It helped me big time the first time I used it. However, this time around it really killed me. But that may have been a good thing I guess.
For me, it either caused the worst herxing I ever had or I had an allergic reaction. Whatever it was, I'm not in a hurry to try it again.
My advice, go slow just like you are planning.
All My Best, Scott
-------------------- BTW - I am NOT a medical professional - just speaking from MY own personal experience. Posts: 266 | From Philadelphia | Registered: May 2005
| IP: Logged |
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I experienced a gret deal of depression on flagyl and had to switch to tinidazole. Still some depression with Tini but no where near as bad.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Well, let's put it this way.
I thought I was "cured."
I treated for about 5 months - Doxy, high-dose Amoxy, a month o' IV, you name it. I was doin' grand, more or less! I said 'Hey doc, I'm doing pretty good, other than fallin asleep and stuff, no more headaches every day, life is GRAND!!! CAN WE STOP NOW????"
Doc said: "Er, well, we haven't addressed the CYSTIC FORM of Lyme yet."
I said, "Well, er, I prolly don't have any of that. Ha ha."
Doc said, "Here, take these Flagyl, 250 mg 3x per day (and that's a mild dose), if you don't have any cystic form you'll be just fine."
For approximately the next six weeks my head shrieked nonstop in varying degrees, but mostly in the shoot-me-now variety. I honestly thought I was all past that.
Once I even caved in (which I really hate) and took a three-day break with permission.
The head pain let up two days before I came limping in for my next LLMD appointment. (Kind of like your car stops making that noise as soon as you drive in to the mechanic's to check it out.)
I HATE FLAGYL. For more reasons that just the deprivation-of-Chardonnay aspect!!!
But it's good stuff.
Hope it treats you kindly, Heather!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
posted
I took flagyl for three weeks in 1500mg for the first week and then 750mg for the next two weeks. Then I completely stopped it-for a month-but I will need to go back on it soon.
Something I wasn't aware of was that there's a difference between herxing and relapsing. I was really sick on flagyl to the point that I was vommiting everything I was eat, horrible headaches, neuro pain (which i had never experience), VERY low energy, and lots of back pain. It's normal to have flu-like symptoms but if you can't function normally then you should really stop the medication. Unforchunetly, I thought I could just "push" through it and ended up compromising my immune system. I have to wait until my Immune sys is strong before I can go back on the meds. I don't think I will go back on flagyl bc of the neuro symptoms but I will go on tinidmax (most likely).
Please let me know if you have any specific questions. The first few days on flagyl I didn't notice much of a difference and then it hit me like a ton of bricks!
Good luck!!! Lindsay
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
| IP: Logged |
posted
hi heather - flagyl is one of my favorite drugs. i had two ileus' (gut shut downs) and flagyl finally brought me out ot it. once i started plaquenil and biaxin i started to pulse flagyl and that's when the herxes started - gut cramping, increased fatigue - now i mostly stay on it along with the others. good luck, deb
Posts: 122 | From richmond, ca, usa | Registered: Feb 2004
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Thank you for the great replies.
So far so good on day one. I have a slight strange headache.....
I'll update as things happen.
I love this board and everyone on it.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
Flagyl gave me peripheral neuropathy and I had to switch to tinidazole instead.
Really had to start out slow. No point in having my head blown off. That is how tini/flagyl affects me, mainly terrific headaches. So, low dose better than no dose, and ramp up when possible.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
Good luck on the cyst busting flagyl. I have had migraines since I was 15 years old. For the first time in my life with the help of tX and flagyl I went the longest stretch ever (ten months) without a migraine. Of course before the long stretch flagyl gave me the biggest migraine I had ever had.
For me I had one migraine that sent me to the ER. It was my second round of flagyl and only third month of tX for me.
I had lyme, ehrlichia hme and hge and babesia. I had treated babesia the first month then started flagyl for a week at the last three weeks of tX.
