David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
This is basically a semi-annual update. For new people, I started treatment in January of 2003. At that time i had no stamina, could barely walk uphill, was diagnosed with asthma and COPD, had vertigo and a continuous headache for nine months. I had about twenty six of teh symptoms on Dr. B's. symptom list.
The first improvement became noticeable at about three months and those improvements were brief, noticing that nothing hurt, or being able to follow conversation better. Over that year I continued to improve.
My infection began in 1991, at the earliest and the prognosis for cure is not good. However, I am keeping it beaten back, have very minor symptoms and, just in the last couple of weeks, have noticed days when I can do two things at once and think through complex problems.
So folks, keep on keeping on. In my case, the cognitive problems seem to be resolving most slowly but it seems to still be happening.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
David
YEHHHH on the cognitive improvements!
Baby steps.That's the way to hang in there. You are very brave
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
geniveve
Unregistered
posted
david, what protocol are you on? did you get "worse" before getting better.
i got bit in june 2005 and still am not being treated due to every time they give me antibotics, i get so bad they have to stop them.
IP: Logged |
David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Genevive, The first month I pretty much stayed in bed and was pretty miserable. The second was a little better. I continued to have several days in row of very uncomfortable, but not disabling, herxes for about two years. Still have occasional bed days in which I feel fuzzy, achey, dizzy, and withdrawn. The first month I was fortunate to be on winter break. The first summer I rested almost the entire time. My protocol has been Bicllin and Biaxin, throughout.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
| IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
David, Great news from you this morning; thanks for updating us on your progress!
Genvieve, as I was reading your post, I wondered if maybe you haven't stopped the antibiotics too quickly once you start taking them.
Once I had tested positive and found a LLMD, I was told that this disease would get much worse in me before it started to get better. At that point, I mostly had physiological problems -- swollen and aching joints, numbness. Plus exhaustion.
When I started taking abx, though, everything got much much worse. I didn't spend that entire month in bed, but things weren't good at all, and during my first antibiotic herxheimer reaction (herx), I ended up in the ER. That's especially severe and certainly doesn't happen with everyone.
Anyway, I stayed the course. The second month was still horrible, really awful, but it wasn't quite as bad as the month before.
Basically, each month has gotten a little tiny bit better. It hasn't been speedy progress by any means, nor am I completely healed. But I can now imagine a time when I might be well.
I was bitten in 1996 (had the bullseye rash) but the Lyme wasn't diagnosed until last June.
I'm wondering if you're seeing a LLMD and, if now, whether that would be possible. This is a complicated disease, and for me, having a knowledgable doctor (specifically about Lyme disease) who has gotten me on an individual treatment program has made all the difference.
pm me if you would like any more information.
And, David, again, I'm so happy for your news!
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
david,
i am very happy to read your update!!
way to go!!
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
posted
Great news! We just have to keep chipping away at it. Are you using Biaxin XL or regular immediate release? If you take the XL, are you taking both tabs at the same time like Abbott labs says to? It seems that a lot of Dr's tell their patients to take them just like the immediate release, but it's performance is based on both tabs together in a once a day dosing.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi David--
I knew you where going to make it-- You are a Good example of what good treatment- positive thought and will power and a little luck can bring on---- Also add in there the bed rest as being a important part of the puzzle- --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[woohoo]](graemlins/woohoo.gif)
![[Smile]](smile.gif)
![[Cool]](cool.gif)
Printer-friendly view of this topic