive to your message.
Kicking LLMDs here is as about as well received as screaming fire in a crowded theater when there is no fire.
Or like Jim Croce says in his song....
You don't tug on Superman's cape,
You don't spit into the wind,
You don't pull the mask off the old lone ranger and ...
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
tin, thank you for expressing what i cannot.
many years ago, I worked in mortuary affairs on a military base and I've worked at one of the largest hospitals in this area. I have seen what disease and death can do to families.
I hate to see discord on this board.
my bottom line is there is no magic pill, cure, or doctor for everyone. what works for one will not work for another but to use descriptive terms for lyme and lyme patients does us all a grave injustice.
just as we all vary in size, color, shape, religious and political views, so do opinions on lyme treatments.
they say lyme is a great deceiver but apparently it is also a great divider and destroyer.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Lisa, the reason why people cannot eat this or that is not clear.
Names of new diseases appear every year, and your disease will change names when you go from one dr to another.
that's been my life, ever since I was not even a teenager.
Just see a new dr and get a new diagnosis: of course, any new diagnosis provide you NO TREATMENT possibility except than symptom relief drugs.
The only real truth, in my opinion, is that: people can eat less and less foods, either because they react with allergies, intolerance, fatigue, headaches, burning, or whatever reasons.
the gut is ill, that is the first starting point, in my opinion.
It lets big molecules pass to the lymph then blood, and that is recognized as bad to the immune system.
You can begin to simply react to this substance, then another, another...
I can concentrate on gut healing, because lyme is not preying on me any more and I have more time to treat other health conditions.
Probiotic capsules never did much to me, only mild help, but I need to take these forever, then keep changing...
The best solution, so far, is kimchi, for me. Full of sulphur inside. Some people cannot take sulphur, so they have to start somewhere else.
The longer the problem in the gut, the harder it is to heal and find solutions.
The more gut problems you accumulate, the puzzle gets almost impossible to solve. Until you get all those multiple-allergies that make you barely able to eat anything growing on planet earth.
So, the sooner you start trying to solve the problem, the better.
I would start avoiding the main allergens (nuts are among MAIN ALLERGENS), gluten, milk products, most citric fruits etc, then slowly fixing gut microbiota, then slowly reintroducing stuff back.
there is no one-rule-works-for-all, just because our guts are ill in different stages, and also because some people will have more problems with a set of microbes (such as bacteria) while others will have problems with candida or fungi.
The proposed diet should be a bit different too, as these microbes eat different foods too! ------------------ Patches contacted me in the past, he never tried to sell me anything.
--------------------- Certainly, for the last 10 years, I eat just a few types of nuts (like Brazil nuts) very moderately, and had to peel or I feel some burning coming.
Walnuts, peanuts were killers, in not a long past, specially with skin.
Now: no peeling, nothing, I just ingest whole chunks of different nuts daily, as substitute to carbs.
I won't boast too much, or I'm sure the damn allergies will come back as punishment! Posts: 6200 | From Brussels | Registered: Oct 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I tried kimchi. tore my stomach up something awful.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Randibear...
You are certainly welcome. But, I think you did a good job here when you said...
"my bottom line is there is no magic pill, cure, or doctor for everyone. what works for one will not work for another but to use descriptive terms for lyme and lyme patients does us all a grave injustice."
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
August 6th 2010. Tallahassee Florida
The Florida Department of Health(DOH) Fort Meyers Unlicensed Activity(ULA) Unit announced that a joint
investigation with the Charlotte County Sheriff's Office has led to the issuance of a Formal Cease and Desist Order and
Citation to Robert Morse(Mr Fruits,berries and melon guy) in connection with the unlicensed practice of medicine and
naturopathy, both 3rd degree felonies punishable by a minimum of 1 year imprisionmemt and a 1000.00 fine.
The Dept of Health's ULA office recieved a complaint alleging Morse, of Port Charlotte, Florida was offering on his website
health care services. The website revealed Morse was representing himself as a naturopathic doctor, who could
assist patients in overcoming cancer, diabetes, high and low blood pressure, and many other medical conditions.
One complainant who was treated by a physician for diabetes was instructed by Morse to discontinue medications contrary
to the advice of the licensed physician. The ULA investigation by the DOH confirmed Morse was providing health care
services without the proper state license, which is a felony in the 3rd degree. Additionally in 1996, Morse was issued a
Cease and Desist Order by the DOH for improperly using the title "Doctor". Since this was a second effort on Robert Morse's
part to hold himself out as a health care provider, although not properly licensed, the Charlotte county Sheriff's forwarded the case th the 20th Judicial Circuit Attorney's Office for review and prosecution.
@ This information was obtained from the Florida Dept of Health website. If the information is incorrect, then it is the responsibility of the FDOH to correct it.
The following statement I obtained from Morse's website:
"Please note that Dr Morse is no longer seeing clients so he may focus on research, writing, and educating."
Yeah, o.k., doc.
Posts: 3217 | From Florida | Registered: Nov 2016
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