I went through the first round fine...the second one was rough. Woke up with a migraine from hell. Eyesight was coming and going - I lose periferal eyesight...dizzy, numbness in face, tongue, hands...felt like I was having a stroke.
Went to the ER and they drugged me up - It took the rest of the day before the migraine kept cycling. I stayed on tX for another eight months before I ever had another migraine. So I know it was a herx.
Eased up on tX lately and went thirty five days without abxs...2nd day of flagyl had a migraine although less severe still accompanied by numbness and eye sight stuff.
Two recommendations...No aerobic exercise while on it (not supposed to anyway but I cheated and paid for it) and LOTS of WATER...you do not want to become dehydrated while on it plus of course you want to keep it moving through your system...don't need kidney stones.
Take care and keep us posted...
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Just tired and achey. Really barely got anything done today.
Still only on 2 pills per day. Need to go up to 3x per day. I'll do that on monday.
WAHHHH! Whaa whaaa!
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
Hi Robi, I just wanted to ask you a little more about your experiences with Flagyl and depression. I started taking it a few days ago (only taking a quarter of a pill so far--I go slowly) and feel totally depressed afterwards--like I can't even move or smile, almost catatonic like. Was this similar to what you experienced? I am taking such a small dosage that I hate to jump to conclusions, since the depression could be from a number of other things. However, it just comes on so suddenly and severely. Anyway, let me know what you think. Thanks, Carrie --Also, is the tinidazole in the same family and does it cause similar problems?
Posts: 13 | From Downingtown, PA, USA | Registered: Jan 2003
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Did 3 pills today. I know I'm brave.
So far so good. Just tired.
More tommorrow.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
increase in symptoms, gums and tooth socks, left side; new symptoms; symptoms due to side-effects of the drug. numbness and tingling,which upon their appearance, i immediately stopped the med.
major breakthrough, in emotional lability starting a week or two after its course.
rash outbreak on shins, gone week(s)? after cessation.
produced a depressive state, gloomy, dark mood. beware.
Posts: 2708 | Registered: Feb 2005
| IP: Logged |
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Tinidazole is "next generation" and is reported to have fewer side effects.
More costly, 'natch. A LOT.
You do know...Absolutely NO ALCOHOL while on this, right?
If you drink and Flagyl/Tini...you WILL end up in ER.
Keep the probiotics up..lots. One hour before meals with a full glass of water.
May take more than one "round".
Posts: 9424 | From Sunshine State | Registered: Mar 2001
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Thanks for the info everyone. I'll keep up on my probiotics more dilegently.
PAIN, PAIN, PAIN!!!!!!!
Did I mention I'm in flippin' pain?
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Today was a little more bearable. Do you think I'm getting used to the pain?
In Pain and sleepy.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
IMA?
What's going on with you?
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
Flagyl would have killed me or landed me in the psyche ward, probably permanently, if I'd taken the LLMD's dose of 500mg per day.
I took 1/8th of a 250 mg pill first day and did ok-could feel it working on head/brain? tissues, next day 1/8th again and did ok, then on third day tried 1/8th am and 1/8th pm. All hell broke loose. I was in bed with covers pulled to my ears, shaking, scared to death, sounds were horrific. Was someone breaking into the house??
Stopped Flagyl. Next day I was ok as long as I stayed home and things were quiet, then I drove my car and immediately thought I was inside a jet engine! My anxiety was so acute that my chest felt like I'd stopped a speeding car with it. Made it back home driving very slowly and concentrating with all I had, hands cramped on the steering wheel. Debated calling 911 for the chest pain.
Called doc's office. LLMD's nurse said the chest pain was just the Lyme (It wasn't.) and to go back on Biaxin. On Biaxin, just one 250 mg, all of the above happened again, just as acutely. I wound up sleeping (trying to sleep) with my large breed dogs at night. I trusted them to interpret the sounds I could not.
I have since tried Tini and did ok on it, but had to start small. Ramped up to one 250 a day over a few weeks. Stopped to add abx for a while, then back to Tini eventually.
