posted
Looks like I'm following in your footsteps, Heather. 5 months of yellow paint and Zith didn't work so now it's 500 mg of Flagyl twice a day, 400 mg of Ketek twice a day and 2.4 mu IM Bicillin LA. I guess the Flagyl goes after the Lyme cysts and the Babs.
My left eye aches, my head aches and the pain moves around my head throughout the day. I have Lyme-neck. I must look so silly constantly trying to stretch the ache out! My ear was ringing a little bit last night but I could only hear it when the pillow muffled the ambient sounds so I guess I'm lucky.
MiMoMa, I had that same heart thump just last night! Freaked me out so I lost another hour or so of sleep. I was astounded when I read your post.
And mooody. Sheesh. My husband just keeps hanging in there with me. On another topic, my husband just turned down a job that offered a $20K salary increase because the health insurance was only Kaiser or Blue Shield. All because LD isn't recognized! Grrr!
I just keep hoping I'm going to get better, well, well, actually. As a friend said recently, "By having hope, what do you lose?"
Be well, D
Posts: 261 | From San Mateo, CA | Registered: May 2005
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henson2
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posted
Smiles wrote:
"It's normal to have flu-like symptoms but if you can't function normally then you should really stop the medication. Unforchunetly, I thought I could just "push" through it and ended up compromising my immune system. I have to wait until my Immune sys is strong before I can go back on the meds."
I would LOVE people's input on this!! I am not on flagyl but a different oral abx, but had reached the same kind of point of feeling like I needed to "push through" or back off. In the end it was too much and even my LLMD said to back off.
Is this the rhythm of this disease, then? You get really sick and back off for a bit? Do you really try not to let it get that bad before backing off?
I ask because I really thought I had to keep enduring the awful stuff in order to get better.
I should add that I had a fairly smooth linear improvement for a good while, until the Herxes started in the hugest way ever this year.
I guess it's really an impossible question to answer bec. we are all different, and we are being treated for different things (some of us have co-infections and some not) .... but I was just SO interested to read that maybe one should back off faster than I have been backing off.
Thanks for this great thread. It's very helpful even for those of us on a drug besides flagyl that seems to be getting at the nasty bugs in a very big way.
Warmest good wishes to you all!!
Posts: 1066 | From East Coast | Registered: Dec 2000
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henson2
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posted
PS
Just to add that I know that none of us is a doctor, and neither am I. Just interested in how long people tend to let it go before backing off, and whether folks hear from their doctors to back off.
I was so relieved when mine told me that it was too much now. But then I wondered, OK, so how do I get better?
You keep running up at it one more time?
Thank you to all and warmest wishes for feeling better!
Posts: 1066 | From East Coast | Registered: Dec 2000
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posted
Hello again all! This is such a great thread - really supportive for all of us on Fagyl at the mo...
I'm back on mine for the next couple of days - I only started pulsing last week. To start off with I didn't think that anything was happening but over the last couple of days I've had a lot of my old symptoms returning.
I've had major 'lyme brain'fogginess & sharp head pains. More floaters in my eyes than usual. Moodyness / dissatisfaction with everything. All the joint pains & tiredness and a nasty pain in the right side of my stomach that I haven't had for ages! I'm hoping that it's working!
Posts: 229 | From United Kingdom | Registered: Jul 2005
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HEATHERKISS
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posted
Ditto with old pain. Both my flippin' knees hurt. That hasn't happened in a while.
And....... I do have new pain in the top of my shoulders. I've had the shoulder pain typically in my back blade and neck before.
Very irratable. i think that just goes hand in hand with pain.
And sleeping a whole lot.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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posted
Air hunger? My chest is tight....... It feels kinda laborious to breath.
[ 06. February 2006, 10:21 AM: Message edited by: HEATHERKISS ]
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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treepatrol
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posted
Sorry abut air hunger
Off flagyl for now couldnt sleep very well.Thats the first time that happened in all the times I used it maybe it was the combo with penn vk??
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I saw my LLMD for the first time yesterday, and he ordered IV rocephin, and 1500mg a day of flagyl. After reading everyones posts, I'm not sure I'm looking forward to it! I do realize that everyones reaction is different, but this still scares me.
I am to take one pill the first 3 days, 2 the next 3, and 3 from there on out. Any suggestions?
TIA, Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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posted
Been on tetracycline 500 3x/d for about 14 days then added flagyl 500 3x/day. Ouch. Came down with a cold (which I never get) then big brain pains, ear pain, teeth pain, neck pain along with enlarged posterior neck lymph nodes. It's the 4th day of flagyl and so far, perhaps the pains are less.
Hope this all means it's killing ketes.
