Thanks!

This number is low, because I don't know every doctor I saw when I was in high school.

? during 80's and 90's but ignored symptoms most of the time and would only see doc when I would realized maybe something needs to be done. Found it didn't help so went back to ignoring symptoms if at all possible or rather avoiding docs.

Note: I had an HMO when this first hit, then a PPO and now MediCAl. Each group would not accept the other groups records so they all did the same testing 3 different times for the same things.

I was told that testing for MS, Myasthenia Gravis, ALS, etc. was often inadequate so they wanted their own people and labs to tdo them. NOT very cost efficient, but I needed to jump through the hoops in hopes of getting results.

I also had to do see Workmen's comp docs and SSDI docs.

Very few seemed to have the goal of getting my health back and finding out why it went south.

I haven't finished with UCSF and SAmsun Clinic. Ran out of insurance with Samsun Clinic. And really didn't feel it would be worth all the time and effort and cost of traveling to UCSF anymore. Last I left off with them, I was told I didn't have ALS, or Myasthenia Gravis. I was to return to the MS Center doc for further consultation. A pulmonologist was also mentioned.

But, gee's or peat...enough is enough. It takes so much out of me just to make the trip financially and health wise. You got to wonder if it is really worth it when two out of four neuro's just want to put you on antidepressants even after you tell them you tried that and it took the wind right out of your sails or other hazards to your health.

So maybe 40?

But...........1982 PCP tested
1992 PCP suggested
2001 another doc with true diagnosis

now i'm "cured"..damn fibro !! gary

--Annie

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Click here to join Lyme Pals.

Click here to see my Lyme journal.

And I had a very distinct Bull's-eye rash and remembered pulling the tick of the same exact spot 2 days before

quack quack..

someone at work with chronic Lyme turned me on to a specialist.

I would say, one.

This is not to say that I didn't have symptoms I attributed to other things before this diagnosis. But symptoms would come and go until I got real sick 3 1/2 years ago.

I am trying to get at least 100 response.

Please respond if you haven't.

I DO appreciate it!!!

The problem for me was getting appropriate treatment...I went through at least 15 doctors after the diagnosis before being given adequate treatment. The original doctor would only give 3 weeks of doxy at 100mg and none of the following 15 MDs, Neurologist, Infectious Disease Specialist, etc would give me any further abx treatment.

Neither LLMD that I have seen has made a proper diagnosis. After almost five years, I'm finally being treated for bartonella and babesia, because I asked for the treatment.

I usually just lurk around here but I must say how thankful I am to all of you. I can't imagine what kind of shape I would be in now if Lymenet wasn't around to provide the information needed to get a correct diagnosis.

In all fairness, doc #3, an allergist/immunologist, had the presence of mind to run a lyme test (WB). It came back negative, but I was no more than 4-6 weeks into my illness and may not have been producing enough antibodies yet.

But, I did A LOT of research on my own behalf and found lymenet quickly.

If I hd not been aggressive I am sure I would have a MS DX by now and perhaps be on steroids and getting sicker.