Treatment for 8 months Sxs are milder and less Frequent
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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Now that is a way to describe it that I had never heard of before. I have suffered from fatigue for as long as I can remember but didn't have a name for it. You did good. That is exactly what it is life halting fatigue.
1. Life halting fatigue
2. Foot pain.
It is in the front part of the bottom of both my feet. I have been to so many foot doctors and none of them seem to know how to help this. I think alot of the problem is due to the fact that the fatty pad on the bottom of my feet is gone. This is from to working in the library and constantly standing on my toes reaching up to put books away.
3. Severe sleep problems.
Since I get little rem sleep at night I can hardly stay a wake during the day. I have had seven sleep studies done at different hospitols. Also a daytime nap study where I was asleep witin three minutes every time. No one has been able to help with this.I get 18 minutes of rem sleep a night. If I didn't take my meds I would literally sleep all the time.
1. Rocking/dizziness in head 2. Headpressure (feels like someone is crushing my face and standing on my shoulders. This goes down to my chest). Stiff neck 3. Tiredness, joint pain (knees) worse at night when I'm lying down!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
1. Partial Seizures brought on by -any- kind of stimulation; concentration or exertion. Seizures include: sneezing, muscle tightening, vertigo, "strange" gait, feeling of impending doom over usually things that in a "regular" state of mind would be banal, yawning, diarrhea, and finally vomiting. A real show stopper.
[Venting for a minute...I saw a new doctor recently, and I said, "I would just like a little more control". Doc's these days are often swimming in the shallow end of the new age movement. He says, "Maybe that's your problem - maybe you need to accept being out of control". I said, "Are you kidding? Everytime I go to do something, I have a seizure attack - I think I'm pretty clear on the "I am not in control" thing"...]
2. Burning skin pain and eye pain largely as a result of light on skin. When light is on my skin (or joints) I begin to experience searing pain, muscle cramping, and then I'm back to #1.
3. Finding proper medical help. Or at least it feels like a symptom...
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
1) Hyperacusis/Tinnitus (walked outside and swatted a bee away from my ear but it was actually the neighbor using her weedeater.. sounded like it was right in my head)
2) Neuropathy/paresthesia (feels like centipedes biting and crawling on my legs and then someone uses a blowtorch to remove them.. all while I'm sitting on a washing machine during the spin cycle)
3) Overall tendon/joint pain and swelling
-------------------- ~Ro~
Don't wait for someone to take you under their wing. Find a good wing and climb up underneath it~ Frank C. Bucaro Posts: 80 | From Desert Southwest | Registered: Nov 2006
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posted
I haven't started treatment yet, so hopefully soon these will be FORMER worst:
1. Burning sking (like a bad sunburn) all over my upper torso and arms...got it now badly and even my hair brushing on my neck is sending pain waves.
2. Extreme fatigue.
3. Disconnected brain...it feels like my brain is floating free form in my head.
4. INSOMNIA!!!!
Other equally annoying: enumerable food intolerances, floaters which are getting worse, etc. etc. etc.
Posts: 83 | From us | Registered: Nov 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
geez there are sooo many.....
1. Headache 2. Fatigue 3. body pain
it was a close one....
Posts: 3905 | From USA | Registered: May 2007
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1. Sudden weakness/pain 2. exhaustion 3. brain fog (I became an idiot!)
DURING treatment (just started, but I've had it for years)):
1. exhaustion 2. still an idiot! "How do you spell ...um..forget it, I can't remember the word." 3. back pain
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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ByronSBell 2007
Unregistered
posted
Man! after reading all of these, I must have the worst combo... This is depressing
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-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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posted
It's hard to narrow it down to three, but here goes.
1) head pressure-head neck and spine hurt
2)head feeling foggy and like I'm going to faint
3)Fatigue
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
I would like to send my prayers out to all that is suffering with this awful disease. My worst three symptoms are air hunger( the very worst), joint pain, and my body is always feverish and hot all the time. There are so many more that would qualify for the worst but these are the worst three.
Posts: 10 | From san diego california | Registered: May 2007
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posted
I would like to send my prayers out to all that is suffering with this awful disease. My worst three symptoms are air hunger( the very worst), joint pain, and my body is always feverish and hot all the time. There are so many more that would qualify for the worst but these are the worst three.
Posts: 10 | From san diego california | Registered: May 2007
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1) Extreme pain in legs for past 10 weeks that I can not find anything to control, which has caused me to take another medical leave from work and makes it VERY hard to walk.
2) Extreme fatigue and exhaustion
3) Not being able to remeber things and having a hard time processing my thoughts and communicating them
Posts: 73 | From just outside of Lansing, MI | Registered: Jun 2006
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tailz
Unregistered
posted
I was going to reply, but I have trouble deciding on which 3 to post. Is that a symptom? Yep!
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