posted
2 - family doc wouldn't send me to anyone else, said he could treat everything. Then eventually found the only LLMD in I suppose at that time Canada.
Posts: 461 | From Abbotsford, BC, Canada | Registered: Oct 2003
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posted
Close to 20 during an eleven-year period and living in two different states.
Posts: 830 | From Endicott, NY | Registered: Aug 2001
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
In 14 years, probably somewhere around 25.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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posted
16 doctors over a 3 year period. (at that point self diagnosed & LLMD & WB confirmed)
Posts: 101 | From CA, USA | Registered: Jan 2005
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1 -didn't have a clue (GP) 2 -neuros = CFS 1 -neuro = ALS 1 -LLMD =lyme for a total of 5
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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posted
at least 15 over a 15 yr span of time.. only dx in the past 4 yrs.. since then only 5
Posts: 215 | From PA | Registered: Feb 2003
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
35 after my body crashed in Oct. 2001
? during 80's and 90's but ignored symptoms most of the time and would only see doc when I would realized maybe something needs to be done. Found it didn't help so went back to ignoring symptoms if at all possible or rather avoiding docs.
Note: I had an HMO when this first hit, then a PPO and now MediCAl. Each group would not accept the other groups records so they all did the same testing 3 different times for the same things.
I was told that testing for MS, Myasthenia Gravis, ALS, etc. was often inadequate so they wanted their own people and labs to tdo them. NOT very cost efficient, but I needed to jump through the hoops in hopes of getting results.
I also had to do see Workmen's comp docs and SSDI docs.
Very few seemed to have the goal of getting my health back and finding out why it went south.
I haven't finished with UCSF and SAmsun Clinic. Ran out of insurance with Samsun Clinic. And really didn't feel it would be worth all the time and effort and cost of traveling to UCSF anymore. Last I left off with them, I was told I didn't have ALS, or Myasthenia Gravis. I was to return to the MS Center doc for further consultation. A pulmonologist was also mentioned.
But, gee's or peat...enough is enough. It takes so much out of me just to make the trip financially and health wise. You got to wonder if it is really worth it when two out of four neuro's just want to put you on antidepressants even after you tell them you tried that and it took the wind right out of your sails or other hazards to your health.
[This message has been edited by kam (edited 27 February 2005).]
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
50 plus; dx 7-04 and 34 years misdiagnosed! ============================================
Posts: 1 | From US | Registered: Aug 2015
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15...3 internists 2 ent's 1 allergist 2 rheematologists 1 psychologist 2 podeiatrists 1 neuropsychologist 1 naturopath 1 accupuncturist 1 chiropracter 1 maseuse AND now 1 LLMD so I guess the total is 16!!!!
[This message has been edited by firecop1066 (edited 27 February 2005).]
Posts: 83 | From Northern Illinois | Registered: Feb 2005
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posted
2
Posts: 195 | From NJ | Registered: Nov 2003
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arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
I was very lucky and only saw 3 or 4 before getting a diagnosis. However, at this point I've gone through over a dozen doctors in my treatment journey.
posted
12 from May 2004 - November 2004 when I got so sick...of course now looking back you can add about 10 to that figure. This is not counting my Mother's Dog's veterinarian who took one look at me and told me I had lyme disease and possible coinfections...amazing, no charge and he didn't take one vital reading...and no, my nose is not cold and wet nor do I have four legs Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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Just ONE... Thanks to some very nice people here we were spared a whole bunch of medical abuse!
...A few more if you count the ones that refused to even give an appointment once thay suspected the "L" word might be involved. But you asked how many we SAW.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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120 plus.
Posts: 703 | From Almost Heaven | Registered: Aug 2004
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JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
12 including an ER doc and a LLMD who did not help me or consider me diagnosed with Lyme
Posts: 1485 | From USA | Registered: Apr 2004
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
7
Posts: 1487 | From New England | Registered: Oct 2000
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Some of the same DRs but different years 15or16 then I looked for a LLMD
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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