posted
Since I can't do much myself, I was wondering if there are any remedies and stuff that I can do myself to help. I figure if I can't do the LLMD thing right now maybe I could try something else just to see.
Is there anything I can do myself?
Also, I have these weird dreams where I am almost awake but not all the way. And I think about stuff to myself. Well, last night I had a dream and I was talking to myself about blood.
Weird, yea? But, I was wondering if anyone knew how different blood types affect things like this. It probably has no significance, but I was just wondering.
Could that even be possible? Why do we have different blood types anyways?
I am O neg. so I am a universal blood carrier. Which would be bad if I had Lyme because it would then probably be a bad idea to donate blood.
Hmmm...I don't know. It was just one of those things in the world you wonder about. I guess I will look it up. Although, there will probably not be anything about it. Just a weird thought and figured I would ask.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey hey...
You said.. "Since I can't do much myself, I was wondering if there are any remedies and stuff that I can do myself to help. I figure if I can't do the LLMD thing right now maybe I could try something else just to see."
Can you let us know what you want to treat? What you have? What you have done already? What worked and what didn't? Why no LLMD?
I'm sorry.. this type of broad question is going to be hard to answer without more information.
Not clear to me.. as it could be Lyme, mold, Babesia, Bartonella.. etc. etc. If we knew what you had concerns about.. we could try to share info that may help.
As for the blood. My suggestion is to NEVER donate blood if you suspect you have Lyme. Better safe than sorry.. and the storage procedures for blood that has been donated is known NOT to kill the spirochetes.
I think we each have a unique blood type that is determined by the flavor of ice cream we eat the most.
OK.. NO.. I don't know why we have different types... but if you find out.. I would be interested to know.
posted
Well, I have several things I was wondering about, but OBVIOUSLY I am not wanted. Yes, I have recieved helpful offers. I am so sorry I am NOT able to use them.
People must forget that I am ONLY 15. I can't drive until July 28th when I turn 16. Even then I can't afford a car. My parents are stubborn and don't listen to me. I can't help that.
People have offered to set up appointments with an LLMD for me, but I have heard some things about those LLMD and prefer not to go to them. Also, some have offered to talk to my parents. You guys don't know my parents. They are not like that. I appreciate the help and offer, but my parents are DIFFERENT.
I don't know why people are putting me down just because I can't help what my parents do. I can't take myself to a doctor.
If I could don't you think I would be doing everything in my power to be getting better? Don't you think I want to get better? Obviously I hate going through all of this. No one should have to go through anything like this, but I can't help that.
I can't play my sports. I can't go out with friends. I can't even go to school normally and be like everyone else. I have more doctors than anyone I know. None of them will help me. I parents don't realize what is happening to me. And I have only 1 friend who is the only person who realizes I am going through something serious.
Although, she gets down because I can never go places with her or play tennis or anything.
I can't do anything I love anymore. I wish I could, but I can't change that. And no one understands. All I am asking is if there is ANYTHING, ANYTHING at all I COULD do for myself. But, I guess not. Whatever.
I guess I am just going to wait for something bad to happen. Obviously that is what it takes now-a-days to get a little help. Or maybe I will just wait til my echo. I know it is going to show something. I had irregular heart beats when I was little, but the doctor here said "NOT TO WORRY." Just like all the others. I have chest pains and slinter hemorrages. I can't run or do anything I used to without getting tired.
So, obviously something is wrong. But, what does it matter. I don't even care anymore. I will just have to live with it. Like I have done for so long, but one day, ONE DAY, I will know.
I will know what is wrong. And they will wish they had listened to me. But, for now I am locked in a prison with no windows and no doors and no key. And I can't get out.
I like to believe it is for a reason, but I haven't found it yet. Maybe it happened for something I did bad. I don't know, but I hate it.
I guess it is time for me to leave. Its been good til now. But, I think some people here are not happy with me. I'm sorry for that. I hope I didn't do something wrong to make people not like me. But, if I did, I understand, that happens a lot lately.
I am going through the hardest thing that has ever happened in my life, and no one knows. I can't deal with it much longer, so, hopefully, I will find out soon. If not, I don't know. I will be that person who breaks down and ends up in a padded white room not being able to move.
Which I would hate. Although, it would probably be better than how I am living now, so that would be a plus.
Well, I guess I may leave my results of whatever else I go through in the 'general' section. Other than that, I don't think I will be on here much anymore. Seems I have overstayed my welcome.
But, for those who care, thanks for believing in me and supporting me. I will post my progress in the general section. Just for reading purposes I guess.
Thanks so much. I really appreciate all the help, support, and everything. I just think I should go away for awhile. I will come back when I have a serious problem that can be helped.
Which at the moment, I need help with my mood changes. They are getting severe lately, and seem to be sparked by the sightest comment. Which, I am sorry for, but I can't seem to help or control them. My fault.
Well, thanks so much. And I'm sorry for everything. Maybe I wouldn't make a good doctor after all. sorry bye
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Christi -- don't give up on us so easily. We really are trying to help.
I think you need to know specifically what you're dealing with in terms of the infections and then to specifically treat for them. You can't do that without an LLMD.
So what do you mean you've heard things about the LLMDs? We need you to get to one of them so you can find out what's wrong and be treated.
Lymedad wrote an open letter to families. It's a little ways down from your post. You are not alone in your predicament. Lots of young people and their parents are going through what you're going through.
Are you going to take any steps in the direction of getting to a doctor who's knowledgeable about Lyme/coinfections? Are you willing to reach out to any of the people on this board here who said they'd be willing to help set up an appt or communicate with your parents? I think they could do it tactfully. After all they're parents too. Could you be willing to let people help?
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I couldn't sleep. I said some stupid things. I'm sorry.
I know some people on here really are trying to help. I know that. And I appreciate it. But, I think some people are annoyed because they give help, but I don't use it.
Someone offered to set me up with their LLMD, but I was informed by someone else that is was not a good idea. They had been told some things about the LLMD themselves. So, I don't plan on going to that one.
I want help. I want to be able to go to the doctors and get help. I want to be able to talk to my parents. BUT I can't.
I am NOT an open person. I keep to myself. I am NOT imotional in front of people. I am weird I guess.
