Thanks for bringing it to my attention.

I would also like to say I come from a part of the country that we "don't have lyme disease". So little is heard of it in this area. It is common to get a tick bite, but you take some antibiotics short term, and it's gone.

My brother had cat scratch fever when we were little. My mom took in some stray kittens when we were cooped up with chicken pox. They took a biopsy of his lymph gland because they thought it was cancer.

He was treated, but neither me or my sister were and we all played with the kittens.

So little is known of viruses or bacterias and little is done to treat.

I am very greatful for this dicussion board and I have learned so much. It gives me confidence that my dr is doing the right thing and I am greatful to have found my dr.

"Hi I'm H. Seals and I have Lymes Disease."

It makes me see red or should I say green....

It's almost my favorite but my favorite has to be "BUT YOU DON'T LOOK SICK" I love it!!!

Keep keeping on ya'll.......

I had a friend who used to play around with punctuation and call it Masterpieces Theater and talk about hurting my feeling. This still makes me laugh, although I can't always remember why I am laughing.

Who cares wether it is called Limes, or lymies, or however they want to pronounce it, let it go.

HONESTLY, I really feel that this kind of thing makes us a laughing stock.
I mean, if one has cancer, the person who has cancer does not care how the Dr pronouncues it.

When lyme gets around, it will be called the right thing, as more Dr's are aware of this, they will call it the right name.

I know when we are sick, little things get to us, but I HOPE you dont say this to a DR when you are getting treatment, because
it is like YOU know it all and how to prounoune it.

POSSIBLY if we arent that nit picky about this name, we will be taken more seriously.

Some do have OCD with lyme, so maybe these people get bothered by the name.
and maybe because we are so short tempered from loosing many of our lives, the fullness of them, little things bother them.

I want to get better, I dont care what they call it.

quote:

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Originally posted by Lymied:
Trish I think you hit on something here with the whole Lyme - Lymes debate...I think the fact people call it Lyme's is a constant reminder of how few people understand it and this reality is a sad one when you are so sick with it...it is this lack of understanding that leaves chronic lyme sufferers feeling isolated and alone...I shouldn't speak for everyone but that I think is why I can't stand the term "Lymes"...

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I agree, for what it's worth.

The correct name and toxonomy is Bacteria; Spirochaetes; Spirochaetes (class); Spirochaetales; Spirochaetaceae; Borrelia. Borrelia burgdorferi.

quote:

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Originally posted by pattiecake:
Like when people say Wal Marts.
pattiecake

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Actually, it's more than irking, it's frightening to think that ignorance on the medical communities' part has lasted this long!

Health said:

I believe that if were are this picky
about it being called the right thing,
that is WHY we are not going to be taken
seriously. Who cares wether it is called Limes, or lymies, or however they want to pronounce it, let it go.
HONESTLY, I really feel that this kind of thing makes us a laughing stock.

POSSIBLY if we arent that nit picky about this name, we will be taken more seriously.

lymied said:

Trish I think you hit on something here with the whole Lyme - Lymes debate...I think the fact people call it Lyme's is a constant reminder of how few people understand it and this reality is a sad one when you are so sick with it...it is this lack of understanding that leaves chronic lyme sufferers feeling isolated and alone...I shouldn't speak for everyone but that I think is why I can't stand the term "Lymes"...

I agree whole heartedly with Lymied. I don't think wanting a disease that has devastated my family, being called by it's correct (common ) name is making me, or the lyme community a laughing stock..

Nor do I think it makes doctors or other healthcare officials take us, or the seriousness of this disease less seriously.

In fact, I see it as the total opposite. If we want to get the word out there about Lyme Disease, then we need to use the correct (common) name. Lyme Disease.

To allow professionals to continue to call it "Lymes", is basically allowing them to remain ignorant about Lyme and the seriousness of Lyme.

It is also an injustice to all of us who have spent years trying to get the word out there about Lyme disease and it's dangers...

After all, how can we expect a doctor to become educated about Lyme Disease, if he/she isn't even calling it by the right name??? Yet alone looking up the right name for their research?

In my opinion, if a doctor uses the word "Lymes", it shows me that he is ignorant when it comes to this disease.

And having 2 young children who suffer from Lyme and having Lyme myself, I refuse to put our lives in the hands of a doctor who isn't educated enough about this disease to even call it by it's correct ( common) name!

Just my 2 cents..

~Lymebrat

I coulnt agree more.

What if there is a Dr. who is willing to treat Lyme but calls it Lymes.

Are we going to 'hate' him/her for it??

and my Mom despite the fact I have corrected her three times calls it "Lymes"...

I try to be kind or humorus in asking folks to use the correct word.

robi

In the same respect...if we called Hilter, Hitlers or ****ler....isn't that a sign of disrespect?

This is a mighty foe we face here...and it should out of respect for what it has, is and will be doing to the masses be called by its formal nickname. (Hell in a bug)

That name is;

Lyme.

The name was derived from a single town...

Heck...they don't call the Caribean Islands the Caribeans do they? lol

Trout

PS....Until we educate everyone properly..it is imperative that we get them to call it by its REAL name. Why? This IS an actual indication of the Physician or person level of intelligence in that particular region.

The hosp said she has a raging bacterial infection of "unknown origin" Of course she has been on antirejection drugs (steroids). We all know what steroids do to lyme and co infections.

If we are going to crawl over people for saying Lymes, then we must crawl over others for not saying the correct microbiology taxonomy.

I have a great LLMD and he NEVER calls it Lyme. He calls it from its taxonomy.

Out of all the ourages in the world, this is the least of them.

There could be someone out there who has English as a 2nd language and so they call it Lymes...How dare they not pronounce English properly.

What if a person has a lisp and it sounds like Lymes, but really they are trying to say Lyme...they should know better!? How dare they have a lisp.

I was taken by ambulance and they put down I was blind instead of having Lyme. It was an honest mistake. Big deal. They had probably been working all day.

Someone asked me why they didnt call it the Lemon disease. Big deal. They had never heard of Lyme, CT.

You take ignorance and work with it. But I dont 'hate' lack of correct spelling or pronunciation.

This is silly. There are more important things. Move on. If this is the most insulting thing in your life, G-d Bless you!

Believe it or not, there probably is a deaf Lyme person out there who would LOVE, absolutly LOVE to hear the word Lymes. We should all grateful that we have hearing instead of being insulted by what we hear.