The Flagyl experience left possibly permanent damage to what had been my good ear, the ear without hearing loss and miserable tinnitus. The new tinnitus in the newly bad ear is totally different from the tinnitus in the ear that's had ringing since a tick bite BL on the lobe in 2001.
This Flagyl drama illustrates how profoundly bad herxes can do lasting damage from which you may not recover. Flagyl can build up in your system; it is not passed well through a damaged liver. Tini does not have this caveat. BEWARE of Flagyl!
Posts: 422 | From Luck home | Registered: Sep 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Thank you for the warning.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I tried flagyl in 2002 and this is gross, but for REAL: It gave me a perirectal abcess.
No one understands this to this day. No one. Not a single doc can explain how, on major ABX, I developed an abcess next to my rear end.
Every LLMD raises their eyebrows and says, now REALLY? it is supposed to BREAK cysts, not cause them. But for some reason it caused this one.
I have had problems there ever since. lovely eh?
The treating doc at the time (LLMD) had me stop the flagyl and get shots of Rocephin until the awfulness, the swelling and fevers and flu-stuff went away. It hurt like the DICKENS.
Never tried flagyl again.
I might have to this year, but hoping the tini might do me better?
Never heard of this from anyone else, so you're prolly not in danger of it. Only my A**!
Glad you've moved on from the golden goop Heather! And thanks for the photos! Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
| IP: Logged |
posted
i'd not take probiotics at the same time as any antibiotic, but staggered in time, 4 hours away from the antibiotic.
when i called a pharmacist and asked about probiotics with ceftin, she said take it 4 hours after/before teh ceftin, and she said so in a forboding tone.
so i extend this advice to any antibiotic i take.
Posts: 2708 | Registered: Feb 2005
| IP: Logged |
posted
I've taken flagyl many times for Lyme. The thing I found was starting on a low dosage and building up. I start 750 mg. twice a day this weekend and using minocycline during the week.
No problems except for herxing and it is tolerable. Hope you have the same good results as I have.
-------------------- Debbie V. Posts: 125 | From Louisiana | Registered: Oct 2004
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Trails,
I love you.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Miserable pain. Hands, arms and shoulders heavy and in pain.
Worked 6 hours today. It's slow so I don't have to go for the rest of the week.
Thanks Vandeb & PQ
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
Maybe you're herxing Heather.....at least you know the Flagyl is working.....hope you feel better soon
-------------------- Debbie V. Posts: 125 | From Louisiana | Registered: Oct 2004
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hi Heather!!! I have been on flagyl well its generic Metronidazole and one thing I can tell you is it says doNot drink alchohol while on this it sez sever reaction ie sick in the stomach and throwing up. Which I ignored a couple of times and got a little quezy but never through up but I dont throwup easy anyway.
Other than that I didnt feel to bad on it any of the times I took it which I just got put back on it again. 250mg 3x a day = 750mg total. On pennicillin V 4000mg total sending them into cyst then bangin them with Metronidazole!!
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Yes Tree,
Thanks. I even switched my mouthwash to a non acohol form.
I too am on the generic. Just figured everyone knows "flagyl".
I'm hoping when I see the LLMD Jan 2nd he adds another med.
KILL KILL KILL THE KEETS
Sing to jingle bells,
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
Hi, Heather! Hope all is going well with flagyl. Seems to be kicking your butt. I forgot who your LLMD is... send me a priv msg if you don't mind. How long were you on "regular" ABX before trying flagyl? Never mentioned by my LLMD, but I want to be prepared if it comes up in the future.
Heard about the severe depression effect of these. What class of ABX do flagyl and tinidazole fall in?
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
PAIN! PAIN!
I'm so lethargic. And my ears are ringing!
eeeewwww. yuck.