But, 2 years ago this June, I lost the one person whom I could talk to. My grandma. I told her everything. She was the ONLY person I have ever been open with. I called her everyday and told her EVERY detail of my day. I went to her house when she got really bad and refused to go to the doctor. She is very stubborn like me.
I convinced her to go. She loved me more than anything I and I loved her the same. I told her to do it for me. Although, she knew what was wrong and knew she was going to die. I stayed with her for 2 weeks in the hospital. And in ICU the doc said a week later she had cancer.
She had lung cancer, brain cancer, every cancer. It had eaten her body. But, she hadn't told me. They moved her to a private room where I watched her die for a week. 2 weeks after I convinced her to go, she died. The morning I was supposed to get my cast off my foot. And I will never forget those 2 weeks.
That day, the one and ONLY person I could talk to and felt comfortable with, died.
That wasn't supposed to happen. I had never imagined it.
2 months later, I had foot surgery and that started my down hill path. I think (if I have Lyme) that is what set it off. I was going through a lot of tests and doctors and death and then surgery. I think that was enough to set it off.
So, right now I am just trying to get through. Again. It has been so hard. And it never stops being hard, but I suppose it is that way for a reason, I hope.
So, yes, I am willing to get help from a LLMD and I told my mom that was what I needed to do, but my parents want to get my blood thing down and to me seems like they refuse the fact that it could be Lyme.
I don't think they want to believe it. I have told them everything. I gave them a long list of my symptoms. I have told them stories about people from here. I have done everything I can to try and convince them, but they feel like I should keep going to the doctors until something happens.
Sadly enough, I am hoping the echo shows something. I told them eventually I would have heart problems, show if it shows something, I think it will convince them.
So, yes, of course I want help, but for right now I can't do anything. It is on my parents an I have to wait. I have been waiting for longer than 2 years, why not wait just a little longer. I am close and I feel it.
Just a little longer.
So, I am sorry about before. It's the mood things. I get upset easily. And angry. I just want to know why and what is wrong. I just want everything to end so I can be normal like all my friends. Get to do stuff and go places and play sports for my school again.
But, I know that probably won't happen. At least not now. But, I would be ok with it if I only knew what was wrong. So, hopefully I am as close to finding out as I feel like I am.
Well, thanks a lot. I know I seem like a pain, but I am not so much in person. I just get frustrated and stuff. I just don't want to be that person on here everyonr hates and talks about. And wish I would get a life and realize everyone has problems!
But, if I ever become a doctor, I can promise that I will be Lyme literate! That's my goal! I am going to help those who can't find help. I don't know if I can but I am sure going to try!
Thanks so much for being there for me. And I will work on not being that person. Now that I have a huge headache and don't feel well, I think I am going to try and sleep because Spring Break is over and I have school on Monday. Yay.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Wow, looking back on my posts, I really have grammar and spelling problems. I know I was saying those words to myself correctly, they ended up different than what I had said
Hmmm... that's weird.
Sorry. I just didn't want you guys to think I was stupid and didn't noticed I was making so many mistakes. I see them now, but they didn't seem to be that way when I was typing it before.
Anyhow, thanks, and have a great day...or night...it is so late for me. Please excuse me. Bye.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Hey... I just wanted to let you know that I have read your posts and I'm truly sorry you are going through so much right now.
I totally understand what it's like to feel isolated - and feeling like so much is piling up inside that you might burst. It must be frustrating to have so much going on and feeling like your hands are tied.
I know you asked about treatments you could do in lieu of going to an LLMD. It doesn't seem like your question was answered...and unfortunately I myself don't know what natural protocols are helpful. There is a lot of information on the topic. If someone doesn't come along shortly, you can try searching the medical forum with the keyword "natural" or "alternative".
I don't post here often, but I read a lot. I know that sometimes people are hurting so much themselves that their responses seem harsh or not helpful. And sometimes people are just plain combative. You are doing a good job trying to focus on the positive and that's a difficult task when the negatives seem to prevail.
Again, I am so so sorry you are having a rough time. Just know that there are compassionate people out here.
It's fine with me if you need to express your feelings. It's far better to let it out than let it fester inside.
Sending healing vibes your way!
Posts: 38 | From behind the definitions | Registered: Sep 2005
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posted
That's too bad about your grandma. Mine passed away and I miss her very much too.
I'm wondering if it might be possible to collect the right info to give to your parents. I'm thinking Lyme brochures, the Public Health Alert newspaper, Lymetimes quarterly. And download Lymedad's statement to families. Really, Christi, I could send you a packet of this stuff if you'd be willing to give it to your parents for their perusal.
The alternatives question is complex and it's too late now for me to get into a discussion on that. There's actually a lot of info here, if you search for "alternative treatments".
Take care and keep your "eyes on the prize" -- your health.
Posts: 13171 | From San Francisco | Registered: May 2006
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Posts: 4258 | From over there | Registered: Jul 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I have a hard time relating to your anger with members of this board.
I do realize you are not in a good place.
We do want to continue to help you.
However, you must be open to that help and/or suggestions.
I realize that you are completely dependent on your parents.
That makes your journey different than some of us.
Please do realize that some members here cannot afford to see a LLMD or pay for medications.
Some have had to sell their houses, furniture, etc. to get treatment for themselves or their family.
When you feel as if you are at the end of your rope,
Tie a knot at the end of it and hold on.
I know you are a spiritual girl...Use your faith.
Try to take a deep breath, count to ten and realize that most of us are frustrated
For you and your inability to chart a course to find out what is wrong with you.
This may be a good time for you to regroup.
Print out all of the info/advice you have from here.
Take your time and digest it.....slowly.
Pray and ask God for guidance and answers.
Know that we continue to be here if you need us.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Thank, Geneal
That's good advice for me this AM, and likely for many of us.
Best,
canbravelyme.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
One thing you could do now is to try garlic juice made with a blender with 3 to 4 gloves of garlic and some water.
After liquefying the garlic, take it with a lot of water or soup after a meal.
And see if you have a herx then improve.
It helped me and other. Garlic can kill bacteria and virus.
You can search "garlic juice" here to get more info.