Posts: 211 | From NC | Registered: Dec 2005
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HEATHERKISS
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posted
Home again! Slight pain but nothing compared to what I'm used too. Headache.
Hope everyone is improving also.
I'm still sooooo tired.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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Hi everyone,
Been workin' the past 2 days. Doing ok.
Today I'm taking NO PILLS! Nothing. No rx. No vitamins. No probiotics.
Nothing nothing nothing.
I might do the same tommorrow.
bye,
[ 06. February 2006, 10:21 AM: Message edited by: HEATHERKISS ]
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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Well I had my 2 glorious pill free days! Now I'm back on the saddle. Ramped up by taking half my pills yesterday.
I'm probably screwing up by stopping and ramping so quickly.
Home today. Overslept. I'll work tommorrow. Still very tired.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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Well I'm doing fine! I guess I'm on the 2 week upswing.
I'll be working as much as I can stand. $$$$$$$$$$$$$$$$$$$$$$ $$$$$$$$$$$$$$$$$$
I need money.
Hope all the other flagyl buddies are feeling smart and not in pain.
Love,
[ 06. February 2006, 10:22 AM: Message edited by: HEATHERKISS ]
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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posted
Anything new? Doing ok? Still in pain? Smarter?
I'm going to work tommorrow. I want to make 3 days in a row.
I'm ok. Pain is minimal. My head is clearer.
How about you?
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
Hi Heather! Good to see that you're still hanging in there!
I'm just over halfway through my course of flagyl & Ceftin and I think that I am improving. I'm still having problems sleeping on the days that I take flagyl. No other problems with it.
I have had an improvement in my tiredness though and I've been feeling quite positive and cheerful which I have been surprised to find, given all the evidence of others being depressed while taking flagyl. Perhaps I'm just not taking the high doses that can cause depression.
Posts: 229 | From United Kingdom | Registered: Jul 2005
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Well, I get off work in an hour and at home will be a Rx for flagyl for me. I have 4 grams of tini left so I will flagyl it until my fasygyn arrives.
I have been hitting the niacin with tini/doxy/diflucan/artemesinin/samento and JEEBUS the herx's are grand sometimes. Drooling, balance (gone), and flu-ey feeling. I sleep fine thank God. Next day I get citrus in me I am usually a small notch better.
Hoping flagyl is not too mean.
quai
-------------------- "In spite of the ever increasing cost of living, it remains quite popular" S. Shackel Posts: 87 | From walla walla wa | Registered: Dec 2005
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WildCondor
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posted
I'm on Flagyl 500 mg 3x/day and its evil! Its stirring up my Lyme something fierce. It starts with twitching, then arthritis, joint flares, and brain fog, then the fevers! AHHH!
On it for c.diff, not Lyme and its a beast to take, esp. the taste, I dont want to eat ANYTHING because it makes me so nauseous. Waaa. I am sure its doing good though, just hard to take.
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Boomerang
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Hi all.........husband is on his 5th day of Flagyl and having a good response so far!
First day or two, his knees and elbows ached....same way he was on the Doxy. The Zith never did much for him, but make him feel bad. I guess it did it's thing though. Part of the protocol.
Anyway, the Flagyl seems to be working. He says his head feels better.......and his "thinking" and speech is doing better.
He itched like crazy Saturday night....all over his body.
He's going to slow his dose down tomorrow, cause he may be going into a herx. His face was very red tonight. Can always tell when he's going to herx, cause his face turns so red.
He also had a period of blurry vision this morning.....said it lasted a couple of hours. That's always worrisome, but it does mean things are happening.
So far, he's liking the Flagyl. The response has been great, and his brain fog has been so much better.
Good luck all!
Posts: 1366 | From Southeast | Registered: Sep 2005
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Boomerang
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Oh.......sorry.......just wanted to add. My husband started trying to describe a thing with his chest tonight. I didn't have a clue what he was talking about. Said it wasn't pain, or anything. Then said it was a breathing thing....that was weird.
I didn't even THINK of the "air hunger" thing.... I realize now that is probably what he was feeling.
Gotta read about that now. Sheesh......I'm bummed cause I didn't realize what he was talking about.
posted
My 12yo son is on day 2 of flagyl and is having stomach distress. He is also cold, then hot. The girls (10) have mentioned being achy but not much else.
Everyone is pretty tired and sleeps later than they use to. Youngest is the only one not taking flagyl . . . . yet.
Hubby is doing okay.
We now have schedules for everything.
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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HEATHERKISS
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Yes flagyl made me very tired. But can you believe I can't go to sleep unless I take a xanax.
Now waking up is kinda a bother but once I get going there's no stoping me.
