posted
I usually read but post very little. I have seen the changes over the past few months, although I believe it's been a slow progression for a much longer time.
This is just ridiculous. All of the members whose resources I have turned to and valued on this site have been booted? The ones who seem to have the most grounded, reasonable and helpful info? They have been IMMENSELY helpful to me. And now I don't know what to do.
I have seen so much nastiness, emotional knee-jerk reactions, and passive aggressiveness from members that it has been a major task to weed through all that to get to some help.
I'm saddened. And I'm upset that I will no longer receive the advice, humor, lightness, logic and support from some of the brightest stars here.
Posts: 38 | From behind the definitions | Registered: Sep 2005
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
what???!!! why??
okay, this really makes no sense to me whatsoever.
she is one of the KINDEST and most helpful members we have.
please reinstate her. this is ridiculous.
ps. michelle, you're wrong in your assumption that all of us who espouse alternative treatments are 'glad' to see sarah banned. though she and i may not always agree, i think she's an amazing person and i value her presence here immensely. she is always respectful and always kind, helpful, and informative and she has a heart of GOLD. i am incredibly saddened and upset that this has happened.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I am without words at the moment.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
here is the note she sent me, and I'M TOTALLY SHOCKED, SADDENED, AND UPSET SARAH, WHO SPENT HOURS ON HERE WITH PUB MED INFO, ETC. WAS BANNED!
Keep up the good fight Betty. Don't undertsand what is going on, but I guess I am not as worthwhile as I thought)*!
Oh well (I've been banned, no letter, no reason given.
After so many years of helping out I am a bit stunned frankly. Was seriously depressed for about 15 minutes.
Shocked. Saddened. Oh well.
Hold the fort- the newbies need you & LymeToo more than ever now-
Take care. Respectfully, Sincerely, Sarah O.
*****************
michelle, thanks for posting this as i was going to with what i received above.
sarah, who set up a 1-800 no. to help fellow lymies; who read pub-med every morning to give us the latest on her efforts.
awhile back in SUPPORT, someone asked WHAT DO YOU DO FOR LYME EFFORTS; if that reader reads this, please show your link on this thread please !
i was OVERWHELMED with how sarah has devoted her LIFE to helping all lymies and raising her 2 kids with a very sick husband!
Lou B and Jenifer, please reply to this thread WHY one of you banned her; specifically ok.
she welcomed all folks here as i do; helped get them to their 1st LLMDs, gave links galore on every IMAGINABLE SUBJECT raised, and what an ACTIVE ACTIVIST emailing here//there plus many phone calls.
lyme rallies ... she went to as many as possible including east coast from california!
LOU B AND JENIFER,
PLEASE i am begging you to let sarah come back as she is a GOLD-MINE OF INFO, USING THE SEARCH functions for manythings needed including many things for TINCUP'S big projects.
tell her specifically what she has done so she will NOT REPEAT it again. she's got a deep pockets heart, and cares about all.
she also will NOT take crap here since the boards have not been moderated as well during your absence lou. i realize it's TOO MUCH for jenifer alone to do and even 2 folks like yourself lou!!
we've been infilitrated so much this past year by trolls that have slipped thru the cracks and have made their presence known by instigating fights and absurd comments that we feel the NEED TO DEFEND!
PLEASE UNBAN SARAH IMMEDIATELY; she doesn't deserve this.
this darn lyme causing lyme rages that get out of hand ... i've hated seeing this happen on the board and to many good friends who have contributed their KNOWLEDGE unconditionally.
Lou and Jenifer, I also would like an update on the fund drive; how much is needed and how do you plan to use this money.
i do hope we can get something fixed since the major lightning strike since the board is down so much like the good OLDEN days when i joined here. THANKS FOR THE FUTURE UPDATE!
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
I don't understand. If she didn't get an email how does she know she was banned?
-------------------- ********************* RECIDITE, PLEBES! Gero rem imperialem! (Stand aside plebians! I am on imperial business.)
posted
That was sweet of her to mention lil ole me. She contributed so much to this board and to Lyme patients in general.
I do hope she will be reinstated. I'm at a loss for words as well.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I don't understand either.
One reason is that she is still showing as a member in the directory. Banned members do not show up.
If she has indeed been banned it is a sad day for this forum, indeed.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I just tried to send a PM and it said her mailbox was full.
?????
Could she be mistaken? I didn't think they banned you without a note.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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from reading your comments above, here's my GUESS! when they ban or PUT THEM ON HOLD to cool them off, when they go to log in, they can NOT. perhaps it states YOU ARE BANNED at this point.
i do NOT know! i just hear privately from many o those who have been banned!
tutu, yes, i wanted you to know that; so i included her whole note to me!
