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» LymeNet Flash » Questions and Discussion » Medical Questions » KGTV/ABC ANCHOR - BROOKE LANDAU APPEARING ON GOOD MORNING AMERICA!!! - Tuesday 8/28/7 (Page 1)

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Author Topic: KGTV/ABC ANCHOR - BROOKE LANDAU APPEARING ON GOOD MORNING AMERICA!!! - Tuesday 8/28/7
Ruth Ruth
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I just recieved this email from Brooke Landau this morning... (I got on her list after writing the station thanking them for covering her story.)

quote:
Feel free to pass along to anyone you think might be interested as well. VERY exciting news!!!!!!!!!!!

I thought you would be interested in the story of KGTV/ABC Anchor - BROOKE LANDAU. She will be appearing on "Good Morning America" with Diane Sawyer on Tuesday, August 28th. (Most likely between 8-8:30AM but time subject to change).

Brooke says they did over 5 hrs of taping with her in San Diego this week and she thinks it's going to be a FANTASTIC story! She spent a great deal of time talking about the most difficult obstacles we're all facing and the current political/medical controversy, and urged them to include this since it is the MOST important part of the story. On Tuesday she will go live on the set in NYC to discuss the topic further.

Brooke's 12 year battle is almost unbelievable. She literally went to bed fine one night and woke up unable to move from the waist down and neck up -- she wouldn't walk again for over a year and a half. Brooke then lost hearing on one ear, began to go blind, lost her short-term memory, 1/4 her body weight, developed heart problems, spinal menegitis, gall stones, colitis, and a myriad of other problems that finally just resolved this year...after receiving an experimental treatment that was not FDA approved but saved her life. Unfortunately doctors, including Brooke's, are being prosecuted for the treatment of Lyme -- several have lost their licenses!

The story is incredibly important for the millions of others suffering. And now that this horrific disease has affected the President, it seems to be a hot topic of the moment.

Prior to KGTV, Brooke was a producer for the "E! True Hollywood Story", a reporter for ESPN, Evening Anchor for CBS in Arizona and an EMMY winner for a piece she co-produced on her incredible ordeal. She was also a successful high fashion runway model.

Brooke's bio from KGTV is attached:

http://www.10news.com/kgtvnewsteam/11138901/detail.html

Tune in on Tuesday!
.
.
.
[edit: to include date of show in header... thanks BettyG]

[ 25. August 2007, 04:33 PM: Message edited by: Ruth Ruth ]

--------------------
When I lost my grip on Faith in the maze of illness,
Hope gently clasped my hand and led on.

RuthRuth
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bettyg
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ruth, good news!

suggestion: could you enter 8-28 in your subject heading after good morning america ... a helpful reminder so people can set their vcrs, etc. to record this.

to edit, click PENCIL ICON which opens up subject line and body text. when done, click edit send. thanks
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Lymetoo
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YEA!!!!!! That's awesome!!! Wish I had a VCR!

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--Lymetutu--
Opinions, not medical advice!
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Ann-OH
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I am sure the GMA website will have a video and/or a text story.

Ann - OH

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jasek
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WOW! Thanks for the heads up, i'll be watching and taping.
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hopingandpraying
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As they say "Strike while the iron's hot!" We'll be watching too!
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Lymetoo
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Let's keep this at the top till Tuesday!

--------------------
--Lymetutu--
Opinions, not medical advice!
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Foggy
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A few years ago, a reporter from ABC News interviewed some of us for a story but passed. She said Lyme was an "old story." Apparently not...
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Ruth Ruth
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^

--------------------
When I lost my grip on Faith in the maze of illness,
Hope gently clasped my hand and led on.

RuthRuth
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bettyg
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up
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Ruth Ruth
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^ don't miss this, ok? ^

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When I lost my grip on Faith in the maze of illness,
Hope gently clasped my hand and led on.

RuthRuth
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Ann-OH
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up

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www.ldbullseye.com
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Soleilpie
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I've set my dvr to record it! I can't wait to watch it!

Thanks for the heads up Ruth!

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The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)
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Lymetoo
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uppers!!!! [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!
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Soleilpie
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^

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)
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Lymetoo
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^^^ [Smile] ^^^

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--Lymetutu--
Opinions, not medical advice!
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Robin123
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Does anyone know when this show would air in various time zones tomorrow morning? Like, I'm west coast time...
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Ellie K
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I hope someone puts this up on youtube! [Smile]

I for one don't get up that early...
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clairenotes
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I hope I am not in transit, taking my daughter to school!

Thanks for posting this info, Ruth.

Claire
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dontlikeliver
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Is there a way someone could record it and/or put on YouTube for those of us outside of the USA who cannot get Good Morning America??