Dave
Posts: 1078 | From Fairland | Registered: Apr 2006
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
i am sorry you are getting the cold shoulder here, and i am not going to jump on you. i have not read your postes in the past but will go back and read them, promise.
i would like to get some basic info to try to help you on the correct path. do you have a dx of lyme?/? did you find a bulleye rash, if so you have lyme.
next, these splinter hemorrages do scare me and you should point them out to your parents. i was a dentist and have backround in pathology and anatomy. splinter hemorrages are an indication, along with irregular heartbeat, that you need to see a cardiologist asap. this is independent of whether you have lyme or not.
these hemmorages under the nails mean a possible endocarditis of the heart. this can be very dangerous and you should seek help immediately. if you would like i would be very willing to talk with your parents about the issue. email me @ docdave130"at"msn.com i will do whatever or give you whayever info you think you need to get yourself to the cardiologist.
your parents must have some concern with your condition, even if they do not believe you have lyme. don't get made at me , i am only trying to help you thru this process. it is very hard to give people advice without a true diagnosis. the splinter hem and heart papls are a sign that you need immediate care.
your parents must love you enough to care that you are having a heart problem that should be looked at immediately.
email me if you would like to talk or want more info.
docdave Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I can't imagine being 15 and going through this.
Just going through 15 is tough enough.
But, I sense an inner strength and a fighting spirit. Things will come together for you.
Wasn't able to read all that others wrote.
When I first came down sick and did not know what I had, I got the book eating for you blood type. Not sure exactly what the title was.
Don't know if that has anything to do with your dream.
I have learned that food intake is important and cutting out certain foods have helped me.
I also know that lots of people had lots of suggestions for me when I was looking for answers.
I had to do what I could when I could...not on their time, but my time.
It is very confusing at first. But, things fall into place.
AS an added thought. My lyme doc had me take garlic when i first started treatment. i mixed it in with cottage cheese and cukes and tomatoes.
don't know if your parents will be open to purchasing garlic for you but if they would ...you could give that a try.
garlic is a natural abx.
i still try to get it in me but not as often as i would like.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
ok Christi, i have read many of you articles. there is an extreme change in temperment from your first post to now. you are getting frustrated, depressed, and full of aniexty.
this is very normal from having a disease of unknown origin. your parents seems concerned enough in the posts that i read, that you were able to get some treatment.
it appears ,that you, have been unable to find the right doctor to give you a dx.
still my first concern would be the cardiologist. many symptoms can be coming from the high ASO, which may indicate a heart issue. i would have them retake the ASO and do a echocardiogram, ekg, and blood cultures and stress test to make sure your not having heart problems.
at this point everything else is secondary. treatment for lyme(if dx as such) can be done later. you must prioratize you medical problems. always here to help or more info
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
It's so frustrating to try to convince other people when you know you're right, but they don't understand. Your parents are, no doubt, just as clueless as most of the people around me.
It's banging your head against a wall, that's for sure. And you can't prove you're right.
I've had to keep a lot of it to myself. It makes you feel pretty alone, but it builds your resolve.
Do as much as you can to rule out other medical explanations for what's wrong with you. Keep up what you've been doing.
Your parents are probably worried about you and don't want to do anything to hurt you. When what you tell them goes against what the doctors are telling them it leaves them caught in the middle and frustated, too.
Also, I remember other people with Lyme and coinfections saying that they have violent and bloody dreams.
I know how hard it is to stay calm when you want to fix what's wrong with you. It's hard, too, to watch as you keep losing time to being sick.
If the doctors your parents take you to continue to not have answers, there are a lot of people who have to treat themselves without doctors.
Lyme doctors are few and far between, it's too bad but it's the way it is. This situation isn't likely to get better any time soon.
If you have any money at all one thing you could do is buy Buhner's book "Healing Lyme." See if you think your parents would be supportive of your using herbs.
I've been sick for a very long time, longer than you've been alive! I'm still here and although I'm not happy about it, I have to continue to try to find ways to get better.
Sometimes I just want to scream. So here goes:
"scream"
Posts: 353 | From Florida boonies | Registered: Nov 2005
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Hey there from lower Alabama, your own home state. We've talked back and forth a couple of times, and I've looked for you in "medical questions," but have not been in "general" too much.
I haven't been in touch because I am having a health crisis of my own. Hysterectomy not healing, being too sensitive to antibiotics anymore and lyme getting out of control. Going through withdrawal from pain meds, lortab. Just a huge batch of garbage I'm wading through, my husband is out of the country for a couple of weeks, and I have three young daughters to take care of. It is really a balancing act if there ever were one. I'm barely hanging on.
Now, down to you. Don't you DARE leave this forum! I will take it personally. Yes, some people make little remarks that they, I'm sure, don't perceive as sharp as they turn out. I know about this, and it is painful when you are so cut off from help.
I can imagine what you are going through. My youth was scarred by ill health, mental, and my parents only told me I was a bad girl. I cried all the time and they were tired of it and pushed me away. Yes, they loved me and love me very, very much. But their generation and personalities had and have no skills for handling this. They don't "talk" about things you know.
They took me to a psychiatrist for one year. I stabalized, and then went through a couple of decades of fighting episodes of depression, strange migrating and intense pain no one could explain, sleep disorder, and many other things. I was once told in my twenties that I should consider a lyme diagnosis by my now X-sister-in-law. I laughed at the idea because I had a fibromyalgia diagnosis by a "GOOD" doctor.
All the while, I lived with the label by my parents that I was the "difficult" child, something to this day I try to overcome with them. Silly I know, because I am not a difficult person. But that is human nature, the desire to be fully accepted and loved by your parents. Dont' get me wrong, they love me very much.
As I told you , my second child I believe was born with lyme, my third I believe died from lyme, and we all got reinfected with lyme while living in Connecticut, including my husband. It was still over a year before I finally went to a LLMD and got a diagnosis, and began my journey to improvement.
O.K. All that to say, I think I can understand the torment, and yes, I call it torment, you are going through. YOu see. So you cannot leave this forum, and others that really care.
I know emotionally it is hard to wait for responses on the forum, but you will have to work on separating your emotional response from an intellectual response. By this I mean, although you feel hurt when you don't hear back immediately from the forum, acknowledge to yourself that we are a diverse group of personalities, each struggling and suffering some personality changes as you are, and take the good while discarding the bad.
This is the best formula I can give for a world view throughout your life. Like throwing wheat into the air, we let the unnecessary splinters fly away in the harmless wind, and gather the best for nourishment.
Yes, a pretty metaphor that can be much harder to emply, but please try.
