posted
I don't know if this will help you, but I developed chronic sinusitis in 1979. My Lyme symptoms began in 1978. (I was diagnosed with Lyme in 2003. It took awhile!) I get what I consider to be sinus headaches, and my nasal passages always feel clogged.
However, I had an MRI of the brain recently, and it shows that my sinuses are completely empty. They appear normal. So what accounts for my symptoms of chronic sinusitis? I think it implicates Lyme Disease, but we'll see if continued treatment helps.
Scott
Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003
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beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Yup, I have chronic sinusitis on the right side of my head. It started before my Lyne dx. I still get it and find that it is worse when I have a yeast infection.
I also had a brain MRI which showed clear sinuses. But, it did show a cyst right behind my right eye that my ENT says could contribute to sinusitis.
I will say, I always feel better when my yeast is under control.
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Yup, that's me. Queen of the sinus infection, and chronic sinitus. 4 CAT scans of my sinuses and an MRI of my brain all showed chronic inflammation in my right sinus.
Plus deviated septum, and osteoblasts (air retention pockets I was born with) that fill with fluid when I have an infection.
I've always had sinus issues since I was a kid. However, the infections didn't start until after I got Lyme.
My ENT, who was treating me for months for the sinus infection from heck (pre-Lyme dx) was pretty sure I would have to have the surgery. However, convincing him to keep me on long-term abx changed his mind. My sinuses (and Lyme symptoms) all seemed to clear up while on abx, and he felt surgery was not in my best interest.
And now that I've done lots of Candida treatment (and 8 mos. of Lyme treatment), my sinuses and allergies are better than they've been in years. And my ENT and Allergist don't think they need to see me any more.
I'd opt for skipping the surgery for now - the last thing your body needs is more stress on your immune system. Stick with the abx, flush your sinuses frequently with saline, run a humidifier near your bed, and
treat THE YEAST!!! I can almost bet that's the real culprit. Whenever I cheat and indulge in carbs, my sinuses instantly clog.
Diflucan, low carb diet, Oil of Oregano will do wonders.
------------------ Julie G. ___________ lymeinhell
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I have chronic sinusitis too, although mine is not nearly as bad as some people's. In my case it's allergy related rather than Lyme (although I have noticed an intense increase in sinus headaches since being infected.) The absolute above-and-beyond best thing I ever did for my sinus troubles was to buy and start using a Neti pot. I definitely recommend them to anyone with sinus pain or inflamation. It's easy as pie to use - you mix up warm water and sea salt in the pot, stand over a sink, pour the mixture through one nostril and out the other...et voila! I know it sounds strange, painful, and impossible, but it is none of the above. Well, except maybe strange. I don't know why it works, but it REALLY makes a difference for me. You will be horrified (or, if you're gross like me, a bit fascinated) by what drains out of your head. Anyway, that's my pitch of the day. Hope it helps.
Posts: 8 | From New York, NY | Registered: Nov 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I used to have sinus problems. I think congestion came prior to Lyme, but headaches came years later. I got pretty clear with 2 months on abx for sinuses and a year of allergy shots.
Lyme can definitely hide in the sinuses. But it can also be a different bug. Chlamydia pneumoniae is an upper respiratory bug that you might want to get tested for. I think other mycoplasma too.
My understanding from my LLMD was that Ketek targets upper respiratory critters. I had really bad sinus headaches my first week on Ketek.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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liz28
Unregistered
posted
I had sinus problems for ten years because of undiagnosed acid reflux. Prevacid is holding it in check.
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posted
Me and both of my children had constant sinus infections before lyme treatment began.
I bet we were in the doctor for sinus infections about every other month. We would be on abx, and not get a whole lot better - sometimes worse. Dr. would say you've been on a long enough course of abx.
Two weeks later, back in for sinus infection. Both of my children had CAT scans that said they had chronic sinusitis.
Now, since being on abx for lyme we haven't had sinus infections.
Posts: 416 | From Southeastern PA | Registered: Sep 2003
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posted
I have had chronic sinusitis and now have developed eustation tube dysfunction in my ears--this has been a huge problem for me.
My LD suggested I see an ENT and have a biopsy to see what bug is growing in my sinuses. This has been an ongoing problem for 10 years now.
Cathy
Posts: 192 | From Myrtle Beach, SC | Registered: Mar 2004
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Yes, and Singulair and the Neilmed sinus wash have made a BIG difference.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
griswoldgirl
What are your symptoms?
Do you have vertigo at all?
thanks just wondering
Posts: 2905 | From New England | Registered: Sep 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I have sinus problems every winter. Mold is a big aggravator for me, so the antibiotics haven't helped much.
