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» LymeNet Flash » Questions and Discussion » Medical Questions » LETTER FROM DR. JONES 6/30/06 (Page 1)

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Author Topic: LETTER FROM DR. JONES 6/30/06
Dr. Jones
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Dear Valued Patients and Friends;

As you know, I am under investigation by the Connecticut Medical Examining Board for the long-term treatment of Lyme Disease and coinfections in two siblings that resided outside of Connecticut. Three hearings have already taken place regarding this case, and I am very optimistic and confident about the two to follow in September 2006.

My attorneys, Elliott Pollack, Esq and Lorraine Johnson, JD are working diligently to represent my case in such a way that I will be able to continue treating children with Lyme Disease. However, the expense for my attorneys has been formidable, and my Legal Defense Fund is nearly depleted.

I NEED YOUR MONETARY SUPPORT NOW in order to continue to fight this battle and win. At this time, I need to raise $50,000, which would carry us through two more hearings and hopefully the situation will end at that point.

Please help me fight this battle by donating money to my Legal Defense Fund. I have appointed George Heath III as the guardian of my Fund and ALL checks from this point forward are to be sent directly to him. Checks are to be written as follows:

Charles Ray Jones, MD
Legal Defense Fund
c/o George Heath III
26 Fairlawn Drive
Wallingford, CT 06492
(in the check memo field please place the word "gift")

I sincerely appreciate all of your efforts to help me in this time of need and we all need to continue to contribute in order for there to be a successful outcome which allows me to continue treating children with Lyme Disease and coinfections.

This is my calling and I intend on continuing to service these children, but I NEED YOUR HELP!!!

Sincerely,

Charles Ray Jones, MD

P.S. Please distribute this letter through internet communication.

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Tincup
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[ 01. July 2006, 12:06 AM: Message edited by: Tincup ]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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lou
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I doubt if he typed it in himself, probably someone on his behalf. Either designated or self-appointed. And it matches that posted on another forum by a lyme doc who is in a position to know, so I think it is legit in content anyway.

I hope everyone who has lyme will see fit to send a contribution.

This needs to be kept near the top. Got the holiday weekend coming up and fewer folks around.

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sizzled
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Serious situation...for us all. Especially, the children with Lyme disease.

The children who will need his expertise and help.

Or...perhaps there are alot of pediatricians out there who are Lyme-literate?

Yes? [confused]

The information on this thread checks out.

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ellenluba
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Having spent the afternoon on the phone with Tanya from Dr. Jones' office walking her through how to register and post on Lymenet, I can attest to the fact that this is from Dr. Jones.

When a doctors sees his entire career about to be robbed from him and when he sees the lives of the children he treats endangered by the medical board, he tends to try different ways of getting out his message for help.

Many of you know Dr. Jones much better than I do, so you know his style is to be humble. A public appeal like this may not be his personal style in general, but this is an emergency.

As much as you all care about his losing his license, imagine how he must feel about the prospect of not being able to help the children who are suffering.

Please help.
Ellen

--------------------


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FightFireWithWater
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A family that I can vouch for has decided to offer a $1000.00 matching challenge grant for Dr. Jones' legal defense fund.

The challenge is open for the next 48 hours.

The first person announcing that they are contributing $1000 will in effect be doubling their donation.

The money will be sent to Dr. Jones' fund next week as soon as mutual verification by the respective donors can be made.

This family is using money that had been planned for a family trip to make this offer.

I hope someone will take them up and start a cascade of similar offers and responses.

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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ellenluba
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FFWW,
This is terrific!

Can I send your post to other groups?
Ellen

--------------------


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FightFireWithWater
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Of course! (Thanks for asking.)

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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Beverly
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We can't loose Dr. Jones...
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bettyg
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Glad to see this at the TOP to grab people's attention. I posted my reply on activism when I saw it there. Bettyg
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NP40
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Dr. Jones has treated 8,000 children over his career. 8,000 ! If everyone of those families donated just $5 dollars it would total $40,000 !

What this man has done is nothing short of remarkable. Taking the most helpless, innocent among us, with little voice and giving them their future's back. It's a labor of love and not of money.

When Dr. Jones took his Hippocratic oath it meant something to him. He's a healer of small children, he's devoted his life and has allowed God to guide his hands in the art of healing.