You cannot come to an open forum and expect only pretty responses. We are from all over the place, from all kinds of backgrounds, and all that is necessary to participate here is being sick and not insult people. We are a slice of life.
Now, Private message me your home address if you think it will be alright with your parents. I will gather some material on natural remedies and mail it to you. That is the most proactive I know how to be. You can order these materials online, but that would take a credit card.
I can contact the LLMD here in lower Alabama and ask him for advice on speaking with your parents, if you think that will help. I actually see a llmd in Louisianna. I will be at his office in about two weeks. I can speak to him about you and leave with him some of your posts. Let me know if you want me to take these actions.
He will not think this strange as he is a tremendously Christian man, a Sunday School leader.
You have received here good advice above about making sure your heart is looked into. Focus on that, and when that issue is cleared up, your parents will be more open to questioning why you are still sick. Right now, they are on the trail of the heart thing.
Maybe your parent could try a low dose antidepressant for you to help get you through this. Or, you could try a natural rememdy called "ST. John's Wart" from the health food store. It is believed to help stabalize depression.
AS far as being "appropriate" on this forum, now this is going to be hard to swallow, try not to fire back at people that are not too sensitive. Maybe just acknowledge that certain posts were not helpful, and then drop it instead of picking it apart. No one on the forum likes "flaming" as it is called. It is hard to bear in a forum we look to for support. So when there is flaming, we feel like our life support is going to cave in.
Also remember that some of the most supportive people here are struggling day by day, so we can only leak out small amounts of support to others over time as we are able. None of us can poor ourselves into someone else, as much as our hearts call us to. Like myself, trying to take care of three young girls at home, and then another one online. It is difficult.
I say these things to plant information in your head to help you bear the kind of responses and degrees of response you receive to your calls for help. Hopefully this knowledge will help you deal better with what you receive so that you don't leave the forum.
I will look into "General" on the forum as I can to see if you are there. If you have a medical question, it is very appropriate to be in "medical."
Remember that we also can be frustrated when we try to help and nothing we offer helps. We are people too, and trying to help you.
You are a very smart young lady. It is silly to worry about your spelling and such because we all know that lyme disease can cause all kinds of cognitive problems. I am an English teacher and spelling is horrible for me. WE understand all this, so don't beat yourself up about it.
Try to get St. Johns WArt. Maybe even Wal-Mart has it. Meditate on some of the things said here today. And stay focused on getting better.
Bless you. :-)
Posts: 1034 | From North Carolina | Registered: Aug 2003
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Christi, I feel insulted and wounded by what people do and say on this board- A LOT!!!!!! I get my feelinsg hurt and tell myself I am never coming back and how dare people treat me like (!&@^% and act like I have never existed when I do my best to help and have for years now-and you know what helps me?
I look on this place like an elevator & waiting room in a doctors building devoted to treating Lyme. Everyone is a Lyme patient or prospective Lyme patient so there are going to be some very GRUMPY NASTY people here!! And just like ANY other place in the world there are going to be nice ones, and fake nice ones, and truly friendly ones, and people like me, like most people, who are nice enough most of the time but who get upset and nasty themselves sometimes too (like Cavey! HA Cavey gotcha*)!!!!!!!!!!!!!!!!! It is because they are real people and real people who are sick- so probably there are more mean people here than maybe in other places!!!
But people sometimes may sound mean when they are trying to be VERY honest with you. I know there was a post from gangagal about being a journalist and writing about Lyme- and I told her honestly that I didn't htink the combo of beign a journalist and having that nickname on here worked at all if she wanted to be taken seriously. That probably sounded REALLY mean, but it was honest and I was tying to address her issue helpfully. I like her posts!!
The same way sometimes when we abx-lovers get all riled up over proponents of herbal or alternative stuff or vice versa- tempers flare!! That doesn't mean we don't care - in fact it is because we do!!!
Not everyone. Sure, there are some people who get on the elevator and they are in the building just to get what they need- and better for them! I htink the wanting to help others can be pathological....!*)!*)! Seriously, as a way to justify ones existence!!!
So I hope if you do go, if you need us, you will come back!!! I am all for leaving this place now & then- I think it is healthy!!!!!!!!!!!!! But I also love it when oldies come back_!!!!!!!!!!!!
I hope you get some help. You ARE in a very hard place not being able to transport yourself and having no $ for care. I am sorry.
I hope one day you find a good LLMD- we all deserve that!!!!!!!!!!!!!! And get the answer as to whether it is Lyme or not!!!
NOT to scare you and NOT to be suggestive in ANY WAY that this is the case, but to make you feel better because you are being treated perhaps like a hypochrondriac- adn there is nothing more awful when you are not-
but the differential for MS AND ALS AND Lyme disease AND LUPUS
INCLUDES HYPOCHRONDRIASIS
because many times with neurological diseases the subtleties of illness are SO subtle that right up until things are VERY evidently wrong people often think they are NOT!!!!!!!!!
So you are not alone!!!!
All of those poor ALSers out there- many of them get treated like total crap until they are told they are dying (and no you don't sound ALS-y to me, I am trying to get you to see that the world is screwed up for a lot of people when it comes to diagnosis*)!*)*!)! And for you it is- and I wish it wasn't so- Anywayz, If you ever need to leave, leave, but come back*)!*)! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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I like that last story. Very, out-there! Also, I can't remember anything after reading lymewrecks post! It was long, but very meaningful. So, I have no idea where to start because I can't remember what I was going to say.
Ok, first, I would like to say thanks. The support really means a lot and I was just caught up in everything. That usually happens at night and I am more myself during the day. So...
Also, about the heart thing, I had irregular heartbeats when I was really little. I can't remember what age. But I remember every detail about my checkup and the doctor and everything. She sent me for an EKG to make sure it was nothing to worry about.
The cardiologist said it was nothing to worry about. So, it never came up again. I am not sure if I had it after that because that was the only doctor who had ever noticed it.
The slinter hemmorrages are recent. I have noticed them for a while now. I didn't know what they were until I was doing research on high ASO. I read that it could cause Endocarditis. And one of the symptoms for that was slinter hem. So, I checked my fingers and I had 3 of them.
I have a few now. I noticed yesterday. They are little though. I have had some big ones. Plus, I was worried about heart problems because I have chest pains sometimes. I like to play outside and I built a bike track in my back yard with huge jumps, but I can only go around about 2 times because my chest will hurt a little and I get tired real easily and I get a headache.
