1.Burning, stinging, prickling skin. I don't think anything can be more awful and torturous as this. A demonic symptom I would say.
2.Extreme fatigue. There is million things you would like to do but you can't because you just don't have the energy. No matter how much you sleep, you're still exhausted.
3.The mental combo of anxiety, nervousness, jitteriness, confusion, crankiness, brain fog and depression.
How about you?
BF
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Before treatment 1.Fevers 2.Joint pain 3.heart palps
After treatment and during 1.tired 2.acheing 3.herx
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Don't have too much problem with the stinging and burning sensation, not like some I have read..but the worst 3 for me have got to be..
1. The "fogginess"...for sure is number one. Without that I could probably get through the rest..
I am so tired of "searching" for words and not being able to carry on a simple conversation w/out sounding like an idiot..
And not being able to read and comprehend information is torture for me... I graduated w/ honors from a local business institute in 1997, now most days I can't seem to think my way out of a paper bag.
2. Fatigue.. Even on days when I am feeling "okay", I am so tired and have no energy to do anything...
3. The floaters and other problems with my eyes.. I can not focus clear enough to read like I used to and dealing w/ flouresent lighting..forget it.
Mind you, those are by far not all of the symptoms that I have, but definitely the worst 3...the ones that I have the hardest time dealing with..
Ellen
Posts: 50 | From Port Crane, NY | Registered: Apr 2007
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1) back pain 2) brain fog 3) night sweats/sleeplessness
aft treatment:
1) back pain 2) joint pain 3) disturbed sleep
altho, now i'm getting treated for babs and the back pain is easing
Posts: 277 | From NY | Registered: Jun 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Before tx:
1. progressive weakness 2. falling 3. agony throughout entire body 24/7
After tx:
1. 1-3 minutes of mild pain in left knee premenstrually!!!!!!!! 2. 1-3 minutes of mild pain in left knee premenstrually!!! 3. 1-3 minutes of mild pain in left knee premenstrually!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
1. Excruciating back pain 2. Extreme fatigue 3. Excruciating knee pain (lying in bed did not produce relief -- it produced a different torture -- feeling like someone was trying to twist my kneecap off)
Posts: 105 | From CA | Registered: Apr 2005
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posted
1. fatigue and apathy 2. brain fog and anxiety 3. dolour
Posts: 108 | From spain eur | Registered: Apr 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
1. Lack of independence (not able to work, do household chores most of the time or use the noggin most of the time.
2. Lack of mobility (can only be on my feet for very short periods of time and never know how long or how often...can not sit upright usually or if I do I pay for it later in pain or lots of down time)
3. Now, what was the question? Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I've had every symptom imaginable, but the scariest involve muscle twitching, tingling and numbness. To go to sleep at night feeling your arms go numb at the shoulders, and to feel tingling and shakey, it is really really scary.
Lately, I've had heart palpatations and pressure in my head, and that is scary too.
Tingling in my face and twitching in my face is scary.
All of this is horrible.
Posts: 69 | From Washington | Registered: Jan 2007
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bettyg
Unregistered
posted
great question!
before treatment:
1. super sensitivities of:
.. lights, glare, and reflection; .. noise/sounds .. chemicals: perfumes, hair spray, cigarette smoke, cleaning/office supplies, some foods, diesel, etc.
2. PAIN in total body!
3. lyme fog where i can no longer remember words, think correctly, etc.
AFTER TREATMENT:
1. SAME AS ABOVE but eyes MUCH worse due to the doxycycline i took and the after effects.
2. FATIGUE; i've never had as many naps as i've had these past 3 years.
3. pain; 24/7 in all fibro's 18 pressure point areas.
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
1) MCS/VERTIGO 2) PAIN/WEAKNESS/NEUROPATHY 3) SEVERE BRAIN FOG
Posts: 2905 | From New England | Registered: Sep 2004
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
before tx:
*brain fog, confusion, couldn't think/read/write/process/communicate *feeling like every cell in my body was slowly being poisoned to death *suicidality/depression/panic *dizziness
(i know that's 4 - or more than 4, technically - but i couldn't narrow it down any further)
3)Can I say just complete confusion as to what was going on with symptom after symptom with no explanation?
