LymeNet Flash: Biaxin/Plaquenil Experiences/Successes!!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Biaxin/Plaquenil Experiences/Successes!!

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Author

Topic: Biaxin/Plaquenil Experiences/Successes!!

BostonLyme2005
Unregistered

posted

Hello,

I have been on Biaxin/Plaquenil for 48 hours now. I did not get the best nights sleep last night, but I am extremely fatigued today....

Yes, I went to work, did some shopping, but it is still with me......

Does Biaxin/Plaquenil make you herx a lot?

Maybe I am just tired from lask of sleep!

Thanks,

[ 25. April 2006, 06:48 AM: Message edited by: BostonLyme2005 ]

IP: Logged |

Aniek
Frequent Contributor (1K+ posts)
Member # 5374

posted

I have fatigue almost every time I herx. Usually within 48-72 hours of starting.

I also think the plaquenil might cause some fatigue. I've been on it so long now, I don't remember. [dizzy]

I started plaquenil with Biaxin, but remained on it because it reduced swelling and stiffness in my hands.

--------------------
"When there is pain, there are no words." - Toni Morrison

Posts: 4711 | From Washington, DC | Registered: Mar 2004 | IP: Logged |

painted turtle
LymeNet Contributor
Member # 7801

posted

Rob,

I tried to PM you earlier but your box was full.

I herxed like C R A Z Y

on biaxin alone. First herx...truly, utterly out of my body and mind, for sure burning spine definitely thought I was going to die.

How long have you had lyme?
How long have you been treated?

I dont' remember your details but am curious about those two questions.

--------------------
www.lymefire.blogspot.com

Posts: 855 | From United States of Mind | Registered: Aug 2005 | IP: Logged |

BostonLyme2005
Unregistered

posted

Thanks Guys,

I feel up and down a bit...When I feel good, I do too much in any given day and then I am useless the next day!

IP: Logged |

snowflake
LymeNet Contributor
Member # 8950

posted

Mmmmm, yummmy!

I love the taste of aluminum foil in my mouth!!!

NOT! [lick]

--------------------
We have only this moment, sparkling like a star in our hand... and melting like a snowflake. Let us use it before it is too late.

Posts: 221 | From the hills | Registered: Mar 2006 | IP: Logged |

Gretchen P
Member
Member # 8403

posted

Ohhhhhhh is that aluminum foil? I thought it was nickels in my mouth!

--------------------
I'm gonna get that lyme !!!

Posts: 61 | From Erie, PA | Registered: Dec 2005 | IP: Logged |

BostonLyme2005
Unregistered

posted

Still to this day, bad taste from biaxin is gone.....Herx is still here though...

I am O-D-ing on sugar! [Frown]

Dont know if I have yeast, who knows?

IP: Logged |

bsm
Member
Member # 8951

posted

Biaxin has made me herx non-stop. I've been ramping up to the full dose, and each time I increase it, I herx all over again.

It also gives me incredibly vivid nightmares and caused me to have a panic attack, which I have read is a common effect of the drug.

Good luck! It's tough to deal with, but effective.

Posts: 20 | From Chicago, IL | Registered: Mar 2006 | IP: Logged |

BostonLyme2005
Unregistered

posted

Hi,

Thanks...I am just fatigued now. Some days I have pains and burning, metal taste is long gone, no nightmares, panic attacks, sleeping only 6 hours most nights....

IP: Logged |

jarjar
LymeNet Contributor
Member # 8847

posted

Rob you mentioned that you were O-D ing on sugar. Please do yourself a favor and go buy sugar free cookies if you are craving sugar. Sugar only makes you feel worse in the long run.

I remember when I use to crave it BIG TIME!

jar

Posts: 805 | From Utopia | Registered: Feb 2006 | IP: Logged |

nicolette
Member
Member # 8133

posted

I wonder if some of the issues that people think are from the Biaxin or from a herx are actually side-effects of Plaquenil. The first time I tried the combo I took the full dose of each and had what I thought at the time was a major herx. As it turns out, after experimenting with both drugs on there own I found out my strong reaction was actually just side effects from the plaquenil (major sleeping issues, lots of anxiety, pressure in my head). I ended up having to start the Biaxin alone and ramp up on the plaquenil of which I still don't take the full dose. Just something to think about when taking these meds that it's not always a herx...

Posts: 98 | From cambridge ma | Registered: Oct 2005 | IP: Logged |

BostonLyme2005
Unregistered

posted

Hi,

Yes, I have had some sleeping issues...I do manage to get 6 hours a night, maybe more...

I do have this weird feeling in my head, not all the time, just for a few mins, then gone...

No more bad taste in mouth...

I just take what the Dr. gives me, what else can I do!

IP: Logged |

BostonLyme2005
Unregistered

posted

It is weird how different abx make you her in different ways sometimes....

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christelleny
LymeNet Contributor
Member # 6719

posted

Major hell for 4 weeks after beginning the combo (insomnia, severe pain in articulations, seizures, migraines, cotton-ball head).

I thoughth I was back to square one, after 16 months of treatment.

After 4 weeks, things fell back into place, except that insomnia is still potent.

Posts: 159 | From CT, USA | Registered: Jan 2005 | IP: Logged |

hatsnscarfs
LymeNet Contributor
Member # 6562

posted

Rob,
See my long post in your P&B Co-infection thread. You asked about experiences there too and I hadn't seen this thread yet.
hats

Posts: 956 | From MA | Registered: Nov 2004 | IP: Logged |

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