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Who on this board is so hypersensitive that they cannot accept different opinions and/or heated discussions.
With Lyme comes many emotional issues. I am praying that the "EMOTIONAL" side of this board is not controlling the scientific, medical and informative part.
It is my responsibility if I take posts personally.
Anyone who spends as much time on the board as people like Cave, Marnie, Gigi, CalifLyme, Tutu and others, are committed to one thing: Getting and Giving Lyme Info.
I thought the objective of Lymenet is to get healthy.
What has happened?
Respectfully, Peace, BJG Posts: 468 | From IL | Registered: Oct 2003
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daise
Unregistered
posted
I tried to watch your link, BettyG, but I was afraid the music would wake my neighbors!
I'm just sick about Sarah being banned.
It makes me not want to make friends here if people could be so easily banned--for no reason.
This is the United States Of America!
Sarah is important here. It won't be the same without her. She helped a lot of people.
posted
I hope it's just some kind of misunderstanding.
CaliforniaLyme is a stand up person. I can't imagine that she's done anything to warrant being banned.
If she's been banned, please allow her to return.
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
if you're reading this, sarah, i miss you already.
posted
I hope this report is a mistake. Sarah is one of the most helpful people here. She is kind. She is informative. She is funny. She is dedicated. She inspires people with her success story. She is instantly responsive and goes out of her way to help people. She has a national hotline for Lyme that she has operated out of her home for several years. She saves people's lives. I feel proud and honored to know her. I couldn't give a higher accolade to someone here.
If there are any problems, people deserve to know what the problems are and be given the chance to clear up the misunderstanding so everyone doesn't have to leave lymenet.
Posts: 13171 | From San Francisco | Registered: May 2006
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Well, I just checked member status, and she is listed as a member. So maybe there is some kind of error here. Anyway, Sarah is a major backbone of this site and should stay!
Posts: 13171 | From San Francisco | Registered: May 2006
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hardynaka
Frequent Contributor (1K+ posts)
Member # 8099
posted
Robin, I just did a 'search' on her number, the search came back 'this number is not listed as a member' or something like that.
Another member, Jimbob, has also been banned. I suspect the thread responsible for that was the one on Buhner/ Cowden, by Heiwalove.
I'm sad to know that for both members, Sarah AND Jimbob. But I somehow understand both points of views... and give reason to each of them.
I just think that things should be kept cool in open discussions here!! Lymenetters lose when people with long term experience with any protocol/s whatsoever get banned.
I hope it's just temporary like it was for previous banned people. Selma
Posts: 1086 | From Switzerland | Registered: Oct 2005
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
WHAT IS GOING ON??????????????????
It seems to me that it is time for a new forum. I'm about done with this.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
This is really shocking and unfortunate. Sarah has done so much to help people, and is a big inspiration to me and so many. Why in the world would she be banned from any forum dealing with lyme disease?
Indeed, as Sarah pointed out, newbies need lymetoo and betty and all our help more than ever now that two of the most caring and dedicated knowledgeable posters are banned.
Posts: 2557 | From home | Registered: Aug 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
What happened?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Not Sarah. Not Cavey.
What in the world is going on???!!!!
Not JimBob too?????!!!!!!
Is this a Lymenet cleaning house activity????
Please, please Lou and Jennifer, let these invaluable members back on. Please???!!!!
I shudder to think of the loss of insight, education, information and yes
Friendship We will all be missing.
We are going into the Christmas season.
I humbly ask the administrators to show some compassion and allow these banned members back.
We all need the info they provide as well as their messages of hope.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
What's disturbing about this slow quiet process is that systematically all the most active and long-standing members of this board are being targeted.
Next is: tree? bettyg? lymetoo?
I think it's time for an alternate board. Would you guys like me to look into options on the net about setting one up? Does anyone who is reading this have an option?
Best wishes,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Peacesoul
Unregistered
posted
I'm new here and been on this site less than a month and since being here a few peeps were banned. This site is so drama ridden and filled with ridiculous politics. I have no clue why anyone was banned, but it seems to me the mods or admins are on some sort of power trip.......too bad b/c this site should be about healing and healing does not include drama. I'm grateful for my other lyme site b/c this one seems too aggresive and "far out" for me
weird! oh and by the way, I thought calilyme was a great gal. She had lots of helpful info and offered her side of lyme. Which ALL SIDES are needed in order for everyone to make the right choices
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
I am dumbfounded. I do not understand why this happened. I cannot recall any recent threads where Sarah may have said anything to lead to this. Has anyone?