These friggin' sunshines are getting on my nerves.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Yeah, where's the photo of that beauty you used to use? Flagyl sux. Butt. for reals. hang in there, you are killin them. but, um, are you getting your blood checked for liver stuff and other things?>??? Good idea to get it done bi-monthly. Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
| IP: Logged |
Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
I'm allergic to Flagyl, it seems, so I hope I can tolerate the Tindamax. I start tomorrow (keeping fingers crossed).
I'll be your similar-drug buddy!
I'm a-scared about the major Herxing. I was told to start at one per day and go to SIX per day! It's four days on, three days off.
I'm also taking doxy and generic Plaquenil as far as treatment meds. (I'm taking plenty of "deals with side effects" meds and others.)
This oughta be interesting!
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
| IP: Logged |
Imalive. I noticed some slight kidney discomfort and dark urine today even though I am drinking tons of H20. Will have to keep an eye on it. (Started Magnesium too.)
I am only up to 1/2 pill three times a day now. YUCK!
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Guess what? Today was not too bad. The pain is lifting.
Now I'm just stupid. Can't say names or words. allot of cognitive problems.
Today I'll take stupid over pain.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Soooooooooo
I think that was a two week herx. This morning is A.O.K.
Now I need to de-yeast-ify. I ate alot of comfort foods.
A warning to to others,"Flagyl is vicious."
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
How is everyone else doing?
IMA?
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Hi Heather. I have to go back on Flagyl myself here very soon. When I was on it, I was only taking 250mg 2x's a day, one day a week. Hope you are continuing to improve on it?
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
| IP: Logged |
posted
Hi All, I'm starting Flagyl after the new year... I decided to hang on and get Christmas etc out of the way first.
I must say I'm not looking forward to it after reading all your experiences!
Hope you're feeling better Heather, it's encouraging that you seem to be getting over the bad patch- I hope that it continues to improve for you!
I've been taking the UK version of Ceftin for a few months and have felt consistantly better than I have in a long time. My doc has suggested pulsing Flagyl (400mg twice a day) with the Ceftin (375mg twice a day) - ceftin 5 days a week and flagyl for two. Anyone else on this kind of regime? Would it be enough to kill the cyst forms?
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
posted
I am doing pretty well today. I am taking 1/2 pill 3x/day now. I am waiting until after Christmas to go to a full dose so that I can try to enjoy the holidays. (wimp) I noticed I have to drink much more water on flagyl.
Merry Christmas!!!
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hi flagyl buddies!
IMA? Has the pain left you yet? I still have little bits here and there. Ok.... not too bad but it's still pain.
My ears have not rung in a few days. No head aches.
Just tired but I still can get things accomplished.
Oh yea....... YEAST! BIG PROBLEMO! Flagyl definately is promoting the yeast. I have diflucan thankfully.
Happy New Year to all!
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Not very good come this tuesday night orange bowl is on and penn state is going to win and I cant drink beer dang flagyl.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
On my 5th day after not being on it for a couple months....major impatience and frustration with things.
Feeling just bummed out! Blach! I was on it last New Years in my third month of treatment...didn't plan too well this year so no champagne for me ;(
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
| IP: Logged |
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
My doctor put me on a 5 day dose of 1500 mgs per day to get bB into my urine for a DNA analysis. After reading these posts I was pretty scared but didn't feel I could start gradually since it was a 5 day thing.
First 5 doses, I handled just fine. Mild headache was relieved with Advil. Then I took the 6th dose, became very fatigued. Rested and awoke with a sore throat. The pharmacy info listed this as a "very rare but serious side effect". Of course it happened on Friday at 5pm just before New Year's so couldn't reach the doctor. Did not take my evening dose. About an hour later, realized my sore throat was actually swelling along with my tongue. I ran to CVS for Benedryl which took care of the reaction.
No more Flagyl for me.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Anyone doing Flagyl with Rifampin? How's it treating you?
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
I'll be starting flagyl(metronidazole) 500 2x a day along with doryx.
posted
I may start this drug in the next few months.
I know Flagyl is for cyst-busting.
Does cyst form produce active symptoms?