Today was a pretty darn good day.
Just a few shocks thru my body and the weird pain in the vein thing.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Boomerang
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Hubby still seems to be doing good. I worry about his flushed face some days. He has had some herxes, so I'm paranoid.
HEATHERKISS
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I'm soo cold today! Tired too. I didn't go to work thank goodness.
Well I need to watch HGTV.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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bettyg
Unregistered
posted
up so I can read this Sat....
Lou B. was kind enough to remove the SUPER WIDTH problem; now I will be able to read it tomorrow when I have time.
I'm flagyl as of this week with the other 18 meds I'm on...so I'm interested in reading this entire post.
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trails
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Hi all you cyst bustering peoples!
Just wanted to pop my head in here coz I am on a cyst busting combo too, but it is a bit old school: It is the Plaquenil, amoxy, probenecid thing.
The plaq makes the body alkeline or something and that makes the cysts more vulnerable to busting up by the amxoy or something? I dont get it and I didnt believe it until I started having the most intense herx of crazy pain pain pain all over my body.
ANyhow--I am experiencing MUCH the same things as you guys, so I might just have to barge in here every once in a while.
COLD SORES---here's something wierd: I was getting them the same time you all got them too! ISnt that BIZARRO? Mid January. Wierd.
Take care everyone and enjoy your lemon waters with the super bowl! Trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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bettyg
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posted
Well, got to read this last screen for now.
Started flagyl Wed. pulsing every other day. Next day had a COLD SORE like a paper cut.
WHAT IS AIR HUNGer? ==================== last week when trying to sleep, I've had these nightly occurrence. Inhaling or exhaling and then I FREEZE UP and can't breath at all! Does this happen to you? Thanks.
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HEATHERKISS
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Only lasted a day for me. It felt painfull to breathe. My chest was tight.
I felt like I couldn't get air even though I knew I was.
Hope it passes quick.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Boomerang
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posted
Heather, my hubby only complained about it one day also.....hasn't said anything else about it.
Posts: 1366 | From Southeast | Registered: Sep 2005
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hopeful123
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posted
still on flagyl and the herxing is less intense. brain not really working today, so maybe that's a herx, but has been working better.
organizational skills improved
creative thinking improved
ability to concentrate improved
feeling more normal but not done.
i have something like a cold sore on the sides of my mouth - dry and cracky.
very tired...that's the flagyl?
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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Have you seen improvement on the Flagyl? I understand all the herxing, but was interested in whether you thought it was working. How long do you expect to be on it?
I have been on plaquenil, Vibramyacin, and Claryhtramyacin (sp?) for about 6 weeks and have had some moderate herxing, nothinkg like yours. I am doing must better the last couple of days and hope this lasts.
I am also interested to know how everyone on the board was diagnosed with Lyme. I had 3 positive bands on the western blot and many of the clinical symptoms (although nothing obvious like the massive knee swelling you read about). My LLMD is not certain it is Lyme, but thinks it is likley and is treating it as such anyway. Other doctors (even one who was LL) would not have treated me at all becasue I did not have the requisite 5 bands. I am interested in others' experiences to help confirm my diagnosis.
I am also interested in learning more about how Flagyl effects Bb.
Thanks
NH Steve
Posts: 5 | From NH | Registered: Feb 2006
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HEATHERKISS
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Yes, definately feeling improvement! Ramp up slowly. Take with with food.
H
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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bettyg
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posted
quote:Originally posted by NH steve: Heather,
I am also interested to know how everyone on the board was diagnosed with Lyme. I had 3 positive bands on the western blot and many of the clinical symptoms (although nothing obvious like the massive knee swelling you read about).
My LLMD is not certain it is Lyme, but thinks it is likley and is treating it as such anyway. Other doctors (even one who was LL) would not have treated me at all becasue I did not have the requisite 5 bands. I am interested in others' experiences to help confirm my diagnosis. Thanks NH Steve
welcome Steve to the board...
I would like to suggest you copy/paste the above to start YOUR own post. Be sure to mark the box that you want to read ALL REPLIES; you get 1 chance to do this. So do it 1st!
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HEATHERKISS
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up
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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AZURE WISH
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posted
The first time I took flagyl was with bicillin injections.
I can't remember the dose....few yrs back.
I herxed for 3 months but it did help alot....
I also took it for a time with cefzil.... herx was less severe and it did help some.
I've been treated for 13 mounths now. I've been on 1000 ceftin 4 days and 1000 Bixin 3 days for 30 days. And having a rough time with traviling joint pain and tendon tightness, like all of my tendons are shrinking. wakes me up at 3am every morning.