Post recognition/starting clinda:
1)Lipomas in legs -- very painful, no idea how to stop them
2)Totally unstable joints that send me to the chiropractor a couple times a week.
3)Amazing chemical sensitiviy. I can't even touch/buy new clothes now -- have to wash my old ones in the sink.
Posts: 13116 | From San Francisco | Registered: May 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
My three most debilitating
1. Fatigue (no energy- no endurance)
2. pain
3. feeling like I could fall over at any given moment (weakness & balance issues)
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Robin123:
1)Lipomas in legs -- very painful, no idea how to stop them
Treatment Often, treatment of a lipoma is not necessary, unless the tumor becomes painful or restricts movement. Many people have them removed for cosmetic reasons. However, if the capsule of the lipoma is not completely removed during the surgery, it may grow back.
A lipoma may be removed by simple excision, but liposuction is another option that often results in less scarring if the lipoma is soft and has a small connective tissue component. However, liposuction has a greater tendency to not remove the entire lipoma, which often results in re-growth.
There are new methods being developed that are supposed to remove the lipomas without the scarring. One of them is removal by the use of protein injection. Another method being developed is the use of ultrasound waves to destroy the lipoma. This can be compared with the removal of kidney stones that uses the same sort of technique to pulverize the stones
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Neck pain/"stuck" feeling Chronic back pain Brain fog/lack of focus burning in places on skin Tingling or "spiders" crawling under skin Tremors...
Does anyone else get tremors?
Posts: 24 | From Studio City, Ca. | Registered: May 2007
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posted
Pain, all over, burning, throbbing, gnawing, shocking, tingling, unable to walk (wanting to die it gets so bad)
Neurological issues (all of them) loss of memory, concentration, unable to recall thoughts or words, pain, tinnitus, vertigo, migraines, depression, anxiety, rage...
Absolute, flat out exhaustion. Fall asleep driving, talking...
Not being able to stand the smell of anything
quote:Originally posted by Rooster: Does anyone else get tremors?
yes, I get tremors
Posts: 240 | From MA | Registered: Nov 2006
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1. Seizures 2. Unable to walk 3. Unable to get a deep breath, chest heaving for air
Now during treatment, and this changes 1. Fatigue 2. Get out of breath at times 3. Head pain, feeling like something is going to explode
But I can walk!
Posts: 175 | From Pa | Registered: Aug 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
1. Insomnia (improved from +7 to +4); 2. Stomachache(improved from +8 to +2); 3. Pains of soles, palms and hips(improved from +9 to +5).
Posts: 1078 | From Fairland | Registered: Apr 2006
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posted
1. burning, stabbing, pin pricking, unbearbale pain in my lower legs and feet. feels like boiling water is being poured through my legs and i am standing on hot black pavement.
2. severe depression
3. head and neck pain
Posts: 97 | From Simpsonville KY USA | Registered: Jul 2002
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Treatment for 8 months Sxs are milder and less Frequent
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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Now that is a way to describe it that I had never heard of before. I have suffered from fatigue for as long as I can remember but didn't have a name for it. You did good. That is exactly what it is life halting fatigue.
1. Life halting fatigue
2. Foot pain.
It is in the front part of the bottom of both my feet. I have been to so many foot doctors and none of them seem to know how to help this. I think alot of the problem is due to the fact that the fatty pad on the bottom of my feet is gone. This is from to working in the library and constantly standing on my toes reaching up to put books away.
3. Severe sleep problems.
Since I get little rem sleep at night I can hardly stay a wake during the day. I have had seven sleep studies done at different hospitols. Also a daytime nap study where I was asleep witin three minutes every time. No one has been able to help with this.I get 18 minutes of rem sleep a night. If I didn't take my meds I would literally sleep all the time.
