1.Burning, stinging, prickling skin. I don't think anything can be more awful and torturous as this. A demonic symptom I would say.
2.Extreme fatigue. There is million things you would like to do but you can't because you just don't have the energy. No matter how much you sleep, you're still exhausted.
3.The mental combo of anxiety, nervousness, jitteriness, confusion, crankiness, brain fog and depression.
How about you?
BF
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Before treatment 1.Fevers 2.Joint pain 3.heart palps
After treatment and during 1.tired 2.acheing 3.herx
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Don't have too much problem with the stinging and burning sensation, not like some I have read..but the worst 3 for me have got to be..
1. The "fogginess"...for sure is number one. Without that I could probably get through the rest..
I am so tired of "searching" for words and not being able to carry on a simple conversation w/out sounding like an idiot..
And not being able to read and comprehend information is torture for me... I graduated w/ honors from a local business institute in 1997, now most days I can't seem to think my way out of a paper bag.
2. Fatigue.. Even on days when I am feeling "okay", I am so tired and have no energy to do anything...
3. The floaters and other problems with my eyes.. I can not focus clear enough to read like I used to and dealing w/ flouresent lighting..forget it.
Mind you, those are by far not all of the symptoms that I have, but definitely the worst 3...the ones that I have the hardest time dealing with..
Ellen
Posts: 50 | From Port Crane, NY | Registered: Apr 2007
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1) back pain 2) brain fog 3) night sweats/sleeplessness
aft treatment:
1) back pain 2) joint pain 3) disturbed sleep
altho, now i'm getting treated for babs and the back pain is easing
Posts: 277 | From NY | Registered: Jun 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Before tx:
1. progressive weakness 2. falling 3. agony throughout entire body 24/7
After tx:
1. 1-3 minutes of mild pain in left knee premenstrually!!!!!!!! 2. 1-3 minutes of mild pain in left knee premenstrually!!! 3. 1-3 minutes of mild pain in left knee premenstrually!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
1. Excruciating back pain 2. Extreme fatigue 3. Excruciating knee pain (lying in bed did not produce relief -- it produced a different torture -- feeling like someone was trying to twist my kneecap off)
Posts: 105 | From CA | Registered: Apr 2005
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posted
1. fatigue and apathy 2. brain fog and anxiety 3. dolour
Posts: 108 | From spain eur | Registered: Apr 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
1. Lack of independence (not able to work, do household chores most of the time or use the noggin most of the time.
2. Lack of mobility (can only be on my feet for very short periods of time and never know how long or how often...can not sit upright usually or if I do I pay for it later in pain or lots of down time)
3. Now, what was the question? Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I've had every symptom imaginable, but the scariest involve muscle twitching, tingling and numbness. To go to sleep at night feeling your arms go numb at the shoulders, and to feel tingling and shakey, it is really really scary.
Lately, I've had heart palpatations and pressure in my head, and that is scary too.
Tingling in my face and twitching in my face is scary.
All of this is horrible.
Posts: 69 | From Washington | Registered: Jan 2007
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bettyg
Unregistered
posted
great question!
before treatment:
1. super sensitivities of:
.. lights, glare, and reflection; .. noise/sounds .. chemicals: perfumes, hair spray, cigarette smoke, cleaning/office supplies, some foods, diesel, etc.
2. PAIN in total body!
3. lyme fog where i can no longer remember words, think correctly, etc.
AFTER TREATMENT:
1. SAME AS ABOVE but eyes MUCH worse due to the doxycycline i took and the after effects.
2. FATIGUE; i've never had as many naps as i've had these past 3 years.
3. pain; 24/7 in all fibro's 18 pressure point areas.
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
1) MCS/VERTIGO 2) PAIN/WEAKNESS/NEUROPATHY 3) SEVERE BRAIN FOG
Posts: 2905 | From New England | Registered: Sep 2004
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
before tx:
*brain fog, confusion, couldn't think/read/write/process/communicate *feeling like every cell in my body was slowly being poisoned to death *suicidality/depression/panic *dizziness
(i know that's 4 - or more than 4, technically - but i couldn't narrow it down any further)
3)Can I say just complete confusion as to what was going on with symptom after symptom with no explanation?
Post recognition/starting clinda:
1)Lipomas in legs -- very painful, no idea how to stop them
2)Totally unstable joints that send me to the chiropractor a couple times a week.
3)Amazing chemical sensitiviy. I can't even touch/buy new clothes now -- have to wash my old ones in the sink.
Posts: 13171 | From San Francisco | Registered: May 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
My three most debilitating
1. Fatigue (no energy- no endurance)
2. pain
3. feeling like I could fall over at any given moment (weakness & balance issues)
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Robin123:
1)Lipomas in legs -- very painful, no idea how to stop them
Treatment Often, treatment of a lipoma is not necessary, unless the tumor becomes painful or restricts movement. Many people have them removed for cosmetic reasons. However, if the capsule of the lipoma is not completely removed during the surgery, it may grow back.
A lipoma may be removed by simple excision, but liposuction is another option that often results in less scarring if the lipoma is soft and has a small connective tissue component. However, liposuction has a greater tendency to not remove the entire lipoma, which often results in re-growth.
There are new methods being developed that are supposed to remove the lipomas without the scarring. One of them is removal by the use of protein injection. Another method being developed is the use of ultrasound waves to destroy the lipoma. This can be compared with the removal of kidney stones that uses the same sort of technique to pulverize the stones
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Neck pain/"stuck" feeling Chronic back pain Brain fog/lack of focus burning in places on skin Tingling or "spiders" crawling under skin Tremors...
Does anyone else get tremors?
Posts: 24 | From Studio City, Ca. | Registered: May 2007
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posted
Pain, all over, burning, throbbing, gnawing, shocking, tingling, unable to walk (wanting to die it gets so bad)
Neurological issues (all of them) loss of memory, concentration, unable to recall thoughts or words, pain, tinnitus, vertigo, migraines, depression, anxiety, rage...
Absolute, flat out exhaustion. Fall asleep driving, talking...
Not being able to stand the smell of anything
quote:Originally posted by Rooster: Does anyone else get tremors?
yes, I get tremors
Posts: 240 | From MA | Registered: Nov 2006
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1. Seizures 2. Unable to walk 3. Unable to get a deep breath, chest heaving for air
Now during treatment, and this changes 1. Fatigue 2. Get out of breath at times 3. Head pain, feeling like something is going to explode
But I can walk!
Posts: 175 | From Pa | Registered: Aug 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
1. Insomnia (improved from +7 to +4); 2. Stomachache(improved from +8 to +2); 3. Pains of soles, palms and hips(improved from +9 to +5).
Posts: 1078 | From Fairland | Registered: Apr 2006
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posted
1. burning, stabbing, pin pricking, unbearbale pain in my lower legs and feet. feels like boiling water is being poured through my legs and i am standing on hot black pavement.
2. severe depression
3. head and neck pain
Posts: 97 | From Simpsonville KY USA | Registered: Jul 2002
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