Yes, Ali - you can be banned without warning. It happened to NatureLover and Arrow. I was not given any information from Jenifer as to why they were banned - just that they were.
And now JimBob, too? He hardly even posts these days! (Oh, I just saw Selma's post about the Buhner/ Cowden thread, and I had not read that one for awhile.)
Well, in case I am next, it has been nice getting to know all of you the past couple of years.....
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
WHAT?!&#!%^&
This is just messed up!
I stay out of all the BS here, but this is just plain wrong!
Sarah is always a positive lovely person with TONS of knowledge and I am sick to my stomach.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
There are multiple posts to the Buhner v. Cowden thread that have been edited by a moderator. It seems clear to me that there were things written that were deemed inappropriate. But we will not find those now.
Hopefully explanations will be provided to those who were banned, and perhaps this is just temporary.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
This is only a wild guess and may be totally wrong, but what comes to mind is her posting on the guy at her workplace (or former workplace?) who was HIV positive and handsome and in her description preyed on young women where he worked. There was just enough detail in that post that the moderators and site might have been considered legally liable. Esp. because of HIV confidentiality laws. That was a thread I contributed to as someone posted a case in Illinois involving AIDS.
Have no idea about JimBob I always enjoyed his posts.
Strange times.
Posts: 2276 | From united states | Registered: Jun 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by Truthfinder:
Yes, Ali - you can be banned without warning. It happened to NatureLover and Arrow. I was not given any information from Jenifer as to why they were banned - just that they were.
For the record, "Nature Lover" and "Arrow" were NOT long time LymeNet posters like Sarah. They were not activists who devoted most of their days to helping every new poster who appeared here to find their way.
Rather, they were two people who materialized out of nowhere for the purpose of posting on the "miracle mineral" thread.
If they made any other contribution to LymeNet, then I apologize -- I must have missed it.
Sarah was not one to say "What has LymeNet done for me lately?"
She was one to say "What can I do for LymeNet today?"
HUGE difference.
Posts: 3193 | From Northern California | Registered: Apr 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
anyone wants to know what happened I would ask moderators about it through emails.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I am a newbie, and Sarah was an incredible help to me in private emails none of you saw.
I think she was helping people non-stop.
If she was banned for doing something wrong, I believe she had no idea it was wrong.
I don't know how to reach the moderators...but please take this suggestion.
Post something at the top of the site explaining what should not be said on the site. We may be losing so many people because the don't know these rules.
Then let Sarah and a few other core members, and much needed helpers, back on and watch them. If they do not do it again, then we have all benefitted.
Moderators, please consider that many of the people entering this site are newly infected and need correct and clear information FAST so as not to become chronic and she was a key person giving it to them.
Is there another blog were those lost to us are going, please someone post this information.
Thank you.
[ 21. November 2007, 10:41 AM: Message edited by: Momfromtexas ]
Posts: 349 | From usa | Registered: Oct 2007
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Michelle, I realize that those people were new, but my point was that within the past week, other people have been banned with no explanation. I don't think it is particularly good SOB (standard operating procedure) in either case, do you?
And for the record, the new members did not ``materialize out of nowhere''. The evolution of how they got here is evident on other websites with connections to LymeNet members - NatureLover in particular came here by connecting with another LymeNet member.
Hey, Tree - I already tried that. I did receive a reply, but no information as to what happened or why.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
This has to be a mistake here. Sarah's posts are incredibly caring, tactful and helpful to all. Also, she is an incredibly encouraging person who gives those like myself a lot of hope and provides invaluable insight. What in the world is going on?
When longtime members who help people day in and day out with compassion and valuable information are suddenly banned, the entire board deserves a public explanation. IMO.
Posts: 621 | From US | Registered: Jun 2006
| IP: Logged |
posted
When I first came to this board I was extremely concerned about my illness and did not know where to go or what to do next. That was until I received a private message from Sarah. She has been extremely helpful. I am stunned by the news this morning. Sarah was the beat at the heart of this forum. Thumbs down to this site.
Posts: 17 | From Michigan | Registered: Nov 2007
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-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Truthfinder:
Hey, Tree - I already tried that. I did receive a reply, but no information as to what happened or why.
It takes me sometimes a couple to 3 days to get a reply and this is thanksgiving weekend so it may be longer?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
I already got a reply, Tree.... (see above)
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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