posted
Went to er because of paroxysmal atrialtachycardia which did not resolve at home. 6 hours of observation and then I went to sinus brady at 55. The doctor did not want to do anything because it was so bizarre. Any one else experiencing this and have you found anything that helps. I am taking Cora calm, coq10 and magnesium for the heart. Minocycline for Lyme.
Thanks
Posts: 41 | From CA | Registered: May 2017
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You betcha. This has been my life for many years. Once Lyme becomes entrenched neurologically, it can impair the nervous system to the point of no return. That is, it can cause severe autonomic dysfunction.
Many times, the dysfunction is directly attributable to a small fiber polyneuropathy, in which case the small nerve fibers that feed organs under the body’s autonomic control (i.e. the heart, esophagus/stomach/colon/anus, sweat glands, etc.) are affected/damaged.
In such a case, it is less likely that what you are experiencing is a heart structure problem. Instead, a heart rhythm problem, coming at the dysfunction of those tiny nerve fibers, is the more suspect(ed) culprit.
Aside from continuing to treat your tick-borne infections if active, the other treatments mostly lie in symptom management through medication. In some cases, agents that purport to heal damaged nerves may be minimally effective, at best. The science is just not there yet.
It’s good that you went to the ER for precaution, however, I’d advise finding a Lyme-educated cardiologist as soon as possible so that you can be followed accordingly. I can’t recall off the top of my head, but, I don’t believe that Mino has a malevolent cardiac profile (although true that even if you don’t yet have neurogical cardiac involvement, the drug can be stirring up the bugs and causing your erratic heart rhythms).
I hope that you are able to find some relief soon. I know how awful the Lyme/tbd cardiac piece can be.
Stay strong, Told
Posts: 315 | From Negative (-) to positive (+) | Registered: Nov 2011
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Take binders!!!! Most neuro symptoms are not from infection, but from neuro toxins!
I had heart problems (several), even could not hold urine any longer some times, numbness, then paralysis, neck was hard as wood, etc etc.
Taking binders saved my life. At least, life quality.
Binders, organ support are MUCH more important than antimicrobials. I have no doubt about that.
My lyme misery changed the day I discovered that.
Posts: 6199 | From Brussels | Registered: Oct 2007
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Any chance that you’d be willing to share with the Group the binders that were most helpful to you with your cardiac symptoms, numbness, paralysis, stiffness, etc.? We all appreciate your guidance, I’m sure! And bull...sorry for my hijacking of your post!
Thanks a ton, Told
Posts: 315 | From Negative (-) to positive (+) | Registered: Nov 2011
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posted
Thank you all who have made suggestions. I just had my Second ER trip this week for same symptoms and now they call it anxiety, wish I felt it was just that. I feel like I am dying at the time.
Posts: 41 | From CA | Registered: May 2017
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Might help: Consider this and also ELECTROLYTES
posted
Yes, also interested in learning more about the binders you took to help your heart, Brussels.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
New cardiologist says there is no such thing as chronic Lyme disease and I need a psychiatrist. No clinical documentation of anything wrong with my heart. Do not be wasting his time.
Posts: 41 | From CA | Registered: May 2017
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I can't tell by your post if you believe them or not. It takes a while to figure out how to avoid those kinds of encounters.
Many here have been through all that so many times and it can be devastating and dangerous -
- yet we've had to learn what we can to take care of ourselves as much as we can (hence, the magnesium thread is vital). . . and also how to find the right kind of doctor if possible.
The documentary UNDER OUR SKIN does a good job of explaining that thought vs. the reality that is addressed by the kind of doctor you can find through ILADS.
. . . what you want any doctor you see to have completed (or otherwise understand the basics and complexities that are addressed by the ILADS group at their annual conferences, papers, books, etc.)
Two Standards of Care Revisited: Should Lyme Patients Have A Choice?
By Lorraine Johnson, JD, MBA - 7th January 2015 -
[ 12-05-2018, 01:52 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Your food might be all real and no processed foods at all. Yet, if that is not the case, be on the lookout for things that can affect the heart rate / rhythm:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all).
Glutamate / Glutamic Acid can be very destructive to the nerve fibers & function for those with lyme and neurological issues -- & cause irritation, heart rhythm irregularities, anxiety, even seizures, etc.
It's in food, naturally, but in supplements, it can be "killer" for use unless just in a very tiny amount and balanced with magnesium.
Some doctors suggest even avoiding foods that are high in glutamate / glutamic acid for those with neurological conditions.
Check all supplements and assess diet (and anything that comes into our bodies for:
See post: Caution: Aspartate; Glutamine; and Phenylalanine (3 excitatory amino acids that can be wrong for us when added as supplements, beyond a normal dietary level)
Seaweed has its own natural MSG and can be very excitatory -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I would assume, per your meds, you're seeing a Lyme doctor - can you check in with them? They will take you seriously.
Posts: 13117 | From San Francisco | Registered: May 2006
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