I do use nasal rinses, which make a big difference. I can't use the plastic bottle that comes with the Neilmed, because of sensitivity to the plastic. I use a ceramic Neti Pot which works just fine.
Yesterday my osteopath gave me two herbal tinctures to add to the saltwater. Yerba Mansa and Anemopsis, which she says helps reduce inflammation. I'm giving them a try.
posted
I would like to share my experience in case it helps anyone. Please keep in mind as you read this that, while I have been in various states of health and illness in the past 30 years, I did not know I had Lyme until almost one year ago.
I began to get what I call "sinus migraines" in my senior year in college (1981). The first time this happened, I had traveled from the northeast to Houston for a job interview and assumed I was just allergic to Houston (many people are...). Since I was moving there, I assumed that, with time, my body would adjust and the headaches would stop. I could not have been more wrong. For starters, I had varying degrees of these headaches nearly every day for the first summer and too often for comfort thereafter. They did not go away when I left Houston 7 1/2 years later.
At their worst, my head pounded horribly and I was nauseous and could not keep food down. I refer to them as sinus migraines because of the pressure and pain in my sinuses and jaw but also the nausea and vomiting seemed more like migraine. There were days that I looked sufficiently awful that my boss would send me home for the rest of the day.
In 1989, I moved to Southern Cal, a year later, to MA, two years later to DC. My horrid headaches, which I had thought were an allergic reaction to Houston, followed me. I'd had enough and saw an ENT who did an x-ray and saw some areas of my sinuses that were partially blocked. While he was not convinced that my entire problem was due to this, he did think it might have played a large role in setting them off and that surgery would help.
And it did. I did not have a single headache of any kind for a year and a half, even when I was laid off six months later and subsequently moved to Switzlerland. Since I had always felt that stress (positive or negative) was a factor in my headaches, this amazed me.
The headaches did come back but not nearly so badly and only rarely, if ever, were the cause of missed work days after that. I have recently had some of these same type of headaches but believe that they are part of Lyme herx since starting treatment.
Please keep in mind that, at the time of my surgery, I was feeling pretty well, and indeed had no idea I was physically ill, so others will have different decision factors. I just wanted to share my experience in case anyone sees enough of their own situtaion in it to be helpful.
Posts: 977 | From Austin, TX, USA | Registered: May 2004
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posted
I agree with Riversinger about the Neti pot. I think it is fabulous!
Also, I add depending on the symptoms, Eucalyptus oil one or two drops to the saltwater solution and sometimes H2O2 (hydrogen peroxide.
In addition to the Neti pot I also use the H2O2 in my ears- 1/2 capful in each ear daily (or if signs of cold or flu several times a day).
Recently I was introduced to the Xylitol spray and use it in nose, ears and mouth.
Here is a link re: the Neti pot for those who are unfamiliar with it's origin and usage.
Nasal Irrigation is a procedure that uses a saline solution to cleanse the nasal passages. Physicians have been recommending nasal saline irrigation since ancient times. Nasal irrigation can be used for allergy relief, sinus infection, sinusitis, snoring, post nasal drip and sinus pain.
posted
I've been plagued with chronic sinus problems for years. Once I got dx with lyme and started abx my doctor and I thought for sure these would get better, they didn't.
It wasn't until I got the candida in check that my sinuses improved! Apparently, yeast overgrowth can also happen in the nose.
Posts: 925 | From California | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
still looking for something to drain and dry up my sinuses and my ears.
I have this chronic drip and vertigo now for 7 months,, am I gonna live my whole life like this?
Im thinking now of yeast and or that chlamidia infection my kinesiologist told me I tested sensitive for.
best of health too all!!!
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Neverending sinus infections beginning shortly after Lyme. Even though I was the ear infection poster child as a kid, I never had a sinus infection before getting Lyme (or if I did I never knew it).
However, the second half of your question? Yes, I do have markers in my blood specific to some immune deficiencies -- IgGs -- can't remember the exact ones, would have to look at tests.
No, never had the guts for surgery.
Posts: 459 | From Connecticut - just across the river from the Lymes (Old Lyme, Hadlyme, East Lyme, South Lyme & Lyme) | Registered: Oct 2000
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
trying iodine now.
My kinesiologist says it thins the mucus.
I was taking 8 guaifenessin a day. This is costing me almost as much as that stupid gym membership did.
Damn PVC mats in the sauna.
After sitting in there once my ears were draining and there was so much mucus in my throat.
Stupid me I should have not gone back in there 6 times.
