posted
Hi folks, We need to refocus on one of the most important - and easiest - activities to promote the access of Lyme patients to medical care.
PLEASE , if you have not already done so, sign the petition protesting the IDSA guidelines.
These guidelines of the Infectious Disease Society of America (IDSA) claim that 3-4 weeks of antibiotics are always sufficient to treat Lyme disease.
These guidelines have provided ammunition to insurance companies to deny reimbursement for treatment for chronic Lyme disease. The guidelines deny the very existence of chronic Lyme disease.
We are sick and , compared to powerful groups like the IDSA, we are politically weak. BUT the strength we have is in our numbers.
Right now only 28,000 have signed. That's only a fraction of the number of signature we can get if we start working on it.
Then send the link to friends and family asking them to sign.
The following paragraphs from the LDA give more explanation of the issue:
"The new IDSA guidelines published in October by the Infectious Diseases Society of America (IDSA) are already causing patients to be denied treatment for chronic Lyme disease. The guidelines have recommended against any long term treatments, listing numerous specific antibiotic classes not to be given, listing alternative treatments and even supplements not to be offered to Lyme patients. Clinical discretion has been removed from treating physicians. We ask that you, your families, and friends across the country sign this petition immediately. Lyme treatment is at stake.
"Petition Information: The petition on this website is for those 18 years and older to sign. Names and addresses will NOT appear on the internet but will be printed out with the petition when it is ready to be presented to the appropriate entity. LDA never sells names, nor shares them with marketers. The petition will be used in an effort to advance our cause at the appropriate time and will be kept private until that time. Remember, like many of you, LDA is all patients and families of patients ? and all volunteer."
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Posts: 819 | From New York, NY | Registered: Oct 2001
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
How long has this been around? Is there a way to tell if we have already signed it, without reading through a long list of names?
I can't handle that. I would just read right past my own name.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
I may have signed this already but, can't even remember yesterday so it's possible that I resigned....hope it's OK,
Tic
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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tailz
Unregistered
posted
I just signed it. If I signed it twice, oh well.
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posted
Thanks for posting this!! I have sent it to everyone I know -- including another Lyme board.
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
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