Plus, the high ASO. It said if you have a high ASO for over, say, a year. You were at risk. Mine has been 2 years. So, I have a lot to worry about.
Out to docdave(!) my ID said Tuesday that he wanted me to get an Echo because he thought it would be a good idea. I told him about everything. So, I am in line to get one. As soon as my Ortho calls because he does all my referrals. So, he is going to call with my appt. and then I will have that and see what the Cardio. says! I am scared about it but happy as well.
I just have a feeling that something HAS to show on it. And that would be a huge step for me.
Also, my parents, I think they are just focusing on what is happening now. I think once the ASO is down and I get this heart thing done with they are going to be listening to me. They just want to see what the doctors are going to say about the ASO and everything 1st. We have enough on our plates already, you know.
So, I think that is how it is for now, but they will come around.
Also, I did order those brochures off of one site. I can't remember, but I got them for my parents.
Also, I can't remember who offered, but I would be willing for you to talk to your LLMD about me. With my posts. That would be ok. I would be interested to see what they'd say.
And the garlic thing, very interesting, I am going to have to try that. Maybe before a test or something just in case I do herx and it makes me sick! No I am just kidding! But, I will try that. I haven't heard that before.
About the holding in the anger thing, that is very very hard for me. I just get upset and my brain runs on and everything comes out. I don't mean to. But, I am working on it, promise.
Starting today, I am only going to accept positive stuff, and not acknowledge the bad. I am optimistic, not pessimistic. Everything will be ok. Breath in good, breath out bad!
I like to draw, when I am not to shaky, and since I am in to the whole dirt-bike thing I started drawing all the logos as of last night. It relaxes me and gets me to focus on just it and everything else leaves my mind. So, I think you guys would be proud. I drew 2 and they look awesome if I do say so myself! Better than the colored ones I printed out!
I am one of those who can look at something and draw it. Or sketch. However you say it!
Ok, I am trying to answer everyone and acknowledge each and every person who replied, but I can't remember anything you guys said! I will post this and go back and read them again to make sure I didn't miss anything.
But, Thanks So So Much.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good morning Christi,
I have to admit that I have not read any of your other posts...but it seems like you have several here who have and who are offering great advice.
I only wanted to add that there are a few chat rooms for those who are younger who are also going through tickborne disease issues...along with parent sites too, and perhaps, you could check them out to see if they are helpful?
posted
Ok, I do realize you guys are out there and willing to help. It's just sometimes I hit my bottom and forget. I am sorry and I don't mean anything by it. I know all of you have gone through this and I shouldn't be reminding you. But, I know all of you can understand where I am coming from. I'm sorry I go overboard sometimes. I try really hard not to, but I just break down and the world seems like it is ending, AGAIN.
I apologize for that. I know you guys are forgiving, understanding, kind, and are there for me. I know that, I just sometimes lose myself and all that goes away and it doesn't seem to matter anymore. I wonder if that is from some type of brain symptom? Hmm...
Oh yea, to docdave, no I have not been diagnosed with Lyme. And I don't remember a bulls-eye rash. Had I, I would know for sure I had Lyme, but all I have now is my symptoms, and doctors who can't think of anything else.
I have had every different blood test for everything, x-rays, bone scans, MRI, nerve test, and I am about to have an Echo. I have been tested for liver and kidney problems, lupus, arthritis, infection, everything pretty much. I have seen a GP, Ortho, Ortho spec., ID spec. Rheumy, I am about to see a Cardio., and a Ped. Rheumy.
I am trying to talk my parents into not seeing the Ped Rheumy because this is not a bone problem. It is more than that and it would be a waste of time. So...
Ok, I still don't know if that is everything, but I tried so....
Thanks so much for everything, and when I get out of line just kick me back in! I would really appreciate it! Thanks so much!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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I asked my mom and we don't have any like cloves of garlic.(if that is what they r called) but we have garlic seasoning. She said there is also garlic salt. I told her I would find out. And she said we could get some.
Thanks
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I have read all the posts here and feel for ya, I really do.
I have a husband who does not believe I have lyme, won't even talk about it, and on top of that, is verbally abusive... so I understand.
Soo, how about getting some cat's claw and just trying it? you can get it at walmart, vitamin shoppe, or most any stores.
I don't think it would hurt you and would help some. Also grapeseed extract might help.
Just some suggestions that you might be able to do on your own.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Wilson gal,
It is the fresh garlic that is in the produce section of the market.
You need to cut it up in small pieces as it is strong tasting.
I go through phases. Sometimes I can handle it and other times I can not.
Elephant garlic is not so strong, but I do not know if it has the magic ingredient called allicin or something like that.
This is why most garlic capsules do not have the same affect...they are missing that ingredient.
It can be purchased from a certain company but I found it too expensive for my budget.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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What's cat's claw? I see it all the time on here, but I don't know what it is.
So, I need fresh garlic like the onion looking thing, right? I will get some. I don't guess it would hurt to.
I told my mom to get some. I didn't tell her why YET because she would think I were crazy and say it's stupid! So, I told her I was conducting an experiment and needed some! I don't know why she would accept that and not that I need some to see if I herx and get sick!
So, she said she would as soon as I found out what kind! Thanks.
Thanks!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Careful! Raw garlic on an empty stomach can make a person feel nauseaous. Best to eat raw garlic or its juice after or with a meal.
Posts: 2557 | From home | Registered: Aug 2006
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posted
In our seasoning cabinet we have garlic salt. All the ingredients say is salt, garlic, calcium something, and garlic oil. I will get some garlic though. My mom said she would stop and get some if she can find it.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Yes, thanks. I probably wouldn't eat it by itself or nothing. I don't think I have ever had garlic, but I have smelled it before so the only way I would probably eat it would be with a meal or after. I might put some in it that way maybe I wouldn't notice as much or something, but I definetly wouldn't eat it alone or on an empty stomach.
Thanks for telling me that though, just in case!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Well, I think I may be taking a step with the garlic thing. Does it count as a step?!
Well, today is my moms birthday! Yay! And we ordered her a nice cake and all. But my dad is working. Good thing because now she has to go to Wal-mart. So, I told to get garlic and she added it to her list! Yay! Nothing like chicken, birthday cake, and garlic to make the perfect meal!