Or do we take flagyl just to rid ourselves from them and prevent them from morphing in to active infection?
Posts: 116 | From Pennsylvania | Registered: Mar 2005
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Forgot to mention: Flagyl tastes awful!
I dip em in yogurt or olive oil to get em down. Yuck! Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Surfbabe,
Sounds like a herx. I was tired and in pain for 2 wks.
LC,
If you have a die-off of bacteria or herx reaction you could posibly "feel it".
I'm not a doctor just giving my 2 cents.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
heatherkiss et al, i'm back on flagyl after more than a year of avoiding it because of peripheral neuropathy problems. am pulsing three days a week and also taking plaquinol, malarone & doxy. so far (and it's only been a week, I am achy in the arms and hands plus tired and fuzzy. nothing extreme yet.
when i took it in the past I felt sharper in days of taking it. could file again at work. could organize stuff that was sitting in piles.
I think I am feeling a little bit like a brighter bulb on the bush, but it's really too soon to tell.
i think it's the best for cognitive stx.
good luck
hopeful123
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hopeful,
That is soo nice to hear. I'd really love to grow some of my brain back!
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
thanks Heather - i'll try lowering dose for a few days til sickness passes. most abx seem to make me sick!
Posts: 47 | From SP | Registered: Oct 2005
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Alot of head pressure & really emotional After a while it stopped working for me & now am on tinimax.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
posted
I'm on it as of this week...random muscle pains, tin/metallic-like headaches.
-------------------- Bill
**Question everything...it may save your life!!!** Posts: 80 | From ATLantic Seaboard | Registered: Aug 2005
| IP: Logged |
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
i really spoke too soon. Wow! Can't walk without limping because my ankle hurts so much (old symptom), can't get enough sleep and FOGGY, FOGGY STONED feeling which is really interesting to try to get anything done at work.
this was after one three day pulse last week.
i am due to do another pulse today.
thank god i'm not working at anything really important. i just talk to people a lot and push paper around. i think i can do that....but the sleepiness is amazing.
thanks for letting me vent...
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
This time around Flagyl:
Tastes terrible Tired Dont sleep deep Level sleep here ------------ sleeping at this level 1.Iam here 2. 3. 4. 5.Deepest
Stomach hurts this time around.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I had a burst of energy and enjoyed a brief period of mental clarity after New Years, then WHAM!!
I have severe joint pain everywhere today and the foggiest brain!! Glassy eyes, pale, sharp pain in my head, stiff neck, burning in arms and legs and my standard herxing insomnia.
My knuckles and fingers are so inflamed today I look like I have "man hands".
Oh yeah, very b***chy too. Poor hubby should have slept in the barn tonight.
And to think I ASKED my LLMD if flagyl would be "enough" alone and he prescribed a combo I have yet to add!
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Doing great today! Have my special monthly friend.
Now going to PA for a christening.
Bye,
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hi IMA,
So sorry you are herxing........ feel better soon.
Hi Tree,
Hope you get some good sleep. I either take ambien or zanex to sleep. I take turns.
Well everyone I think the herxing on the flagyl 500 and doryx 100 has started. I'm burning. Oh my skin is burning.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
Hi Heather and all, Started Flagyl yesterday - only have to take it for two days each week pulsed with Ceftin the other five days. I really noticed that I had problems sleeping last night, more than usual, woke up feeling like I'd been hit by a truck, again more than usual. And strange sort of metallic taste in my mouth.
I also woke in the middle of the night with a sudden jump- sort of palpitations, a sudden thump in my chest. Lets hope it doesn't happen again tonight- I need some sleep!
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hi Milly,
Yes sleep is definately an issue and I do have to use help. either xanax or ambien.
I like ambien better but can only use it about three days in row without getting a horrible headache.
Hope you get your beauty rest,
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
posted
Hi Heather, Thanks for that, I got a better night sleep last night, which was a relief!
