posted
I guess this is more like two separate questions but I'm making one post.
First, around the time that I started treatment I gained about 40 lbs and haven't been able to keep if off since. I'm borderline overweight now and want to fix that. Any suggestions on how to do that safely?
Second, I'm going to college and recently had to start working part time as well. Of course, a few weeks in, I'm so tired all the time. I can barely make it to school/work on time because it's nearly impossible to get out of bed. I'd like to avoid the injections if possible. Any suggestions here would be appreciated too.
Posts: 5 | From Hollister, CA | Registered: Oct 2005
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
ASH, you don't say what treatment and if you are still on it. I had awlful fatigue until I was treated for Babseoisis. I had tested negative but my LLMD put me on the Mepron & Zithroax for three months. Now very rarely get the horrid fatigue. Usually only when I herx.
You sure have alot going on with school & work. I tip my hat to you...you have great courage & determination. It is hard but rest when ever, where ever you can.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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bettyg
Unregistered
posted
Welcome Ash to the board.
Wow, going to school & working night. Best wishes to you, but please take care of yourself. You may be young, and healthier than we senior citizens..me! but this could be very detrimental to your health.
When they put me on a certain depression pill, I gained 25 lbs. in 1 yr.
I have diabetes 2 and chroic lyme; each is fighting each other. I eat like a horse since they had me up to 19 meds.
Here are some newbie links & especially TREEPATROL'S! A must see/read.
Welcome to this 24/7 LYME support group board! Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol's newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn't cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated
YES, I have what you have! Are you on doxy too? That made my extreme eyes 200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board. Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
You will need 2% amber and 10% amber ... Style no. 901 and 910. 1-800-521-9746 TOLL- FREE
mention you have lyme and marshall protocol, they will give you 20% off! Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word!
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that's why I currently have LONG addresses vs. short tiny ones! I'll keep trying.
TESTING FOR LYME DISEASE ... 3 main LYME TICK BORNE LABS IN USA!
The WESTERN BLOT IGM & IGG blood test nos. 189 and 188, are the only accurate tests for LD. They should only be sent to these 3 USA's Lyme testing labs:
IGENEX LAB: 797 San Antonio Road Palo Alto, CA 94303 1.800.832.3200.
(If the early test, called IGM, is negative; the later test IGG is NOT done!) Please see their web site: www.igenex.com CALL for their current prices effective OCT. , 2005 and
to print their REQUIRED form, which MUST be signed by the doctor, DIAGNOSIS CODE NO. COMPLETED!; Medicare's UPIN no., and your blood taken EARLY in the week so it doesn't sit in post offices! Example, have it taken Mon. - Wed. Afternoon tests show more positive lyme results!
Here is the site to PRINT THEIR REQUIRED FORM to send with blood sample. For me, I printed the FIRST option available on the forms.
Write on their forms you want results FAXED to their drs. Office; snail mail paper copy so it's not lost like mine was!
NON-Medicare patients must PREPAY by check or credit card for the tests since they do NOT handle insurance papers. Medicare patients do NOT have to prepay!
2. MDLabs from NJ, www.mdl.net see their site; they too require their own form. NO prices are listed; you must call their 800 no.
3. BOWEN labs from Florida, www.bowen.net 727.937.9077.
You pay $250 tax-deductible payment for testing, and they send you a picture of what shows up in your blood. You also get the results within 24 hours after the blood is received at Bowen. They are also a 501(c)(3) lab and you can take the donation of $250 off of your taxes if you live in the US.
They fax the results and then about a week later send the actual pictures.
NO way to file for insurance since it's only a brief letter you get back from them even WITHOUT a 501 federal tax no!
Lyme should be diagnosed clinically using medical history in addition with the Western Blot blood tests as no currently available test is definitive in ruling-in or ruling-out infection with Ld pathogens, or whether these infections are responsible for the patient's symptoms.
NOTE: Please send a copy of your health insurance card to YOUR insurance comany (mine is Wellmark BC/BS, Iowa) for them to submit to BLUE CARD (handles other states) them to FORWARD to California's Blue Shield health insurance company since they will require that, DRS. Diagnosis Code No., and which date of service is correct (IGX has 3 different dates on their paid receipts....use the DATE OF ACTIVITY!).
FYI - mine was returned to me after 6 wks. After submitting; dr./blood lab failed to show DRS. DIAGNOSIS CODE NO. on their form! It went to 7 people to be returned to me! Disgusting!
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I was trying to go to college and work part time when lyme finally disabled me....
I am not saying this will happen to you... just be careful about pushing yourself to hard.
From what I remember Lyme all by itself can cause weight gain.
Certain meds also cause weight gain. Did you start a new med around the time you started to gain weight?
Ways to help lose it - drink alot of water... cut out caloritic beverages.
Try not to eat to much junk food.
I would normally say exercise but I dont think you seem to have the time or energy.
posted
Unfortunately the work isn't by my choice. I have a nice setup because my dad is paying for my college & living expenses while I'm in school full time...
However he hasn't been able to keep up with my medical stuff due to his own problems with work, so he asked me to start a part time job... I'm going to school for 8 hrs 2 days a week, which was fine. But then I started working 6 - 7 hrs per day for 4 other days, so I only had one day to do nothing, which usually involved doctor visits.
I recently cut down to only working 3 days a week, so I have 2 days off, and it's helped a tiny bit... But it seems I don't have much choice in the matter because of the situation I'm in with my dad.
Posts: 5 | From Hollister, CA | Registered: Oct 2005
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