1. Rocking/dizziness in head 2. Headpressure (feels like someone is crushing my face and standing on my shoulders. This goes down to my chest). Stiff neck 3. Tiredness, joint pain (knees) worse at night when I'm lying down!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
1. Partial Seizures brought on by -any- kind of stimulation; concentration or exertion. Seizures include: sneezing, muscle tightening, vertigo, "strange" gait, feeling of impending doom over usually things that in a "regular" state of mind would be banal, yawning, diarrhea, and finally vomiting. A real show stopper.
[Venting for a minute...I saw a new doctor recently, and I said, "I would just like a little more control". Doc's these days are often swimming in the shallow end of the new age movement. He says, "Maybe that's your problem - maybe you need to accept being out of control". I said, "Are you kidding? Everytime I go to do something, I have a seizure attack - I think I'm pretty clear on the "I am not in control" thing"...]
2. Burning skin pain and eye pain largely as a result of light on skin. When light is on my skin (or joints) I begin to experience searing pain, muscle cramping, and then I'm back to #1.
3. Finding proper medical help. Or at least it feels like a symptom...
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
1) Hyperacusis/Tinnitus (walked outside and swatted a bee away from my ear but it was actually the neighbor using her weedeater.. sounded like it was right in my head)
2) Neuropathy/paresthesia (feels like centipedes biting and crawling on my legs and then someone uses a blowtorch to remove them.. all while I'm sitting on a washing machine during the spin cycle)
3) Overall tendon/joint pain and swelling
-------------------- ~Ro~
Don't wait for someone to take you under their wing. Find a good wing and climb up underneath it~ Frank C. Bucaro Posts: 80 | From Desert Southwest | Registered: Nov 2006
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posted
I haven't started treatment yet, so hopefully soon these will be FORMER worst:
1. Burning sking (like a bad sunburn) all over my upper torso and arms...got it now badly and even my hair brushing on my neck is sending pain waves.
2. Extreme fatigue.
3. Disconnected brain...it feels like my brain is floating free form in my head.
4. INSOMNIA!!!!
Other equally annoying: enumerable food intolerances, floaters which are getting worse, etc. etc. etc.
Posts: 83 | From us | Registered: Nov 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
geez there are sooo many.....
1. Headache 2. Fatigue 3. body pain
it was a close one....
Posts: 3905 | From USA | Registered: May 2007
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1. Sudden weakness/pain 2. exhaustion 3. brain fog (I became an idiot!)
DURING treatment (just started, but I've had it for years)):
1. exhaustion 2. still an idiot! "How do you spell ...um..forget it, I can't remember the word." 3. back pain
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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ByronSBell 2007
Unregistered
posted
Man! after reading all of these, I must have the worst combo... This is depressing
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-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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posted
It's hard to narrow it down to three, but here goes.
1) head pressure-head neck and spine hurt
2)head feeling foggy and like I'm going to faint
3)Fatigue
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
I would like to send my prayers out to all that is suffering with this awful disease. My worst three symptoms are air hunger( the very worst), joint pain, and my body is always feverish and hot all the time. There are so many more that would qualify for the worst but these are the worst three.
Posts: 10 | From san diego california | Registered: May 2007
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posted
I would like to send my prayers out to all that is suffering with this awful disease. My worst three symptoms are air hunger( the very worst), joint pain, and my body is always feverish and hot all the time. There are so many more that would qualify for the worst but these are the worst three.
Posts: 10 | From san diego california | Registered: May 2007
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1) Extreme pain in legs for past 10 weeks that I can not find anything to control, which has caused me to take another medical leave from work and makes it VERY hard to walk.
2) Extreme fatigue and exhaustion
3) Not being able to remeber things and having a hard time processing my thoughts and communicating them
Posts: 73 | From just outside of Lansing, MI | Registered: Jun 2006
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tailz
Unregistered
posted
I was going to reply, but I have trouble deciding on which 3 to post. Is that a symptom? Yep!
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