posted
I took art for three days and I had the worst
herx of my life...
I thought that I had done damage to myself and brain.
The herx made it so I could not think and slurred my words very baddly..all my old
symptoms came back..along with crazy tingling thru the spine..and I felt like I was energized.
the nerves felt raw in the legs and feet and wiered dizzyness..
I went to the neuro and had all tests done...emg..needle in muscle..mri...heart check...all ok..
I am finally starting to feel a little better but I know that I must keep fighting the bug...
on monday I start mepron for babs as my llmd thinks that I may have an underlying babs case..along with zithromax..
he says he does not approve of artemisinin as it is not approved..so mepron here I come...how has everyone else doing with mepron?
If I herxed like mad on art do you think the same will happen with mepron?
I see some improvement in some areas...but still a long way to go..
also when it comes to artemisinin..please dont take it by yourself..some of the doses here would have really hurt me and other people...you need a naturapath or a doc who knows about this..you may have to go to china town doctors who know about it...but to me it is to potent to throw around... eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
quote:Originally posted by polar blast: If I herxed like mad on art do you think the same will happen with mepron?
It's likely to...but no one would know for sure.
Your advice is well taken. And art should be taken with Biaxin or Zith so that resistance does not develop.
Hope that treating the babesia will get you well now~!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Eric,
Please see the information post on November 5, under the topic "arteminisin working or just giving terrible headaches?" There is a lot of good information and advice from the people who replied.
You and I have been struggling with the same issue and my conclusions were the same as yours... this is no simple herb(or perhaps babs is a monster or both).
Good luck on your next protocol.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
| IP: Logged |
posted
I've been doing great on the art. the first 3 days was sweat,that was never ending mixed with chills.Headache from he$$,for 2 weeks,but now im doing great on it.I've lost alot of my neuro symptoms,that i've taken antibiotics for 8 years for.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
| IP: Logged |
tailz
Unregistered
posted
I had persistent cloudy urine my first several days on art, but since my 1st babs test was negative and it's the only thing that has helped the urinary frequency and burning (IV Rocephin did not), I take it faithfully assuming I have Babesia and truly regret when I don't.
I take Black Walnut and Cloves as well. I think this combination seems to work, whether it's babs I'm killing or something else.
It's possible you just have an especially high load of the bug in your system. I know I do better if I gradually increase my dosage of any new herb.
IP: Logged |
posted
my llmd does not think that we should be taking it without medical supervision... eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
quote:Originally posted by polar blast: my llmd does not think that we should be taking it without medical supervision... eric
or without zithromax or biaxin
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by polar blast: my llmd does not think that we should be taking it without medical supervision... eric
You got me there Eric. Isn't that what your LLMD is?
So far as I knew, Art/Mepron/Zith is kind of the gold standard in babesia treatment. Like as in the Burrascano Guidelines. Yes, I know it's frightful, I thought I was going to die of a stroke. No kidding. However, I've seen a study somewhere indicating improvement in treatment vs. without it. So if possible, I'd sneak up on it -- anything to get babesia to leave.
Good luck!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hello polar,
Mepron, Biaxin and art worked very well for me.
Take it very slow with the Mepron. My husband didn't tolerate it well and took Malorone instead.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey Polar
What dosage did you do with the art?
I had to start out very very slow.
It did finally, in combination with the abx & mepron, got rid of my babs.
But I hear ya. The art is a very powerful herb and shouldn't be taken without a naturalpath or LLMD
hang in there dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
OK i'm not timid with meds with or without 'supervision' but I had to start out with art real slow...I took the artemesia annua from allergy research first then graduated to artemesinin...even ramping up slowly I had my leg muscles knotted up so badly and my knees and ankles hurting to the point I was on crutches.
Just take it slow and carefully, It won't be a problem.
Dosing yourself with a megablast of art if you've got a bad case of babs is fine if you're into masochism....
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
posted
my babs load was very high..hence the severe herx on only 700mg within three days..this is a very potent herb..the herx was enough to have me take all sorts of test because of toxicity..all tests are normal including mri..so my main point is dont take this med without supervision..you are a fool if you do... eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
I eat my peas with honey, I've done it all my life it makes the peas taste funny but it keeps them on my knife
Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
posted
Best quality brands of Art.???? Im sure this has been discussed many times here but since there seems to be quite a bit of interest here and now thought Id ask all of you which brand name you each were comfortable with.