Well, thanks a lot for telling me about this. To me, it is worth a try. At leats this is something I CAN do RIGHT NOW. I don't know if I want to try it right now because school starts tomorrow. It's probably not a good idea if I herx.
How long does a herx usually last?
Well, I have to try it sooner or later. Why not sooner! I have already missed some school and I will have to miss more for my Echo and a few more doctors appt.s so. Uh well. I am doing ok in school right now. For now. I am going to have to work really hard to get my grades back where I had them before though.
I usually get staight 100's. But, lately it has come down to 95. That is horrible for me. I know 95 is really good for a lot of people, but I set my standard very high and I don't settle until it is met! Which I usually never have to study or do anything to keep it that way, but lately, I have struggled some.
So, I am going to study and do more now.
Well, thanks agagin for telling me about the garlic thing. That's all I was asking was for anything like that that may help! Thanks!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Christi,
I am sorry but I do not recall how much garlic my LLMD suggested I take a day.
So, I would just keep it simple and small to start with so you do not go into a major herx.
I am doing well now if I get one clove in me a day.
I also learned I have to really cut out sugar, flour, pasta, white rice, potatoes, etc.
I keep trying but everytime I do I get so sick I am bedridden and in lala land.
Hopefully, you will be OK.
It doesn't seem to bother some with lyme.
I have read that the spirochetes feed on sugar and starch. I'd rather not feed them if at all possible.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Christi:
Be careful when you see a rheumy. A rheumy is not a "bone doctor." He treats things like MS, Fibromyalgia, and don't be surprised when he tells you you have this one! It is popular for lyme people to be told they have Fibromyalgia. I was for a long time.
Then he will medicate your symptoms to make you comfortable...something for pain, for sleep, etc. This is not ENTIRELY a bad thing at this point since you need to function.
But it cannot be done and ignore the root cause of your problem. You will have to continue to seek those answers and not give up.
Just to let you know, I went down the rheumy path for so many years, so I know about this. 99.9% chance this rheumy will tell you he knows how to diagnose lyme disease and will NOT know how, so don't put too much weight into his opinion on lyme disease.
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
quote: In our seasoning cabinet we have garlic salt.
The compounds in the garlic effective for Lyme are very sensitive to temperature, time and storage.
So you need fresh garlic and prepare garlic juice freshly before the meal, then after 30 minutes, take it with a lot of soup or water, so that the harsh taste becomes bearable and doesn't upset your stomach.
More importantly, this will increase the absorption of the effective garlic compounds and prevent inactivation of the garlic compounds by the stomach acids.
Another critical thing is you need liquefy the garlic by a blender to maximally release the effective compounds.
Chopping, squeezing or chowing is much less effective and may just waste time and disappoint you.
Garlic juice may be, if not greater, as effective as antibiotics in some cases.
Just need to pay attention to way how to take it.
Garlic powder, garlic salt and even garlic capsules won't work in Lyme.
Also remember garlic juice is very strong, you need to take caution as other said.
Start slowly, one or half clove at beginning and ramp up to 3 to 4 cloves daily.
Good luck
Dave
Posts: 1078 | From Fairland | Registered: Apr 2006
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I now have garlic! My mom the jumbo garlic and it is a little pack with 2 cloves in it. It didn't smell and I peeled the outside off. And it still didn't smell so I figured what the hey why not bite into it!
NEVER do that! I just bit into and I feel sick already! It really hoped my sinuses! And it burnt my tongue! It's worse than onions!
But, if it will help then I am going to do it. If I do herx with this, how long does it takes before I feel it? And how long will it last?
Wow, I wonder how this stuff helps anything! I haven't even swollowed any yet and I already feel bad!
Well, thanks, I will, of course, be careful. Thanks! I appreciate all the advice! Thanks!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
see christi, you demeaner has changed considerable, back to the sweet inquitive girl from othe rposts i read.
1]i would suggest that you make a copy of Dr. Buracanos link about lyme disease. i would circle all the symptom appropriate on the sheets and let the rheumy read the article the link is: http://www.lymenet.org/drbguide200509.pdf this is a very comprehensive guide to lyme disease. it goes from symptoms, diagnosis, treatment and other information. you may want to give your mother a copy of this. she will tend to be a little more understanding than your father{men} give her the copy with the symptoms marked off.
have her read it like a book, this is real research article about lyme.i has all infortmation that the lyme association recommends.
2] neurologic lyme: this is caused by the lyme bacteria or other coinfection to infiltrate the brain barrier. it usually is babesia but can be others. below is info on this subject:
http://tinyurl.com/8txf4 as for your spelling and concentration, this is unforunately a side effect of the lyme disease. if young enough and treated correctly ,you may fully recover. i once had an iq of 178 in dental school now down to 131. my lyme went undiagnosed for 7 years prior to treatment, and have been on treatment for 7 years.
you may really want to consider talking wife the guidance councelor at school. they are trained psycologist and would be a good place to start. you could bring her to 2 above papers also.
uncontrolled emotions are due to the neurological effects of lyme. in most instances, depression must be treated with antidepressants. it is not that you are "crazy", but that your brain chemistry is not in balance, medication is the only way to control this.
moderate to severe rage is also a symptom of neurolgic lyme. "lyme rage" can come on like a flash, stay or leave like a flash. you also have the fact ,that you a a maturing young girl, with other hormones driving the system also.
3] i am glad that they are goig to check the cardio first, only that is off your back, it may not be anything, but it could also be a symptom of lyme. i developed a mitral valve prolapse [leaky valve] from the lyme.
4] i think many of us like to see things , like drawing that other people do. for many of us, those things are not or are extremely difficult for us to do. people would love you to scan your pictures and post on general support it is also very theraputic for you. if you have a scanner, scan into you computer go to walmart.com , photo section. open a new folder and upload your pictures here next right click on the picture go to properties and copy the url. then under the post section you will see image button, click on this and press paste. your picture will be posted.
last for now at least: you are the only one that understands what your body is telling you, no one else knows or can understand, this is why they even doctors say there is nothing wrong. test do not come up positive and say, yes you have lyme. it may that you can only be diagnosed by a very very good diagnostition, possibly your id doc or even ortho, if they are willing to read the above info.
don't get mad at me for saying this ,because you do not want to hear this, you want to be cured and be healthy and live a normal life.
this may very well happen, but you also have to look at your symptoms and diagnosis as a disease that may not be cured, with couple of pills. you must realize that this may be with you for a while, yes it is not fair, yes you don't deserve it, but we all have the same emotions about this.
many here, as i do , have this disease in the chronic form. it doesn;'t go away so easy. it takes strong willed individual to climb above the disease and help thyself.
many here pray to god many times a day, asking ,why????? they is no why , but there is why am i letting this beat me down. beat it back. postive attitude is essential to curing any disease. "a heathly mind produces a healthy body" the mind is a strong influence on your goals to recovery.
said enough, my fingers are tired, will check up on you, and as before you can email me for any reason i will answer you same day.
hugs docdave
[ 23. April 2007, 08:54 AM: Message edited by: stymielymie ]
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Christi,
I tried that too. I have heard of people being able to eat a clove of garlic a day.