I know well the terrible feelings of hopelessness and fear when your child is so ill. Our doctor that treated my son was a Godsend. Against medical establishment rules, their love of children and getting them well supercedes all. Our doc employed many of Dr. Jones pioneering protocol's to save my son's life. He's touched so many people, I'm sure Dr. Jones has no idea.

Rather than choose the path of most mainstrean doc's and turn a blind eye with profit as the only motive, these men decided that they'd save as many as they could, without concern for their own personal welfare. Surely, God has a special place in heaven for these men.

Galileo was persecuted because he deemed that the sun was the center of our universe. Australian doc's were ridiculed because they deemed bacteria as the cause of ulcers. Our medical community had to be dragged kicking and screaming away from "bleedings" and "humors".

Today, Dr. Jones's healing protocol's are misunderstood and defied. Tomorrow, they'll become the mainstream. Personally, I'm going to take the Galilean side and not the side of ignorance and unneccessary fear.

There's little children waiting to be healed, in pain, confused and terrified. One man in this country has vowed to help them. We need thousands to stand with him. Our children deserve no less.

Thanks doc.

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Mo
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Great post NP40.

Putting this post out was not easy for a man like Doc Jones, I'd wager. I don't think they make 'em more humble than he.
Yet - at the same time -
he continually bucks the 'system' to do what's right and needed to help children who suffer so terribly from these diseases.

I believe this is why he put out the message:

posted by NP40:
"There's little children waiting to be healed, in pain, confused and terrified. One man in this country has vowed to help them. We need thousands to stand with him. Our children deserve no less."

-- and that is the same reason we need to do everything we can to raise these funds.

Please take the time to inform freinds, family, church groups to listen to the story and take collection, other groups, ect..

Tell them all about this doctor, the children with Lyme, and the systematic persecution of Lyme Literate Doctors ..
and appeal to them to help raise the funds needed now.

Mo

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FightFireWithWater
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Printing out a handful of copies of the info at www.DefendLymeDoctors.com or one of the threads here and handing them around will make it easy to broach the subject of the fund and give your friends and family the info they need to take the next step when they get home.

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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FightFireWithWater
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24 hours remaining in the matching challange grant
offer. There is an opportunity to raise $2000 for Dr. Jones here.

I don't think that the time is extendable even though unfortunately this is a holiday weekend.

Combinations of donations making up $1000 are of course perfectly acceptable.

Please forward this offer to your groups and private email.

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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lymedesign
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I will commit $100.00. I need nine other people to join the "Hundred Dollar" club with me to make this happen. Pleeeeeze... help, so that no one here can later talk about what we "should have" done to help.

Come on....." Hundred Dollar" people...Let's start a rally!!!!!

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ldfighter
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$100 sent.

(I sent this directly to the fund - assuming my contribution can be verified to go towards the matching funds challenge? I hope?)

Trust me when I say this is a huge stretch for me - little income & huge bills like most everyone here, thanks to Lyme.

But this is WAY too important!!! For all of us!

Who's next?

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lymedesign
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Way to go ldfighter!!!! Hats off to you. I hope it counts [Smile]
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timaca
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$100 check written today. will be mailed on Monday.

God bless Dr. Jones.

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lymedesign
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God Bless you timaca!!!

SEVEN to go!!!! We can do this!!!

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ellenluba
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Is it okay if I pledge $50 ? I just paypalled a second donation earlier this week, so really can't afford a hundred moreright now. Anyone else in the same boat and want to add $50 right now so we can together join the hundred dollar club?
Ellen

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sizzled
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I'll pledge $100 too!
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seibertneurolyme
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$50 check will be mailed tomorrow -- that gets us up to $500 -- half way there.

Bea Seibert

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lymedesign
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I was away from my computer for a few hours. I just returned and have tears in my eyes. Hopefully others will be returning from their Fourth of July activities and will hop on board and join the "club".

EllenLuba...you are wonderful!! Sizzled...you brought tears to my eyes!! siebertneurolyme...you joined forces with ellen and made my day...

We need to hear from Fightfirewithwater so that we can find out how you would like us to verify our contributions.

Way to go Lymenet Heros [bow] [woohoo]

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willbeatlyme
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$100 from me as well will be mailed on Monday...
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ellenluba
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YAY! YAY!

