HEATHERKISS
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My LLMD says flagyl works for Babs. it was my other option besides Mepron.
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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I have the babs & the lymne woooohhhooooo. I have been taking for 3wks arts/zith/mepr and then on wk 4 zith/flag/augmentin. I have been doing this combination for 7 months and i have one more month till my LLMD & I think the babs are gone. Then I get to have the lovely IV Rocephin plugged in and go after the lyme. Let me know if you need anything about the babs.
Posts: 9 | From I wish I was in Sanibel | Registered: May 2005
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HEATHERKISS
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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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hello everyone, I hope you all are well. I have a question for you all. I was switched from biaxin/clindamycin/mepron to zith/mepron 5 days a week. First question: How does the zith/mepron do in the sun or exercise? Second question: Can I expect a big herx or difference with the zith instead of the biaxin? I like the biaxin not sure why I need to switch. Any help greatlt appreciated. mimi
Posts: 343 | From usa | Registered: Dec 2004
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The was no problem with the zith and sun exposure. That was just the tetracyclines that was a problem with sun.
About the 2nd question, why did you change if it was working? My LLMD only changes if there is a plateau. Everybody reacts differently. I had no herx until a month and then intense fatique and muscle aching on the zith/mepron. Sweats, too, but that is the mepron.
No experience with Biaxin, sorry. Aliyalex
Posts: 830 | From Colorado | Registered: Mar 2005
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Ali, thanks for the response. I did not want to stop the biaxin/mepron combo. I am now having my eye/head/pain pressure i want to kill myself headaches and I called the LLMD last week and stopped the clinamycin until headache subsided and began again this week and the head stuff returned with the clindamycin. I called to tell them and they called to say i needed to change from that combo to the zith/mepron didn't get to ask so i'll have to try and ask later just wanted to know because i lik the biaxin/mepron just not the headaches. Thanks again, mimi
Posts: 343 | From usa | Registered: Dec 2004
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It is frustrating talking 2nd hand to the LLMD and not really being able to understand his reasoning fully. I am in a similar situation. He said to go off zith/mepron/art b/c I was fatigued and feeling weaker. Through the RN he said to take flagyl instead.
Have a whole bottle of mepron I just opened. Guess it is all an experiment.
I hope the zith/mepron is helpful and doesn't give you want to kill yourself headaches.
Posts: 830 | From Colorado | Registered: Mar 2005
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HEATHERKISS
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I hope you find the right combo. I've been on BIAXIN since January. I hope to not give it up til I platue.
Also still on Mepron 2 1/2 months.
I've had the bad headaches. But they come and go and aren't very often.
HK
My update: Feeling better, hardly any pain, and much smarter.
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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I was one of the Mepron buddies from last year.....and I was taking zith/mepron/art for 7 months, went off was re-tested and Babs was still there!!
I knew it was because as soon as I went off Mepron, but still on zith, I started feeling lousy......I spiralled down from Oct to Jan. while on Ketek and Mepron (from Nov. to Jan)
Doc then advised an 8 week break from everything and I detoxed on CSM....that worked beautifully and brought my energy up and decreased the pain......it was great!!
Have not been re-started on Mepron, because clearing up 2 staph infections in my nose w/ Bactri, and still on Ketek and have now added Mino for several months........
Bottom line, I know I need more Mepron....I herx like crazy and have more night sweats...It's one tough bugger......
However long your doc does think to treat you for, don't think that it's gone....Wait for a bit and see how you feel.....then maybe get re-tested....
Mepron/zith/art was no problem in the sun.........slather up anyway!!!!!!!!!!
Keep us posted on how you're doing.....
Gail
Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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I've been on Mepron/Zith for a month now. I'm getting used to it but the mood swings and depression in the first weeks was awful. My husband started shortly after I did; he had mood swings, too.
Now I just feel kind of spaced out. It's harder to focus with my mind and with my eyes. Of course, with all this Lyme stuff it's hard to know just who I am!
And I'm struggling to keep weight off for the first time in my life!
Posts: 261 | From San Mateo, CA | Registered: May 2005
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HEATHERKISS
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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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After months (6, I think) on Mepron/Zith, my LLMD switched me to Flagyl/Ketek. 2 months and the Babs was gone! He said the Mepron may have knocked the levels down some so we don't know for sure which did the deed.
I was also on Bicillin during part of the Mepron/Zith and all of the Flagyl/Ketek. And I was taking 200 mg of Diflucan once a week durign the Flagyl/Ketek. I've tested negative for Babs two times now. I had blood tests (CBC, Liver etc.) every two weeks while on Flagyl/Ketek.
On to killing more spirochetes! Hope you all have had some good results!
Posts: 261 | From San Mateo, CA | Registered: May 2005
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trails
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I am confused Denise---were you taking mepron WITH the ketek/flagyl? If not then it wasnt the flagyl/ketek that killed the babs....you need an antiprotazoal.
Looks like the mepron did the job in the previous months, but interested to know if ketek was added to the mepron or if it was alone.
Thanks for sharing your success story! Posts: 1950 | From New Mexico | Registered: Sep 2001
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I am on month 5 of Mepron and 8 of Ketek and 1 of Omnicef. I responded well with just Ketek, even better when we added Mepron but then started to slide a bit and LLMD added Omnicef and UGG!! I have been up and down. The current plan is to do this combo for 2 months (half a month in now). Then drop Ketek and Mepron.
It was looking like Babs was cleared, no headaches, no night sweats, no red dots on my torso but this last week I have had headaches and dots- WTH?
I just had a Babs test come back showing it was gone but now I wonder. I have a phone consult coming up when the plan is to switch up the meds again. He wanted me to finish the 2 months of Mepron after the clear test.
I hate this guessing game. I also hate feeling like crap some days, at least the good days are good.
I had been ordering Mepron from Candadrugs.com when I was paying for it out of pocket and it came mixed as a liquid in a bottle. They shipped it to Hawaii that way.
Lucy
-------------------- Lucy Posts: 342 | From Hawaii | Registered: Nov 2005
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savebabe
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After relapsing for the fourth time with babs, I am on month two with mepron, IV zith, lariam, and omnicef. I have been herxing like crazy, but the night sweats and headache are starting to break. Has anybody herxed all the way through the sixth month?
Posts: 1603 | From ny | Registered: Aug 2006
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treepatrol
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