I thought I could be a man and deal with it cause I liked the sauna so much.
May the lord bless me and all of you. I send prayers of healing, choice, forgiveness and hope.,
Stay well!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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Member # 6215
posted
update:
dont know if the iodine is doing anything.
I did stop taking antihistamines thinking that these are making the mucous more thick and not promoting drainage,
Have an appointment with the ent next week, my kinesiologist and my LLMD
wow 3 doctors in one week. One would think im going just for the attention;
gotta go clean and pay bills.
By the way Ive been putting off cleaning for years now. I have one room in particular which is a mess for years.
Coulndt get myself to do it.
Posts: 2905 | From New England | Registered: Sep 2004
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hello,
My sinuses are much worse now, then before treatment... and when I get into the shower... I am so stuffed up, as well as asthmatic.
I am thinking candida, because of the reaction to the humidity, but am on the nystatin and oil of oregano... but not working for the sinuses.
What are/have you people used to treat candida that affects the sinuses?
I belive that it could be candida in the sinuses for me, and was thinking to do the homeopathic candida that I had used in the past.
I also read a book on candida that was saying that many times the candida in the GUT is causing the candida in the sinuses.
The sinuses are reacting in an allergy like way to the candida in the gut, as the toxins from the candida in the gut, go into the blood stream, and then go everywhere.
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
My sinusitis is directly related to two things: GERD( acid reflux disease) and yeast. I dont think it ever had anythign to do with my lyme.
Lymeherx: your llmd treats lyme, which is awesome, but really doesnt know much about yeast. some LLMDS dont. Ive actually found that MOST dont. Can you find a good ND or holistic doc to work with?
Gas is just ONE SYMPTOM Of yeast. Just one.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
My sinuses have improved (including earache and congested feeling around ear) with the following: diet- low carb, no sugar, no yeast(in many foods), no dairy, and avoiding various foods I'm allergic to. antifungal supplements that I switch around Probiotics colloidal silver nose spray diflucan nose spray nasal irrigation when very stuffy along with steaming abx for lyme and avoiding exposure to environmental allergens as much as possible
It's a lot of work I know but it worth it to be able to breathe easy around the clock
Posts: 925 | From California | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Thanks for the info on the yeast.
Allthough this chronic vertigo was triggered by the PVC mats in the sauna.
I have to belive that there is another reason that it is not clearing up apart from some sensitivity,
It is more then possible in my opinion that my sinuses were bad due to yeast or another infection apart from lyme, and the PVCs was the straw that broke the camels back.
I have been celebrating my "no more burning from sugar" by eating sugar and carbs.
This is bad bad bad,, I need to remind myself.
Im sure im feeding the yeast.
Ive done terrific on an all protein and veggie diet in the past and this is just another reason to go that route.
The thing is people I work in a high school with the yearbook and all the "kids" have all this candy and chips,, all junk food.
They think Im a freak when I dont eat it,!!
I dont have the heart to bother them with all my serious health challenges through out the years,
It bad enough when I forget there names! I just laugh it off.
They may think Im a bit odd, but funny at the same time.
I have never really complained once to them about my conditions. I commend myself for that.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
UPDATE:
I just found a doctor that is going to treat me for yeast. She thinks this really can be contributing to my dry sinuses , MCS and vertigo.
Shes giving me a anti-yeast nasal spray and some anti-fungals,, not diflucan,, I think its the same family though.
Well like my LLMD says,, well see what will happen. Wait untill I tell him that this other doctor gave me more medication.
I dont think that he likes when other doctors give me more medication and he doesnt know.
quote:Originally posted by TheCrimeOfLyme: My sinusitis is directly related to two things: GERD( acid reflux disease) and yeast. I dont think it ever had anythign to do with my lyme.
Lymeherx: your llmd treats lyme, which is awesome, but really doesnt know much about yeast. some LLMDS dont. Ive actually found that MOST dont. Can you find a good ND or holistic doc to work with?
Gas is just ONE SYMPTOM Of yeast. Just one.
Posts: 2905 | From New England | Registered: Sep 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
After treating the lyme 3.5 years my sinus's are pretty good now.I have been off abx's since sept 27th 04.
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Lymeherx:
What your other doc doesnt know, maybe wont hurt him.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Ill take it you have the experience.
Posts: 2905 | From New England | Registered: Sep 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by TheCrimeOfLyme: Lymeherx:
What your other doc doesnt know, maybe wont hurt him.