FFWW, check out the post from Timaca on http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=041101

Can we count that $100 as well?
Ellen

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willbeatlyme
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I think that contribution was already counted.
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lymedesign
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Willbeatlyme....you are the best. And you WILL beat lyme. FOUR to go. YES YES YES
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dontlikeliver
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I have sent $100, but in two parts, does that count?

I have never met Dr Jones either, and I hope not to....I mean I'd love to meet him, but I hope I will not need him for my daughter....Yet it's so important to ensure he will have the freedom to help those who do and who will need him later.

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cynd
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Just now read about the challenge. Has the deadlline been extended? Will contribute $50., in the mail today.
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ellenluba
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FFWW,
Please tell us the deadline has been extended. I didn't get to publicize this particular offer enough, so please see if we can get an extension.
Thanks,
Ellen

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iceskater
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I contributed to the other Dr J's defense fund so it will be an honor to contribute to this Dr J's fund. Let us hope and pray that there will be a space in time where we don't have to protect the brave men and women who are our doctors, nor send money to defend them: that lyme disease will be recognized and treated for what it is and what it does. In the mean time, my check is on the way.
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DJP
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I was planning on sending 100 out today so I will go ahead and do it now. Writing it and putting it in the mail now.
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FightFireWithWater
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The family that made the offer of a $1000.00 challenge grant very much regrets that the conditions of the grant were not met.

They send heartfelt thanks to those who did make committments and hope that they will either send in their pledges without the added incentive of the matching grant or even better make their own challenge grants.

The family would like to especially thank LymeDesign for her particularly enthusiastic response and efforts to encourage contributions for the matching grant and are sending a $200 contribution to Dr. Jones in her honor.

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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lymedesign
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FFWW I am so sorry that we didn't meet the "criteria" for the $1000.00 challenge. At first I was really saddened and disapointed that we couldn't perhaps bend the rules alittle since children's lives are at stake, but sometimes the rules are the rules.

So, I pondered for a few hours about what to do and how to make something positive come out of this. I don't want the people who have generously committed to sending money to think that their efforts were in vain.

Most recently, dontlikeliver, cynd, iceskater and djp have taken it upon themselves to perhaps skimp on groceries, new clothes or their vacation/summer plans to send in a contribution.

I certainly don't want any of the lymenet generousity to stop here. SO let's make our own new challenge. Let's try to make up that $1000.00 by continuing this post and keep rallying together. There is nothing to lose..only kind generousity to be gained.

Dr. Jones, we will do our best to support you through this unjust persecution. The people here are wonderful, hardworking, caring, and committed individuals.

Also, I am honored to have a donation made in my name by the family who issued the challenge. I like a good challenge and don't like to loose. (I guess you can tell!)

I vowed to not let another child suffer the way my daughter has. I prayed for hours on end, day after day, week after week, month after month for her to start feeling better. I will never again take for granted the health of my three children. I vowed never again to cry as I passed the school playground where hundreds of children played while my child laid in bed sick. I will not let this go on. I won't stop until we are heard.

Again, thank you to the heros on this board.

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FightFireWithWater
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Dearest lymedesign,

With a spirit such as yours at work, I can only imagine what may be accomplished! I'm sure all of us will be following your posts with great interest and fervrent hopes.

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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ellenluba
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FFWW, Lymedesign and all,
Thanks for leading this effort. We may not have made the deadline for the matching grant, but this effort has managed to raise several hundred dollars for Dr. Jones.

I just want to remind people that they can pay by credit card by going to www.DefendLymeDoctors.com.

I know for me It's easier so that I don't have to first find my checkbook, then an envelope and then a stamp, and them manage to get them all together in the right way.

Since you all have Lyme disease here, I know you know what I mean.
Ellen

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Mo
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I'm beginning to feel there is no reason we cannot do this so long as we do not let doubt creep in, regardless of how much the dollar amount is that we have to send off immediately, individually. Do that first asap.

There's more in addition to that which we have access to to keep it going through the summer.

I haven't heard of a cause this important in a long time. Think of these children. This is so compelling and important that I believe it is simply a matter of communication in order to raise funds.

I have limited donation abilities, and am maxing them out, but I have learned it doesn't have to stop there. I have learned and felt more than enough to be able to generate addtional funds by communicating.

