posted
About 3 months ago I started having bad calf pain. I also started waking up in the middle of the night feeling like someone turned on a neon light on in my body. Then the tingling leg started, which turned into a vibrating leg. Then I got twiches all over body and a burning sensation in my face and neck. Then I wake up from the dead of sleep with a burst of pain. It was an explosion. I got a MRI, nothing. I insisted on iGenex test which came back with a IGenex IGG Positive (CDC Neg) and IGenex IGM negative. My Dr. said test was equivocal and does not want to treat me for Lyme. I am very confused, not to mention depressed. Does this sound like Lyme. Adding to my symptom list ... it feels like there are rubber bands around my writs that will not let blood into my hands. Very strange. I am 32 and otherwise in very good health.
Posts: 20 | From NC | Registered: Jun 2006
| IP: Logged |
Lesley
Posts: 120 | From NB Canada | Registered: Jan 2006
| IP: Logged |
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
If Igenex gave you a positive result, there's little doubt in my mind that you should be treated.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
| IP: Logged |
bettyg
Unregistered
posted
Welcome jc,
Breaking this up by hitting enter often & double spacing between EACH paragraph so we neuro lymies can read. Betty
quote:Originally posted by jcbaum:
About 3 months ago I started having bad calf pain. I also started waking up in the middle of the night feeling like someone turned on a neon light on in my body.
Then the tingling leg started, which turned into a vibrating leg. Then I got twiches all over body and a burning sensation in my face and neck.
Then I wake up from the dead of sleep with a burst of pain. It was an explosion.
I got a MRI, nothing.
I insisted on iGenex test which came back with a IGenex IGG Positive (CDC Neg) and IGenex IGM negative .
My Dr. said test was equivocal and does not want to treat me for Lyme.
I am very confused, not to mention depressed. Does this sound like Lyme.
Adding to my symptom list ... it feels like there are rubber bands around my wrists that will not let blood into my hands. Very strange. I am 32 and otherwise in very good health.
Welcome to this 24/7 LYME support group board!
Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Burrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol''s newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl''s extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-10 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn''t cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated YES, I have what you have! Are you on doxy too? That made my extreme eyes
200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board.
Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
mention you have lyme and marshall protocol, they will give you 20% off! I'm NOT on MProtocol, but mention it anyway. I was on their new board almost 12 months!
Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word! http://tinyurl.com/
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that''s why I currently have LONG addresses vs. short tiny ones! I''ll keep trying.
RASH ITCHES -- use ``rubbing alcohol`` on it especially the corners good. Hubby suggested; worked great for me; rash cleared up in 2 days vs. weeks/month
1. How many doctors did you have to see before being properly diagnosed? 112 responses Average number of doctors consulted before being diagnosed - 14 Answers ranged from 1- 120 different doctors
2. Have you had problems getting insurance to pay for doctors or treatment? 87 responses? Yes- 63 No- 24
3. Have you lost income because of Lyme disease? 106 responses Yes- 99 No- 7
4. How much does it cost you (average) per month for Lyme related expenses? 61 responded Average cost per month per patient- $4,472.49 Low- $500.00 High- $21,492.00
5. How many different medications do you take per day? 77 responded Average - 14 different medications per day Low- 3 High- 25
IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I would agree. Next steps:
1) Find new doctor 2) Fire current doctor
The order of those is up to you but it does not sound like the current doctor will be of any value.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
With symptoms and a positive test, I agree. Find a new doctor!! Make sure you get good recommendations.
Even though it sounds like Lyme, I would also recommend that you get a good evaluation by a recommended osteopath or chiropractor, someone who understands structural issues. Lyme can cause or aggravate certain nerve and muscle issues that would benefit from adjustment or other treatment.
The feeling in your wrists in particular make me think this could be helpful for you. You have some of the symptoms of Thoracic Outlet Syndrome, which can be caused by infections like Lyme. My osteopath has been indispensible in helping with issues of nerve pain.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic