Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
The Infectious Diseases Society of America
has declared war on patients!
FIGHT BACK!
PATIENTS RIGHTS PROTEST!
Dear Friends,
Chronic Lyme disease has been banished as a disease!
No conventional or alternative treatments are recommended!
Doctors cannot make a clinical diagnosis anymore!
This is a pivotal moment in the history of Lyme disease.
It is time for patients to fight back!
This protest is part of a national agenda to get back control of our treatment and our lives.
Your participation is critical!
Your participation is critical!
Your participation is critical!
Patients are already being denied coverage. Doctors are backing off treating. There is no room for clinical experience with the new guidelines.
This insidious disease is devastating the lives of children, families and our communities, while much of the medical establishment continues to deny the severity of this public health crisis.
The Infectious Disease Society of America has released a new set of reckless guidelines that will IMMEDIATELY impact all of us.
Ruled by a few:
14 IDSA committee members created these new guidelines
14 IDSA committee members and the IDSA board were the only ones to vote & approve guidelines
Patients and treating physicians were denied input into guidelines.
This small group holds our health and lives in their hands.
Guidelines impact:
Diagnosis is no longer clinical but rather only by CDC positive surveillance blood test or EM rash,
Will miss 50% of Lyme cases leading to the potential for severe debilitating chronic disease.
Insurance companies will be empowered to deny coverage.
State medical boards have strong basis to prosecute our doctors.
School districts may utilize guidelines to not address special needs of students with chronic Lyme.
Child protective Agencies may file inappropriate charges in custody cases.
We need to hold the IDSA responsible and accountable and let the world know what they are doing.
New York Medical College/Westchester Medical Center is home to three of the IDSA committee members we will not quietly tolerate them harboring this group.
What you need to do!
Show up ~ Numbers count!
Bring family and friends.
If to far/ill to attend see website (Lymenews.org) to help with other protest efforts.
Print out and distribute attached flyer at your local doctor's offices, grocery stores, libraries etc.
posted
TC, I sent my notice onto my lyme list! I won't be able to attend, but I will set up my own protest in the warmth of my bedroom/pc area giving you all my 100% support!
Go get em gals/guys! I'll see if you make the NATIONAL NEWS ANYWHERE!!!
IP: Logged |
posted
Since we have a song site now(greatest hits of the Lymenuts, maybe some appropriate ones could be sung at the protest...
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Going on a DUCK HUNT? YES I am!!!!!!!!!!
Posts: 2360 | From SE PA | Registered: Mar 2004
| IP: Logged |
heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
I'll be there too. I read in one of the articles that Wormser stated something to the effect that he was puzzled by the animosity the guidelines have generated! Maybe he should sit in the offices of some LLMD's around the country so he's not so out of touch! There were 14 "authors" of these new guidelines..why wasn't any LLMD's allowed on the board to present their research supporting data?? I'm new to all this so forgive my ignorance. but I know enough to be pizzed off!!
Any ideas for signs for the rally??
Posts: 145 | From NorthEast US | Registered: Aug 2005
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Woo hoo! Looks like we've got us a CONVOY!!
This IS the big event. If you've not been able to make the hearings and other events.. SERIOUSLY try to get to this one.
We MUST be heard! And we WILL change history.
If the mountain won't come to us..
We will go to the mountain!
We are on a roll. We NEED you there. Buses will be headed to the site.. so do check every day for updates.. as they become available!
"There were 14 "authors" of these new guidelines..why wasn't any LLMD's allowed on the board to present their research supporting data??"
The dopes who wrote this incredibly ignorant trash only documented about 2 percent of all available medical literature... and if you will look at it.. much of it was their own SORRY stuff!
They don't know how to play nice. They can't be right if they admit there is more out there.. or allow us a voice.
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I've been trying to find a way to get there from here.
I really do want to be there!
I've been doing searches and the cheapest airfare from here is $182 and change... combined with lodging, food, other transportation, etc.
I just don't have it. I'm sorry (and disappointed).
Anyone that wants to make a cardboard cut out of me and bring it along for the ride, I'd appreciate it.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
| IP: Logged |
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
up
Posts: 2360 | From SE PA | Registered: Mar 2004
| IP: Logged |
posted
Tick Tac Toe - this subject line has got to go.
How about something plainer like MAJOR PROTEST IN VALHALLA, NY - SEE THE WORM SQUIRM - NOV 30
Because I don't think as many people will realize this is the long awaited info on the protest. Plus, the way lymenet has been down lately, it will be hard to get the scoop out to the troops. (Does anyone know why this is happening? Can someone find out? It is a real hindrance to this effort.)
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Good point, Lou.
I read about this on the Yahoo! group, but couldn't for the life of me figger out why it wasn't on LymeNet yet...
NOW I see it IS!
A subject line change would definitely help.
I thought maybe we were just being crafty!
Though I admit I do love the sound of 'Wormser's gotta go' -- !
I read every single one a Mz. Tinny's posts most avidly, but LymeNet's time on the airwaves has been a bit sketchy lately...
Mobilize the troops!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Lou said..
"Tick Tac Toe - this subject line has got to go."
HA! Funny one you are.
I used that line because it is the "official slogan" for the protest that someone came up with a while back. I believe signs are being made up saying that line.
BUT.. how about this.. and I've been TRYING to get on Lyme Net and STAY.. but as you know it is down... then up.. then down. Several of my posts were lost as it went down while trying to start them!
Sooooooooooooo.. I will start a new one with that line now.. IF the board doesn't shut down before I can transfer it.
Please if you will.. we are in a tornado watch.. so I'll be shutting down.. may lose electric.. etc..
Keep the posts to the top.. without that red pin thingy... and having it "stuck" there. That thing is annoying to me.
Thanks!
Do check each day for updates to the site for the protest.. in case we can't get on here.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[woohoo]](graemlins/woohoo.gif)
![[kiss]](graemlins/kissing.gif)
![[lol]](graemlins/lol.gif)
![[group hug]](graemlins/grouphug.gif)
![[Smile]](smile.gif)
![[cussing]](graemlins/cussing.gif)
![[Frown]](frown.gif)
Printer-friendly view of this topic