Start talking, folks.

Communicating clearly on the issue is a win-win situation regardless. For folks who have the ability to donate (freinds, family, church, groups, well-off individuals you may or may not know..) - you just need to inform them, and then ask for a commitment. You'll get it.

Any Lymenet member is capable of informing folks of the need.

Fundraising 101 - don't forget to actually ask for the commitment.

Like Ghandi always said about injustices:

"MAKE IT PUBLIC"

Call on the higher spirits right away (powers, God, ect) for guidance, and then act.

Whenever you are facing an obstacle such as this - do not look at it as hopeless... or as though it is
"happening to us (you)" -
look at it as though you CHOSE it to happen.

Accept, then act.

Go to: Groups, families, individuals - this topic is hot at this time, nationally. Keep the momentum going.

You'd be amazed what comes through when you do that.

We have the ability and the children are counting on US. They have been able to come far and wide (if possible) to Doc J for so long, but now -- we each, truly, are the only ones who can help them.

Mo

[ 06. July 2006, 01:58 AM: Message edited by: Mo ]

--------------------
life shrinks and expands in proportion to one's courage
-- anais nin

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ellenluba
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Mo,
This is SO well said. I hope everyone reads Mo's post.

In the last few years, the number of people with Lyme disease has reached a critical mass.

So many of us have been harmed by the medical politics of Lyme that we are a big enough group to finally have some impact in fighting a medical establishment that acts like we don't exist.

The issue of doctor harassment began a number of years ago. As the numbers of patients with chronic Lyme grew, followers of Shapiro, Steere and Wormser and the IDSA found new ways to erase chronic Lyme disease from the consciousness of our country.

They focussed on generating charges against the doctors who treat chronic Lyme disease.

When this started in NYS, we fought back.

There were successful legal defense funds for two doctors who had been charged. We held rallies, got newspaper coverage, and lobbied the state legislature to the point that we got unanimous support.

Lyme patients from across the country were involved , and by hanging together we finally got the state board to back off!!

The hope of many who have generated harassment of Lyme doctors is that doctors will stop treating CHRONIC Lyme disease because they are afraid of losing their licenses.

But LLMDs have hung in there with us.

I believe that's because they have seen the willingness of the Lyme disease community to stand behind those doctors who have helped them so much.

So there is a great deal at stake here in helping Dr. Jones meet his legal fees.

We are sending a message that we will not abandon those doctors who did not abandon us.

We can change the tide here. We have bills in the Federal legislature to research CHRONIC Lyme. We are close to finally being able to open a research center at Columbia University in CHRONIC Lyme disease.

Things can turn around now if we stay together.

And protecting the only LLMD in the country with vast clinical experience in treating chronic Lyme in kids is a huge part of our turning things around.

If Dr. Jones loses his license, he is demeaned and all the knowledge he has brought to the treatment of Lyme kids will be discredited!

So, even though it's hard to ask friends and family for contributions to the Jones legal defense fund (and it IS excruciatingly difficult!) we have to get over it.

Like Mo says, we have to keep getting the word out!

If EVERYONE on this list asked ALL their friends and family to give even $10 each, we would get somewhere. Of course, there are many that can afford much more, so please, please do whatever you can.
THanks,
Ellen

PS As a disclaimer, this is not one of those posts that I put out as spokesperson for Dr. Jones' fund. He has not seen this post.
This is personal from me - having been inspired by Mo's post.

--------------------


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FightFireWithWater
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Please, everyone, you owe it to yourselves to read the latest posts on this thread!

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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FightFireWithWater
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Do readers of Lymenet "get it?" Please read this thread and decide for yourself.

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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Mo
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The fate of children with Lyme and advancement of Lyme disease recognition and education is in OUR hands right now.

Each of us, not the next person, and certainly not only the ones with children who are treated by Jones... is responsible and able to act.

Please don't wait until it is out of our hands to recognize that it was once in our hands. It's there now!

Anyone who expresses discontent with the sore lacking of diagnosis and treatment of TBD's needs to be sending and garnering financial support for this fund. Doctor Jones is at the very heart of this issue.

Campaign for financial support. Take the actions to actually do it - start by making a long list, best prospects first, and use the tools and ideas provided to go through them one by one. A blanket email will not do it.

