My family (and friends) are super supportive and always have been. And to top it...they call it Lymes.!

I'm glad you have a lot of support too. I agree, actions are much more important than words. I've always lived by that rule.

She then asked, "Do you think that maybe she has been sick so long, that now it is all in her head? I mean since she has been in this pattern of being sick for so long, the feeling of being sick has just stuck with her?"

GRRRRRR....I wish she could have endured the ride to church while my daughter screamed and cried in agony!

(I just want you all to know that going to church that day was my daughter's choice. She was feeling really bad and we discouraged it. She made it through it.)

It is a good thing that I had been to church and the Holy Spirit guarded my words for me!

The worst part is her husband has had lyme, but he had an acute case, treated it and is better. I guess that only added to her doubt about my daughter!?

There is something I have done for doubters, while my daughter is wailing in agonizing pain, I hold the phone so they can hear.

That shuts them up everytime. A doubter suddenly becomes a believer, saying, "I had no idea! I am so sorry for her!"

It is different when "How is your daughter doing? is coupled with "Can I do anything to help you right now?"

These are the people that understand suffering and want to do anything they can to alleviate stress for our family.

That is nice, even though there isn't much that can be done. I at least know I have help with my boys, if their sissy is having a bad day.

As my husband put it on the way home from church that day, "The most frustrating thing is how misunderstood this disease is, even by the people you need to be able to turn to, your own doctors!"

Sometimes it feels like we are in a sci-fi movie, my daughter's body has been invaded by aliens and we don't understand the species well enough to eradicate it!

Maybe that would be a good discription for askers!

I could tell them we are still waiting for our hero to appear!!!

Today (as is the case on Sunday's) I am surrounded by Greeks.

They always come up to me and say, "you look great today and you have so much color in your face". I could look horrible and they would say the same thing.

I just smile and say thank you...then go home and crash!

I am a firm believer that attitude is everything. If I smile, eventually I will feel like smiling. If I laugh, eventually I will feel like laughing.

I am a person with Lyme disease but I am NOT (nor will I ever be) a Lyme disease person.

The last thing I want is for people to look at me and think, "that poor girl, she has lost everything..."

***
Good, better, best;

Never rest

Till "good" be "better,"

And "better" "best".
***