hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
very lucky in this regard.
someone at work with chronic Lyme turned me on to a specialist.
I would say, one.
This is not to say that I didn't have symptoms I attributed to other things before this diagnosis. But symptoms would come and go until I got real sick 3 1/2 years ago.
posted
1 duck (blew off flu like symptoms with rash 10 days following tick bite 2 1/2 yrs ago) Came out of remission in Oct 2004 1 nurse practitioner 1 ob/gyn 1 ER doctor (suggested lyme and tested) 1 LLMD (diagnosed in Jan 2005) Posts: 59 | From USA | Registered: Dec 2004
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
14
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Lucky to have seen tick and removed it - but after PCP refused treatment only had to see ONE Dr. in ER for Dx. Posts: 252 | From USA | Registered: Sep 2003
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posted
Surprisingly only one to get the diagnosis.
The problem for me was getting appropriate treatment...I went through at least 15 doctors after the diagnosis before being given adequate treatment. The original doctor would only give 3 weeks of doxy at 100mg and none of the following 15 MDs, Neurologist, Infectious Disease Specialist, etc would give me any further abx treatment.
Thank god for the couple of LLMDs I eventually found!
Posts: 9 | From Frederick, Maryland, USA | Registered: Jun 2003
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liz28
Unregistered
posted
I saw nine doctors before getting the bare beginnings of Lyme treatment.
Neither LLMD that I have seen has made a proper diagnosis. After almost five years, I'm finally being treated for bartonella and babesia, because I asked for the treatment.
posted
About 15-20 over the past year. This includes all the d_cks (fill in with your favorite vowel) during several hospital stays....no diagnosis from any of these yohos!!!!
Finally in last month 2 llmd's confirmed lyme.
Posts: 92 | From berkeley, ca, usa | Registered: Jan 2005
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi,At least 20 ducks and one doctor. The reumitologist was the most retarted quack of all. I would crock him upside the head if i had him give me the same bull crap today. MADDOG
Posts: 4083 | From Ohio | Registered: Oct 2000
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posted
5 until I found Lymenet and then my LLMD last spring.
I usually just lurk around here but I must say how thankful I am to all of you. I can't imagine what kind of shape I would be in now if Lymenet wasn't around to provide the information needed to get a correct diagnosis.
posted
I can think of 18 from the past two years.
Posts: 91 | From Atlanta, GA | Registered: Jan 2005
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
10.
In all fairness, doc #3, an allergist/immunologist, had the presence of mind to run a lyme test (WB). It came back negative, but I was no more than 4-6 weeks into my illness and may not have been producing enough antibodies yet.
It was 15 months from onset of symptoms to diagnosis.
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
4 Total GP #1, Surgeon who removed 2 lymphnodes GP #2 who insisted I did not have lyme (my ELISA was negative....LOL) Then, my Incredible LLMD who Dx'd me......... and tarted treatment.....I am now improving.
But, I did A LOT of research on my own behalf and found lymenet quickly.
If I hd not been aggressive I am sure I would have a MS DX by now and perhaps be on steroids and getting sicker.
posted
1 homeopathic, 2 gastro, 6 gyno, 7 family practice, 1 infectious med and emergency room and urgent care almost every night.... It hurts because so many docs think your crazy and refuse to see you anymore but go to a lyme specialist and you have a good friend to help you.
posted
I got lucky, only 3. But none of them helped me. I ran into someone whose daughter has it and see gave me a Doctor's name and info about getting Igenex test done. Peggy
Posts: 23 | From Spring Grove, PA USA | Registered: Aug 2004
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posted
1 Family practitioner (countless times!!!) 1 Ear, Nose & Throat Doc 1 Oral Surgeon (for jaw pain-which I'm sure is lyme related, but told I had TMJ) 1 LLMD 1 Gastroenterologist 1 Infectious Disease Doctor(who had me believing I was crazy for even thinking I had lyme even though I had a + IGG and IGM from Igenex!) Currently, I'm scheduled to see... 1 Rheumatologist 1 Neurologist And hopefully I'll find some answers there and get the help that I really need!
For a grand total of 8 doctors in 1 year!!! That's more than I've seen in my entire life!!!
Posts: 90 | From NJ USA | Registered: Jul 2004
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Ok, she's getting there but still needs some more..The ups do not count..Thanks all.
Posts: 2360 | From SE PA | Registered: Mar 2004
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