It has been a while since i have posted here, but as you can tell i am still struggling.
The reason i am posting is i think my babesia is back, it was treat with three months of mepron zith art and then two weeks of alinia, art, i knew it wasnt gone when i stoped four weeks ago buti felt considerable better on the babs front so i continiued with the art thinking it would finish it off.
Well it back in full force today, air hunger chest pain racing heart sweats and vertigo. alone with all the other symtoms from bart lyme and erlich.
I also have a horrible swelling sensation in my throat that comes and goes throughout the day, it feels like it is closing of but in reality it isnt , its just a sensation, but to be on the safe side my doc gave me an epi-pen just encase it is an allergy and does close off.Any ideas on what is causing it, i do have chronic strep and had mono mabye that is it.
I had to stop mepron a month and a half ago because my erlichiosis flaired along with my lyme and bart so we switched to doxy and alinia. hopeing that the treatment we did for the babs would be enough.
so then after two weks of alinia i went to just doxy and art for a month now, the art is at 400 to 600 mg a day depending on how i feel. and doxy is 300mg.
I am just wondering what to do and how i can treat all these things at once without killing myself, i have a very hard time handling multiple antibiotics at once. I am just wondering what everyone thinks i can do to beat this babs and erlichiosis at the same time, can you combine doxy and mepron???
Just feeling really down as i thought i was heading in the right dirrection after two horrifying years, now to have it all back in one day.
Posts: 82 | From Northeast WI | Registered: Oct 2005
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posted
I wish I had sage words of advice about the abx combos!
I just wanted to say that you are the first person who described the awful throat feeling so clearly. Never knew it was Babs-related.
When I get that feeling, I get very panicky and take Benedryl right away. It is sort of to reassure myself that I'm not going into anaphalactic shock. Maybe the Benedryl just makes me sleepy and sedated, but psychologically it works. I also suck on a cough drop (honey kind not mint), because my tongue also feels weird. I also massage the sides of my neck, because those muscles tense up in response.
I'm waiting to learn of my next Babs treatment from my LLMD next week. Since being on doxy, I think my Babs symptoms have worsened.
It's a juggling act and I send hugs and blessings and hope all in your direction,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
oh my gosh.....that's babs?
Boy does that explain alot, for me. I am doing septra (=bactrim)ds/mino for bart, and I had the same throat thing happen, and put the epi-pen in my back pocket, too.
I tested neg for babs, and llmd felt I was not sick enough to have babs, despite occasional massive heatflares (4-5x/month) and even less frequent night sweats. However, maybe that is why the llmd chose this combo for bart, was to see if there was a change in the above bab's-like symptoms, while tackling the bart.
After 6 months pulsing for bart, I noticed the flares were gone, had a sternum attack one day(totally new for me), and did not notice nightsweats.
The throat stuff was gone after 3 months.
I think if you do searches here, you will find a wide variation in abx that people take for ehrlichia (maybe always in the cycline family?), babs (some have even mentioned zithro), and lyme.
From what I have read here, some abx do double duty, knocking one down and perhaps at least lowering/holding another steady until a plateu is hit. That's my perception. That may be one reason why it takes so long when there are co-infections. Back and forth, back and forth, gradually getting them knocked down a little more each time.
Just hang in there, keep the detox working, and keep in touch with your llmd.
And then again, others are using different strategies, it appears.
It just seems like anything goes, and what works for one may change in time, or will work differently for another.
Be sure to keep a daily log to watch the cycle of symptoms, so you can report to your doctor. I also think your llmd would be the best judge of the combo's, and so they would be the best to ask.
You could search here for what others have used, but still feel it is best to work with your llmd.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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Bactrim for bart, i never heard of that, i have heard it used for babesia with good success, but then again i think alot of drugs have some effect on most co-infections, i personally have had pretty good luck with doxy for my bart, even better than levaquin or cipro, so i guess its different for everyone.
