Are there any in-network neuros, rheumis or IDs who will write an interim prescription with appropriate oversight/agreement with your PCP? It sounds like that is what you need. My thought is that a neuro might be more helpful because they are used to dealing with diseases that encompass many unkowns.
Also, the federal lyme law specifically states that lyme is a clinical diagnosis. I am not a lawyer, but I would suspect and ask your BIO if the broader law supercedes. That is how the HIPAA medical privacy act works. States have different medical privacy acts, and at the federal level, there is HIPAA. The stronger privacy provision supercedes.
Thanks for your reply..Yes I need that kind of dr. but I do not know one, and I do not want to waist my energy on appointments with neuros. that are either uneducated about lyme or flip floppy about it.
Do you know how I can find one? Anyone else have one out there?
posted
If you get to a point where you feel you need legal intervention on your behalf, and if you cannot afford an attorney, you might contact your local Legal Aid office.
Posts: 977 | From Austin, TX, USA | Registered: May 2004
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posted
Nannie, I don't understand what you are saying about hippa? I don't get the privacy law thing you are talking about. How does that apply to my situation?
Posts: 968 | From private | Registered: Jan 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
I would think you should re---title this...I can't help.
Title Should be-
Urgently Need LL ID, Neuro or Rheumy
Good luck
Trout
------------------ Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! Iowa Lyme Disease Assoc. www.ildf.info
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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SunRa
Frequent Contributor (1K+ posts)
Member # 3559
posted
hi Daniella
I'm sorry about your situation, but I may be able to help. When I was living in CT, I had my IV covered for 4 months because it was ordered by my neurologist...she is by no means "LL", but she kept in close contact with my LLMD (Dr P) and respected his opinion. Every case is different though, so I cant promise she can help you. She also only deals with neurological symptoms.
There is also a "LL" neurologist in Norwalk, but I have no personal experience with him or know if he orders IV. And someone else mentioned Dr R in Stamford...hes a neuro-psych dr, so maybe the law would apply to him too.
ohhh...also just thought of 2 more drs who are worth trying as well...
I'll email you ASAP.
[This message has been edited by SunRa (edited 24 August 2005).]
posted
Daniella, Have you ask your LLMD to help?It seems to me he could call someone you and he agree on and send your records. He may also even help speed up an appointment if necessary. He may also have had past experience in doing this as it must be state law and required to be done by many doctors in your state.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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