David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
My father called to discuss a friend of the family in Mexico who is very ill. As I understand it, his primary symptom (or perhaps most distressing symptom) is that he has constant involuntary movement of the tongue and, at times, feels like he is choking on it.
The local docs are completely perpelexed but have tentatively diagnosed ALS. Interstingly, he can still walk and works at home as an architect. This doesn't sound like ALS to me.
My question is whether anyone has had or heard of this particular stmptoms possibly being related to TBDs. If it were the case, the good news would be that antibiotics are easy to get and cheap there.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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Geneal
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Member # 10375
posted
I am not sure exactly what type of tongue movement you are referring to. Does the whole tongue move?
Is it side to side, front to back, or is it like involuntary tremors?
I am a speech pathologist and have noted vasiculations (tremor like movements of tongue) when tongue is resting.
I don't have them when swallowing or speaking.
This is a neuro symptom that I have seen in stroke patients, parkinson's patients, etc.
I take it that it is a neuro symptom from my Lyme.
I also get a choking throat closing in feeling at times that I've just recently learned was related to babesia.
I hope this helps some. I know there are many more on this board with more knowledge than myself. They will probably be able to provide you with a more specific answer.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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northstar
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Member # 7911
posted
My question is whether anyone has had or heard of this particular stmptoms possibly being related to TBDs.
Yes. There was a recent thread about swallowing, tongue and throat spasms.
I have had a few herxes (short lived, though) where the tongue spasmed. It is scarey.
Also, besides tbd's, I remember something about chaga's disease in central america's or south america, but am not sure of symptoms.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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posted
I just saw a special on tv where that was a symptom of dystonia, a neurological condition.
Also the tongue is controlled by a cranial nerve coming directly from the brain. So a brain tumor could cause symptoms in the tongue.
I guess it could be from lyme. But no other symptoms?
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
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David95928
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posted
Thanks folks. I don't really know any more and what I have is second hand. My dad is going to give them my e-mail address which would allow us to communicate directly. Then the next problem will be my Spanish, which is very rusty.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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CaliforniaLyme
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Member # 7136
posted
Yes it sounds like ALS- there are two kinds of onset
LIMB onset- where it is first noticed in limbs
and bulbar onset where it is first noticed in throat/swallowing.
Your family friend sounds like bulbar onset!!!
YES all ALS symptoms can be from TBDs but also from other things!!! If your family friend is one of those lucky responsive to abx he needs to get help QUICKLY-
ESPECIALLY if he is bulbar onset!!!!
Even LESS time- Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
David, I think the vagus nerve (X cranial nerve) is partially responsible for tongue movement and I've read an article that talks about its involvement in Lyme...also ALS. Can't locate the article right now, sorry, but maybe you can do some searches. Will let you know if I find the source. I've heard of many cases of weird neuro sx which are called ALS due to lack of understanding of all the seemingly bizarre manifestations of Lyme. Good luck, Nancy
Posts: 688 | From Florida | Registered: Aug 2001
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Thanks. these folks have been given information and I have not heard from them. Hopefully, it is Lyme and he will be treated in time.
Nice to hear from you again, Nancy.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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