I am to start Flagyl, 250 mg 3x day, Saturday and am nervous after reading these posts. My doctor says I might feel bad for a day or two. I am working full time and am worried if I feel much worse, I'll have to start taking time off.
Then again I feel hope full maybe the Flagyl will be the abx that will work for me.
Thank you every one for sharin your experince, Strength and hope.
cantgiveupyet
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posted
I was nervous too, but so far im handling the flagyl better then the other abx i was on...doxy and cedax....we shall see when i increase the dose today.
i would start off slow if you can.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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HEATHERKISS
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The headaches are back..... 2 days so far. It's been a long time.
It sucks when you are not used to the pain. I had alot of painfree days.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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I cannot for the life of me get up to 250mg three times a day without losing my ability to walk. After several days of talking 2 pills, I get brave enough to take 3 and then my herx gets too severe. I take a day off, then start slowly back up again. This is insane. I should have been done with this bottle long ago.
Adding the heparin made it even worse.
It also makes a person feel really down and hopeless. yuck.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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HEATHERKISS
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Doing well again. Soo It's about 3 months on the flagyl.
I have been able to work 3 days per week for the past 2 weeks. Yipee!
I am getting nightly headaches. Sinus medicine helps. Not sure what the headaches mean.
I did suffer for years with daily headaches before diagnosis.
Who knows? I'll ask the LLMD on monday.
IMA???? Did you finally get up to dose?
Can't give up? What's going on?
Betty G Did you start yet?
Anybody? Everybody? How are you?
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
Flagyl, I am in my 4th week kind of....my first week i started on 750 mgs (so stupid), I thought I was going to die....anxiety/panic non stop HYPER sensitivity to everything my clothing, the rug beneath my feet, my cotton bed sheets, I couldnt sleep at all, I was super parnoid (musta really got in the brain)...
my doc said and i quote"lets stop for a week....if you feel better your going back on it...we will start out slower"....
so I came off a week felt GREAT so I knew I had to go back on...(he put me on valuim which helped alot through the neuro suff)
Now im back in my 3rd full week at 750 mgs a day and I have had nothing but significant improvement neurologically since the flagyl I have it paire with 2 grams of IV rocephin (in my 10th month of that)....
I do have chronic bathroom problems now though that started with the flagly may be the drug may be yeast not sure taking nystain not really helping with my diareah (SP?) but its dealable....Jill
Oh and I am super fatigued by afternoon which a symptom that cleared up for me long ago, and is back now wonder if its the flagyl???
Posts: 83 | From Northern Illinois | Registered: Feb 2005
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HEATHERKISS
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up
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
Hi Heather & all, Well, I've just finished my course of Flagyl & Ceftin. I've been taking the Ceftin for about 6 months and started pulsing with Flagyl for seven weeks.
Not really sure where I'm at now, I have been feeling a lot of my old symptoms returning so I'm not sure if that is herx. I stopped taking a lot of my supplements because I wanted to see what might be working and what wasn't, so it might be that.
I'm to have a break for a few weeks from the abx and see what happens. I'm bracing myself!
Take care all, MMM
Posts: 229 | From United Kingdom | Registered: Jul 2005
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cantgiveupyet
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Hey Heather,
Glad to hear you are doing so well.
I have an appt tomorrow with our LLMD.
I stopped the flagyl since it was for another infection. Towards the end i was having a lot of foot burning. I dont think I herxed much if at all.
Im still having a lot of bladder problems...and burning.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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HEATHERKISS
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Firecop, Yes! I have been very tired on Flagyl.
Mimoma, Good luck on your abx break!
Can'tgiveup, You've probably have been herxing all along. So the antibiotics have been working at killing the lyme bacteria and maybe a coinfection.
Bartenella can make your heels or the bottoms of your feet hurt. Weird symptom huh?
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Monica
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posted
HEATHERKISS, Just saw this post for the first time today. I believe you and I and can'tgiveup yet are seeing the same LLMD. I started Flagyl two weeks ago today. Worked up from 250mg to 750mg per day over the first week. I haven't been working these past two weeks so I don't know whether or not that is having an effect. I am still using my walker, and some days the six steps to the bathroom from bed are six too many, but I am actually getting painfree HOURS. This is the most progress I've shown to date.
Hope it's going well with you.
I don't have headaches but I do a lot of sleeping.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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HEATHERKISS
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Monica,
Dr. S
yes...... I really quite tired.
H
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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bring up for others
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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Well,
It's about 3 1/2 months on flagyl and doryx. I just keep feeling better.
Working 3 days a week has become an easier goal. I can clean and cook on the same day. Laundry takes only a day as apposed to a whole weekend.
