posted
I have spoken to several people that have seen more than one LLMD but I was just wondering people's experiences with doing this.
If anyone has switched or seen more than one LLMD in the NY area (NY and CT) maybe you could send me a PM about this and your opinions about the doctors you have seen.
Thanks very much to everyone.
-David
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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bettyg
Unregistered
posted
i'm NOT from ny but i'll contribute briefly.
yes, i've seen 2 llmds so far:
1 was a BEGINNER learning about lyme; with him 8-04 to 2-06; herxed bad .. left message w/office recepionist to call me; HE DIDN'T. also emailed him w/details what happend; NO EMAIL BACK. on long-term PULSED abx 20 months.
went out of state; ended up alternative therapy; supplements; they did complete body labs on me and found many things wrong with me. 6 mo. of 22 supplements; made me much worse; fatigue is still w/me!
i'm working on my OTHER health issues as a result of complete body testing finding gluten/wheat/rye and case-in...cow's milk, cheeses, egg whites, and garlic allergies plus other stuff.
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I dont live in the NY/CT area, but ive seen about 5 LLMD since getting sick in August 2005.
1st one spent 15 min with me at each appt, and kept saying i was herxing, he couldnt tell me if it was yeast or lyme causing my pelvic problems so he suggested I find a LLgyno.
My case is extremly difficult, and I find that every LLMD i go to see has a different protocol that they think would help me. Its basically throw drugs at it and see if it helps. But with my body i cannot do that.
Ive never been treated for coinfections and some LLMd dont even mention these.
I have to say each dr i see does get a bit better and finds something new wrong with me, so it hasnt all been a loss. Im still on a wait list for one of the best LLMD in my area. treating herbally until then.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi David,
have you been diagnosed with lyme? Have you seen an llmd, and started treatment? Perhaps if you share a bit more of your experience, folks here can offer their advice on this. Best wishes.
Posts: 2557 | From home | Registered: Aug 2006
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
HI. In the New York area, I've seen DR. H, and in CT I've seen Dr. P and Dr. K. One of my children has also seen Dr. J in CT.
IN North Carolina we've seen Dr. J.
In LA we are now seeing Dr. F.
All are excellent and have different approaches to treatment. You can't go wrong with any of them.
Best of luck. Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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posted
I started out with an ENT doc, went to a GP, saw a cardiologist who treated Lyme hesitantly & briefly, ended up treated by my son's psychiatrist until he moved away, made it ti NY to see Dr. H. but that involved too stress & money, so now seeing a local GP willing (yet hesitant) to give me doxy.
All these were docs in CT except for Dr. H.
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Yes, I had to as my 1st wouldn't treat Babs. This mad a BIG difference & got me out of bed after months.
Be UR own advocate & Do what U have to do to get well. LLMDs don't take it personally.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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