I posted here some hours ago as a newbie & it must have gone somewhere as I had a private reply, but I have no idea where it is. I thought Medical Questions was the place to post about medical issues but is there somewhere else?
I had a local hospital test for Lyme's turn out positive & I suppose that is significant since so many of those tests show false negatives. But a second test,a Western blot done at the Mayo Clinic, came out 2, which is sort of in limbo. My problem is that I am a hopefully recovering Cdiff sufferer (Clostridium difficile) & antibiotics are to be avoided if at all possible for those who have or had cdiff. But I guess I will have to bite the bullet & do it & hope that I don't have a relapse. After 8 months & losing 30 pounds in 2 months, I don't know what is worse, Cdiff or Lyme's.
I hope this shows up somewhere where I can find it & if I am posting in the wrong place, will someone please tell me & tell me where I SHOULD be posting.
Pam in Wisconsin
Posts: 34 | From Wisconsin | Registered: Jul 2007
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
You may have to treat the C Diff and Lyme concurrently. The other option might be to talk with your doctor about IV antibiotics which *may* have less impact on C Diff as they are not taken orally. The other option would be to consider an herbal program for the Lyme like that outlined in Stephen Buhner's Healing Lyme book - that can be very powerful.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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I know I have to treat them together. Doxycycline fortunately is not a prime Cdiff offender, it's middle of the road. But I will still have to get back on a regular course of Vancomycin while taking the Doxy.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hey I was just in Wisconsin at the river Brule in Douglas County*)!!!!!!!!!!!!!!!!!
Howdy stranger*)*!))!!!
Do you use Saccharomyces Boulardii for the c diff>? I use that as a prophylactic for it!!!
WELCOME TO LYMENET*)!*)*)!!!!!!! Best wishes, Sarah in SC, CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
If you want to keep track of your posts. Do a search with your member number and all of your posts will come up. Saves you from having to hunt them down.
Posts: 984 | From San Diego | Registered: Nov 2006
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Welcome!
"Timaca" on here has lots of experience with lyme and c. diff -- hunt her up and PM her if she doesn't see this.
Please do post in "seeking a doctor" -- there's a reasonable chance your present doctors will decide that your positive ELISA was a "false positive" because the subsequent western blot wasn't clearly positive.
THEIR labs don't even bother testing for two of the most specific bands for lyme -- bands 31 and 34. So don't bother with any more testing with them. Also, they are usually clueless about co-infections. Those must be treated, and sometimes with entirely different drugs.
A good LLMD will find a way to guide you through the process.
Good luck and do keep us posted, 'kay?
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
Excerpt from Dr. Brorson research on Tinidizole.
In addition, tinidazole is also an effective eradicator of Clostridium difficile and may prevent yeast infection which may be troublesome during long-term treatment of Lyme disease. Another advantage of TZ compared to MZ is its higher accumulation in the cerebrospinal fluid . Dual medication with TZ and a macrolide (clarithromycin, azithromycin or the new ketolide telithromycin) might be an interesting approach to treat borrelioses, and to prevent persistent infections.
Posts: 789 | From CT, | Registered: Jun 2006
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posted
Hi! And Welcome to Lymenet! You are in the right place. And you have come to the right place as well. I assure you that the people on here are great and can help you a lot!
It's one big family here and everyone is willing to help as much as possible! So, you can post any questions you have here!
Well, anyways, I just wanted to say Welcome to Lymenet!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Welcome
You should find a llmd to treat the lyme -
Alot of drs dont understand lyme or dont want to treat us until we are well...
because of IDSA guidelines alot of drs say a max of about a month of abx and thats it no matter how the patient is doing.
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