DLL
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dontlikeliver
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Just went to the GMA website to see if there was any way I might watch it online (dream on)...here's today's story on Lyme disease in print though (not the interview with Brooke Landau)..unfortunately it seems to quote only IDSA docs.

http://abcnews.go.com/Health/Germs/Story?id=3530027&page=1
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Lymeblue
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I'm glued to my TV!!!
Sorry I can't record it DLL !!
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Dave6002
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Will be starting at 8:00 east time am on ABC
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Lymeblue
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Hate the Dr from Boston!!

"2,3 or 4 weeks of antibiotics earlier on the disease takes cures most of the cases as with Pres Bush"


Explain to me why even after starting doxy 48 hours after being bitten Im still sick!!

Off course doxy didn't treat my babesia, my bartonella, etc.

Love Brook !!!! Love her!!!!

She did a superb presentation..but one more time the edition is the last word and what the viewers perceive.

AND the guy who seems was the "�uthority" on Lyme never warned about/emphazise on how often is unreliable the bloodwork as Brook DID, co-infections, and most people not recalling being bitten so it should be DIAGNOSED according to clinical sx.etc,etc

Brook thanks thanks thanks thanks!!!!!!

I suggest to write to Dr Timothy Johnson the "�uthority" who from BOSTON downplayed our disease:http://www.wchstv.com/abc/gma/timothyjohnson.shtml
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lymedesign
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http://abcnews.go.com/Health/Germs/Story?id=3530027&page=4


Above is the ABC link to post comments in general.


This is the direct link to the ABC Editors:


http://abcnews.go.com/Site/page?id=3072379
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Lymeblue
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You can post or send your LONG list of comments also regarding Dr Tim Johnson (interviewed after Brooke) and todays Lyme segment:

http://www.abcnews.go.com/Health/story?id=1381567

This Dr seems to be a key person for ABC since he: "is one of the nation's leading medical COMMUNICATORS of health care information. As Medical Editor for ABC News, Johnson provides on-air medical analysis for "World News Tonight," "Nightline" and "20/20."

If we don't write he wont even know, if he knows about Lyme, the odds of spread the facts on lyme would be some how higher..... DO YOUR HOMEWORK people!!!! Let's write write and write include srories, MEDICAL ABSTRACTS facts statistics, etc.
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valymemom
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I just looked and saw there are 152 comments posted on the Owen Wilson story.

Brooke opened the door for us here. I am hoping we post more than 152 comments. Everyone has something valuable to add regarding diagnosis, treatment, and hardship.

I agree, also, that it is important to write Dr. Tim Johnson.....and important to flood the network with suggestions for a follow-up story/segment.
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just don
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Like Dr. Johnsons assertions time after time,,,"The tick HAS to be attached in excess of 24 hours for you to get sick,,,so just find them sooner!!"

PLUS they NEVER mentioned one iota on abx dosage required to 'knock it out early',,,It really sounded like any old abx for a few days and your fine,,,never a mention that MOST docs dont give enough dosage.

AND not a peep about coinfections,,,just lyme. Good info from Brooke,,,as far as it went,,,just never enough time for this subject,,,and MORE details please!!

--------------------
just don
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shoney
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I wrote-we all need to flood the lines-awareness and press will lead to research
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bejoy
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^

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bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson
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Foggy
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quote:
Originally posted by Lymeblue:
Hate the Dr from Boston!!

Hate is a VERY strong word. Disagree w/his opinion is OK.

Dr. Tim is actually VERY cool and sympathetic to those with Lyme. While it may appear "downplayed," I can attest that he's aware of co-infects and our dillema and was really helpful. There is never enough time on a news show to cover all the bases.
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merrygirl
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I posted a comment- Lets keep it going~
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MommaK
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Great News!

The interview is on the www.abcnews.com website. Look under HEALTH ! You may have to look under more videos to find the one titled "Chronic Symptoms, Undiagnosed Disease". It is 7:39 long ! http://abcnews.go.com/health should get you closer there.

I was watching Good Morning America not knowing this segment was coming up this am. When they said lyme disease I was frantically trying to figure out how to use the new DVR feature on our cable and missed some of the beginning.

I don't have sound on my computer, but I think the website may have a longer report than the TV show did! Somebody watch (and listen to it) and let us know!

Thanks, MommaK
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Lymeblue
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Foggy you are right, I was too "radical" in my statement. I was extremely dissapointed.

But when you said: "I can attest that he's aware of co-infections and our dillema "
I bet you most of the people can't attest to this like you and what was aired didn't give a clue or hint to his awareness.Thanks for letting me know.

On the other hand, he had time to mention Pres Bush's brush with lyme to emphazise how easy is diagnosed and treated. WHY? Better not to say nothing at all and save some aired secs!

Maybe he didn't mean to, but for me Lyme was flatly downplayed as always. I bet he was instructed, knowing now, after you told me, that he "knows"about lyme....

One more time what was portrayed was a "patient emphazising how bad lyme is" and on the other side an " An IMportant High Profile MD emphazysing the "difficult to catch (at least 24 hours and rash) and easy to cure (Pres Bush's episode) phrase.

