posted
Perhaps anything considered "deragatory" toward their "medical expert" is being removed?
Posts: 212 | From Eastern CA | Registered: Apr 2007
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Contribute | If you would like to tell us more facts about this story, please click here to send the editors of ABC News a separate email with the information you have. 187 Comments | Add Yours
Next Page Why are you deleting comments? Wendy Posted by: wendygoodness 5:46 PMMark As Violation
Posts: 983 | From The sky | Registered: Feb 2005
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posted
Your comment (above) is gone, so are several of my earlier comments....but this just popped up:
"WARNING, what you post here may be edited or deleted so its best to create your post on a Word document, save it, then copy and paste it here. Continue to post it as many times as it takes to remain here, or at least read by others. Create new user names if necessary, do whatever it takes. I am outraged but not surprised. This is ridiculous, what a slap in the face! I question if I'm proud to be an American these days. Our Gov't IS NOT for the people or by the people. Our situation is sad and it will get much worse as our troops return from war. Our future as nation looks grim. Who will be healthy enough to fight for anything? I will continue to fight until Lyme gets the attention it deserves. I cannot find my previous post but I will repaste it here shortly."
Posts: 212 | From Eastern CA | Registered: Apr 2007
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posted
WELL now the posts are related to Lyme being rampant in our blood supply system....this threat is getting "acute"......as the joint pains I used to have in the past but not anymore after treatment!
Posts: 983 | From The sky | Registered: Feb 2005
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bettyg
Unregistered
posted
i posted something after listening to download; did any of you see it? guess i was to REGISTER before posting!
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Yes, Betty you have to register, but it's quick.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
I heard that posts were deleted because they did not follow the rules for the site and mentioned names and products, which could be interpreted as commercial in nature.
So, if you post comments, follow the rules and do not mention lab names, doctor names, products you think will help people. Keep to the encouragement to explore the issue further, don't include medical "experts" who have never treated the disease of chronic lyme and who are wrong on testing and most other things, as evidenced in the IDSA guidelines.
Posts: 8430 | From Not available | Registered: Oct 2000
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Lou I heard that too but my original comment was just my story and had no org info or anything- and they deleted it- I don't get it!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Here is my last post on ABC
I just wanted to add that as Lyme patient we have a duty to protect our LLMDs at all costs.
Without them we are screwed! Please do not post their names and locations or phone numbers! We dont need people going after them more than they are already.
I say we just keep posting. We are a tenacious (sp?) group of people, if we werent we would be dead by now. Just keep at it guys. We will be heard.
I am so mad right now. The more I think about this BS controversey the more mad I get. We are all suffering badly. We need help. Babies and kids are suffering. I am so sick of it.
We really need to do something, what I am not sure. We need a really strong person (like Brooke) to help us with our plight.
Is it going to take the pope getting sick or what? ( I dont wish it on him I am just saying)
What probably needs to happen is one of these IDSA docs to get Lyme and Co's and they will treat themselves a whole lot differently than the BS they preach.
I dont wish this on anyone, but people have no idea unless they have this friggin disease or their family member(s) have it.
posted
Hmmm, sorry Sarah, don't understand why they deleted your story then. Someone who has itchy delete finger?
The odd thing about the program was that they would air a segment from a patient and they follow it with so-called experts who were saying the opposite. Must have totally baffled the audience. Or maybe it was because the loudmouths like Wormser get recognized as an expert, and it is easiest just to keep calling these guys. Not very ambitious journalism.
Posts: 8430 | From Not available | Registered: Oct 2000
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bettyg
Unregistered
posted
FINALLY ADDED MINE THERE; I'M NO. 252....
BROOKE'S GOOD MORNING AMERICA LYME DISEASE 8-28-07
Thank you ABC for the wonderful GMA show about Brooke's chronic lyme disease story. It was most informative. Thank you Brooke for your articulate and succinct words you chose for the few minutes you were given.
I've had chronic lyme disease for 37.5 years; 34 yrs. Misdiagnosed by 40-50 MDs and specialists with the normal many other symptoms/illnesses: fibromyalgia pain, chronic fatigue, migraines, TMJ, irritable bowel & bladder syndrome, painful periods, GERD, food allergies of gluten: wheat & rye; and of casein: all cow's milk, cheeses, egg whites, & garlic. The list goes on.
We lyme patients highly recommend getting a western blot IgM AND IGG blood test done by 1 of 4 lyme diagnostic labs in USA! Rest don't have the correct equipment to do this sensitive lyme/tick testing!
webmaster, please make this user friendly for us LOW vision folks to ARIAL, 14 SIZE or have the opportunity to have the 2 sizes like your MAIN PAGE! I thank you for thinking of our low vision disabilities too! thank you!
I suggest ABC News do a follow-up on a recent GMA story on lyme disease, but do more thorough research to include opinions of lyme-literate medical doctors. Also, please incorporate the concerns of viewers, posted on your own website, here: http://abcnews.go.com/Health/Germs/comments?type=story&id=3530027
A personal response to this email would be greatly appreciated and show that ABC News is genuinely interested in accurate reporting of important national issues.
Here is response I just received (automated no doubt):
"Dear ,
Thanks for sending us the feedback. We read every piece of information we get from our users, and will forward your contribution to the right people here at ABC News. Please stay in touch.
Sincerely, The ABCNEWS.com team"
Posts: 212 | From Eastern CA | Registered: Apr 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
292!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Thanks Brook! Your interview was very articulate & well-done. Thank-you for being courageous to be the segment's "face" of chronic lyme disease.
It's great having that kind of person here doing local news & Hope you are soon able to get to the point of being pain-free.
john duncan
-------------------- "...reading the Meditations for long periods can be conducive of melancholy." --qtd. in intro to Meditations Posts: 122 | From San Diego, CA, California, United States | Registered: Mar 2005
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