Topic: What are your worst symptoms and what helps with pain
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
One of my biggest problems is arm and upper back pain. I can't really describe it. I get chills in the upper part of my back that travel down into my arms. My arms and hands aches constantly when I am in a big flare.
It almost feels like vice grips at times on my upper part of my body-does that make sense??
Nothing helps with the pain. I constantly feel like I have the flu too. I do find that epsom baths help a bit along with Robaxin (muscle relaxant) and a hot water bottle.
I was wondering what all you guys suffer with pain wise and what helps you the most? This way I can take some info to my new LMD on Monday and see if we can find something that helps with the pain. Motrin and such does nothing for me.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Craniosacral therapy has helped me immensely short term with mysterious pain, when nothing else would.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Back pain is one of my worst stmptoms. I take ultram & tylonol for pain. Moist heat can help for temp relief.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Deep tissue massage therapy has helped me tremendously with the constant upper back and lower neck pain.
I found my therapist at a massage school where it is about half the price. She has now graduated and goes out to people's homes which is really nice.
She said when she runs her hands down my back, it feels like popping bubble wrap. Or like rolling a tube of toothpaste and then they burst.
She was completely stumped by this. It actually takes an hour to get them all gone. They seem to rise up in layers. It must be where my toxins accumulate is all I can figure out.
Its the best feeling in the world to not have that pain after a massage. You have to find someone who is good though or they can hurt you from reading posts on here.
She has helped me when nothing else would - drugs, exercise, my husband rubbing my neck/back, my steam tent with oxygen/ozone. I've just lived with it for years and its was miserable.
Its now a lot easier to work on on my lyme protocol since my herxing seems to be in that area and I can at least reduce it by about 70% and feel good for a couple of days.
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Thank you. I actually have a great massage therapist and it does help immensely. Do any of you get chills really bad too?
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
my pain has been different cuz my back is one of the few places the lyme hasnt made me hurt.
When advil stoped working I started taking ultracet. For my middle of the road pain it made bearable. Ultracet always worked better than ultram for me. (ultracet has tylenol in it and for some reasons pain meds with tylenol always worked better for me)
Also if muscle relaxants do help you there are other ones... these probaly are not spelled right.. sorry
- Baclofin - Flexeral
I know how bad chronic pain can be. I hope you find some relief.
klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Yes, I have horrible chills that run around my chest, especially at night, and keep me up at night for hours. The only thing that has helped get rid of them is a low dose of Samento every morning (2-3 drops). When I stop taking it, they come back within a couple of days.
My worst and most life-limiting symptom by far is PSVT (a heart conduction problem).
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Nal,
I found a new miracle drug - Zanaflex. I've been on it for a couple months now, and it gets rid of my upper back, shoulder and hand pain.
My doctor had me start on 2mg at bed, then increase to 4mg, and then start taking 2mg twice during the day. I found it wore off after 5-6 hours, so I now take 2mg every 5 hours during the day, and 4mg before bed.
I'm also sleeping better than I have in about 15 years. I wake up after 7 hours fully rested, without an alarm, when I used to press snooze after 9 hours.
It made me tired at first during the day, but I found I'm not too tired if I take it with food.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Thanks Aniek. Ill check into it with my LMD today. Wish me luck!
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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