I am fairly new to the board discussion but am looking for some ideas and answers and thought it was time to post a question about symptoms, treatment etc.
I have been battling symptoms, many of those related to Lyme disease for about 13 months.
Symptoms include, sore throat, muscle fasiculaitons, light headedness, numbness-espeicially in the calves, occasional electical like jolts in muscles, tinitus, my first black floater, thoracic pains at times, pelvic pain etc.
ND, which is where I live, is not a common place to be diagnosed with LD, but I do a lot of traveling may have picked this up in Wisconsin on a camping adventure!
I have had a negative ELISA test, but convinced my MD to try Doxycline back in June. I was on it for 3 months and the symptoms became less intense but still present.
I have now convinced him to try a Flagyl and am doing it in addition to Tetracycline.
I have felt a little rough now a week into this combination and may be experiencing a herx???
Anyone have some input into this approach, or any other recommendatins?
I have little help here because the MD's have so little experience dealing with LD.
I am willing to do most anything but need some help with possible physicians or resoureces to consult. I have seen 10 different MD's with varying degrees of specialty and expertise! Thank you
Welcome, to the board. I'm going to see if you posted elsewhere, and block/copy my broken up version to THAT post in medical.
This particular post is about Dr. Jones' situation only, so please delete it from here. Here's how to do it ok.
click on this link above, CLICK ON PENCIL, and then go to top where it says to DELETE POST. Click on there, and click SEND EDIT button at the bottom of this box where we typed the body text ok. Now, it's completely GONE from the board.
Kolz, please break up your text into paragraphs like I did your above post ok. Many of us can NOT READ BLOCK TEXT without paragraphs.
We need short paragraphs and be sure to hit the enter key twice to leave one blank line between all posts. Thanks so much. I'll look for another post from you, and copy my post over there for you! Bettyg
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posted
Kolz, you could get better testing for Lyme/co's through IGenex lab in Palo Alto, CA. www.IGeneX.com, 1-800-832-3200.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
HELP! Urgent Update from Dr. Jones - Please distribute!!!
CHARLES RAY JONES, M.D. Madison Towers 111 Park Street, 1st Floor New Haven, Connecticut 06511 Tel (203) 772-1123 Fax (203) 772-0682
March 10, 2007
Dear Friends,
Your tremendous expression of support continues to overwhelm me. I cannot put into words my heartfelt joy, appreciation and love for you all. The charges against me have provided great challenge, but I remain optimistic. I know that my approach to treatment is sound, and maintain my belief that justice ultimately will be served. I also have tremendous confidence in my legal team, which has been working diligently to enable me to prevail.
We have just entered the second year of legal hearings, however, and my legal defense fund is nearly depleted. My ability to mount an appropriate defense, from a financial perspective, is now in jeopardy (legal expenses have been averaging $1000 per day), and will depend on my ability to continue to meet the high cost of this lengthy and complex process. I currently need a fund of $150,000, to be in a position to fight the charges. In order to achieve this, I need your financial backing, in the form of as generous a donation as your circumstances will allow. It pains me greatly to have to ask this of you, knowing the tremendous burdens that Lyme disease already has imposed on so many. It is critical, however, that I retain my license, in order to preserve timely access to appropriate, comprehensive treatment for the children who are so very ill.
Checks should be made out to the ``Charles Ray Jones, M.D. Legal Defense Fund'' (write ``gift'' in the memo section), and mailed to the CRJMDLDF c/o George Heath, III (CPA), 26 Fairlawn Drive, Wallingford, CT 06492.
Alternatively, credit card donations to the legal defense fund may be made through a PayPal account: www.DefendLymeDoctors.com
Thank you for your continued support, your prayers and good wishes. Regarding your many letters of encouragement, please know that I read and appreciate every single one.
Sincerely,
Charles Ray Jones, M.D.
Posts: 195 | From MA | Registered: Oct 2000
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