Send or hand people info first, and then talk to them and ask for a commitment. This is general fundraising - is done all the time, and I cannot dream of a more legitamate cause.

In the process, you will have the potential to enlighten alot more people to the realities of this disease while working for a great cause.

We need donations immediately and allot of them.
However, there are allot of us. If we all take a part in this, we will meet the goal.

Please read the previous posts on this.

Mo

[ 14. July 2006, 09:56 PM: Message edited by: Mo ]

--------------------
life shrinks and expands in proportion to one's courage
-- anais nin

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ellenluba
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[HI,
Please check out the Activism section for a summary of Dr. Jones' last hearing on June 22nd.
Ellen

--------------------


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bettyg
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http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=045824#000012

Lymies, please go to the above link about a Mom & son's lyme story being aired on tv.

Write the show; I showed the link, and include in there about Dr. Jones' case.

Perfect opportunity to ask for donations after folks' read this heart-warming true story. Give them the info and let their hearts reach their POCKETBOOKS to help Dr. Jones continue treatng LYME children. Go get them folks.

My pc keeps freezing up! I'll try again tomorrow....I'm so mad. [cussing]

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bettyg
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I sent the below letter from me/Dr. Jones to the Detroit newspaper in relationship to the article last week on this 16 year old LYME child, Cameron Holloway.

Felt it would be a great way to expand on Cameron's story about CHILDREN'S LLMD's; such as Dr. Jones. I felt...work on the reader's hearts and POCKET BOOKS $$! [Big Grin]


7-22-06, Detroit Newspaper article

Great lyme disease article on Cameron Holloway . You did an excellent job getting things right. I was so glad you included also the wonderful, accurate lyme disease web site at the end!

When I read Cameron's touching story, I couldn't help but think of his/other children's LLMD, lyme literate MD, and wish to share the following TRUE experience and letter with you, the readers.

If you were as touched in your hearts as I was, please consider sending money for Dr. Charles Ray Jones, a Conn. LLMD, good- lyme-literate MD who has treated 10,000 LYME children!

If you were touched, please read the letter below asking for funds go to Dr. Jones' so he may continue teaching lyme disease children. Dr. Jones is one a HANDUL of good LLMD, Please help him continue treating your/our lyme disease children. Donations are NOT tax deductible.


Dr. Jones treats ONLY LYME CHILDREN from all over the USA and Canada.

``Dear Valued Patients and Friends;

As you know, I am under investigation by the Connecticut Medical Examining Board for the long-term treatment of Lyme Disease and confections in two siblings that resided outside of Connecticut. Three hearings have already taken place regarding this case, and I am very optimistic and confident about the two to follow in September 2006.

My attorneys, Elliott Police, Esq. and Lorraine Johnson, JD are working diligently to represent my case in such a way that I will be able to continue treating children with Lyme Disease. However, the expense for my attorneys has been formidable, and my Legal Defense Fund is nearly depleted.

I NEED YOUR MONETARY SUPPORT NOW in order to continue to fight this battle and win. At this time, I need to raise $50,000, which would carry us through two more hearings and hopefully the situation will end at that point.

Please help me fight this battle by donating money to my Legal Defense Fund. I have appointed George Heath III as the guardian of my Fund and ALL checks from this point forward are to be sent directly to him. Checks are to be written as follows:

Charles Ray Jones, MD
Legal Defense Fund
c/o George Heath III
26 Fairlawn Drive
Wallingford, CT 06492

(in the check memo field please place the word "gift")

I sincerely appreciate all of your efforts to help me in this time of need and we all need to continue to contribute in order for there to be a successful outcome which allows me to continue treating children with Lyme Disease and co-infections.
Sincerely,
Dr. Charles Ray Jones"

Bettyg [group hug] [kiss]
I'm copying this to the 4 sections Dr. Jones posted this in to give others IDEAS of writing this newspaper.

Look in GENERAL for CONCERNED MOTHER'S post about her/son's live interview with media!

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=3&t=015433#000005

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kay mass
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Check out this week's ebay auctions! We have a lot of nice things for sale! Go to www.ebay.com
and enter LLMD in the search box.

Wendy, the Pattern Lady, has listed some nice things in her own ebay sales and used LLMD in the subject line. Thanks Wendy!