I just can't do it.
I have to chop it up in little pieces and mix it in knudsen cottage cheese with cucumbers, tomatoes and small pieces of green onions and sea salt and freshly ground pepper.
Now it is time for me to go to the store. I am out of half of that stuff.
I know another person who mixed it with cottage cheese and Bob's Big Boy Thousand Island Dressing.
I haven't tried that yet.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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It's bad when I realize my mood and temperment. I don't like it. But, I am living with it. I have decided that getting mad makes everything worse. I am a glass half full kind of person. And I like to be a kind person. Not angry and depressed all the time.
I am going to focus on school and doing the things I have to do to get to med school. Which some day I will. I am just going to keep on going and think positive until I am diagnosed correctly. It may take some time, but I am NOT going to let it get the better of ME.
So, I am going to try the garlic and anything else I can to help myself, but I am going to fight. Fight whatever it is that I have not myself.
So, yes, my mood has once again changed, and I am going to work hard to see that is stays positive.
Thanks so much for the help and getting me back on track. I am sorry about the things I said before. I am sure you guys can understand. And I don't mean any hate against anyone on here. I promise I am not that person. So, I hope I can continue on and forget about my negative side!
Thanks!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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Be careful when you see a rheumy. A rheumy is not a "bone doctor." He treats things like MS, Fibromyalgia, and don't be surprised when he tells you you have this one! It is popular for lyme people to be told they have Fibromyalgia. I was for a long time.
Then he will medicate your symptoms to make you comfortable...something for pain, for sleep, etc. This is not ENTIRELY a bad thing at this point since you need to function.
But it cannot be done and ignore the root cause of your problem. You will have to continue to seek those answers and not give up.
Just to let you know, I went down the rheumy path for so many years, so I know about this. 99.9% chance this rheumy will tell you he knows how to diagnose lyme disease and will NOT know how, so don't put too much weight into his opinion on lyme disease.
Read and learn!!! She's right!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Thanks, I have read that, and I knew that. My Rheumy was very...well...I won't go there with what I would say he was, but he wasn't very good. He was more focused on arthritis and stuff like that. Which him being a Rheumy that is all he thought about. I went to him for my high ASO, he stalled for a year and then while running out the door one day happened to mention he didn't know ANYTHING about the ASO.
But, I am not going to him anymore. And haven't for some time now. And I am supposed to go to a Ped. Rheumy, but I am trying to talk my parents into NOT going.
Because I know he can't help. So, it would be a waste.
So, I took that advice a long time ago. I don't really like Rheumy's for some reason. Maybe for a person who really has arthritis or something, but not for someone who has no clue what is going on.
I don't know, but I am way past the Rheumy thing. Don't think I am going that way again!
Well, thanks. And I must be going now, I have school tomorrow...yay...can't wait to get up early and feel like crap and get sick when I get to school AGAIN. Yea...thanks.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Hi again. I'm not saying a pediatric rheumy is a bad idea. He will have his own set of blood tests to run that will be useful in the long run. It will rule out further diagnosis, and further compell your parents to consider the lyme question. You see, you must take this journey and see every doctor you can.
Now do this for me. Insist to your parents that you sign a records release after you finish with each doctor. Just get a copy to keep at home. Make a file for yourself in your room or where ever. Keep the files of every single doctor you run across.
For each doctor you have seen, press your parents to take you to the office and have them sign a records release. The office will charge for photo copying, and they can mail them to your house.
This medical journey is so important. You MUST keep all of your tests, because the day WILL come when the right doctor will request all of your medical records to study them, and will find an answer for you.
Then, you copy your own medical records you keep at home and give them a copy. Always keep your own copy of your medical records.
I once went to a llmd who did very important testing. When I turned around a year later after not being in his office for 6 months, his staff declared that they could not find my file. IT was lost. So all of that was just gone forever. I regret this so much.
The truth I think is that he was getting looked at too closely by people who would harm him, and he "lost" some files.
That is my advice for this early morning as my girls are getting themselves ready for school.
mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
The Swedish army uses garlic pills as a tick deterrent so at the very least you will be preventing further infection- but that is because you will smell very strongly of garlic perhaps!!!!!!!!!!!! Garlic is healthy for everyone-!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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I don't think I am. But, I am taking Psychology at school, and sadly enough I understand everything we are going over right now because we are talking about psychologic disorders.
Including mood, anxiety, sleep, and other disorders. Hypochondriacs, schitzophrenia, OCD, anxiety, mood, all those things. Things I have experienced before. Not the very bad kind, but to a certain extent.
One of the first things my teacher said was, " Just because we are reading about these don't try to diagnosis yourself. If you do have one there is treatment, but just because you have some symptoms don't try to diagnosis yourself."
I got a little down when we started talking about this because other people in my class can't relate to any of it. They don't know what it is like.
I didn't get ANY sleep at all last night. I was so scared about school today. I guess, I didn't get any sleep at all. But the other day I stayed in bed til 2 or 3. Everytime I woke up I felt like I couldn't move and I was supposed to go back to bed. I slept to much.
My sleep is all messed up. I may have some of these disorders we are talking about and I am ok with people knowing, but I don't hang out with people outside of school so they don't know what I am really like.
Plus, I am supposed to go to college this summer for my basics and it is a free thing I am doing. But, I have a chance to go to a better place University of North AL and I was trying to talk my friend into taking a class with me. She wasn't really feeling it so I called her lazy, just joking around.