Smart cookie
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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posted
Zipzip, I have low immunoglobulin G and since I am at work I can't remember which sub class is low (there was only 1) but will check later. I have had many many upper respiratory infections with lyme (never had them previously) and the assumption is they are due in part to the low IGg. IGg has increased a small amount since antibiotics started in December but my doctor and I are entertaining IVIg since I have a picc line in already and my overall improvement is slow to date. Maybe due to low IGg? Were you the one in a previous post who knew so much about IVIg? I have been researching the pros and cons...plus need to find out if my insurance will pay for it.
posted
I'm certain that I have yeast in my sinuses. The symptoms are always the same, post-nasal drip causing a raw throat, fatigue, low grade fever, congestion, coated tongue.
I've been on 200 mg Diflucan/day for almost 3 weeks but have had little relief. The raw, red throat is the worst. My LLMD had initially offered me Mycelex troches, but I preferred the Diflucan because I also had other systemic yeast symptoms at the time.
It's really frustrating when we are on the right diet, take the right probiotics and supplements, are on anti-fungal meds, and still can't shake the yeast. Staying on abx surely can't be helping either though.
Is there anything else for yeast in the sinuses? At this point, I would have thought the Diflucan would have treated it.
posted
In hinesite (think I spelt that wrong)that was my first symptom 21 years ago. I had a bite then six months later I had chronic sinisitus. Took sine aid for years, always had the bad headache, but not the congestion. Had surgery 18 years ago where they scraped the sinus. This really didn't help much.
The good news is now that I 've been on abx forever, I don't get sinus headaches.
Posts: 55 | From Maine | Registered: Jan 2005
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Anyone here get treated with anti-fungals and there sinuses improved?
Im looking for some hope and inspiration here.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I read that most fungal sinusitis requires surgery.. Is this just the AMA speasking>
Or the CDC the way that Lyme can be cured in 2 weeks with doxy?
If it is then I feel confident that it is fungal. I will be getting the xylitol and antifungal compound delivered to me.
Posts: 2905 | From New England | Registered: Sep 2004
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
My whold family has sinus problems.
When I came back from my honeymoon (over seas) I was sick for 9 months (I kept ignoring it). My office mates ended up asking me to get checked for TB! LOL!
I think I ended up on abx to get rid of it.
L
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Sinus problems seem pretty common.
Ive taken so many drugs allready. So whats some anti-fungals that I havent tried yet gonna hurt.
Ill keep you posted. And if I die, all you probabbly will never find out.
LO L
Posts: 2905 | From New England | Registered: Sep 2004
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
You betcha!!
Had really bad chronic sinusitis for a few years but had many MRI's and CAT scans done of my sinuses and everything always came back normal.
My right eye would swell slightly and I'd have a redness around my eyebrow and then I developed 6th nerve palsy in that eye.
Went to an ENT again for an emergency MRI which came back negative.
I still have sinus problems but since starting treatment for Lyme since Aug 2004 my sinuses are much better.
Think I might try to irrigate them with salt water. I've heard that helps.
Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Can fungal sinusitis make your sinuses very dry and irritated?
I dont have lots of congestion just very red and irritated.
Oh yea the wonderfull post nasal drip too!!
Please leave post nasal drip,, you are not welcome to stay anymore. I will force you out if need be.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Im still confused that all of the literature on fungal sinusitis said that I requires surgery and is always difficult to remove..
Posts: 2905 | From New England | Registered: Sep 2004
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Lymeherx,
Diflucan cleared up my 'chronic' sinus infections. I have no doubt in my mind that mine was fungal related. My kicked in after a month of rain and soggy weather - mold was literally everywhere (and I tested quite high on exposure). I too, was told I would have to have surgery... Hah!!
As far as dry sinuses go - have you checked the humidity levels where you spend most of your time? This sounds SOOOO familiar, because that's what was happening with me.
My office - 15% relative humidity - 40% is healthy. I run a cool air humidifier all winter long now at work, and at night at home.
Until this clears up, get used to traveling with Saline Spray, and flush those sinuses constantly.
If it's really bad, try Axyr Saline Gel. Put it on a Qtip, and work it into your nostrils. I still always carry these with me, just in case.. And even though no more infections or congestion for me, on really heavy pollen count days, I make sure to regularly flush my nose out.
Stick to mold-free diet and the antifungals for a few weeks. I'd really be surprised if your sinuses don't clear and your vertigo doesn't let up... along with your MCS. Which, during the worst of it, I suffered from as well.
------------------ Julie G. ___________ lymeinhell
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Thanks for your response!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Im getting my nasal spray delivered to me cause its a compound.
Actually its just another annoyance
Posts: 2905 | From New England | Registered: Sep 2004
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