Thanks God Brook emphazised how unreliable bloodwork is.


Wondering why Dr Tim was in Boston.

On the other hand Brooke did great...she is amazing....I hope she can read this lines....I know she did a lot to have this segment out no matter what.

Sorry Foggy didn't mean to cause controversy.
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improver
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Watched both tv and web site. They were the same. Here is the address for the page with the video, don't know how long it will be up.


http://abcnews.go.com/Health/Germs/Story?id=3530027&page=4
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Lymeblue
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Hey guys check out now the new links posted on ABC web even LDA link appear and other great links...LOVE IT LOVE IT.....http://abcnews.go.com/Health/Germs/Story?id=3530027&page=4
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CaliforniaLyme
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Yay*)!*)!!!!!!!!!!!!!!!!!!!!!!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer
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Lymetoo
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[woohoo]

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--Lymetutu--
Opinions, not medical advice!
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RoadRunner
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Dr. Tim is no doctor B. lets get that straight right now.

RR

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"Beep Beep"
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Vermont_Lymie
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Thanks Brooke! Watching and hearing about your recovery made my day. Best wishes for your health.

I only watched the first half of the video, with Brooke's interview -- awesome! Did not see the following talking heads, was afraid they would get someone like Steere to speak to...
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Lymetoo
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quote:
Originally posted by Dave6002:
Will be starting at 8:00 east time am on ABC
How in the world did I manage to watch this at 8 a.m. CST????

I didn't even think about the time for CST and "went with" the 8 a.m. info.

[confused]

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Opinions, not medical advice!
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3greatkids
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Great job!!!!

What a lovely person she is.
I was so touched, by her mention of the children.The ones sick most of their precious lives.

I wish the Dr. could have been left out of the interview.

Great job!!!
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mjo
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I agree Brooke did a great job and made one important point--how poor the tests are. Her story showed how serious and disabling Lyme can be and that was good.

BUT! So much was edited out and missed. For instance:

Finding a doctor willing to treat is tough. AND
Why there aren't enough Lyme docs BECAUSE
They're run out of business just like Brooke's doctor. Imagine! For getting people well you get the boot.

The one image that sticks in my head is the bag of pills Brooke took in a day. THAT will hurt us.

Why don't we write asking ABC to make and run a show with what was cut??

Could have fooled me with Tim Johnson. His message was about what I expected, toeing the IDSA line.
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Jellybelly
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I was touched also by when she brought up the children. I even noticed what looked like a little bit of a quiver in her chin as she completed this statement.
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RoadRunner
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read 12:42pm post
sad story

RR

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"Beep Beep"
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Parisa
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Please post comments on the story and also send a comment to the editor.

This is what I sent to the editor:

Lyme disease is an epidemic but it's not recognized as one because the patients are misdiagnosed with MS, ALS, autoimmune disorders, mental disorders, etc.

The doctors who should be diagnosing the patients are ignorant in how to diagnose the disease, if they do decided to test - the tests are inadequate and if they do decide to treat, they are faced with losing their medical license for trying to treat a bacterial infection with antibiotics.

Do doctors who treat tuberculosis lose their licenses because they treat with antibiotics? Why do we have to fight the very system that is supposed to be helping us?

My husband became seriously ill two years ago. We live in California and the doctors here don't really believe in Lyme disease.

One bright urgent care doctor did test my husband about four weeks after he became ill. The test came back negative and we were too ignorant to follow it up despite the fact that at the bottom of the sheet it said he should retest.

A year later, we had the test repeated and it came back positive. My husband has been treated with antibiotics for nine months now and is maybe 20% improved.

He lives in constant pain and there isn't a part of his body that isn't affected.


Below is a site that lists testing for Lyme Disease by the federal government at military bases. Despite what the doctors say, Lyme disease is in California and most states as well.


http://members.utech.net/users/10766/003.txt
Posts: 984 | From San Diego | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
Foggy
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This would be a great 20/20 or the aforementioned 60 Minutes so the entire story could be explored.

[ 28. August 2007, 08:51 PM: Message edited by: Foggy ]
Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
kelmo
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I thought she was interviewed for five hours by Diane Sawyer. Will that interview air later?
Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by Lymeblue:
Hey guys check out now the new links posted on ABC web even LDA link appear and other great links...LOVE IT LOVE IT.....http://abcnews.go.com/Health/Germs/Story?id=3530027&page=4
Making the link "clickable"...

http://abcnews.go.com/Health/Germs/Story?id=3530027&page=4

--------------------
--Lymetutu--
Opinions, not medical advice!
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Ann in CA
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The problem with that link is that one is IDSA and another is the neuro site (can't remember the actual name) that slam long term abx treatment. I emailed ABC and asked that ILADS and lymenet.org be added for some balanced coverage--hasn't happened yet.

At least ILADS and lymenet were mentioned in some of the comments.
Posts: 287 | From Northern California, USA | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
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