Hi sarah! I've tried over and over to post this on your thread. So I gave up and decided to post it here!Sorry to hear that Lyme is probably it. Believe me, if Mayo doesn't know what it is, then it's even more likely to be Lyme!
Mayo admits that "they don't do Lyme." But I'm not a dr, just little ol Lymetutu. Don't worry about my britches dropping from time to time. It's just my way of entertaining the nitwits around here!
OK.....now....back to work! Samento would be good, but you're right about starting it without supervision ... and you wouldn't want to skew the results of any tests.
So, I would just hang in there. That's only 3 wks. You can make it!
That lack of full breath could indicate babesia. [no, I'm not a dr!] So read up on that. Be sure to get tested for that.
Are you seeing an LLMD in WI??
Also, I thought maybe the tingling and numbness MIGHT be due to systemic yeast, which can occur after extended use of antibiotics and/or birth control meds. [along with a host of other possible causes]
So...read up on that too! You'll need this info for your upcoming treatment.
Glad you found Lymenet!
Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html
Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm
Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html
Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html
Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html
Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html
Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html
Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html
More info: http://www.ilads.org/
Breakthroughs in Lyme Disease http://flash.lymenet.org/ubb/Forum1/HTML/024093.html
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oops!
Lymetutu