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»	LymeNet Flash » Questions and Discussion » Medical Questions » blood tests question

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Topic: blood tests question

susiecv
LymeNet Contributor
Member # 9702

posted

New to all this-had rash, some joint pain, 21 days of doxy-negative titer-MD wants to retest-(has an open mind...even though there IS no Lyme around here!)

Thinking I should request GOOD tests rather than another basic titer-Willing to pay-How do I refer him to order Igenex (good choice???)and exacrly which tests should I ask for ?

Smart to get results and if positive go to LLMD? Any help appreciated-This site has been very educational (if not scary...) thanks to all of you for sharing your personal experiences!!

Posts: 249 | From finger lakes, ny | Registered: Jul 2006 | IP: Logged |

dmc
Frequent Contributor (1K+ posts)
Member # 5102

posted

you can got to http://www.igenex.com to find info and get phone number to call for the blood kit for lyme. It comes to you via Fedex, no cost until you ship back with blood sample.

When you get kit, have your doctor fill out his portion, (request), then have your blood drawn. It is mailing ready for Fedex. You have to put check in with sample for amount of tests.

Igenex sends you a receipt for you to self-submit to insurance.

My LLMD had me get the Lyme Westertn Blot IgG and Lyme Western Blot IgM. Each cost $95.00 so I sent $190.00 with my sample.

My doctor didn't use Igenex for co-infection tests. He used MDLab since they take insurance.

Good luck.

Posts: 2675 | From ct, usa | Registered: Jan 2004 | IP: Logged |

sarahinnewyork
LymeNet Contributor
Member # 7179

posted

Dear Susie,

Welcome! ( and wish that you had no need to be here!)

If you feel that your current Dr is open minded, I would print out the National Guidelines Clearinghouse information on a US Government website,
http://www.guideline.gov/summary/summary.aspx?doc_id=4836&nbr=3481&string=lyme

which says that lyme is a clinical diagnosis! Forget about tests right now- trust your instinct-and get the best treatment right away! No time to waste! ( you can always do tests later- Igenex seems to be the one with the best reviews here)

Also bring with you Dr Burrascano's treatment guidelines
( which can be found on the newbie links)

There is another excellent site, www.canlyme.com
Print out the list of board of directors, which includes some heavy weight Dr's- and other treatment guidelines from the site. Show him the ilads site...

http://www.ilads.org/

If I were in your boat, I would also immediately book an appointment with a lyme literate dr-post in seeking a doctor if you haven't already

I personally have a lyme literate Dr AND an openminded infectious disease Dr- always a good idea to have another opinion( in my humble opinion )

The US's best lyme dr's started out a GP's with little knowledge of lyme- so it he really is interested get him educated!

the more open minded dr's that can see these facts the better-

I'm sure that you will get many more people posting with help-

Best Health,
Sarah
( remember I'm no Doc- this is just my opinion)

Posts: 119 | From new york, NY, USA | Registered: Apr 2005 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Treepatrol's links
http://flash.lymenet.org/ubb/Forum5/HTML/000569.html

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. B's Guidelines
http://www.ilads.org/files/burrascano_0905.pdf
http://www.ilads.org/burrascano_1102.htm

Western Blot explanation:
http://tinyurl.com/ffn3x

When to Suspect Lyme Disease
http://tinyurl.com/lx2pz

The cause and spread of Lyme
http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info:
http://www.ILADS.org/

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

Matthew Goss's website:
http://www.anapsid.org/lyme/matthewgoss/

Here's your homework!!! Get tested thru Igenex and locate an LLMD ASAP!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Show this map to your dr!!!

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=046657

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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