As far as the throat issues, i am not exactly sure what causes it, could be babs,i also take benedryl when it havppens just to make sure its not a severe reaction, also the epi-pen kinda puts my mind at ease a little knowing if it does close off i can just give myself a little adrenline rush and should be ok, i have even gone as far as eliminateing almost every possible food allergy and it still happens, so i dont think thats the cause, and i am not allergic to my antibiotics either so my guess is irritation from some bug.
thanks for the replys everyone
Posts: 82 | From Northeast WI | Registered: Oct 2005
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liz28
Unregistered
posted
I cured my babesia, or whatever it was, with three rounds of chloroquine + primaquine, the standard treatment for relapsing malaria.
If you do a Google search on relapsing malaria, plasmodium vivax, malaria + dormant + liver, or primaquine, you can find thousands of websites on this subject.
I had babesia for five and a half years, took the chloroquine + primaquine treatments over a three-month period, and have had no symptoms for eight months.
It is very important to read about dosages and liver protection before taking these drugs. The overdose threshold is low.
I was previously on mepron, which led to a temporary reduction of symptoms and then endless relapses.
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
I did twice of Mepron/Zith/Art regime, each 21 days. First time I didn't notice any obvious change, second time, my symptoms worsen, mainly pounding heart and disturbed sleep.
I don't know if it's a flare, side effect or herx.
By the way, any one cured his/her babs by this regime?
Thanks.
Dave
Posts: 1078 | From Fairland | Registered: Apr 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Yes, you can take Mepron and Doxy. I take both, along with Biaxin and artemisia.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Wow!!! I've had this swelling sensation in my throat like it was closing off a few times this last week. Didn't know it was babs.
I am in my second month of babs treatment consisting of malarone, zith, and bactrim.
The night sweats have stopped and the air hunger is getting better.
Initially, though, my night sweats increased in frequency and I thought I might never draw in a decent breath.
Tough little booger to kill, huh?
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter has that and she is only bart positive. Do you think that it could also be related to that? Maybe that's an overlapping symptom?
It is very hard for her to swallow pills. I checked her tonsils and they are not swollen.
posted
Have you considered trying herbs or Stephen Buhner's prtocol? It might be easier on your liver and pocket book , and after reading posts of people here who are not well after ELEVEN YEARS of ABX , the alternatives like rife and herbs ( they can be EXTREMELY POTENT ) are worth onsidering . There are others here who have made major strides with alternative approaches .
I know there is a supp by nutramedix called "quina" that is SUPPOSED to target babesia . I do not know how well it works .
The problem with this illness is that there are so many varieties of infections and strains of bacteria we may have and ALL is guesswork .
The rife testimonies are very compelling , from people who had repeatedly relapsed after stopping ABX.
posted
I get the throat thing too and it's awful. It takes me forever to eat because I feel like it's hard to swallow around the lump in my throat.
For me it's not an allergic reaction because it always happens on the right side of the throat. But like all of you I feel much better with the bendryl tabs, tongue tabs(new), and the epi-pen close by.
Zithromax seems to help the throat thing. I have lyme and babesia.
Another comment I want to add is that I have found diflucan helps with really bad air hunger. I don't think it's yeast it's killing. I think diflucan kills babesia. That's from my own experience.
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I had horrible throat stuff including that swelling thing and also choking and swallowing problems (where I could only eat food that could slide down my throat- ice creaM! soup!) and also my throat begin to make sounds, haven't read much of other peopple having this, but it began to make these little chirrups that were creepy. Like a malfunctioning machine... I am not sure WHAT infection did it, I had Ehr Lyme and Babs for sure and I believe Bart too- but they are all gone- all that stuff-
it DID Herx like that on Babs tx with the swelling thing- I rememebr that-!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Went to daughter's doc today because her throat his been bothering her for too long. He is suspecting a co-infection of babesia. So...wondered when something else would show its ugly head.
posted
Could this be any or all if the infection is effecting cranial nerve(s)?
Posts: 353 | From Florida boonies | Registered: Nov 2005
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