I haven't really noticed anything much else with the Flagyl but as I only have to take it for two days a week I wasn't expecting anything dynamic. I just hope that it will be enough to get these pesky bugs out of hiding!
Hope you're improving! mi mo ma
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
posted
Anyone know how long Flagyl stays in you system for? I'm only on it for two days a week (Sun Mon)and wondered if I might be allowed to have a glass of wine with my meal say, on the Thursday or Fri.
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Milly
I'm on tini, the other cyst buster. I was told the minimum amount of time to be on a cyst buster when pulsing is three days.
Flagyl and Tini have the same warning with regards to alcohol. It states to avoid for three days following discontinuation of the drug.
Hope this helps. TreePatrol, next year no cyst busters for Penn State games. We'll have a beer, ah heck a couple, and a pizza, and dessert, a beer to wash that down, doughnuts, chocolate, peanut M&Ms, and did I tell you peanut M&Ms go good with beer. OK time to stop. I'm getting hungry or maybe it's thirsty.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Tree and Pocono,
I sooooooooooo hear you about the beer. And Milly a glass of wine sounds good. 3 days is what I read on my medicine insert.
Next year for Christmas and New Years I want to be drunk!
Today I'm tired and stressing. Have an ear ache.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
ahhhhhhhhhhhhhhh beer
I just thought I would tell you guys wife started aching tuesday right on cue then cold sore wed then thursday herxing ached all over her recently healed foot is piching and shoulders hurt and left knee swelled up headache and to top it off she got what women call there buddy too.
Me the deep acheing stopped I only hurt here and there not even bad compared to what Iam use to haha had headaces over the weekend thats it was tired alot sleeping better sofar. we are both on Pennicillin vk and flagyl a month now.
ps those two abx's were my idea to try the cillin is 4000mgs a day the flagyl is 750mgs hard regiment taking pills P= 6am 11am 4pm 9pm F= 6am 1:30pm and 9pm
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Heather,
How 'bout Christmas in July?
I've had the same reaction as Tree's wife pretty much. The shoulder pain and aches etc. even the "Buddy". Much less intense this month as compared to last month. Tho I'm on Tini, not Flagyl.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
| IP: Logged |
posted
I've decided not to risk having any alcohol, I want to give myself a fair crack at this.
I've been feeling soooo tired again and like treepatrol's wife, I've got a cold sore, so hopefully the fagyl that I took four days ago might be doing something...
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Cold sore seems to be a running theme here when on Nitroimidazoles: Flagyl, Tinidazole & Others
Hummmmmmmmmmmmmmmmmmmmmmmmmm?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Hi Again, Interesting about the cold sores... when I was a kid I would get them really badly. I only seem to get them about once a year now. I wonder if there is some relation with herpes simplex to lyme.. and, or, they are affected by the strange affects that lyme has on our immune system. Be great if anyone knows anything about this.
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[kiss]](graemlins/kissing.gif)
![[Eek!]](eek.gif)
![[Razz]](tongue.gif)
![[shake]](graemlins/shake.gif)
Hands, arms and shoulders heavy and in pain.![[Smile]](smile.gif)
![[sleepy]](graemlins/sleepy.gif)
then bangin ![[bonk]](graemlins/bonk.gif)
them with Metronidazole!!![[Big Grin]](biggrin.gif)
I even switched my mouthwash to a non acohol form.![[rant]](graemlins/rant.gif)
These friggin' sunshines are getting on my nerves. ![[cussing]](graemlins/cussing.gif)
![[Wink]](wink.gif)
![[woohoo]](graemlins/woohoo.gif)
and I cant drink beer dang flagyl. ![[puke]](graemlins/puke.gif)
![[tsk]](graemlins/tsk.gif)
We'll have a beer, ah heck a couple, and a pizza, and dessert, a beer to wash that down, doughnuts, chocolate, peanut M&Ms, and did I tell you peanut M&Ms go good with beer.![[confused]](graemlins/confused.gif)
Printer-friendly view of this topic