I am a lyme disease sufferer diagnosed in Oct 06 with chronic Lyme. May last year began onset of symptoms, 13 Dr's later I found out that I had lyme and also a benign brain tumor. Had radiation last week on the tumor and have got to say to this point Lyme has been the winner in the make your life hell race.Both have been more than a little trying! I have been taking Doxy and have been on IV Rocephin since Jan 07. Some symptoms have improved others have become worse. To break it down and not bore you, I have now developed what seems to be Lyme or Mycoplasma arthritis. (I also tested for chronic Mycoplasma infection)Restesting for co-infections right now. I take Tindimax 1 wk month and LLD just started Benicar for the inflammation of my joints. This is probably the last round of Rocephin I will do as I think I have been lucky to have done so well so far and think that I may have exhausted this method of treatment. After reading the info on Rife machines I am very excited! I think this might be an option. My husband would like to make one for me....Please can someone advise on the best website and also any info that might help. I have heard it is used for cancer treaments, but am wondering if anyone has heard of anything at all negative regarding health issues that this may cause having a brain tumor. Hopefully the brain invader is gone. I had a lot of growth that my LLD and myself really think might be a result of Bb and Mycoplasma. That is why I opted to do the radiation during the time I have my IV in to deliver plenty of antibiotics during this time.
Please give advice. I could take a lifetime looking up a lot of stuff on the rife machine. I already have read a lot but also a lot or redundant information. I am really quite sick right now and need to try something new...
Thank you,
Carolyn
Posts: 4 | From virginia beach | Registered: May 2007
| IP: Logged |
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
There is a yahoo lyme-rife group. I don't have the url handy, but google to find it. There are some directions and good people there. Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8880 | From Illinois | Registered: Aug 2004
| IP: Logged |
I would also recommend purchasing Bryan's book found on this site. It will show you how to use the Rife machines to your advantage and tell you about which ones seem to work the best for Lyme.
Bryan has two books now. You need the first one (first)...both are excellent!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
Geez, I NEVER thought I'd hear someone say that Lyme trumps a brain tumor ... just goes to show ya how Lyme really is, as I call it, a HORRIBLE disease!
Good luck, Carolyn ... I hope you beat both the brain tumor and Lyme and regain full health!
-------------------- Lou B
Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Lou LouLOU!*)*!))!*)!!!!!!!!!!!!!!!!!! Good to see you*)!*)!*!)!!!!!!!!!!!!!!!!!!!!!!!
It's the SECOND time I've heard someone say that Lyme is worse than a brain tumor*)!*)!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
p.s.
W E L C O M E!(_)!*)!*)! C A R O L Y N !*)!*)!*)!*!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/