I'm new to the forum, however, have been reading through the site for a few months.
I'm anxiously awaiting results from my Igenex test. I had negative results on the LabCorp ELISA and Western Blot. BUT, my LLMD said those are worthless tests anyway. So, we'll see what Igenex says. And awaiting results for all of the other tests they ran at the same time (hint: they took 26 tubes of blood from me, YIKES!!)
Anyway, my question is I'm wondering if any of you suffer from chronic daily tension headaches. I have been suffering from a never ending daily tension headache for over 12 years straight. It never ever ends!!! It started after I got the spinal headache from my epidural (C-section). I had 2 blood patches to correct the spinal headache, but a tension headache remained. FOR 12 YEARS!!! It's very frustrating. On a scale of 1-10, it is a 2 on a good day and a full blown 10 on a bad day.
Do any of you suffer from this with your other Lyme symptoms as well? I have many other symptoms that my LLMD feels are probably symptoms of Lyme. I've had normal Brain MRI's, so not sure what's causing the headaches, unless it's just stress. But, why everyday??? Could this be a symptom of Lyme? I've been assured by various DR's that it cannot be a long term effect from the spinal headache I had. So, I'm at a loss. Any comments??? Thanks!! I've enjoyed reading thru this forum. I've learned a lot about LD from all of your posts. Looking forward to hearing your responses.
Thanks again, Tiff
Posts: 28 | From NC | Registered: Mar 2006
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About those headaches....over here....over here yoo hoo ( waving frantically ! )
Your not alone at all ! They have been one of my most prominent symptoms.
My LLMD has understood that from day 1 with me and we have found that as long as I can keep them under some control I do much better with my other treatments.
You mentioned 26 vials of blood taken? 26 !! Are they checking for gold????
Let us know how you make out with the results Tiff.
Chin up ! Bon
Posts: 50 | From NJ | Registered: Jul 2004
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Thanks for your reply!! Sorry to hear about your headaches, I know how frustrating they are. They just suck the life out of me, not to mention they took away my personality!!!
How does your DR help you get them under control? I have tried different meds, nothing seems to be worth the side effects they bring. I take Darvocet when the headache is unbearable. Or sometimes, I'll just knock out on Benadryl.
I don't know what all they are checking for with the 26 vials of blood, but, after that, they better find something, considering they took HALF my blood supply!!! (haha)
Thanks again, and let me know if you ever find any "miracle med" that helps those headaches!!
Thanks, Tiff
Posts: 28 | From NC | Registered: Mar 2006
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posted
Tiff, welcome to the board and glad you have been lurking for awhile to get yourself comfortable with it/us!
Have you ever tried this suggestion I read about:
using an empty banana peel, and attach it to the base of your neck spreading out the peel. Leave it on for awhile; it's supposed to take the headache/migraine away fairly fast!
I haven't tried it; we eat a lot of bananas and are out by the time I get a rare migraine now. But hey, it's only the cost of a few bananas!
Welcome to this 24/7 LYME support group board!
Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol's newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn't cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated
YES, I have what you have! Are you on doxy too? That made my extreme eyes 200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board. Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
You will need 2% amber and 10% amber ... Style no. 901 and 910. 1-800-521-9746 TOLL- FREE
mention you have lyme and marshall protocol, they will give you 20% off! Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word!
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that's why I currently have LONG addresses vs. short tiny ones! I'll keep trying.
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