Thanks to Sue Vogan, Rita Stanley, Deaven, Alison, Nancy W. & Linda Hilliard for all the great items listed this week!

We have a one hour radio show with Sue Vogan! This was removed by ebay last week because I had too many links listed on the auction. It is back this week and I promise, it will stay the course!

Maybe you have something I could list on ebay? It's pretty simple, send me a photo and description and mail it out when it is bought.
http://www.lymesite.com/ebay_fundraiser_information.htm

Don't forget to give a gift that really makes a difference. Just send any donation to Dr. Jones defense fund in someone's name, send me an email at [email protected] and I'll send you a beautiful gift note card to give as a gift.
http://www.lymesite.com/note_card_when_.htm
Make Donations payable to "The Dr. Charles Ray Jones Legal Defense Fund." Mail to:
C/O George Heath, III (CPA)
26 Fairlawn Drive
Wallingford, CT 06492
Note "gift" in the memo field
2) A WEBSITE FOR DR. JONES IS NOW READY TO TAKE PAYPAL CREDIT CARD CONTRIBUTIONS FOR THE DEFENSE FUND.
http://www.DefendLymeDoctors.com
Use a special link to shop at Amazon.com to earn us 4% of your purchase:
http://www.lymesite.com/amazon%20fundraiser.htm

Make any purchase at www.photolyon.com , mention Dr. Jones, we will donate 25% to his defense fund.
http://www.lymesite.com/Aerial_Sport_Photography.htm

We do NOT have all the money needed for Dr. Jones defense.

Thank you for your continued support for Dr. Jones and all the kids that need him!
Kay

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kay mass
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Dr. Jones' next hearing is coming up quickly! The next hearing is September 7th and the 2nd one is September 28th, NOT the 21st which was the date I sent out earlier.
Directions to the Legislative Office Building, 300 Capitol Avenue, Hartford, CT; location of & directions to Dr. Jones' September 7th & 28th hearings can be found at:
www.cga.ct.gov/olm/directions2.asp Skip down to the 300 Capitol Avenue info.

Dr. Jones still needs funds for his defense:
Make Donations payable to "The Dr. Charles Ray Jones Legal Defense Fund." Mail to:
C/O George Heath, III (CPA)
26 Fairlawn Drive
Wallingford, CT 06492
Note "gift" in the memo field
PAYPAL CREDIT CARD CONTRIBUTIONS FOR THE DEFENSE FUND.
http://www.DefendLymeDoctors.com
This message can be shared!
Thanks for your continued support!
Kay
[email protected]
www.lymesite.com
www.photolyon.com

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kay mass
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Letter from Doctor Jones, August 29, 2006

Dear Valued Patients and Friends;

I want to update you on my current legal situation, as my hearings continue into the Fall, and matters have become more tedious and time consuming.
There have been several recent developments in the Connecticut Medical Examining Boards' case against me, which has required considerable time and expense for both my Legal Defense Counsel and for myself. For this reason, I am asking for your help again now, by continuing to make contributions to my Legal Defense Fund.

I am confident in my attorneys and optimistic about the outcome of my case, however, continued perseverance is required at this time in preparation for my 4th hearing with the Connecticut Medical Examining Board scheduled to
take place on Thursday, September 7, 2006 at the Legislative Office Building in Hartford, CT at 9:00a.m. in Room 1E. If you find the time in your schedule to attend my hearing, your support would be much appreciated on my
behalf.

I continue to maintain a strong commitment to the delivery of long term antibiotic treatment for children with Lyme disease and coinfections, as Lyme disease remains a rising global epidemic, and proper and timely health
care for children is of paramount importance, but I NEED YOUR CONTINUED SUPPORT. Please donate what you can to the:

Charles Ray Jones, MD
Legal Defense Fund
c/o George Heath III
26 Fairlawn Drive
Wallingford, CT 06492

(please place the word "gift" in the check memo field)

I genuinely want to thank all of you who have helped me in the various ways to step forward and stand strong during this difficult time for all of us.

Sincerely,
Charles Ray Jones, MD

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wentworth
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quote:
Originally posted by Dr. Jones:
Dear Valued Patients and Friends;

As you know, I am under investigation by the Connecticut Medical Examining Board for the long-term treatment of Lyme Disease and coinfections in two siblings that resided outside of Connecticut. Three hearings have already taken place regarding this case, and I am very optimistic and confident about the two to follow in September 2006.

