LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Babesia and twitching/herx Help!

 - UBBFriend: Email this page to someone!    
Author Topic: Babesia and twitching/herx Help!
lalyme
LymeNet Contributor
Member # 8964

Icon 1 posted      Profile for lalyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi All,

It's been a while since I posted. I have been doing much better. I have Lyme and Bart. My twitching went down and the only symptoms that are left is a bit of twitching and ringig in my left ear. I have been on 400 Doxy and 600 rifampin for Lyme and Bart for about 9 months. LLMD just took me off Rifampin amd put me on Doxy and Malarone for Babs as he believes I have Babs too but I tested negative. I am freaking out a bit because 12 days after starting the Malarone I am a bit dizzy again and the twitching is going crazy all day long and deep twitchings are now happening. Is this a herx? Is it Bart relapse? Is twitching even associated with Babs? Thank you so much.

Posts: 298 | From los angeles | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
groovy2
Frequent Contributor (1K+ posts)
Member # 6304

Icon 1 posted      Profile for groovy2   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi me

Twitching is definatly a babs symptom-

When babs is treated it is common for
new symptoms to show up or change --Jay

Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
lalyme
LymeNet Contributor
Member # 8964

Icon 1 posted      Profile for lalyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you so much Groovy. It can be such a scary disease
Posts: 298 | From los angeles | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
docjen
LymeNet Contributor
Member # 7510

Icon 1 posted      Profile for docjen     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh...the twitching I know well. I have found that extra magnesium, hot baths, and gentle stretching help out somewhat.
Posts: 393 | From Washington, DC | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Vanilla
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
If need be get magnesiums IVs. You can buy cell salts at Whole foods that melt under your tongue and go right into your system. I would buy Hylands mag phos in 6 x and take it at least 3 times a day. And no I do not work for Hylands I just think their product is fantastic. Do not use your fingers. Shake 4 tabs into the cap and then dump them under your tongue and do not eat or dirnk any thing for at least 15 minutes before or after taking them.
IP: Logged | Report this post to a Moderator
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320

Icon 1 posted      Profile for beachcomber     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yup, twitching, tremors, and oh so dizzy. Mine got worse on Atovaquone at first. Then, it got progressively better.

Hang in there.

Posts: 1452 | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Nebula2005
LymeNet Contributor
Member # 8244

Icon 1 posted      Profile for Nebula2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
Twitching and ringing should be my middle names!!!

I thought I was the only one with this symptom. Do your face and ear MOVE? mine do. And all the muscles in my scalp.

Thank you for posting this, lalyme. It's so strange, and I've never seen anyone else write about this.

This is babesia? Would that explain why the antibiotics I've taken--doxy at a low dose which just about killed me herx-wise--didn't help this?

It also hurts like, well it hurts like ****. I've been thinking this whole time it was just haha "just Lyme" with cranial nerve involvement.

TIA for any more input.

Posts: 353 | From Florida boonies | Registered: Nov 2005  |  IP: Logged | Report this post to a Moderator
bv
LymeNet Contributor
Member # 9578

Icon 1 posted      Profile for bv     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have painful muscle twitches in my calf muscles & sometimes all over my body. Aso burning skin, floaters in my eyes, deep muscle pain, & sometimes uncontolled jerking of my arms( fortunately not often)

LLMD says it is neurological LD. Called it a "not atypical case of atypical lymes". Imo, no one really knows if it is LD or Babs. Been on abx for 1 year & symptoms wax & wane, but still there every day.

Not sure anyone ever really gets better from entrenched LD. If you don't get these bugs in 1st 4 weeks, Docs really don't know what to do.

Posts: 213 | From ohio | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
lalyme
LymeNet Contributor
Member # 8964

Icon 1 posted      Profile for lalyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you everyone for your replies. It's so unbelievably discouraging to go back to living an almost normal life to then have the dizziness and deep twitching all over again.
Posts: 298 | From los angeles | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.