I can actually go to bed and 11pm and wake up at 7:30am
This month my "friend" was normal and I didn't get tired.
Please anyone on flagyl post their herxes...... experiences and outcomes on this post. I noticed a few newbies asking about flagyl.
Jump on. Tell us whats going on. This is in the newbies link and could help others.
Heather
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
Hi Heather and all, Glad to hear that you're still improving Heather, that's great news!
I've been off ABX for about four weeks now. I've just gone down with my first cold in a couple of years so I'm feeling particularly crappy at the moment! But I'm hoping that its a sign that perhaps my immune system might be starting to work properly.
I'm going to give it another month and see how things go without ABX - I don't feel as good as I did while I was taking them so I may have to go back on again.
One very prominent neuro thing that I have noticed since stopping Flagyl is that I don't feel as emotionally stable as I did while I was taking them.
love to all of you, MMM
Posts: 229 | From United Kingdom | Registered: Jul 2005
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I'm adding Ceftin to my Mino tomorrow and then 4 days later....Flagyl.
At some point I throw in the high dose Artemesinin thing.
I'm already losing sleep over this new series of drugs. I suspect my no-herx days may be numbered.
Posts: 175 | From ma. | Registered: Aug 2005
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Boomerang
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posted
Hubby is still on flagyl.........very steady low dose. He improved and improved very slowly. The last couple of days though, it seems his old symptoms are back. Feeling pressure on the brain, extremely tired.
Possible herx, I guess. Not giving up!
Posts: 1366 | From Southeast | Registered: Sep 2005
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cantgiveupyet
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Up
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I'm starting Flagyl too. I'm suppose to start really slow and work up. I'm a little scared.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
Kathy, I was really scared too, after reading about all the Flagyl experiences here. I have been on 1500 mg a day for 3 months (+ 2 gm IV Rocephin). I have not had any major herxing. I also didn't see any real improvement, but lately things are going in reverse. I guess it could be my way of herxing.
If I've learned nothing else about Lyme, it's that everybody is different, and everyone seems to react differently to whichever medicine they are on, depending on alot of different criteria.
In the last couple of weeks I have started to stutter again, severe fatigue, burning skin, and the most painful and burning feet I could ever imagine...getiing worse every day.
The only worse thing has been the depression and crying jags....horrible!
I see him on Thurs, and I'm pretty sure he's going to change my meds. This time I'm not going to read about everyone elses reactions to whatever drug he puts me on til later.....I want to see how I feel on it first.
Best of luck, and try not to worry, you're killing those little beasts!
Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hi Kathy,
I've been on flagyl and doryx for 4 months now.(I think... not good at keeping track)
Anyway it started out tough. Looking back it is so worth it. I worked up just like you are going to do.
Start with one pill a day for 2 days. Then 2 a day for 2 days... and on and on. I could not tolerate 500mg 3x a day.
I only take 500 2x a day and it has been plenty.
I feel smart again. I do alot less of walking from room to room trying to remember what I'm doing.
Good luck and healing thoughts your way,
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
I started Flagyl 4 days ago. I am only suppose to take a small sliver of a 250mg tablet once a day for now. I can't believe that small of amount could make me sick, but it does. It tastes terrible too. I just get really tired feeling, with a headache, my head feels spacey, and it gives me a stomachache.
I don't think I'll ever be able to take a huge dose, but hopefully I will be able to take more then I am taking now.
It's still better then the tachycardia I had on Erythromycin.
I don't care that you can't have alcohol while on the Flagyl, because ever since I got sick I get really sick from alcohol anyway.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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HEATHERKISS
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posted
I'm still doing pretty well. Work 3 days this week.
The flagyl herx is worth my wonderful life back.
Slowly ramp up..........
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
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posted
Flagyl buddies what's going on? How are ya?
HELLO! Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Hi, I'm starting Flagyl tomorrow, wish me luck! Dr. has me at 500 mg 2x/day for 10 days on 10 off-- what dose and pulse is anyone else using? Only other thing I'm on is Ketek right now.
Posts: 44 | From Northeastern Wisconsin | Registered: Sep 2005
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posted
My 15 y.o. daughter (who weighs about 112) has been taking 250 mg. 2x/day of Flagyl, pulsed 14 days on and 14 days off. During her second course, she developed tingling in her finger and hand so I stopped 3 days early. I need to call her doctor to see whether we should start up again when the 14 days off is over.
Posts: 164 | From USA | Registered: Jul 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
I get alot of burning sensations. I'm on doryx and flagyl 2x a day. no pulsing.
No breaks. I was told I can stop when I'm 100%.
Was the tingling really bad? Was your duaghter freaking out?
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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