My attorneys, Elliott Pollack, Esq and Lorraine Johnson, JD are working diligently to represent my case in such a way that I will be able to continue treating children with Lyme Disease. However, the expense for my attorneys has been formidable, and my Legal Defense Fund is nearly depleted.

I NEED YOUR MONETARY SUPPORT NOW in order to continue to fight this battle and win. At this time, I need to raise $50,000, which would carry us through two more hearings and hopefully the situation will end at that point.

Please help me fight this battle by donating money to my Legal Defense Fund. I have appointed George Heath III as the guardian of my Fund and ALL checks from this point forward are to be sent directly to him. Checks are to be written as follows:

Charles Ray Jones, MD
Legal Defense Fund
c/o George Heath III
26 Fairlawn Drive
Wallingford, CT 06492
(in the check memo field please place the word "gift")

I sincerely appreciate all of your efforts to help me in this time of need and we all need to continue to contribute in order for there to be a successful outcome which allows me to continue treating children with Lyme Disease and coinfections.

This is my calling and I intend on continuing to service these children, but I NEED YOUR HELP!!!

Sincerely,

Charles Ray Jones, MD

P.S. Please distribute this letter through internet communication.

talk to Daryl Hall from Hall and Oats. he has lyme disease and was misdiagnosed and is in CT.
Good luck.
I will say a prayer I know these doctors are being haressed because insurance comapanies and Neuroligists have something to do with it.
It's a goverment cover up since lyme was leaked out of the Military labs.In LI NY
so I hear

--------------------
I feel like their's corruption with some Doctors about lyme disease

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kay mass
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Please contact me ASAP! If we do not get some response in the next few days the bus will be cancelled! Please send me an email to reserve your seat now: [email protected] .

We have been substantially funded for a bus to Dr. Jones' next hearing on November 16!

Two generous donors, the Statlender family from Massachusetts and Marjorie Roswell from Maryland, have made it possible, with their generosity, for me to reserve a bus!

I will ask for donations to help defray the cost. A donation is NOT necessary, but very appreciated! Not everyone will be able to donate and that is fine. Please do not miss the bus because of financial reasons.

You don't want to miss the next hearing! Dr. Brian Fallon and Dr. Nick Harris are scheduled to testify. The bus rides are always a great time to network and get and give support as well.

The bus will leave from the Northshore Shopping Center at the intersection of rtes. 114 & 128 at 5:30 am SHARP!

We can make 3 stops on the way.
We will travel down 128/95 to the Mass Pike then take 84 into Hartford.

We can make any 2 or 3 stops that are best for the majority of travelers. I am tentatively thinking of:
1. Burlington Mall
2. Marriott Newton
3. Auburn, Mass Pike park & ride.

Please let me know if you would like a seat on the bus, there are only 41 left (out of 47), and also where you would like to be picked up, one of the 3 stops above or feel free to suggest/ request a different stop.

Please send name, cell number and preferred pick up location to:
[email protected]

Thanks!
Kay
www.lymesite.com
www.photolyon.com

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kolz
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I am fairly new to the board discussion but am looking for some ideas and answers and thought it was time to post a question about symptoms, treatment etc.
I have been battling symptoms, many of those related to Lyme disease for about 13 months. Symptoms include, sore throat, muscle fasiculaitons, light headedness, numbness-espeicially in the calves, occasional electical like jolts in muscles, tinitus, my first black floater, thoracic pains at times, pelvic pain etc.
ND, which is where I live, is not a common place to be diagnosed with LD, but I do a lot of traveling may have picked this up in Wisconsin on a camping adventure!
I have had a negative ELISA test, but convinced my MD to try Doxycline back in June. I was on it for 3 months and the symptoms became less intense but still present. I have now convinced him to try a Flagyl and am doing it in addition to Tetracycline. I have felt a little rough now a week into this combination and may be experiencing a herx??? Anyone have some input into this approach, or any other recommendatins? I have little help here because the MD's have so little experience dealing with LD. I am willing to do most anything but need some help with possible physicians or resoureces to consult. I have seen 10 different MD's with varying degrees of specialty and expertise!
Thank you

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