Posts: 55 | From ct | Registered: Sep 2005
| IP: Logged |
clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Sofylyme,
I used Arteminisin by Allergy Research in pill form. There are other forms, homeopathic, bulk herbs, etc. But not as familiar with those. Might do a search or post new topic for 'favorite forms of arteminisin?' or something to that effect.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
| IP: Logged |
i do take art and can only take about 60 mg a day - more than this will cause major problems for me - similar to what you described- Also when i do art- I take astralagus and red root for supplements.
i have little trust in medicine (even though i am in the medical field)
Our bodies are so different and each of us have different protozoa loads so do what works for you take care - get well mags
Here is an interesting article if you have aaccess to a medical site Meshnick, S. R., T. E. Taylor, and P. Kamchonwongpaisan. 1996. Artemisinin and the antimalarial endoperoxides: from herbal remedy to targeted chemotherapy. Microbiol. Rev. 60:301-315
Olliaro, P. L., R. K. Haynes, B. Meunier, and Y. Yuthavong. 2001. Possible modes of action of the artemisinin-type compounds. Trends Parasitol. 17:122-126
Posts: 259 | From California | Registered: Mar 2006
| IP: Logged |
danq
Frequent Contributor (1K+ posts)
Member # 2126
posted
quote:Originally posted by polar blast: my llmd does not think that we should be taking it without medical supervision... eric
That's the way to go if your LLMD will treat without a positive Babs test... but mine didn't want to, and I did. So after adequate research and with caution, I got mine from Allergy Research.
That's what got rid of my fatigue symptoms. I don't think I would have kicked the Lyme without treating for Babesia.
-------------------- Dan
I am not a Lymie but used to be! and I never was a doctor (so take my advice with a grain of abx) but I am smarter than the average Duck! Posts: 2420 | From Davis, California | Registered: Feb 2002
| IP: Logged |
posted
dan was the herx very intense..and what dose were you taking?also were you on mepron?I took the rt and it was a very strong herx... eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
posted
O.k you all have me convinced. I am not going to start taking ART until I am under the supervision of my LLMD. I would have been taking it for my Toxoplasmosis but It will have to wait.
Posts: 145 | From NorthEast US | Registered: Aug 2005
| IP: Logged |
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
I NEVER take more than 100 mg of artemisinin , ever.
Start with one dosing, if thats ENOUGH for you, then thats good enough.
I couldnt imagine more than 100 mg a day for me. It works well at this dosage. Not everyone is the same.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
| IP: Logged |
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
I'm pretty sure wormwood is artemesia absinthum which is another member of the same plant group as is the herb rosemary. I wouldn't count on any overlapping medicinal effects.
Nobody really knows much about the resistant babs theory, I doubt if the Chinese who use artemesia annua for malaria have ever heard of a macrolide.
I don't buy it but that's just me.....
Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Hi Polar,
I'm curious, are we going to same LLMD? (in Flemington)
Mine doesn't want me doing the Supps either.
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
| IP: Logged |
danq
Frequent Contributor (1K+ posts)
Member # 2126
posted
quote:Originally posted by polar blast: dan was the herx very intense..and what dose were you taking?also were you on mepron?I took the rt and it was a very strong herx... eric
don't remember... you could do a search on my username (that's danq with a lowercase "Q") and the word "artemisinin". No, no Mepron - I'm not aware of any resistance issue - but resistance development would be more likely I think if lower doses don't effect a cure.
-------------------- Dan
I am not a Lymie but used to be! and I never was a doctor (so take my advice with a grain of abx) but I am smarter than the average Duck! Posts: 2420 | From Davis, California | Registered: Feb 2002
| IP: Logged |
posted
__________________________________________________ my llmd does not think that we should be taking it without medical supervision... eric __________________________________________________
does he supervise you when you are takeing high doses of antibiotics?
You have to remember this disease kills.
And things that make you better,sometimes make you deathly ill for a short period of time.
I have learned no pain,no gain.
Maybe ART,isnt for you,but it has helped me tremendously.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
Printer-friendly view of this topic