She come back to say I was lazy cuz I don't run/walk the track with her. And I never go play tennis with her and it was my idea to ry-out for tennis and I got her involved. I was supposed to try-out for the team with her. I was already promised a spot.
When she said that, I went off. Not bad, I just got really depressed and I was like "oh so I am lazy because I CAN'T run? Don't you think I want to play tennis with you? I can't! I may have a heart problem and I don't want to find out first hand! Don't you think I want to do that stuff? I do. But, 'I' CAN'T.
I felt really bad. I did to try-out and play, but tennis is one of the roughest sports on the whole body, but I would work myself through like everything else and keep going, but if I have something wrong with my heart I am not going to do it.
I have a feeling I do, but I don't know when I am having my echo yet so...it's a mystery.
Well, I got homework and I am really tired and sore, so thanks and I will be sure to remember the med. records.
Thanks
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Yes, you haven't been diagnosed yet so you COULD be a hypochrondriac. However- food for thought- there was a Polish study where they treated a bunch of hypochrondriacs for Lyme and found they were cured of hypochronidria!!! I'll go find it! Darn, couldn't find it- sorry- will keep looking~~!!!
So even if you think you are a hypochrondriac you may not be*)!*)!
Also, Dr. Sherr wrote up on how Lyme and Babesiosis may simulate the hypochondriasis experience for patients because doctors do not validate the reality of their diseases!!!
1: Med Hypotheses. 2004;63(4):609-15. Links
Human babesiosis--an unrecorded reality. Absence of formal registry undermines its detection, diagnosis and treatment, suggesting need for immediate mandatory reporting.
Sherr VT. Private Practice of Psychiatry, 47 Crescent Drive, Holland, PA 18966-2105, USA. [email protected]
Human babesiosis, caused by parasitic protozoa of erythrocytes, has escaped usual associates--lower mammals. Thriving in tick guts, it has spread inland from the coasts of America, adopting mankind as a host.
Babesia spp. threaten life quality of unsuspecting humans in quickly expanding territories worldwide, including the state of Pennsylvania, USA.
The causative spirochetes of Lyme disease often similarly co-exist in ticks. Singly or together they may, by causing persistent and chronic infections, duplicate any symptom in the medical literature--including depression and hypochondriasis.
Physicians practicing throughout Pennsylvania have identified patients with symptomatic babesiosis, but without governmental surveillance or health registries that require doctors to consider and report babesiosis, these cases have not prompted epidemiological concern.
Misunderstandings such as, "Isn't that an obscure tropical disease?" are usual responses when doctors are asked about babesiosis, inadvertently trivializing patients and disease. Mandatory reporting of babesiosis should now be considered a medical necessity. Copyright 2004 Elsevier Ltd.
PMID: 15325004 Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Looking and can't find that Polish study but found this- REPOST
".......FROM THE NOTES: * In a study of hypochondria involving 10 patients 5 did not have the condition. Of these 5 two had Lyme. * Lyme symptoms described: major depression; compulsive disorders; panic attacks; depersonalization ("spaced out"); anorexia nervosa (rare); disorientation (lose the way - lasts 3-5 minutes); violent outbursts; irritability; personality change; dementia; paranoia (fairly common); thought disorders; delusions; auditory / olfactory hallucinations......"
The Lyme Disease Network LymeNet Newsletter
Volume: 4 Issue: 10 Date: 07/19/96
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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there's no excuse for you NOT to be seeing a Lyme literate healthcare provider, kiddo.
you're 15. whether you can drive or not, you are still a minor. you said you could go to the LLMD via the assistance you have recieved, but are not going because someone here said things about the Doc that made you question going at all.
doctors and patients are human. no doctor is going to operate with zero complaints. you also must recognize that patients have their own unique set of circumstances and issues that effect their experiences with medical care. take all experiences and advise of others with a grain of salt, and seek your own answers in a serious way.
.. you're 15. if you believe you may have a health condition that could be as serious as chronic lyme, or another comperable condition, your health needs to be a priority. in that case you need to be evaluated by experienced medical professionals and you need to partner with your parents on it. the better docs out your way are qualified to do an eval that could rule lyme in or out, and/or direct you to another specialist. if you need answers, you can get them there. people here can help support you as you get answers. we can't give you answers, only information and ways to get more. i assume references for healthcare providers have been provided by the members here.
it sounds like you can work this out and bring your folks on board as well. a good doctor can help your folks understand allot more as well. just focus on that, make it a goal, and everything will begin to work out.
good luck, mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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quote:Originally posted by lymewreck36: Now do this for me. Insist to your parents that you sign a records release after you finish with each doctor. Just get a copy to keep at home. Make a file for yourself in your room or where ever. Keep the files of every single doctor you run across.
Good idea....for every patient of Lyme disease!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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That was an interesting study. I don't believe I am a hypochondriac because today we did notes on it and our teacher said that hypo's read about a disease or something and may think they have it and there mind will believe it and show the symptoms.
Also, nursing and med students start learning about things and may start thinking they have it, but she also said that they may misinterpret 'normal' body aches and pains. Mostly joint and muscle pains and such. Or even psychologic disorders like depresstion.
Well, anyways, I had symptoms before I started looking at diseases and stuff. Accoding to her some people may see something on t.v and not think anything about it but their minds remember it and cause it to happen when really there is nothing wrong. They just have physical symptoms.
So, I don't think that is me. But, I had been having sleep, attitude, anxiety, depression, those such things. And we are talking about disorders such as those and I sound so much like those.
But, not a bad case. Just mild I guess. I couldn't wake up this morning. I slept all day in school! Yesterday I couldn't sleep and last night and today I couldn't stay awake. So...
Well, I best be going now. I am very tired and plan on going to sleep right after AMERICN IDOL(!!!) and HOUSE M.D. (there may b a new episode on but I don't know). It's one of my fave's! I have seen every one of the episodes and have both seasons! The same with Grey's Anatomy and E.R!!
Medicine fanatic! It's just my kind of thing you know! Future doctor here! Goh, I can't wait to slip on my beautiful comfortable scrubs and my WHITE coat and walk through the hospital all the time! I probably won't have a life outside of that, but I am ok with that!!!
Sorry, I am babbling. I do that a lot. I wasd tired, depressed, excluded, and quiet at school. Like everyday, only worse today so this is the only time I ever get to say what I want people to know. I am ANTI-SOCIAL...
Have a great week!! Thanks!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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